Calling all TNs

FierceBluebird

Homehelp, beautiful family!

Lori, hope you enjoyed your breakfast. Still laughing over the "like who doesn't like bacon!"  LOL!

Stupidboob

http://fox43.com/2014/06/24/virus-kills-triple-negative-breast-cancer-cells-tumor-cells-in-mice/#axzz35lGQmNf0

MomMom

stupidboob,

This is wonderful news as immunotherapy is cutting edge for bc treatment. However someone on the TNBC foundation website posted that it won't be tested on humans til 2016.

Allydp

LP and Curly - thank you so much. I appreciate your kind words. 

Mags - glad you were able to finally get the scan scheduled. I hope the time passes quickly for you. You'll be in my prayers. 

Jenjen - thanks for your reply. I'm thinking along the same lines. It would be just my luck to leave it and come down with uterine cancer. I'd rather take it and have the peace of mind. 

Luah - congratulations!! That is wonderful news for you!!

Sadie - thanks for the great article. I sure hope all this exciting research leads to actual therapies soon.  

So here's something interesting. I just read an article stating up to 1/3 of TN tumors express androgen receptors, leading researchers to think about using androgen blockers much like Tamoxifan. Well, during both of my fertility treatments, I took high dose DHEA, which is an androgen. I found my lump 2 months after my second treatment/cycle. I'm going to bring this up with my BS. I highly doubt she'll have much to say considering the research is so new, but I'm curious what her take is. Despite carrying the BRCA2 gene, I've always had a gut feeling those treatments played a roll somehow. The timing of taking all those hormones and then getting such an aggressive tumor was just too coincidental. Here's the article in case anyone is interested. http://www.sciencedaily.com/releases/2014/06/1406...

SweetMaggie

Luah - thank you so much for that super positive post.  Even though we read those stats on websites, it feels even better hearing it coming from someone's personal BS. 

And thank you to everyone else for the warm welcome to this forum.  Very much appreciated!!

 

Meadow

Ally, You have been in my thoughts, and I did find myself wondering at one point if there could have been a connection with the fertility treatments and your breast cancer.  I am not a medical person, and yet like yourself the timing of it all did cause me to wonder if you ever did wonder. Very interesting.

simplelife4real

Ally, thanks for posting that article.  That's actually very encouraging info for TNBC even low androgen expressing.  I hope they do research on this quickly!

Radical2Squared

Well Ally,

You can still go either way... Jen Jen did it. I will not. I'm just doing the eggs and tubes. Though I don't have the greatest luck in the world, I'm still young enough to rock climb, go pipelining and ride my motorcycle. I'm taking the chance with the low risk of uterine cancer in exchange for not worrying about osteoporosis! Lol

My genetic counselor didn't even mention removing my uterus and she told me I can keep my ovaries for another 4 years...on the other hand, if I continue to get my period, I might forgo the ovaries and tubes a little earlier!

jenjenl

Radical - it's been a while since i've thought about this but i don't follow your comment about osteoporosis.  Leaving your uterus doesn't prevent osteoporosis, removing fallopian tubes and ovaries (oophorectomy) would make you more prone to osteoporosis as those create the hormones.  Maybe I'm fuzzy from the wine I had at dinner tonight

Meadow

Sadie great article on the treatment using a virus. Very exciting news

LPBoston

Luah that is great news!

I went to my apt yesterday for the lump I found between my breast and the Ocologist didn't think it was anything but questioned areas under my right arm so she sent me for ultrasounds - took ultrasound on the right side twice - mentioned it is probably from surgery but to be safe took ultrasound on the left side to compare (freaking out at this point, been in this situation before) then came back and said they are certain it is from the surgery but ordered an MRI to be safe.  They took an ultrasound of the lump I thought was something as well and found nothing thank God!  Stay tuned - haven't booked the MRI appt yet.  I am optimistic that it is nothing. As I said to the Onc I just don't know what is normal or feels normal anymore.  Trying to understand the new me!!

simplelife4real

I just read Joan Lunden's bc is triple negative.  It's good they caught it early with ultrasound.

Joan Lunden's bc

Radical2Squared

Lp, sounds promising! Fingers crossed for your mri.

Stupidboob

STILL CANCER FREE.......................THANK GOD and those who prayed for me.

Stupidboob

simplelife thanks for posting the link..................I was told she was TN but I could not find an article that verified it. 

Stupidboob

LPBoston....................glad all is ok right now and praying all is well on the MRI as well

adagio

stupidboob - what great news that you are still cancer free.

Moderators

stupidboob, thats fab news, we're delighted for you! 

The Mods

jenjenl

YAY stupidboob....jumping for joy

simplelife4real

Stupidboob....hooray!!!  Best news I've heard all day!

Kay

Lookingforward66

Stupidboob,

Prayers answered. Doing Snoopy "Happy Dance". So happy for you. Take care. Keep in touch & one day at a time. 

Marsha

tekwriter

Flimisical I will find out two weeks after surgery on the 11th whether I have enough positive HER2 markers to recieve Herceptin or not. There was not enough tissue for a definitive answer from my biospy. I may be in the boat with with you. time will tell

Allydp

Stupidboob - so, so happy for you!! 

lilyrose53

Great news stupidboob!  Yay! 

Cocker_Spaniel

Stupidboob absolutely wonderful news. Keep it up girl.  Might be time for some retail therapy!!

slv58

yahoo Stupidboob! Congrats on still being Ned, hope you celebrate and know we are all celebrating with you! 

Stupidboob

thank you gang....................:)  I was really scared it was not going to be good from the way I have  been feeling.     So THANKFUL  and HAPPY!!!

Meadow

Sweet Sadie! Yay!

Stupidboob

sorry if this has been posted already
http://blog.thebreastcancersite.com/compound-in-broccoli-kills-breast-cancer-stem-cells-where-chemotherapy-fails/?utm_source=social&utm_medium=bcsfan&utm_campaign=compound-in-broccoli-kills-breast-cancer-stem-cells-where-chemotherapy-fails&utm_term=20140629

SweetMaggie

Hi Stupidboob - I'm new to this forum, but wanted to say whoowhoo!!  Hopkins also has info about broccoli (specifically broccoli sprouts) on their nutrition page.  http://www.hopkinsmedicine.org/avon_foundation_breast_center/treatments_services/nutrition.html     I searched to see where to buy broccoli sprouts, but I guess you have to buy the seeds and grow them.