INSOMNIACS place to talk in the wee hours

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  • badger
    badger Member Posts: 34,614
    edited July 2014

    hey Owls, been off the boards all week and see I've missed a lot.

    Shocked and sad about FBB.  Hope our cards bring some comfort to her family, knowing how well-loved she was, instead of adding to their grief.

    Susan, sorry new chemo sucks, hope you're feeling less yucky today.

    Patty, glad the RFA worked and you are finally pain-free!

    Tip for iced coffee, use coffee ice cubes.  Put cold coffee into an ice-cube tray and freeze it.  That way it doesn't dilute your iced coffee.  I also use a one-cup pour-over filter cone and it makes the best coffee. 

    Love you ladies, welcome MammaRay and Stix! ♥ 

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  • Nettie1964
    Nettie1964 Member Posts: 759
    edited July 2014

    Good Morning!!  I'm just checking in this morning, probably still going to be hit and miss for me for a while!!  There are a few other sites that I have been lurking and I just stopped in to check them!!

    You ladies have been a busy bunch!!  No way I could ever catch up, so on days when I'm here I'll just pop in a second and say hello and when/if I get back to full swing you will know it!!

    I did see that Chevy had asked about me, thanks!!  and that Sas told her I was taking a break, which is true, thanks Sas for letting her know!

    I do miss all the chatter here, but just need a little space!! 

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  • 4sewwhat
    4sewwhat Member Posts: 2,093
    edited July 2014

    Good Morning Girls!  I've een off and really busy too.  Not gonna lie, been in the rabbit hole a lot too.  Come out and see all sorts of chit going on......................................

    So upset about Phylliontheroadtripforcrappyreason and just stunned and sad about FBB.  I am 48 too, so sad, so scary, so unflippin fair :0(

    Blondie I so respect what you are doing and really wish you the best.

    Susan, you are a tough cookie!

    I am sorry I can't comment personally for everyone, I am still trying to ketchup But I pray everyday for peaceful days for everyone here.  I love the spirit of all the girls here!

    It' back to school for the teachers week so I am feeding 600 this week and 300 next week, so off to work for me.  But first..............

    image

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited July 2014

    image

    Here's Bradley again, already smiling when you talk to him.

    Susan, glad you're feeling better already. Don't push it.

    Tang, sorry you're in a mood. Hopefully it won't last long. Otherwise, how you doing, drain out yet? I'm sure post a big YIPEE when that happens. As much as we hate the drains, be glad it's there. Can you imagine all that fluid building up inside?  (Oh yeah, you did!)

    Today I have to work on a newsletter for my quilt guild, that's my job. It's the third year so I'm not going to do it again when this term is over. 

    It was 103 yesterday, suppose to stay warm all week. We get some clouds but all that does is causes lightening in the mountains. They had a big fire start yesterday. Makes for yucky air quality. Hopefully in a couple more months it will start raining if we aren't all fried to a crisp!

    Have a good day all, I get to go to another play, this time South Pacific.

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited July 2014

    Well Susan, I was already to say something about you being normal, but then you said not to, so I didn't!  But I will later....

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2014

    NETTIE, On the medical stuff you do have a reason to talk with your doc's,  ABSOLUTELY supported by ASCO guidelines and the info from Spine -Health.

    ASCO sections in the boxes say that scanning is not appropriate if the patient is asymptomatic. -------your very symptomatic. You have pre treatment back pain that got worse after treatment. The MO sent you back to PCP. PCP has dropped the ball big time. You have a lifelong spine problem. No radiograph evidence of change. Please, review Spine-Health link. You are at high risk for Facet Syndrome. I didn't put a link to that, but put that phrase into the search box on Spine-health web page and it'll bring it up.

    The chiropractic therapy could actually aggravate your spinal problems if your spine has changed. The long distant past films that the chiro doc did, doesn't tell the story of what your spine is like in 2014. The fact that you can't even remember when the films were done tells me they are very old.

    Chiro's in order to get paid have to have done films. The bad part is they can take films and use them for a basis for payment for years and years.. The insurance company doesn't demand recent evidence. Your films could be 10 years old(whatever age). Not good. Particularly when you have a change in symptoms.

    The definitive test for your spinal evaluation is the MRI. Adding that you may ask for with and without contrast. It'd be a stretch to get a bone scan or PET. Your care at this point has put you at futher risk of spinal injury.

    Hope this helps------------- coping this section to your box, original sent by PM

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2014

    Nettie if you somehow can get you to the spine center in Plano or Fort Worth. Their going to know the best how to evaluate you.  I'll compare it to my thyroid treatment. The area docs did okay, but the BIGWIG doc at Moffit had a complete different evaluation method and treatment protocol. EVERYTHING was different with BIGWIG doc.  You will be more satisfied overall by going to the spine centers that manage scoliosis everyday. Your PCP has already demonstrated she doesn't have a clue. You would be battling to get her to respond.

    The diagnostic imaging departments at the big centers will even take better films.  Way better films. They will likely identify each level with very fine measurements.for evidence of spinal nerve impingement. Identifying width of spinal canal. Which would identify any cord impingement. Lastly, how the spine impacts the thoracic cage and heart.

    Nettie put this all in the boxes on page 523 in case you want to run it off.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2014

    Okay everyone when I put Chevy's quote in the topic box the birds didn't fly around.  Is anyone seeing what I'm seeing?

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  • susan3
    susan3 Member Posts: 3,728
    edited July 2014

    love baby pictures...beautiful smaarty !!!!!!

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2014

    Nettie--a teaser--if you read the Spine Health pages you will find an answer to why your back hurts when you stand up. I had not read or heard this explanation before. Nice for me too!

    Smarrty, Bradley is soooooooo cute

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited July 2014

                            MamaRay & Stix

    image

    Wonderful to come here & read everyone's posts...

    Sas, thanks for the shout out. Golf tourney was good, I was trying to enjoy the beauty & soak up all of Mother Nature. Last year I had to cancel because of bc. 

    Losing FierceBlueBird has been so very hard. I will look for an obituary from her town. Also, if anyone wants to send a sympathy card, I have her address. 

    image

    Smarrty, Bradley is a sweetie....

    BBL....

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  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited July 2014

    Just a quick comment. Sassy the Spine Center at Plano (affiliated with Baylor Scott & White Health) is where neighbor and other neighbor's daughter had surgery. I wasn't going to mention anything specific but since you did. One did great and other not so much but one has many other problems besides scoliosis. I think next door is near my age, neighbor's dtr. prob early 50s judging by kids' ages. Surely there are specialized hosp in LA. What is the Ft. Worth spine center your thinking of? I do know Baylor does spec. spine surgeries at the Baylor Surgical Hosp. at Ft Worth (separate from main hosp). Church friend had surg. there evidently pretty intricate.

    Gone for food.

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  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited July 2014

    good afternoon ladies 

    I feel GREAT !   Have had a wonderful couple days. Kids went to TX with mil. Dh and I get 1 week alone.  We have never ever had that.  Woohoo.  No pain !!!  I feel so alive.  I lost over 1 year laying in bed all the time - now the pain is gone I got a lot if stuff to do. Went clothes shopping last night. I have lost some weight and nothing fits. Gotta wear a belt and still hold my pants on eith one hand.  Size 2 clothes are too big now so I had to go to the little girls section. Actually they had some  pretty fly stuff there.  

    Susan - sorry new tx is being so hard on you.  Hoping they are causing those dang cancer cells to curl up and die and for them to  hang the white flag in surrender.  

    Blondie - hugs.  Are you feeling any better ?  How long for the chemo to be out of your body ?  Hoping you are up doing something you enjoy. 

    Chevy - love the double rainbow. Is the fence painted now ?  

    Smarty - that's Bradley is adorable.  Love the dress. Thanks for the pic. Wow you look very tall and beautiful  

    Badger - thanks 

    Nettie - hello. Glad to see you are still checking in some. Hoping the back pain is getting better. Back pain sucks !!!! Controls every movement of any part of our bodies. 

    Hello to all I missed.  

    Hottie hoo 

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  • tangandchris
    tangandchris Member Posts: 1,855
    edited July 2014


    Susan-I hope you start feeling better...Chemo SUCKS!!!

    My drain is still in, and I'm starting to have pain again in my left "breast"...that is why the ID doc put me on these antibiotics Friday afternoon. I called them and she just called it in for the weekend. I see PS tomorrow and I know he doesn't want the drain in anymore. I was at 40 yesterday, it's lower but still alot. This morning I already had 20 when I woke up. Sucks and yes I do know what happens when it all builds up!!

    love and hugs to everyone!

    Love the baby pics. :)

    Thanks for keeping us up to date Hole

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited July 2014

    Sassy!  WTH?  I see little Blue-bird and an Owl on a skate-board....  I don't know what you are seeing!  Flying Birds?????  Sass, it's too late..... We can't save you now...  You are a gonner!  Sorry about that....

    Yes Smarty!  Bradley is a keeper!  

    HIO!  Hope you are feeling better!  So you actually DO play golf?  I am so confused.    I think a lot of us posted to FBB on one of these threads!  Yes, it's really been hard.... just didn't feel like posting..... but you know, she is probably doing a lot better flying around in heaven!    She tried her damndest, but I think there were just too many things going on, and she couldn't do it anymore......   Now she can rest... and fly with the angels.

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited July 2014

    I am in the emergency hospital with DH, for him.... Almost said I was taking him on the last post, but was trying to stay in denial about his problem... Knee that has been replaced blew up, can't walk, fever ... Arrg..... He is in horrific pain, I am freezing in here...BBL

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  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited July 2014

    Aw HoleinOne - Holding you both close in prayer. Tight hugs. Prayers for an excellent team there.

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  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited July 2014

    ohhhh  Holeinone - hope they Quickly fix your dh knee and he you both back home comfortable 

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited July 2014

    Oh MAN HIO!  I can't beLIEVE it!    I'm so sorry!  I know what it's like not to walk!  Holy Criminy!  Did he hurt it, or twist it?  I'm so afraid of that happening... I'm afraid the rod or screws will come out....  What will they do now?  

    Oh man.....  a walker I'll bet....  that's when he CAN get up!  I'm sorry....  

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2014

    Nettie, I just came back to the computer. I'm going to write the response on the board.

    hate it when I write a response on a pm in it is blocked. Won't know if this is blocked till I hit submit.

    I have a new thought--YAY It's cool. By going to the spine center. The docs have the EXTREME expertise in the musculoskeletal system.

    They will give your spine a proper look see because your spine needs to have a proper baseline exam. Remember you are going to need it to be in great shape when you get old.

    You, also, can express your concern about METS. They are the pro's on skeleton. I can really see that they would be mush more cooperative on covering all bases. It's there business. No stone on turned.

    Yes, I'm trying to get your hopes up. You have a right to have your concerns listened to and evaluated by a doc.

    You have an underlying medical condition scoliosis that affects the whole body. The spine spinning as yours did was stablized as a young one. What wasn't communicated to you was that as an aging adult your condition could change. When you read the S-H.com pages. RE: Adult Scoliosis , you will read things can deteriorate. I am familiar with Facet syndrome b/c of when I worked in the surg center that also housed pain management. When the scoliosis pages described the adult scoliosis deterioration the problem of Facet Syndrome(FS) is included in the description. It was an "NO SHIT" moment. FS can only be properly evaluated by the inclusion of MRI studies.

    A symptom that is associated with scoliosis changes in the adult is PAIN. The adolescent patients don't experience pain ( that was new for me--looks painful).

    Your pain got worse after treatment--pretty sure you had rads. If the rads table was not body friendly. You had to get on a step stool. Think- about the body mechanics of the stepping, twisting to turn to sit on the table, laying on a very hard surface, Then all the mechanics getting off the table with a spine that would be prone to have a problem.

    Look you are near an answer. I know you want a break from docs, but you need that back in good shape for your old age. Give yourself the best present you can. An answer.

    I use Spine Health as a learning/teaching site. I even recommended it to DS the lawyer, to use it for his law purposes b/c it is so good.

    But when I plugged in scoliosis into google the spine centers in Plano and Fort Worth came up in the top pull of info. But there's something wrong with their web page it wouldn't load right. But they had Scoliosis in their name. Pretty specific to what the practice focuses on.

    AND your in Texas.

    Hope this goes through, but will post on the board to be safe.

    AH-Hah the link to Baylor Scoliosis Center

    http://baylorscoliosiscenter.calls.net/PhysiciansL...

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited July 2014

    Hey peeps, happy Sunday

    Patty have no idea will ask the dr. Problem is the breathing thing, that stops alot cause I have to take the concentrator with me.

    Bbl

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  • Enerva
    Enerva Member Posts: 3,162
    edited July 2014

    wow, so much is happening...  HOLEINONE hope your Dh gets well soon,

    Susan you too, sending prayers your way chemo does sucks big time.

    Blondy hopefully you will also feel better soon

    blessing I can't imagine how it is not to have your short memory, saw that happened to my mom :(,  hope they resolve it soon with the test.

    Cami nice you got to enjoy a party with your sister

    It's hard to keep up, I am trying ;) 

    Chevy I don't blame u I could be worry if I had a knee replacement too.

    I had a great walk today with a girlfriend and her dog,  it was fun but I run with her dog n we both need a nap now. I think when they got home that poor dog was going to sleep for the rest of the day. Very hyper little poodle 🐩 

    Sass, took the test advice will ask about vaccines next appointment I get.

    Hope you all have a great Sunday ;) 

    image

    Saw these are cute ;) 

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2014

    Nettie last Pm wouldn't go through. Please check page 523. All the thoughts are together in one place to run off and use with your docs. 

    Anyone concerned about me practicing med without a license. Doesn't apply. Everything I have said and written is within the bounds of the "Common Man".

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2014

    HI1 Chit did give him any antibiotics pre-op for gallbladde? Did they put him on prophyllatic antibiotics after surgery? Bodies that have replacement parts have a protocol to be followed with sub sequent surgeries. I've been out for five years, the protocol may have changed.

    Remember When folks had to take antibiotics before mouth surgery b/c of heart valve history. That was changed mid 2000's by the American Heart Association. There's still confusion about it b/c it was a decades old practice. 

    I'll look to see what the current replacement.parts protocol is:

    ---------------------------------------------------------------------------------------------------------

    THE FOLLOWING WAS TAKEN FROM THIS WEB PAGE LINK. THE KEY IMPORTANCE IS THE AMERICAN ACADEMY OF ORTHOPEDIC SURGERY IS THE GOVERNING BODY THAT PRODUCES CLINICAL PRACTICE GUIDELINES FOR ORTHO DOCS. They're like our ASCO.

    http://www.aahks.org/care-for-hips-and-knees/do-i-...

    Will I need to take antibiotics prior to seeing a dentist or having other invasive procedures?

    The American Academy of Orthopedic Surgery (AAOS) and American Dental Association (ADA) have generally recommended short-term antibiotics prior to dental procedures (1 dose 1 hour prior to dental procedure) for patients who have had joint replacements. This recommendation continues for up to 2 years after your joint replacement.

    Two or more years after the replacement, continued use of antibiotics prior to dental procedures is based on the discretion of the treating surgeon and the patient. Your surgeon will consider many factors including whether or not you are at increased risk of infection due to immune suppression (i.e. diabetic, transplant patients, and rheumatoid arthritis).

    The use of prophylactic antibiotics prior to dental cleanings and other invasive procedures remains controversial. Most orthopaedic surgeons now recommend lifetime suppression. Patients should discuss whether or not they need antibiotics prior to dental or other invasive procedures with their treating orthopedic surgeon. (bolding emphasis is mine-sas)

    ----------------------------------------------------------------------------------

    Looks like it's pre-op. The usual surgery drug is Ancef/cephalaxin. AKA Kefzol. Pretty standard for all surgeries. Doesn't look like antibiotics post op are part of the protocol. 

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2014

    Tang  ask ID doc if there's away to culture and sensitivity to be done before the tube is pulled. Once the tube is pulled, it will allow the bacteria, if it still present to build up again in an enclosed space. You already went through one rupture. Avoid another one if it's feasible.

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  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited July 2014

    Sassy - I just went thru the Baylor Ft Worth site and it finally loaded. Says pts seen in Ft Worth (some also in Del Ray Beach FL- don't understand that connection) with surg. in Plano. I had my LX at Baylor Ft Worth. Never had been in it much, no clinicals there. Think I once visited a friend who had a baby. I was very pleased with their service. Little attention to details - it was Feb and I was freezing. My sweet transporter always stopped and got me blankets from the warmer. My BS I think has a bit of reputation as a perfectionist - she does her own nuclear injections so don't doubt that might have had something to do with it. Also my gyn. is one of the orig. docs who started the new women's hosp - yes the same one I always mention - my old bud from college. Ft. Worth is not overrun with BS, 4 that I know of with a couple of gen. surgeons (friend had hers done by one).

    No Nettie's in middle Louisiana. Reread her answers - HMOs. Will read the rest.
    Baylor's affiliation with Scott&White is fairly new maybe last year. "Big Baylor" is just outside downtown Dallas. That place is a maze. I used to work for a psychiatrist there b4 I went back to nursing school 1979. Can't imagine how much it's grown since then.

    I think HI1's DH's knee is not new surg. Wasn't he out delivering ice a week or so? Could be wrong. Heat may have gotten to me - JK. 104 degrees. But has popped a few clouds.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2014

    LMG I thought Nettie said she was from Texas? Oh well if she isn't. But if she is, and you have some contacts there it might help her pick a doc :) 

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  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited July 2014

    O.K. HERE IS MY ATTEMPT AT
    CATCHING UP. I STARTED THIS TWO HOURS
    AGO. I NEED A NAP.

    Susan – glad your DH is doing well. Now
    let’s get YOU through this next treatment, with – hopefully – a minimum of SEs.
    Good news about your kids…. At least money issues won’t be one of your worries!

    Thank
    you, Chevy! I AM looking forward to
    being perfect like you someday! DH also had at least seven concussions when he
    was growing up…. Mostly from football, but one was from running into a metal
    post… knocked him out completely. One year he slept all weekend, then got up
    and went to school for the first week, and never remembered a minute of it. I’m
    just hoping the MRI will at least show a brain in my head!!!

    Cami – I adore my PCP and trust her
    completely. Couldn’t be said of my last doc, who was a total idiot. SO glad you
    had a good time at the party!!!

    Sassypants – thank you for always being our
    Nurse Nancy here! Yes, I am very wary of the big trash cans these days. They
    can suck you right in before you know it.

    Smaarty – just a thought…. If you are not
    getting anywhere with your Kaiser PS, see if you can see your Kaiser breast
    surgeon (if you like that person better.) My PS basically told me that unless
    there was an obvious defect in my implants, that his work was done. The breast
    surgeon, though, is always available to me, according to my Kaiser MO. Cute red
    dress (lookin' good!)….and yes – Bradley is adorable!

    Luvmygoats – do you do a regular sinus
    rinse? My sinuses are shaped so weird and the passageways are so narrow, stuff just
    collects in there and makes me miserable. I use NeilMed Sinus Rinse, can get it
    anywhere, comes in a plastic squeeze bottle with a rounded top, and a saline
    mix. SOOOO soothing, and ohmygosh, the junk that comes out in the sink when you
    do it! DH and I both use ours, sometimes several times a day depending on
    pollen, or bad air quality. A neti pot just isn’t strong enough to reach all
    the way up into those nooks and crannies!

    Enerva – thanks for all the pretty
    pics of the places you walk!!! I take my virtual walk with you!

    Phyllis – safe travels to you!

    Pawprint – so you are in the hot part
    of California, too? We had a power outage last night. Fortunately, it didn’t
    last too long. Once it came back on again, I told DH it would probably go out
    again thanks to everyones’ AC coming on all at once, but it stayed on. 

    MammaRay – are you able to have an LAVH
    (Laparoscopically Assisted Vaginal Hysterectomy)? I had to have a total
    hysterectomy for giant fibroids that made my uterus the size of a four month
    pregnancy. I saw several surgeons who said they were too big for anything
    besides traditional-incision surgical removal. But the Chief of the Department
    was a total egomaniac, and said he would do it. He transected the uterus inside
    of me, and brought everything out vaginally. I had three BandAids afterwards,
    and the recovery was very short. Of course, if you posted the reason for your
    hysterectomy and I missed it, I’m sorry. There may be reasons they want to open
    you up and see everything.

    Tang – so sorry you were in the
    dark place, but glad you are coming out of it. I would be surprised if they let
    you get all those vaccinations right now… your body has gone through (and is
    STILL going through) so much. Big gentle hugs!

    Hey,
    Badger! My DH always freezes the
    leftover coffee! He uses it in iced coffee, and also in smoothies for just a
    tad of coffee taste.

    4sewwhat – Cute pic!! Work?
    NOOOOOOO!!!!

    Holeinone- so sorry about your DH! Hope they find something
    simple and quickly fixable. I keep an "ER" bag handy... in it I have
    a pen and notebook, a copy of my address book, a gallon of hand sanitizer, a
    package of sanitizing wipes, and when the time comes, I throw in my iPad,
    charger, a sweater or sweatshirt (even in the middle of summer), an apple, some
    protein bars, and a water bottle. Guess I've done that too many times. Please
    update us when you can.

    Nettie- I have SO many long-term horrible spinal issues
    according to my recent MRI, but truthfully, the real pain didn't start until I
    tried chiropractic. The last time I went (years ago), DH had to help me off the
    table, and I left the building just limping and sobbing. I've gotten better,
    and have to say that acupuncture has helped me, as have other "total body
    health" changes. Hope you find some answers and relief soon.

    Hi,
    PattyPeppermint, Wren44, dutchiris, blondiex46, and
    anyone else I might have missed!

    ~
    ~ ~

    A
    note on vaccinations: The day after I got my BC dx, my PCP ordered me down to
    the nurse’s clinic to get all the vaccinations I could – especially the
    Shingles vaccine - since we didn’t know at that point if I would need chemo or
    rads. Fortunately, I didn’t need either, but I WAS impressed that the doc thought
    of that so quickly, and took care of it for me. Sadly, DH cannot get the
    Shingles vaccine now, as he is immune-compromised for life.

    Not
    steady enough for church this morning, plus, I slept in til 11am. I really don’t
    want to go anywhere til I get those MRI results. So I’ll just sit here running
    the AC… supposed to be 109 today. Hoping the power stays on!

    Have
    a great Sunday, Owlettes!!!

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  • susan3
    susan3 Member Posts: 3,728
    edited July 2014

    holeinone....oh my goodness..hang in there, so sorry....hope he is a little more comfy by the time unread this.   Didn't even know a replacement could blow out...sounds horrible :(.  Prayers and hugs your way 

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited July 2014

    I'm back..   They are opening up his knee, cleaning out the infection, putting a vac thing in... Go back into the knee on Tues or Wed... Dr. Is concerned about losing his artificial joint ..also possibly his elbow joint.. It is inflamed, they have drained both sites, analyzing the fluid. I feel so bad that I did not haul him in Friday night. 

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