In shock

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  • liefie
    liefie Member Posts: 2,440
    edited June 2014

    Adagio, happy birthday to you, friend! Hope you get spoilt a little today?! Hugs to you re your sister. Losing loved ones is so hard, but we are still here and we have to soldier on.

    Unfortunately I did not see the post with Nihahi's suggestion in time, but what a good idea! At eight this morning DH and I were on the lake. He took his first ski of the season, and lo and behold, got up on the first try. It was beautiful, peaceful and serene on the water with the sun shining warm and bright. Lovely. 

    Have a nice day, everybody!

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  • websister
    websister Member Posts: 1,092
    edited June 2014

    Hi everyone

    I was not able to take the time and physically reach out at 0900 as I was in a meeting but I was with you all in spirit, what a wonderful idea to do that, Nihahi - I hope we can arrange to do it again on a regular basis

    Liefie - I'm glad you are back home and can take some time to process everything. Sounds like a wonderful way to spend this morning

    Edi - you make such gorgeous cakes! I am in awe. Hope you are feeling better today with all that positive energy flowing around you

    Nihahi - I am amazed at how perceptive you are and how you know exactly what to say to all of us

    Adagio - sending hugs and wishing you a very Happy Birthday

    Momof2 - you did a wonderful job on the drapery - what a talented seamstress! 

    Work has definitely taken a front and center role in my life since I've been back from vacation. The timing of my upcoming surgery isn't the best for what is going on at work and planned for the fall but I have decided that there will always be something and that I have sacrificed enough for them, this one will be for me, not because I have to but because I want to and it will hopefully help to bring some closure for me. Now all I need to do is get through the mammogram on Monday afternoon

    Looking for updates from all that are recovering from surgery or in treatment - how is everything going for you?

    Take care everyone

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  • nihahi
    nihahi Member Posts: 3,841
    edited June 2014

    I think setting a regular time/day is a wonderful idea, websister!!!!

    Anyone want to suggest what works best for them, I'm sure we can find a common "target".....Doesn't have to be a big production....just a few minutes of time that we pause, take a breath and share a silent message of support, strength, understanding and healing to each other.

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  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited June 2014

    Count me in...I missed this morning's date.......it is a lovely idea, Nihahi!

    I am enjoying my week away from all things "mother" ( I know you take no offense to my saying this, Liefie), and have been enjoying my time with my oldest DD, who JUST booked the lead in an independent film titled "Saturn Returns"..... I would love it if you would check out the movie's website ....

    www.saturnreturns.net

    There is information about the movie's plot, and photos of all the characters.....in movie-speak, Erin is  #1 on the call sheet......the movie is about her character, Sienna.  I read the script, and it is a surprisingly GOOD story!

    Edi, glad you are doing at least okay, and that cake is stunning! You are VERY talented!

    Jenifer, I enjoyed the photos of the interior of Keiko Cottage....if I ever get loose again, I will message you ....

    Liefie, I am glad you found some peace amidst the craziness of an early-morning water-ski session......the lake IS incredibly beautiful.  You are very blessed!

    Nihahi , LOVE your photos ...... You could do that professionally!

    To those I haven't mentioned, know that there is not a day that goes by that my thoughts don't turn to each of you.......so grateful for the love and support that is found on this thread!  

    XO

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  • momof2doxies
    momof2doxies Member Posts: 342
    edited June 2014

    I was out there this morning at 8…of course I brought my coffee and agates, but forgot the kleenex….I am so silly…I cry at everything, whether joyous or sad. The morning mist was coming off the ocean and there was no one around….we must do this again. And TODAY, for the first time my shoulder has not given me fits.

    Liefie…congratulations to your DH with skiing. I most definitely do not have arm strength for water skiing. 

    Adagio…Oh, Happy Birthday to you!!!

    Movie…that is just wonderful about your daughter's role. Since we do not subscribe to any cable, I definitely will check out the website tonight. I really would love to see you this summer. I totally understand the stress of caregiving, and also the need to care for yourself.

    Websister… yes, you do it for YOU. You will be in my thoughts during that mammogram,Monday.

    To all on this thread, I hope today was a day of comfort as you continue to heal and go forward with your treatment.

    Hugs,

    Jenifer

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  • Dakota212
    Dakota212 Member Posts: 1,153
    edited June 2014

    hi all u gorgeous ladies. I read what u all are posting my life is so crazy to post. I am still shuffling the cockroach everyday I am closer to squashing him just not enough time in the day.  Get out of work it's baseball, soccer, tutor, laundry, projects..... Endless. It's 10:05 here I just finished cleaning up got lunches ready and am about to head to hex but I wanted to add I may not be posting but ALWAYS reading and sending all my positive energy ( what's left ... Lol) to u ladies !!! Sweet dreams I must go before I fall asleep on the stairs !!! Muah :)

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  • nihahi
    nihahi Member Posts: 3,841
    edited June 2014

    DAKOTA!!!!! Lovely to hear from you.....though I am still not a fan of "cockroach" continuing to be an issue for you. Hugs, girl!!!!

    Movie...sounds like some SoCal time has been good for you...DD's latest role sounds great!

    Adagio....thank goodness for the time difference...I still haven't missed the opp to wish you a "Happy Birthday"!!!!! 

    Big thunderstorm about to settle in here with lots of lightning and wind...better sign off before something gets zapped. Love to all.

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  • Betty14
    Betty14 Member Posts: 89
    edited June 2014

    Dear bennymuffins,

                                I'm extremely sorry that you are here but I have to say you are among friends, you will find lots of support here....it is a huge shock when you first get diagnosed.  Your feelings of fear and uncertainty are validated..it is a scary journey but take comfort that you have a lot of support around you and treatment options have come a long way. I myself got a bit of a shock today and I was reminded of how scary it can all feel so I'm with you Benny...in spirit. I wish you the very best outcome with your treatments. Welcome to BCO...it is a bitter sweet welcome.

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  • Morwenna
    Morwenna Member Posts: 1,063
    edited June 2014

    Betty that's kind, but just thought I'd point out that Benny started this thread in August 2012. :)

    Guys I missed the morning communion thing. I was unable to access this thread for some reason after my last post. Every time o tried, it kept taking me to the beginning of the thread!

    Anyway, nothing to report really except my lymphedema seems to be settling down! (Ahhh, don't say that too loud!) I've been experimenting with leaving first my glove, and then my sleevee off as well, and so far so minimal! I put them on for dragon boating twice a week, or any weighty stuff. Maybe its the dragonboating that is helping!?? 

    Anyway, its been great in this warmer weather :)

    Thinking of you all xxxxx

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  • liefie
    liefie Member Posts: 2,440
    edited June 2014

    Here's a picture of the lake on Tuesday morning, and one of DH

    image

    getting ready to ski.

    image

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  • Morwenna
    Morwenna Member Posts: 1,063
    edited June 2014

    That looks beautiful Liefie!

    We must have driven past your place on our BC vacation ....." Before Cancer", that is! ...... back in the summer of 2012. :)

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  • liefie
    liefie Member Posts: 2,440
    edited June 2014

    Yes, Morwenna, if you went to Tofino, you drove right along the lake on the way there. Summer of 2012 . . . I was just finishing my treatments, and weak as a baby. Happy to hear your lymphedema is getting better. It is wise to keep the sleeve on for heavy activities, or when you fly. I don't have lymphedema, but never fly without the sleeve. Not pleasant when flying two long flights to S.A., but better safe than sorry, eh?

    Have been in bed for the last three days with a very sore back. It is slowly getting better, and I can move a little thanks to pain pills and muscle relaxants. Poor DH had to cook, and serve me in bed since I could not even stand up on my legs. My own fault because I did not go to stretch yoga regularly these last few months. This happened all the time before I started yoga in 2011, so will get back to it as soon as I can. Will slowly creep down the stairs, and try to cook something for tonight. He came home from the ER at 3.00 am this morning, and really deserves a rest. 

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  • momof2doxies
    momof2doxies Member Posts: 342
    edited June 2014

    Oh Liefie…so sorry to hear about your back. I have had episodes … and I seem to be overdue for one. Muscle relaxants and pain pills and ibuprofen seem to be the usual treatment. Please allow DH to care for you. You have been through a lot of stress and I am certain that has played a role. Hope you feel better very soon.

    DH, the dogs, and I walked to and from "town" yesterday. Then went grocery shopping in the big city of Newport, OR. during the ride home my shoulder started its thing and I just had to take 2 percocet and go to bed. I just do not know if this tired feeling is normal or if something else is going on. I just do not remember getting so exhausted in previous years visiting Oregon. I really am only 4 months out from chemo; will that continue to linger on? or is this the new "normal"? Now that the wedding is over and I made it to OR I feel like I should be feeling better. There are many things I would like to do, but I can just "give out" suddenly and have to rest.

    Well, the roofer is banging over my head today. The other 2 workers are MIA. This cottage is a long work in progress, but I really love it here. The doggies are happy to here with the cool weather and no biting insects. 

    Hope all my fellow warriors are doing well….Mags, let us hear how you are doing!

    Love to all,

    Jenifer

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  • liefie
    liefie Member Posts: 2,440
    edited June 2014

    Jenifer, Nihahi also suggested that the recent stress may have played a role, and I agree. Will be gentle with myself, I promise. Fortunately a very quiet weekend ahead after many busy ones - yay! 

    As for feeling tired and suddenly 'giving out', this is normal for where you are now. I experienced exactly the same thing where I would suddenly just run out of steam, and would have to sit down or lie down to catch my breath. For me it lasted until October/November 2013 after my last chemo in May 2012, so more or less 18 months. In May 2013 I had the DIEP flap surgery to recover from as well. All this time I was regularly walking, doing yoga, and doing strength training in the gym. I don't experience this fatique any more, thank the Lord. So be patient, keep on walking, and accept that it will take time to get over the fatique. You've also been building up to the wedding with lots of excitement, lots to do, lots to look forward to, and now it's over . . . suddenly there's nothing there, if you understand what I mean. Just go with the flow, and do what you can. You've been through a lot, and it will take its own time regardless. You have way more energy that I had at the time sewing all those things for the wedding and for your cottage. I ended up paying someone to sew the table-runners, because I just did not have the strength to do it. One day you will just realize that you feel like your old self again. It is a very good feeling. All the best to you, and enjoy your time in Oregon!

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  • adagio
    adagio Member Posts: 982
    edited June 2014

    liefie - hope your back is feeling better soon. Isn't it interesting just how much our bodies need the movement and how if we miss out on our yoga/exercise/walks etc - that our bodies let us know. Take it easy for a few days and then hopefully you can get back to your yoga.

    Momof2 - sorry that your shoulder is bothering you - I can so identify with shoulder pain since I am just at the recovery phase after suffering from a frozen shoulder and the pain is excruciating!! Now I can so empathize with people with sore shoulders and arms - it is so debilitating, and personally I found that it got me feeling very down. In terms of energy returning after treatments  -  I have read that it takes up to 2 years after the end of treatments to get full energy back.   I am just over 1 year post treatments, and. I still take the odd nap in the afternoons, some days  I think I am all back to normal, then other days I feel I need more rest. You are still in early days and maybe you need to allow your  body more time to recuperate - particularly after the stress of a wedding and all. Good luck with the renovations at your cottage, and enjoy that wonderful ocean!

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  • nihahi
    nihahi Member Posts: 3,841
    edited June 2014

    having techno issues.....popped in to see how liefie is doing?? 

    and.....edi........you've disappeared again...hmmmmmm????????

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  • liefie
    liefie Member Posts: 2,440
    edited June 2014

    Nihahi, I'm doing better, thanks. Up and about, and as long as I'm taking it slowly, it's okay. Will still be very careful this week, and do some slow walking only. Feels good to be mobile again, that's for sure.

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  • websister
    websister Member Posts: 1,092
    edited June 2014

    Liefie - so good to hear you are up, hope your back improves quickly for you

    Momof2 - what the others said; rest up

    Adagio - sorry to read about your shoulder issues

    Dakota - good to hear from you

    This is just a quick check in for me, busy week ahead - mammogram on lefty tomorrow

    Take care everyone

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  • nihahi
    nihahi Member Posts: 3,841
    edited June 2014

    websister.....sending hugs for tomorrows test. 

    Hope everyone else is well.

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  • Jennie93
    Jennie93 Member Posts: 1,018
    edited June 2014

    In your pockets tomorrow websister!

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  • Morwenna
    Morwenna Member Posts: 1,063
    edited June 2014

    joining websister's pocket party, and bringing peanuts ..... Hope nobody's allergic!! :o

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  • momof2doxies
    momof2doxies Member Posts: 342
    edited June 2014

    Will be in your pocket, websister

    Yes, I am taking it easier…The roofer worked today and he should finish tomorrow. Will be talking with the painter and finializing the paint colors. I was leaning toward tan with white trim and turquoise accent…but if anyone has seen a cottage they like, I am open for suggestions.

    Nihahi…I am looking for you to officially organize the next universal time together. 

    Edi…I miss you!

    Adagio…I am going to the post office tomorrow…hopefully the package will not take forever to arrive

    Liefie…sounds like you had a doozy of a back spasm. I know you will be easy on yourself. Hope your DH is continuing to give you TLC. Hope this next week will give you the rest you need for healing.

    Mo…hope you are doing well, I remember how you felt after the Hawaii trip and winning the competition. I think I am having a little of that…the wedding came an went in a flash…then I made it to Oregon. I am very thankful to have been able to both. I think I will just rest and not feel guilty about it 

    To all that I didi not mention, you are in my thoughts. Cheers to a good upcoming week for all!

    Love,

    Jenifer

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  • Morwenna
    Morwenna Member Posts: 1,063
    edited June 2014

    I'm doing great thanks, Jenifer!

    I'm enjoying dragonboating, and singing. Just starting out with a new quartet, as well as the chorus. We're just getting started revising Christmas music in the chorus! I'm looking forward to Canada Day, July 1st, when we are singing at Heritage Park, if anyone wants to come see us! We sing for the new Canadians at their citizenship ceremony, which always brings a lump to my throat, and usually another performance near the Hotel. 

    DS1 has his graduation ceremony Tuesday, and applied for 7 jobs this week! DS2 is enjoying his new g/f, and working a summer job at the animal hospital, doing a sort of internship.

    Work is no great dramas. Fatigue is not really an issue, and I'm sleeping better, generally. Bout time I got to bed, thinking about it! :)

    Life is good! xxxx

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  • scouser47
    scouser47 Member Posts: 963
    edited June 2014

    Hi 😎,

    Sorry Nihahi, things bit yak 😓 had six month checkup today. Onco wanted bloods and CT scan to try and find why I feel so awful Wont know anything until late July so plodding on .Not worrying just glad to be having something done.

    Websister, in pocket tomorrow 😊.

    Mom, glad roof almost done. When I win lotto I am coming to inspect 😆

    Liefie, hope you get stronger quickly. 😃

    Morwenna, enjoy your singing and dragon boating 😁

    Adagio, Jennie (( hugs ))

    Trying to make a stiletto heel shoe out of fondant tonight. Not funny !! First headstrong app Wed really nervous. 😟

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  • websister
    websister Member Posts: 1,092
    edited June 2014

    Thanks for the pocket party, ladies! Really needed it today - too close in dates to two years ago - mammogram, ultrasound, biopsy.

    I had the mammogram, they did a digital as well as two high magnification views on the left, then asked me to go back to the dressing area and wait. Then they came and took me over to the ultrasound waiting area and asked me to bring my clothes with me. Hadn't expected an ultrasound today and didn't realize just how traumatic it all was for me two years ago until they decided to do one today. The feelings all came back ten times over! They did the right chest wall and axilla and the left breast and axilla. When the U/S was done the tech told me the radiologist would be in touch with my doctor and let me go. Not sure I really breathed until then. So glad to be out of there. So glad you were all with me. Morwenna, please pass the peanuts ;)

    Take care everyone

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  • scouser47
    scouser47 Member Posts: 963
    edited June 2014

    image

    peonies in full bloom, bit battered by the rain 😠

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  • adagio
    adagio Member Posts: 982
    edited June 2014

    Edi - I love peonies - they are such big flowers, but oh so fragile and they don't last long at all! Glad you are getting things checked out with your doctor.  Good luck with the fondant stiletto!!!

    Websister - how awful for you to have those yucky feelings from 2 years ago flood over you today when you had the ultrasound. Sure hope all turns out well for you - it is so difficult not to worry, isn't it?

    Morwenna - sounds like you are really enjoying life right now - so happy for you.

    Liefie - glad you are starting to move a bit - take it real easy.

    Nihahi - you must be enjoying some good hikes these days - great weather for it too.

    To everyone else - have a good week and hopefully the sun is shining for you all - the colours are just so beautiful right now that I have a hard time being inside , I just want to be outside all the time. Lots of gardening getting done - yeah!!

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  • Morwenna
    Morwenna Member Posts: 1,063
    edited June 2014

    Well, I guess I have some news!

    This morning I decided to call my PS office to see if his nurse could give me a rough idea of how long til my surgery. Just to make planning easier, not that I'm in a particular rush.

    To my surprise, she gave me a date!!: December 16, conditional on being able to coordinate with the other necessary surgeon/s!

    So there we are! :o

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  • nihahi
    nihahi Member Posts: 3,841
    edited June 2014

    websister.....a tough day of memories for you, but hopefully the "off you go, we'll be in touch" send off means nothing seen to be concerned about!

    Morwenna....I'm in awe of how quickly you and websister are getting surgery dates. Good for you!!!! Get it done and over.....then....on with life.

    liefie...glad you're getting better...gentle steps, and you'll get there!

    adagio....rainy season here....got pretty dang wet on a hike today! But...edi's peonies are lovely, aren't they!

    edi..sending hugs kiddo.....are you still riding that bike??? Glad to hear some tests are being done, hope they settle your fears a bit.

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  • scouser47
    scouser47 Member Posts: 963
    edited June 2014

    Hi 😎

    Lunch time here, ryvita and cheese being devoured. Just back from A and E after four hours with ED, she rang in tears this morning, severe chest pains and she had collapsed last in night. She was all ready for work when pains started again.😞 I collected her and off we went. Fabulous hospital but parking the pits 😱 Finally got in there and they were amazing many tests later heart ruled out they have sent her home with pain relief and she needs to see her GP again. This has gone on for about nine years and she is giving up. 

    Nihahi, haven't the energy to peddle. Sun out so may do a walk. Stiletto almost done 😀 

    Have a lovely day everyone xxx

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