Calling all TNs

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  • FierceBluebird
    FierceBluebird Posts: 758
    edited June 2014

    Homehelp, beautiful family!

    Lori, hope you enjoyed your breakfast. Still laughing over the "like who doesn't like bacon!"  LOL!

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  • Stupidboob
    Stupidboob Posts: 345
    edited June 2014


    http://fox43.com/2014/06/24/virus-kills-triple-negative-breast-cancer-cells-tumor-cells-in-mice/#axzz35lGQmNf0

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  • MomMom
    MomMom Posts: 523
    edited June 2014

    stupidboob,

    This is wonderful news as immunotherapy is cutting edge for bc treatment. However someone on the TNBC foundation website posted that it won't be tested on humans til 2016.

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  • Allydp
    Allydp Posts: 520
    edited June 2014

    LP and Curly - thank you so much. I appreciate your kind words. 

    Mags - glad you were able to finally get the scan scheduled. I hope the time passes quickly for you. You'll be in my prayers. 

    Jenjen - thanks for your reply. I'm thinking along the same lines. It would be just my luck to leave it and come down with uterine cancer. I'd rather take it and have the peace of mind. 

    Luah - congratulations!! That is wonderful news for you!!

    Sadie - thanks for the great article. I sure hope all this exciting research leads to actual therapies soon.  

    So here's something interesting. I just read an article stating up to 1/3 of TN tumors express androgen receptors, leading researchers to think about using androgen blockers much like Tamoxifan. Well, during both of my fertility treatments, I took high dose DHEA, which is an androgen. I found my lump 2 months after my second treatment/cycle. I'm going to bring this up with my BS. I highly doubt she'll have much to say considering the research is so new, but I'm curious what her take is. Despite carrying the BRCA2 gene, I've always had a gut feeling those treatments played a roll somehow. The timing of taking all those hormones and then getting such an aggressive tumor was just too coincidental. Here's the article in case anyone is interested. http://www.sciencedaily.com/releases/2014/06/1406...

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  • SweetMaggie
    SweetMaggie Posts: 18
    edited June 2014

    Luah - thank you so much for that super positive post.  Even though we read those stats on websites, it feels even better hearing it coming from someone's personal BS. 

    And thank you to everyone else for the warm welcome to this forum.  Very much appreciated!!


     

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  • Meadow
    Meadow Posts: 2,007
    edited June 2014

    Ally, You have been in my thoughts, and I did find myself wondering at one point if there could have been a connection with the fertility treatments and your breast cancer.  I am not a medical person, and yet like yourself the timing of it all did cause me to wonder if you ever did wonder. Very interesting.

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  • simplelife4real
    simplelife4real Posts: 563
    edited June 2014

    Ally, thanks for posting that article.  That's actually very encouraging info for TNBC even low androgen expressing.  I hope they do research on this quickly!

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  • Radical2Squared
    Radical2Squared Posts: 460
    edited June 2014

    Well Ally,

    You can still go either way... Jen Jen did it. I will not. I'm just doing the eggs and tubes. Though I don't have the greatest luck in the world, I'm still young enough to rock climb, go pipelining and ride my motorcycle. I'm taking the chance with the low risk of uterine cancer in exchange for not worrying about osteoporosis! Lol

    My genetic counselor didn't even mention removing my uterus and she told me I can keep my ovaries for another 4 years...on the other hand, if I continue to get my period, I might forgo the ovaries and tubes a little earlier!

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  • jenjenl
    jenjenl Posts: 948
    edited June 2014

    Radical - it's been a while since i've thought about this but i don't follow your comment about osteoporosis.  Leaving your uterus doesn't prevent osteoporosis, removing fallopian tubes and ovaries (oophorectomy) would make you more prone to osteoporosis as those create the hormones.  Maybe I'm fuzzy from the wine I had at dinner tonight :)

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  • Meadow
    Meadow Posts: 2,007
    edited June 2014

    Sadie great article on the treatment using a virus. Very exciting news

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  • LPBoston
    LPBoston Posts: 89
    edited June 2014

    Luah that is great news!

    I went to my apt yesterday for the lump I found between my breast and the Ocologist didn't think it was anything but questioned areas under my right arm so she sent me for ultrasounds - took ultrasound on the right side twice - mentioned it is probably from surgery but to be safe took ultrasound on the left side to compare (freaking out at this point, been in this situation before) then came back and said they are certain it is from the surgery but ordered an MRI to be safe.  They took an ultrasound of the lump I thought was something as well and found nothing thank God!  Stay tuned - haven't booked the MRI appt yet.  I am optimistic that it is nothing. As I said to the Onc I just don't know what is normal or feels normal anymore.  Trying to understand the new me!!

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  • simplelife4real
    simplelife4real Posts: 563
    edited June 2014

    I just read Joan Lunden's bc is triple negative.  It's good they caught it early with ultrasound.

    Joan Lunden's bc

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  • Radical2Squared
    Radical2Squared Posts: 460
    edited June 2014

    Lp, sounds promising! Fingers crossed for your mri.

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  • Stupidboob
    Stupidboob Posts: 345
    edited June 2014

    STILL CANCER FREE.......................THANK GOD and those who prayed for me.

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  • Stupidboob
    Stupidboob Posts: 345
    edited June 2014


    simplelife thanks for posting the link..................I was told she was TN but I could not find an article that verified it. 

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  • Stupidboob
    Stupidboob Posts: 345
    edited June 2014


    LPBoston....................glad all is ok right now and praying all is well on the MRI as well

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  • adagio
    adagio Posts: 982
    edited June 2014

    stupidboob - what great news that you are still cancer free.

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  • Moderators
    Moderators Posts: 25,912
    edited June 2014

    stupidboob, thats fab news, we're delighted for you! 

    The Mods

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  • jenjenl
    jenjenl Posts: 948
    edited June 2014

    YAY stupidboob....jumping for joy :)

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  • simplelife4real
    simplelife4real Posts: 563
    edited June 2014

    Stupidboob....hooray!!!  Best news I've heard all day!

    Kay

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  • Lookingforward66
    Lookingforward66 Posts: 147
    edited June 2014

    Stupidboob,

    Prayers answered. Doing Snoopy "Happy Dance". So happy for you. Take care. Keep in touch & one day at a time. 

    Marsha

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  • tekwriter
    tekwriter Posts: 216
    edited June 2014

    Flimisical I will find out two weeks after surgery on the 11th whether I have enough positive HER2 markers to recieve Herceptin or not. There was not enough tissue for a definitive answer from my biospy. I may be in the boat with with you. time will tell

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  • Allydp
    Allydp Posts: 520
    edited June 2014

    Stupidboob - so, so happy for you!! 

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  • lilyrose53
    lilyrose53 Posts: 216
    edited June 2014

    Great news stupidboob!  Yay! 

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  • Cocker_Spaniel
    Cocker_Spaniel Posts: 1,204
    edited June 2014

    Stupidboob absolutely wonderful news. Keep it up girl.  Might be time for some retail therapy!!

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  • slv58
    slv58 Posts: 1,216
    edited June 2014

    yahoo Stupidboob! Congrats on still being Ned, hope you celebrate and know we are all celebrating with you! 

    image

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  • Stupidboob
    Stupidboob Posts: 345
    edited June 2014


    thank you gang....................:)  I was really scared it was not going to be good from the way I have  been feeling.     So THANKFUL  and HAPPY!!!

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  • Meadow
    Meadow Posts: 2,007
    edited June 2014

    Sweet Sadie! Yay!

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  • Stupidboob
    Stupidboob Posts: 345
    edited June 2014


    sorry if this has been posted already
    http://blog.thebreastcancersite.com/compound-in-broccoli-kills-breast-cancer-stem-cells-where-chemotherapy-fails/?utm_source=social&utm_medium=bcsfan&utm_campaign=compound-in-broccoli-kills-breast-cancer-stem-cells-where-chemotherapy-fails&utm_term=20140629

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  • SweetMaggie
    SweetMaggie Posts: 18
    edited June 2014

    Hi Stupidboob - I'm new to this forum, but wanted to say whoowhoo!!  Hopkins also has info about broccoli (specifically broccoli sprouts) on their nutrition page.  http://www.hopkinsmedicine.org/avon_foundation_breast_center/treatments_services/nutrition.html     I searched to see where to buy broccoli sprouts, but I guess you have to buy the seeds and grow them. 

     


     

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