INSOMNIACS place to talk in the wee hours

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited May 2014

    Oh sorry Teka.... We were posting at the same time.... That is really interesting about the vascular system and lumph nodes... I'll go back and try and read it better, and understand it.... 

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  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited May 2014

    Well the Rice Krispie treats never got made. Guess I'll go to town and get chips/dip and the mail at the same time. Nettie I'll give your peanut butter ones a try.

    Lots of trees down and power out in Dallas proper and some damage SW of me. Lots of flooding in Dallas. We got only a little more rain this afternoon and may get a bit more.

    Teka - yeah for the mammo results. I cheat and only go on days the radiologist is there. I do pay for that with an "office consult" fee.

    JWow - You watch out too. This is some storm. I always think you're a west coast girl. Forget you're Austin area.

    I haven't read my path report in well over a year. Buried in a notebook.

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  • 4sewwhat
    4sewwhat Member Posts: 2,093
    edited May 2014

    JWoo, cute pic!  See I knew Chevy could crochet or knit or sumptin other than exercise on her pole!  The scarf sparkles along with your eyes!  My last chemo was in August too.  I had curls to stay with, now they are crazy out of control!  

    Chevy, my favorite color is........just kidding!

    Yay Teka!

    Cami, I am waiting for the surprise.  The nose wants to knows.

    Hi Nettie, GG, Spookie, Smaarty, Sas and Luv!

    Phylliewhoescapedagain!  Don't get excited over a trip to Hastings!  Although I haven't been in a long time. It might just be a happening' place now!

    Ok, I'm off to deliver the muffins for the kindergartner's to have with the moms in the morning!

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  • browniefranks
    browniefranks Member Posts: 87
    edited May 2014

    I am 3 years into my cancer journey and I had my nipples reconstructed yesterday, after Diep flap. I have an excellent plastic surgeon who wanted to sculpt and fix everything, lipo etc. I told him all I cared about was the fastest recovery time and to be done with all of this. I am tired of cancer.

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  • JWoo
    JWoo Member Posts: 1,171
    edited May 2014

    Luv- I will. You watch out too!  chances are we won't get a drop :/ I am hoping for some good rain, goodness knows we need it bad. Hope it clears out tomorrow for my Relay For Life though. 

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2014


    Gumby, odd that you would ask about original path reports. I just re-read mine a few weeks ago. I saw the "PLOIDY'--unfavorable 1.79. Mystery. Goes from ? to 2.0. Indicated rapid cell division. Above_____(already forget, but stated in the research of the definition), associated with bad outcome. Figured my pushing everyone was really good cuz I'm still here.

    Teka--sometime in the 90's a chemical was found that encouraged the body to make new blood vessels. angio-blood vessels, genesis --new. At the time it was seen to be a great breakthrough for heart disease and peripheral vascular disease(usually lower legs). But was very quickly found to accelerate tumor growth. It did help the oncology world understand how blood vessel growth supported tumor growth.

    From that blood vessel ablation----destruction of blood vessels was researched as a treatment for certain types of tumors.

    In the early 2000's, a friends kid went through a brain tumor. The very first thing they did was send the kid for this ablation procedure in a different state, to a guy that was one of few in the country. The child then went on for treatment. He is still with us.

    No idea of why it's not used for more --stopped following.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2014

    So, tired hard to stay awake---not sure what's up.

    But did find a new thing to induce sleep. Was scrolling pages to find something for someone-----not PCP----thermoregulation. The scrolling caused a sleep attack analogous to watching a time piece swing back an forth-----LOL.

    I wrote a post to them. The sleep attack was so strong when I woke up and came back to the computer, I hadn't hit submit.

    Yes, I made up the word -----Sleep attack.---Definition: Overwhelming need to sleep. Must lay down right now or I will sleep right here.

     


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  • Teka
    Teka Member Posts: 10,052
    edited May 2014

    I was in a Clinical Trail using chemo & Avastin!   I believe that the FDA has now given a ThumbsDown for BC patients.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2014


    Chevy, Really what I'm saying was a bit of a revelation.  A word we use to describe being down is the blues. I'm searching in my file for a bluebird. Come across the avatar I have now. Hmm, can this accomplish two purposes. I'm blue, but in the blue can I find something else. The pic of blue--holding the notes of music. The color is associated with being down, the music can be associated with what ever we make it. If that be true, then I can have more control about being down. Hit a chord with me LOL . double entendre.

    Lost my file that I used for avatars. I might be the blues for awhile. Going to be a problem when I chase a windmill.

     

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  • 4sewwhat
    4sewwhat Member Posts: 2,093
    edited May 2014

    Sas!  As fast as your brain goes from place to place and the amount of things you ponder and research, it is no wonder you are exhausted!!!

    You should have bought more than one bottle of wine last night 

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  • Teka
    Teka Member Posts: 10,052
    edited May 2014

    http://37.media.tumblr.com/01032c26856c4e96997e1d26b7457fcc/tumblr_n1fvhqpOam1rqfq6vo1_400.jpg

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  • Teka
    Teka Member Posts: 10,052
    edited May 2014

    https://encrypted-tbn3.gstatic.com/images?q=tbn:ANd9GcSAxdxhkhFUM1ZDvwz6qYu0RG7BvJxRPHmm95P5WucGibpGsybe

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  • 4sewwhat
    4sewwhat Member Posts: 2,093
    edited May 2014

    Teka,

    I hope this means you are feeling better!

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  • Teka
    Teka Member Posts: 10,052
    edited May 2014

    http://ts3.mm.bing.net/th?&id=HN.607996687252784113&w=300&h=300&c=0&pid=1.9&rs=0&p=0

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2014


    $$$$444444$$$$, I keep hoping that if I put the dollar signs around you with the shift key that money will fall all over you.  Isn't that fun.  Teka's Post about  "I want to sleep , but my brain won't stop talking to itself". I went to a hypno-therapist in 1980. Told him the goal was to get me to stop working in my sleep. Worked partially, I was better, but not all the way. LOL. Have no idea why it works the way it does. But can't wish it to totally leave me alone. I am slowing down.

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  • 4sewwhat
    4sewwhat Member Posts: 2,093
    edited May 2014

    Thanks for the nice thoughts about the $$$$$$$$$$$$$$$$!!!! 

     I can relate!  I am a night owl to start with and then If I have something that needs taking care of I better do it before I try to sleep or it is not happening.  I lay there and make lists in my head.  Things too like I don't keep a written calendar and didn't used to write down phone numbers.  They were all in my head.  Now they are all in my phone but I still know a lot of them.  I have tried with the calendar.  I buy them!!  just don't use them.

    I have gotten better about slowing down some too.  Not easy though!  I do find if I can get into a good book I can escape for a while!

    Speaking of!  I'm going to go catch a chapter now!!

    Good Night Owlettes!

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  • camillegal
    camillegal Member Posts: 16,882
    edited May 2014

    Teka I'm glad u'r feeling better.

    OK the color Blue=feeling down, being sad BUT

    if u paint a room a certain shade of blue it's calming and restfull, a certain shade of green to, but another shade can mean jealousy, envy----Hmm quite a puzzle to some how colors can be so meaningful.

    See Chevy I understood something maybe, a little, or a smidge.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2014


    Cami -gyn exam and cultures. No powder. Powder is a breading ground for bacteria. They just thrive in powder.
    After gyn exam and determination of cause, if none found, consider Bag Balm.  Still glowing, wish it was a nice glow.  Sleepy so sleepy........not liking this---sumpins not right. But back to you.

    Are they doing an HBA1C every three months?(or at least once a year) You have allot going on. We all do. But the HBA1C can monitor your blood sugar(glucose) over a three month period. It's really cool. The Red  blood cell lives for 3 months. The red blood cell attracts sugar(glucose) molecules. The test measure the amount of sugar molecules attached to the red blood cell over a three month period. Nice---would love to read about the person that came up with it.

    With repeated infections many questions need to be answered. Is it primary to the bladder? Is it external to the bladder? Is it related to sex? Is it Blood sugar levels, predisposing to infection?

    Need to find food :)

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  • 4sewwhat
    4sewwhat Member Posts: 2,093
    edited May 2014

    My guess is related to sex!  It's all that cattin' around that was happening here a couple pages back!

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  • camillegal
    camillegal Member Posts: 16,882
    edited May 2014

    Well Sas there goes my powder theory--But I've had these before and they call it some type of external yeast infection. I've had different treatments with them --one oral and another powder form, its not internal at all and yes I do have all blood tests every 3 months this time I was fine with most low on a couple, and high on the white cells then right after I got the bladder infection. But I do see a urologist after all this calms down, I made the appointment, cuz I always get bladder infection nd always on an antibiotic and I don't know what's wearing me down more. It's gotten to the point where there is a lot of pain in front and towards the back, so I know they're concerned about my kidney and they last longer and longer and the pain gets worse, but I also have the pain from my discs in my back so it hard to tell when one start and the other begin. OK Now I wrote this much to tire the hell out of u'r eyes so now go to sleep Thanks for the powder thing tho.

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  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited May 2014

    Ohmygosh..... how can this thread move so dang FAST?????

    No possibility of catching up now...Bawling

    Love and hugs and prayers to all who need them.... 

    Big high-fives and wooHOOs to all who earned them....

    Cami - right after my BMX I got a horrid itchy rash under my foobs and in the, um, folds of my waist. They dx'd a skin yeast infection, probably from the gallons of Cipro antibiotic they pumped into my IV during surgery, and orally for ten days after. The cure was a powder (NYSTOP/Nystatin Topical Powder USP) I put on the affected areas. Worked really well.

    ~ ~ ~ 

    Sunday DH and I cleaned out MIL's clothes from her house. We filled the back of the pickup truck with over 50 TRASH BAGS of clothes. Man, did they stink! And the moths... ugh. I threw quite a few things away. (MIL - 93 when she passed - never threw ANYTHING away.) We kept the bags on the back porch until I could bring them in bag by bag and do some serious laundry. Now I have them sorted into piles, which will be donated to the Hospice Thrift Shop, and to our church's Homeless Outreach. I am SO over this project.

    Tomorrow:  I take in my regular donation of comfort quilts (made by the church ladies) to Oncology; see my Oncological Therapist, AND - have lunch with a girlfriend! 

    I know you all were wondering: this is the color of the nail polish I have on.

    image

    OPI - "You're Such A Budapest!"

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  • JWoo
    JWoo Member Posts: 1,171
    edited May 2014

    oooh but does she have any amazing vintage 40's/50's 60's 70's items?? that is a gold mine. and patterns. I am one of those ppl- always looking for vintage clothes and patterns or fabrics. I can't get enough of those decades!

    LOVE you polish! and yay for you almost being done!

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  • JWoo
    JWoo Member Posts: 1,171
    edited May 2014

    ok- trying to wind down to go to sleep I am getting up early to get a pedi so my toes look great for the RelayForLife tomorrow night. This week brought the anniversary of finding my lump, initial testing, biopsies, and i actually got the call on 5/13 that changed everything . I am enjoying mothers little helpers this week, and will continue to do so for the next few days to get me through this. I am so much less strong than I want to me. Both physically and emotionally. We have lost so many the past few weeks, and I have read some heartbreaking stories of loss. I don't want the man I adore to have to go through that kind of thing. Living with the fear of recurrence/mets, it is almost too much for my wee brain to handle. So sedation it is! And maybe a little wine this weekend.

    Looking forward to the relay and seeing everyone, and then Mother's Day my parents are going to San Antonio so meeting them for dinner. My pops has to have more skin cancer sliced off his neck. It never ends. I am just so grateful that I have them still. My world will crumble when they die.

    bah. sorry. I hate being a downer, just needed a place to reflect, and I know you ladies understand.

    Where is Vinnie these days? hope he is blessing ladies with his art. 

    Browniefan- I am one too!  glad you are finishing up your recon and can hopefully move forward with joy. 

    Luv, Tang, are you ladies still in one piece?

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  • susan3
    susan3 Member Posts: 3,728
    edited May 2014

    jwoo....sorry you r feeling down. You will have fun with the relay. They r so cool. I do have mbc. Came back after 8 years. After the initial shock and having to tell everyone. I must say that I am living a very very fun life since I know it will,be short. I am pretty chemo resistant so I am blowing through them pretty quick. It took awhile for everyone not to be sad and get on board with having fun with me. Death doesn't scare me...but I do feel horrible that those you leave behind will be so sad. But right now we r having great quality time and fun....and that is all I can do. Choose to live fully, laugh often, and enjoy all the moments. Hope you sleep,well...

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2014

    way to go, Teka!

    Hi1, cute family! Loving those shoulder pads

    Dutchie, great new avatar

    Woozy, pretty lady, my hair is still curly 17 years later, it's my chemo-induced permanent permanent. Wish I knew about your love for old patterns and fabrics, gave away boxes last year. Still have tons as I always sewed my own clothes.

    Nettie, was shopping when I read your rice crispy recipe, got me a big box of cereal. I hear them calling me now.....

    Chevy, bee-you-tee-full scarf! You got me started on a new hobby

    Sassy, if the $$$ trick works, I need pages of them right now. Sleep attack, nice term. Same as falling asleep mid-sentence?

    Woozy, it's always great being on the far side of an anniversary. Think how much better you are this year than last

    Cammi, did you ever get a shower and get to smelling nice and purty?

    Susan, am so sorry to hear about mbc. You have a great attitude.

    Blessings, love those nails! Sounds like you're making progress on the tons of laundry. You're going to make ladies really happy.

    For those I forgot to mention, wishing you a great Friday. In fact, that goes for everyone 

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited May 2014

    Morning gals! 

    Teka, I read your post in depth, and found the site, and saved it to my "medical info"!  So thanks for that!  I had HEARD that cells CAN spread, not only through the Lymph nodes, but through the vascular system as well...  We're always looking for more info, and the "why's!"

    And even though the information we read on this thread doesn't always pertain to us personally, it COULD someday...  So I'm so glad you gals post a lot of "stuff" to maybe help us!

    Litlegoats...  Okay, you are right...  I'm not going to look over my path report.... It's been so long, and I barely understood it at the time... But so far, so good.

    44444444!  Okay, so yes!  I can still exercise on my pole AND crochet!  Ha, ha!  I sent you a PM... So what's taking so long for you to answer?  And don't give me all that baloney about "kids and stuff."

    Morning Browniefran!  Oh?  I'll bet your name is Francis, and you love Brownies.... right?  Hah!  Thought you could TRICK us, eh?   Now I think most of us would just LOVE to have our own plastic surgeon, who would fix us all up too!  DANG!   But geez girl!  You have really been through the wringer.... Since 2011???   

    Just glad you are happy with the work he did on you! 

    Sassy....  (ohlittleonewhoneversleeps) It's always interesting to read what you post... even though you are sound asleep!  Man, your mind is running 25/8....  See that's more than 24/7....!    I think we all get "sleep attack's" .... but now we know what they are called...Ha!  A "Sassytack"!   Yes.... and the "blues" makes sense to me too!  But not the "entendre" thing....  Good Lord Girl!  Where in the hell do you come up with all this stuff!   I would look it up, but you will probably explain that to me and Cammi anyway...  Lilshit will just pretend she knows what it is....  I KNOW her!   And windmill?   Am I supposed to be following your train of thought?  I think it's a run-away train....  And I can't keep up...  I've fallen and I can't get up....

    Now THAT was funny!   Because I COULDN'T get up....  well, guess it wasn't so funny at the time...  All that went through my mind, was "I'm doomed!"  I wanted to cry, but it hurt to much to go through the effort!  But that's all over.... almost 3 months now! 

    Teka!  So true!  When that happens, you just have to get up, turn on TV, and that will help your brain get off of it's rant, and think of something else! Then try sleep about an hour laterimage

    Cammi!  Okay, I got it covered!  I painted our whole living/dining room a pale/blue/white....  In other words I "ragged" it...  It is beautiful!  It is very restful, sort of shiny, and I'll never have to paint again!  It washes beautifully...!  It was a job, but worth it!    It's not "smidge'.....  I think it's smidgeon... 

    And yes.... Sassy is right... Talcum powder has been all over the news, involving law-suits.... etc!   So just say no to Talcum Powder... on ANYthing!  TP is our enemy....   You could probably use baking soda before Talcum Powder... or corn meal.... which IS it?

    And 4444444444 has her OWN opinion on WHAT is wrong with you!   But sex is our friend.... sex is fine...   so don't listen to her....

    image

    BLESSINGS!!!  I love your nails!   I painted mine  a real pretty dark blue last night!  And don't go sayin' nothin' about me, at my age, with blue nails!    I'm living on the edge....

    Morning JWow and 222222222222nd and Susan...  Hope you guys are feeling better! 

    Okay.... that's it...  have a fun Friday gals!  xoxoxo

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  • camillegal
    camillegal Member Posts: 16,882
    edited May 2014

    Good Morning

    Susan I never think about mbc with u, u are so fun and cheery--u'r in my prayers.

    Blessing that what is what I took for a while, I couldn't remember the name of it--but when u said it it came to me--Ot's just crap on skin.

    Sas was so tired last nite I purposely wrote one of my boring posts so she would fall asleep--I think it worked. Poor thing.

    I love real colored nail polish at first I thought Oh I'm getting to told for this but then I thought WTF--I've worn blue-green, purple and of course white, just like I wax my hair the same color with those waxes--everyone thinks I've lost mymind, but u know I have fun. When we go out with my brothers--they are ultra conservative they think I 've finished going crazy--

    OK I smell so Purdy--I have on Tova body Butter,, thick but easily spreadable and it's her original signature one--and I save it lot cuz it's changes lately a little so I hold onto what I have--But I felt like using it today and boy do I smell luscious. I think I'll do this Mother's day.

    Do we have someone new here>>> Everything moves so fast,, well I don't but everyone else does. I truly hope everyone has a good day today, I'll see how busy I am today--I was yesterday.

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  • Teka
    Teka Member Posts: 10,052
    edited May 2014

    Good Morning Owlettes!!!

    https://encrypted-tbn1.gstatic.com/images?q=tbn:ANd9GcSY_Eg9jPwd0EvIrdRNqZr5sxwMUvB28Z_g9UfCt2u6DjCfkcSmEw

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  • ziggypop
    ziggypop Member Posts: 1,071
    edited May 2014

    Uhoh, I am way behind. Teka's back! Yay for good mammo. Missed you teka. Cami smells or doesn't smell but she smells coffee brewing and that's a good thing anyway. Phillywhoiscrazyasbatshit had a psyche eval and passed? Well you can say anything on the Interwebs and get away with it I guess. Sassypants, I will write long soon. The days here have been wonderfully beautiful so I wake up and walk out the door & don't come back in till about 8:00 at night, then eat and collapse. It would just be a sin to waste these few spring Ohio days indoors. I will tell you of my crocuses soon...promise.  Chevy I DO know what an entendre is, but I'm not going to tell you 'cause you're not being nice. I love you, but I'm not telling you. Jwow - worrying about the mets gets easier as you get a little further out. I'm coming up on two years now & it's only in the last couple months that I have been able to let go of it (for the most part). There's a time (for most it seems) after the 'big' treatments end, that the worry/depression/anxiety.. call it what you will sets in. You have been through a LOT, it's almost if all of the sudden you were drafted for a war and sent overseas and had bullets flying at you been injured and picked up some strange ailments and then you come home & are supposed to be 'fine now'. 

    Alright, I am going out to play in the dirt & chevy maybe I'll dig up some worms for you, there are some BIG nightcrawlers. Tonight I'm wearing this beautiful scarf. I like it that it's cool enough for this time of year. Blessings, my daffodils are mostly gone now, but lots of other stuff coming. 

    FBB, will be in your pocket all day today. Chevy insists on bringing her pole so she can exercise and cami smells or doesn't, sassy's glowing enough that we don't need a lamp, 444's doing stuff with balls, blessing's got these crazy fingernails & who knows what all else.. I'm the only one that's normal in here, but we all love you a ton.    

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited May 2014

    Oh!  About TIME you decided to join the party Lilshit!    That was a funny name for Phylly!  Ha, ha!   Kinda cool here.... not playing in the dirt today.... besides it would hurt my manicure! 

    And don't hurt the nightcrawlers!  You KNOW they are good for your soil!  Slugs, maybe not...  Nor ants! 

    And YOU are normal?  Okay, and there is grass on the moon!  Well, probably is....

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