What foods are you eating to reduce recurrence?
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Well see yogamama, I don't crave it at all anymore so I've lost no joy. Before, it was almost like a sickness--I could not stop thinking about sweets and I hated being so overweight, so in many ways my joy has increased.
Also, I'll bet you really think it bites that you got cancer when you were doing all the preventative stuff and I don't blame you. But the thing to keep in mind is that the reasons we all got cancer are as individual as we are and intuitively I felt that my sweets addiction, compounded with an amazing amount of stress, was a big part of my problem. However, I don't think it's the answer for all of the rest of you. Some yes, but not all.
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Yogamama...my cancer evaded detection for 8 years according to my surgeon, but I know it's been closer to 10-12 b/c I have some in my back and my back has bothered me in the place where the cancer is for a decade, yet it didn't even begin to show in my breast until 8 years ago (when I began having probs and getting tested).
I believe in eating anything in moderation and am proud to say that we are eating much healthier and less sweet. I eat a wider variety of things that way. I *did* cut out soda with HFCS and now only drink the occasional Jarritos sodas which are made with sugar only. I've changed my palate there because now, after a few sips I'm done with the soda. I hate wasting half of one or sometimes more, but I enjoy the little I drink.
Like Sciencegal, I too have a weakness for (as hubby calls them) "salty, crunchy things" though my craving for sweets went up when I started menopause.
I see all the different diets happening here and IMHO if you feel good and that you're accomplishing something with whatever diet you choose then that's half the battle won because you're feeling positive! That keeps the joy in our lives, and we need all we can get. I sure do
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thanks for sharing your experience yogamamma...wish there was a magic bullet. I guess we are all just trying to figure out why we got cancer and how we can prevent it from coming back. I've always been pretty thin but was shocked to find out my BMI was 33 about 1 1/2 years ago. I am post menopausal and at the time weighed 125-128. I cut out most wheat over the past year and went down to 118. Then got my BC diagnosis recently and lost about 10 lbs so I'm currently around 108. Haven't had my BMI checked since it was 33 around 1 1/2 ago. Curious what it is now. I've heard that the estrogen likes to hang out in our body fat. Funny I spent 13 years putting estrogen in my body (bio identical HRT)...now I'll spend the rest of my life trying to block it.
Interesting thread...always looking for ways to improve my overall health.
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Good for you for losing weight Nash! I gained about 20 pounds through all my treatments because I was pretty sedentary, although my diet had improved. And all the steroids. I have lost it now but it was a struggle.
There was just a study out saying that exercise and improved diet could actually reverse early stage Alzheimer's disease, I hope so for cancer as well. But none of us really know why we got this- we cant beat ourselves up with wondering, just do our best to be healthy and move forward!
Thanks for all of the inspiration.
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thanks science girl. I wasn't trying to loose the last 10 lbs....it was a result of the stress of learning I had BC. No appetite.
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I am sorry. are you doing better? It is a scary adjustment period for sure. Your body needs good nutrition though, for this fight- Please be sure to take care of yourself okay?
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thanks science girl. I'm getting there. Lumpectomy is done and I start internal rads on 10/25....done by Halloween. Stress is lessening and appetite slowly coming back.
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Cee, I am very sorry about your DX. You say it started showing in your breast 8 years ago. How do you mean?
As for whether it is lobular of ductal, ask the doc for a copy of the path report. The information is in there.
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Momine, my breast began (occasionally) bleeding in 06 but stopped and then leaked clear fluid occasionally. It took me nearly 2 years to get that checked out and when I did I wasn't bleeding anymore. GP did exam and took sample of fluid which came back negative for cancer. I had a number of mammos - all clear, over the following years. I figured it was nothing and was told all was well. In the last 5-7 yrs a low backache began that I complained about and X-Rays were done. Nothing, not even arthritis.
In 2012 my nipple started to invert and I moved up to US's along with my mammos - negative findings, BIRADS 2, which eventually became a 3 at the very end.
In late 2013 I found a lump in my armpit.
2014: May-Sept: Core needle biopsy found cancer.
CT (full body, negative for cancer); MRI (breasts - a small amt of thickening of tissue noted, but no tumor - suspected cancer and we already knew it was BC at this point); more US and mammos, all negative for cancer; Nuc bone scan, negative for hot spots/mets; PET - cancer all over right side, incl. lower back, where I've had pain for years but was told it was a part of getting older.
My former surgeon feels the cancer began when my breast started bleeding, so, 8 yrs.
It's clear I've been living for quite a while in Stage 4, with no treatment. I have my path report for the biopsy but there's nothing on the type. I never had any surgery for further Dx.
Mods: I am answering a question and not trying to hijack this topic
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Cee, I am similar, except I managed to catch before it spread further. It seems very strange that it does not indicate lobular or ductal in the path, you should ask your doc. However, everything you describe points to lobular.
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I am new to this forum, but have started looking at all the forums since my BC recurrence earlier this year. I went almost three years without recurrence and had my port taken out about a year after first treatments because my oncologist thought I was doing fantastic. Needless to say, after this second recurrence, I decided to get more than serious about my health. It is so interesting to note (and puts a smile on my face
) when I read how so many of us have researched the exact same things. It's a true "wake-up" call for everyone, not just those of us affected by breast cancer.
My health regimen includes using myfitnesspal.com as a way to post all of my intake for the day. I do a 40% carbs, 30% protein, 30% fat ratio, which shows how many grams in these areas I should take in daily. It also allows you to input your exercise and water consumption for the day. I walk 4 miles every day, 2 in the morning, 2 in the evening. I do a brisk walk, doing a mile in 15 minutes approximately.
As far as food consumption is concerned, I try to do as much organic as possible. I shop at Krogers and use a majority of their SIMPLE TRUTH products, which do not have nearly all the added byproducts and chemicals in them. I have been reading ENTER THE ZONE by Barry Sears, as well as his other book, THE ANTI-INFLAMMATION ZONE. As I understand through research, it is very important to keep glycemic levels down to avoid inflammation, which can greatly reduce the power of your immune system to fight off disease. I eat steel cut oats, whole grains, fresh fruit, and quite a bit of chicken, as well as salmon . According to Dr. Sears, it is important to keep a good balance between carbs and protein, so that the proteins help offset the carb sugar spikes. And, even though natural fruit doesn't appear to process exactly the same as refined carbs because of the fiber content, sugar is still sugar, so I make sure I balance between carbs and protein. I drink probably about 3 glasses of water a day (hate water
), so I'll add some lemon occasionally to help flavor it and to detox the liver. Even though all city water maintenance workers will tell you that our water supply is checked and is safe, I don't really believe them. Their idea of "acceptable" and mine are probably far apart. As a result I use mostly bottled water or water I boil on the stove to remove some of the trace minerals naturally found in our water supply.
I use my microwave, but if I fix any kind of food that comes in a prepackaged bag or tray, I take the food out of them and use a regular microwavable plate. The chemicals in the plastic can be toxic over time. If I grill outside, I try to make sure the food is not "charred" as the burnt on such things as hamburgers and hot dogs can be carcinogenic.
One thing that I really wish is that some of our oncologists used more integrative treatments. I think the job of every oncology department should be to give you more information after treatment about how to make yourself healthier to avoid recurrence, instead of us lay people having to rush around trying to do all the research work totally on our own. Obviously they go to seminars that discuss these sorts of things. I must say that my road of research has been most interesting to me, and I don't regret having done the research.
I also wish that if a mammography center knows you have dense breasts or fybroid cystic breasts as I did, they should consult with you about the options of possibly having breast removal done. That was never discussed with me ever, and apparently these could be definite warning signs for possible cancer development. I would have had mine removed in a minute had I known then what I know now.
I do believe now that there is a definite correlation between a sedentary lifestyle, environmental factors, and cancer development. I'm doing everything possible to see to it that I am the healthiest that I can be to fight this latest recurrence. ER- PR- HER2+
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Short note to Cee: in your profile you indicate ILC so you know it's lobular? I agree with Momine, it certainly sounds like it from your description. Lobular is usually very slow growing. Mammograms miss it since it does not clump together. I can imagine yours had been there a very long time. Mine was too and I will ask for not only the mammogram but an ultrasound and possibly an MRI in 6 months. That should be the usual route.
Teakie, I'm with you on the lack of knowledge that oncologists have of integrative treatment. The traditional allopathic approach is all 'bomb the gaza strip' and nothing about how to mitigate any damage to the rest of the body and NOTHING about how to properly rebuild and protect it from recurrence. They just give the most rudimentary instructions on diet (maybe) and their idea of complementary approaches is acupuncture or yoga/massage or similar (which are ok but are NOT integrative oncology). It's absolutely maddening with their deliberate ignorance, their hubris and arrogance when it comes to this type of information. My oncologist (which I never went back to see...no need thank god) had never heard of DIM. Probably never heard of most of the supplements on the following lists.
Thank god I found an integrative doc who supports me totally on this and he's supportive of the LEF.ORG protocols:
http://www.lef.org/protocols/cancer/cancer_adjuvant_therapy_les.htmwww.lef.org
http://www.lef.org/protocols/cancer/breast_cancer_les.htm
http://www.breastcancerchoices.org/iodine.html
http://www.lef.org/protocols/cancer/cancer-critical-factors/page-01
He's had me add colostrum powders, lignans and idodine to these lists. I find I cannot take all of them ... digestion too weak but picked a core list and alternate days.
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Chris: Thanks so much for the links. I had no idea that site was available. I have bookmarked all of them for study.
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As far as the kinds of foods that I eat to prevent recurrence are the following:
I drink Kefir strawberry as it is a probiotic for your digestive system and antioxidant. I also drink Odwalla 100% carrot juice, steel cut oats, organic fruits and vegetables, more chicken and salmon (much less red meat), legumes, cruciferous vegetables like brussels sprouts (love'em
--my favorite), broccoli, and cauliflower. I incorporate mushrooms, fresh raw tomatoes, red/green bell peppers, onions, fresh apples, some oranges, no bananas, seedless grapes, blackberries, raspberries, cherries, whole grains, spices like curcumin, cinnamon, ground flaxseed, and water in my diet as well. I limit specifically processed packaged foods as much as possible and try to go with mostly natural foods. I buy a lot of Kroger's SIMPLE TRUTH products because they don't have nearly the additives other products have in them, and the Simple Truth items are available throughout the store for almost everything from coffee to meat. Recommended Vitamin D levels are around 50, so I take (2) Vitamin D3 2000 units each daily to maintain that level and a Calcium pill. But, along with the food, I exercise twice a day by walking 4 miles briskly (1 mile in 15 minutes) (2 laps in the morning, 2 in the evening). I think being active is just as important as the food. Let me also say that I'm no saint as far as following these rules to the very letter. I'm like anyone else--there are days that I might "crave" something that is not really good for me. I've heard that if you follow a stringent diet all the time and never eat anything that you really crave, you go instantly crazy, and they have to lock you up! But seriously, I try to follow for the most part a somewhat regimental diet and enjoy the foods that I prepare.
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I really appreciate your sharing of what foods you are eating to prevent recurrence. My main goal in the year since my BC diagnosis has been to lose fat by eating smaller amounts of only what I really like, and to increase my walking by counting steps. I've lost all desire for sweet things and crave stuff that is crunchy, tart and flavorful. I'm down 53 pounds and now in the good BMI range for my height. If I do have a recurrence, I will know that I've done everything I could have done to avoid it.
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Chris G: I have not gotten anything from my onc - just guessed with my symptoms and I think it's ILC. I think I'm going to have to find a new onc b/c now that he knows I'm doing alternative medicine, when I ask questions he just tells me to "look it up" which I think is crap!
Can I ask you a question? I agree that this cancer seems very slow to grow, and indeed I likely wouldn't be here now if it were not. But when I called my onc's office to ask about the stage and tumor grade, the answer confused me. They said stage 4 and yeah, I knew that after the PET. But then they said "aggressive, high tumor grade", which I assume means grade 3, but that's "poorly differentiated" cells. My biopsy says I have poorly diff cells too. But doesn't that mean the cancer I have is fast growing and aggressive? That doesn't jibe with having had this for so long. Can you (or anyone) clear that up?
My PET scan SUV numbers are high (I think) - the different spots have numbers anywhere from 5-15).
Teakie, those Simple Truth products can be misleading. We used to shop at Ralph's (Kroger co.) and right now they're all about those things in the lovely green and white packaging. I am definitely NOT telling you to change what you're comfortable eating, but Google something like: is the simple truth brand really organic, and see the results. I guess they've been in hot water over labeling, JUST like Trader Joe's, JUST like Whole Foods, JUST like Pepsi's Naked brand juices.
I didn't want to read too much about this b/c I find it too upsetting, but apparently Kroger also gets its chickens from one of the most inhumane chicken farms, even for their Simple Truth chicken, despite the label reading stuff like cage-free.
The sad fact is that (for those of us who live) in the USA we have 350 million + people and it's simply impossible to deliver food at the peak of freshness without putting something in it. We shop at Fresh&Easy and yes, they have food somewhat better than the regular markets. I LOVE their "To Go" dinners but, they last, perfectly fresh, for a week. I know something is in there LOL!
I discovered their bottled blueberry juice and drink 2 4oz glasses per day. It's really good!
When Wal-mart got in to the organic market I knew the quality of organic would go down and now, everyone slaps "organic" on their packages. I've read that unless it says 100% organic, that it isn't completely organic.
I have to confess that I take the term "organic" with a grain of salt anymore. I eat healthy/everything in moderation and always have - got cancer anyway. See Yogamama's comments earlier.
Where cancer is concerned, I don't know what to believe, whether it's treatments or diet or whatever. So many conflicting stories and at the end of the day different things work for different people. It does my head in worrying about it and frankly, I have enough to worry about. Everyone eat and do what feels good for YOU. At least you stay positive that way and staying positive is important
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Hello Cee,By all means, change your onc. He is not being forthcoming with you. He should have given you your pathology report by now! And you should not have to 'look it up' Sounds like he has a bit of an attitude.
Here are links you can use to assess what they're telling you (the little they are telling you...get the path report!!!)
http://www.cancer.gov/cancertopics/factsheet/detection/tumor-grade
http://www.questdiagnostics.com/testcenter/testguide.action?dc=TS_Ki-67
http://www.cancer.gov/cancertopics/factsheet/detection/staging
You need all this information... if it is aggressive then you'll just have to be aggressive in fighting it. If it were me I'd use every arsenal I could think of.
Good for you in including alternative methods also.. cancer requires a 'complete' approach. I would get expert guidance on the alternative supplements, etc. and when to use them if you're still in therapy (a good integrative doc or a top notch naturopath).
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Oh, thank you Chris for those links. I can't wait to read them
I do have a path report, for the core needle biopsy I got and it said the mass was made of "poorly diff'd cells". I've had no other surgery to get a path report for and have declined chemo in favor of trying something else. Maybe he doesn't know what kind I have. I thought I was getting surgery but he says b/c I'm stage 4 it would be pointless so maybe I will never know. I am just confused over "slow-growing cancer vs high grade aggressive tumor cells". It can't be both! (I don't think it can be both).
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Cee if it's poorly differentiated, that type is normally not slow growing although with your history you've posted here and their inability to detect this cancer it does suggest ILC. Yes, read the links and compare with the path report. Look at the KI-67marker. I'd be surprised if he does not what kind it is ...maybe he is just not explaining it to you. It's not clear what options you've been presented with or if you're pursuing any treatment at all. -
Hi Chris,
My post about what I'm doing is in the alternative medicine forum. I've been deliberately vague here because it's the wrong forum and I don't wish to upset or offend anyone, and was trying not to take this thread too much more off topic
Thank you for coming to my rescue with things to read. I'm grateful for the help!
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Teakie said: "I also wish that if a mammography center knows you have dense breasts or fybroid cystic breasts as I did, they should consult with you about the options of possibly having breast removal done. That was never discussed with me ever, and apparently these could be definite warning signs for possible cancer development. I would have had mine removed in a minute had I known then what I know now." I don't agree with this. I also had very dense breasts and I still have breasts since I've chosen the 100% holistic route, but they have greatly lost their density. I don't know whether it's the 40 lbs weight loss or the fact that I take supplements like DIM, iodine, and Brevail, but I have lost almost 3 cup sizes--from a DD to a B! I like them much better now and I can see my feet!
I would not count on the fact that your onc goes to conferences to learn about CAM--chances are the conferences sponsored by the drug companies are a lot more glamorous and fun. I'd say that probably only the most interested ones do so, and they are out there--even out here in the sticks, though I go to St. Louis to see my holistic doc. BTW, my doc recommended the Zone diet to me as well.
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I just have to say it, Pipers--What better excuse for some serious shoe shopping than newly visible feet! Big congratulations on your weight loss.
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Teakie, awareness is finally growing. I thought you might find this website interesting:
It is my understanding that women are supposed to be told now if they have dense breasts. My BFF just got her "all clear" letter after having her mammo, but now at the bottom of the letter it warns her that she has dense breasts so she knows to ask for additional tests, like the diagnostic (Not screening) mammo and an US.
Here's a blog post talking about density:
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In honor of breast cancer awareness and to support those who are going through a hard time or know someone who is, I wrote a blog post on a few foods that help to strengthen your body so you are less susceptible to breast cancer. Hope this is helpful! bit.ly/1utg11i
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Bosum blues, how do you mean 20lbs underweight? What is your BMI? As long as your BMI is 18.5 or more, you are ok.
But, if you need more calories, then nuts and nut butters can be helpful. Olive oil. Bigger servings and make sure to eat something between meals, even if it is not a lot.
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good advise momine, lots of nut butters are very refined sugary though, be sure & read the laels. gary null says he's a big fan of potatoes. especially sweet potatoes not cooked too soft. long ago he said to take out the potato sprouts the solanin, & I still do that. now he says make cuts into the skin before baking so the interior gets well baked
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Abigail, all the nut butters I buy are with no added sugar or other sweeteners.
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Bosumblues, that can be hard. If you need better appetite, then weed is not a bad idea. You can also get protein powders that are not soy-based. Check your local health food store.
What is your BMI? Also, can you switch to another medicine? What does your doc think?
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Bosum I agree with others nuts are good source for you as well as avocado - lots of omega 3 healthy. Also I would cut on diet now if you are tso underweight and try to eat healthier but not as restrictive as many cancer diet.... I was loosing weight too and each week I saw there is less and less kg on the scale I was fricking... I ate and would still loose weight so I figured I am stressed out by diagnosis, surgery and additionally about weight and the very very healthy diet is not helping now, I added more eggs (my cholesterol was fine) more nuts (almonds help on stomach issues when affected by chemo or so just peel skin from it) oats, bananas have more calories too
I decided I need to get in the shape and then be more restrictive with diet, so far I am at least keeping my weight not loosing it further
Here is also link I found - it is to point out calories in healthy food for people to consider when loosing weight but you can use it to gain it
http://www.care2.com/greenliving/9-healthy-high-ca...
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Bosumblues: there is a thread on protein shakes. https://community.breastcancer.org/forum/86/topic/...
I use Naturade Vegan Smart all in one nutritional shake. It is dairy/soy/gluten free. I get it at the Vitamin Shoppe.
there are a few other brands too, just can't remember them, but I think they are mentioned in that thread that I linked above.
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