Thinking Out Loud.....
Comments
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try the castor oil,it did work when my LE breast and arm hurt
And
It won't make u crap in ur pants
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LOL.......you sure about that ......suppose it drips on my belly................LOL
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Ducky take care of yourself, yep joan m here, got the xray waiting for the results,
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Will do Sandy..............you too....enjoy yourself........kick some sand around for me.......hugs
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Will do ducky
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Hope you are relaxing Sandy - and there is an easy way to improve your breathing.
Hope your arm pain subsides soon, Ducky. Maybe you pulled something? I hope it doesn't make the LE worse.
Sounds like you had a nice weekend, Diane. Friends, walks, and wine - sounds so nice.
Hope you are enjoying the baby, Sheila!
About that device for Grayson - It's so heartbreaking to think that one little one needs a device like that to stand upright, let alone more than 500. Hoping that Grayson gets one so her large, loving family can help her see the world in a new special way. So glad there is such a device.
things are the same with me - work sucks - stressful - short staffed and for some reason we are always so behind. I don't know whether the demand has changed - more scripts or more scripts at the time of day when we have less staff - or what. And our 2 students cut back their hours, so that means more hours for me - I don't mind the extra money, but I seem to work 6 days a week - including both weekend days (only 4 hrs each, though) - so that sucks. Retail sucks.
On the flip side - it's Total Domination Part Deux for the UConn Huskies and DD was in the pep band for the Women's Final Four I've been enjoying as much as I can find out about her trip as much as I can. She said she had a blast.
(((((((TOL)))))))
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Christ.......yes we too will be glad when Grayson gets her new gadget......it will be a whole new world for her.
Your right.....the professor is an ass...........
Hopefully the work load on you gets better...
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Hi Chris, Really, I was thinking of you when UConn guys won...then the ladies..wow. Sorry but I think DD needed to be there are that game...she worked hard for it. And band is part of her education. I do hope she does OK though on those tests.
I gave a test tonight and it was about 40 rocks and minerals and students got to walk around and answer questions about each one...they got to bring the answers. For some people that wouldn't help at all. Worst student left when I did a huge review...he vanished.
Sandy, tomorrow should be a great day...warmer here. Hope you see the sun and breathe easy.
Ducky, you go ahead and complain, girl...enough is enough. I do not have LE but I can see where it would really get old after awhile. I wonder what you did to bring on that pain? I guess we have to be careful ... not easy to remember. Can you use heat or cold?
Diane, good luck with your family plans and party for FIL. It should be great. And you get to see your little princesses again. Did you find outfits?(((Karol))) know you see the doc on Friday....don't forget the pockets. Will be there.
Night all...
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Joan - He is on the plane and so excited to be making the trip. I am looking forward to having him here but I know I will need a few breaks - 3.6 weeks is a long time
I've got pretty much everything done, I think Did I ever find outfits - far too many outfits for the girls. Let's hope Hanna Andersson doesn't send some thank you letter for my rather large purchase - I do love their clothes for the girls though.Sheila - Are you getting lots of baby Isabella time? I hope it is a wonderful experience for you. Spring is here, baby is here, so much to look forward to.
Chris - I hope your daughter did well on her tests, but getting to make the trip and be a part of something is a great thing for her. I think retail hours must be very hard to work, especially in a pharmacy where they are open so many hours, 7 days a week.
Ducky - how is your arm doing? I hope you are ok. I also hope Grayson gets good news very soon.
Sandy - wondering if you are enjoying your beach time? Did you get a little sand in your knickers yet? Have you heard back re breathing?
Firecracker - don't be too quiet - how are you?
Deb - Is your baby coming soon too? Will this happen in the islands or at home?
Meece - hope you are doing well. Went with a friend to look at a farm for sale and it had a giant koi pond - she RAN fast because she is looking for low maintenance life
So, my FIL arrives this evening. His room is ready, his usual list of necessary items (grape nuts, apricots, puffs tissues, nail clipper, Lectric Shave, and Vitapointe hair product) are all ready and waiting. I am cooking a few meals today to have on hand. If I'm a bit absent, it's because I am with him. If I'm too present, it's because I am hanging out with him too much
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Rain........arm about the same.......got the sleeve....not sure it is the right fit...have to wait for the night sleeve to come in so I can go with everything to the LPT....she said no point in paying so many co-pays......do just 1, and she can check it all......good thinking.....
Have heard nothing about Grayson's Upsee yet.........still hoping she got one of the 500.......hugs
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Shore is awesome, haven't been out of the house, they had cake cause they were supposed to come to my party last year, so they had one now, got samsung tablet, brakes installed on my car, pjs n slippers n money...n a strawberry shortcake cake. ? Truly blessed
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Sandy....I'm so very happy for you ♥ ♥
{{{TOL}}}
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Rain,,me quiet,ur jokin right?
Been on here all day on and off with pms.
Tomorrow goin for endoscopy,been there done that way too many times
I have another hr to eat and drink then tomorrow I'm off to lala land
I may not be on till tomorrow nite
Gonna get the drug that keeps u sleepin for a while
That's what u get when u live in this one horse town
Now if I lived back in NYC I would be gettin the drug that u wake right up from
Oh well,it is what it is
My GS is takin me so all will be well
ILL BE BACK
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In your pocket FK ♥
See you tomorrow night
Why do you have to sleep longer ?
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((((( K )))))
ducky ~ keeping my fingers crossed for little Grayson & family.
Sandy, thinking of you.
Meecie, hope you & your family are doing well.
Diane, Sheila, Chris, Joan & Deb...... hugs.
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Actually, while I'm here I think I will share sad news about my SIL.
My sister-in-law was DX'd with Dementia with Psychosis in Dec. She was here in MI with my brother & has since been moved to TX to be with her son & granddaughters. Not to get into too much but while my brother is 61, she is 80. They were not married.... have been/lived together for 22 years. I have always considered her my sister-in-law, always. While not getting into the legal difficulties in placing her in a specialized home with him not having guardianship, my brother thought it best for her to be with her son. One of the granddaughters specializes in Dementia & works where my SIL will be cared for. There were other things going on with her health as well & my brother said it has been hell for a long time.
I hadn't seen her since last May due to many things going on & my brother shielding her from situations that might be difficult for her. He told me of her final days with him & while I will keep that private, of course, he did tell me he hopes she will, in time, forget him so that she will not be sad..... I have cried over this. It is with me all the time. I feel I have lost her though she is still here.....
He told me I could continue to send her cards & such as we always did to each other, but to not say that I miss her. Just to put it is a lovely day & I thought of her or just send a card with a pretty picture on it. How can I do that when I have always told her how much I miss her, that I can't wait to see her for Christmas or a summer trip to Mackinaw Island or whatever?
Is that what I should do? Just be generic in my correspondence with her? I have to send my mail to her son to be passed on to her. She might not even know who I am any more. She didn't know my brother for the most part when she left, just snippets now & then.
Has anybody here had any life experiences with someone with dementia?
I just feel lost........ and so very, very sad for my brother......
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Val....I am so sorry......yes my DIL's mother has dementia, and even though she is doing great health wise and still knows who Kathy is, she has serious lapses of memory.....can't remember, constantly repeats herself, so my DIL just goes along with it all................her Mom is 93, and in a very nice place which she loves...........amazing but she does.........they do a lot of things, and she likes the people there.......maybe your SIL will have a good result...........I certainly hope so...........hugs
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Happy Day.......Thanks for your prayers..........Grayson's Upsee has shipped.............I am in tears.
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Ducky so happy for Grayson!
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Just lost my post...we all hate when that happen...just from hitting some random key...
Ducky, that is such great news and I have tears too...Grayson will do great things in her life. She has the love and support she needs. I hope this upsee is a new adventure for her that will bring fun and joy to all. A prayer answered....
I do hope your arm will respond. Gotta get those sleeves off before the warm weather...Val, what a tragic turn of events....I am sorry for the loss of your SiL - knowning she is not going to be there with your brother is a difficult adjustment. It sounds like she will be well cared for. I guess your brother is protecting himself as much as your SiL by hoping she forgets her life with him... I supposed you should respect his wishes since he will be intercepting your mail. But I don't think it really matters what you say...Do send cards though. And your brother will need support and space as well. Dealing with dimentia is exhausting and sad...there is anger and grief involved too. I just hate life changes...I don't deal well with change lately. Hugs and prayers...
Sandy, you deserve all the good things that your cousins have done for you. It must be beautiful and relaxing for you. I hope you feel renewed and refreshed. Safe travels...
K, glad your test is done. Hoping for a treatment that helps with the digestive upsets.
Sheila, you must be in pink bliss with Isabel...I am sure she knows you and loves you already. Are you biting her apple cheeks? Be gentle!
Diane, did you and FiL watch the Red Sox win tonight? It's a great match-up...NY vs Boston...it should be interesting this season.
I hope the visit is going well. So, do you buy several outfit and run them by your DiL? Or do you just dress them up when no one is looking? When do they arrive? What a great week you have planned....I do think you said this week end you'd have quiet at home...that's a good thing.I had a good visit at the cardiologist. All clear on the echo of heart, corotid and aorta. Cholesterol a little elevated since I stopped the drug, even with diet changes. I agreed to try the low dose statin again but told Dr. I will not take if I get SEs.
I feel blessed to have good health.
I still have to do taxes as I got the tax program disk stuck in my computer. If I have to download from the web, I'll have to pay. I may go to Best Buy to try to get the disk out for me. While I'm there, I need a new laptop...always something.No sleep for me tonight...had a 5 hour nap now up...too much on my mind...family is crazy right now. I just want to go away some place quiet and not try to do a holiday while my kids are so stressed.
OK - I will stop being negative for 5 minutes...
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today is a cloudy new day and I feel fine
I had gotten proponal(the Michael Jackson drug) and it wasn't as bad as I thought,got up on my own,my GS stayed with me most of the day and then I took 2 naps...but I'm fine except I have an inflammatory condition down my throat...new meds so I'm hoping to finally start eating like everyone else does
Oh Val I'm so sorry about SIL,I have seen that happen a lot,my aunt,my nieces FIL,my Godmother right now..yeah it's not pretty just do what ur brother says and stay calm..There is nuthin u can do to change this...Just pray for her..And we should pray for U..
Sheila,,,,would love to hear some baby stories
Ducky u no I told u how happy I am for our Grayson
I'll be back...gotta move this body cause my back is killin me from doin nuthin yesterday
Xoxo I AM THE FIREKRACKER
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Again,thanks ladies for your prayers for Grayson.....her Upsee arrives on Monday......I will be sure to send pictures........can't wait......
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That is SO awesome, Ducky - I'm so happy for Grayson (and her large, loving family)
Sandy - are you still at the shore? I hope you are still having a blast. I'm so happy everyone was so good to you. You deserve it.
You can be negative, Joan. Too much BS in life. Hope you can get that disk working so you don't have to pay for another program. Taxes, ugh. I did a quick run-through of mine to get an idea of how much of a refund we would be getting (and to have #s for the FAFSA filing) and I forgot something I often forget - my friend reminded me when she was talking to me about hers - duh. this is why I don't do that for a living.
At work, we often have to fax doctor's offices about patients' prescriptions - needs a prior authorization, insurance requires a 90-day supply ,etc - and our new boss put a post-it on the fax machine that says "file your faxes!" I misread it the other day to say "File your Taxes!" LOL My subconscious is playing with me.
So sorry about your SIL, Val.
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Anyway - then she ended up with delirium - which I had never heard of happening, but is actually quite common. I used to watch all the fake medical shows and a lot of the real ones (Mystery Diagnosis, Untold Stories of the ER, etc) and have never heard of this delirium - never mentioned. So we had to wait to see how much of her behavior was delirium and how much was dementia. Doctor said it could take as long as 8 months for the delirium to go away completely.
Well, it's been longer than 8 months and she has suffered further damage from being on the vent/surgery/infection...
She really doesn't remember much of anything new. She watches Big Bang Theory dvds over and over and doesn't tire of them. She might remember some things - if something triggers memory - like last time DD was home and we visited, my father asked how her boyfriend was and my mother said, "Oh yes - the boyfriend." My father has a sign he made on the computer above the bathroom door that says "bathroom" with computer drawn pictures of bathroom fixtures. There is a sign in the bathroom that says toilet paper goes in the toilet (she had wanted to put it in the trash). So she does have confusion. I don't really know the extent of her confusion at this point.
He takes care of her - dotingly. He has a couple women who come and stay with her so he can still go to the gym and go golfing and go to the grocery store. But she always wants him to be with her, so there are a lot of things he would like to be doing at home, he doesn't get to do. Like he doesn't get to watch as many of his tv shows that he would like to. I'm sure it is extraordinarily draining for him.
She is physically weaker - has some trouble walking up and down stairs - so she pretty much just stays upstairs. Now that the weather is getting warmer - I'm not sure if he will take her outside for walks. She has gotten weaker over the winter.
Anyway - it totally sucks. She is 70. She isn't as verbal as she used to be, but she is also on medication so that might be contributing to her quietness. She has a great sense of humor and she still says funny things on occasion, but she hardly talks much anymore. which is hard for me because I have nothing to say except to tell my kids' stories and I don't have as many of them with DD away at school I don't hear as much of them. She does not want me talking about my life - my life is just problems - pain in the ass job - DD's difficulties at school - nothing getting done around the house - I go to work - come home - eat dinner - go on the computer to see if DD messaged me - watch my shows I recorded on the dvr - go to sleep - sleep the morning away because escitalopram makes me SO tired - get up later than I should - do a few things (not as many as I need to because I slept too long), rush to get ready for work and go to work again. Who wants to hear about that? So I need her to lead the conversation - but she doesn't anymore.
So I feel like I've lost my mother already.
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When I write, I write. Sorry ladies.
Val - so I would do what was asked and don't say you miss her - but say everything else. And I would also send a picture of yourself - to help her remember who you are. When my mother was in rehab - when we would talk about what she had done with the various therapists or nurses and she didn't know what we were talking about, I would show her pictures I had taken of them and then she would remember them. Like "the little blond girl" who was the speech therapist (they do more than just speech) - she was actually taller than my mother (who is 5' 8"), but they were always sitting and she was sweet, therefore "little." So my mother would say, "Oh, the little blond girl," and my father would say, "who is taller than you are." And they would laugh.
Dementia sucks.
No segue - I agree Joan - the trip is part of her overall education - plus she was representing the school. DD had a blast on the trip. She got to come home though, and then get sick that night. She was up vomiting all night and then had to take an exam the next morning. She was supposed to take an exam that night too, but that professor is reasonable and let her take it the following morning. the other professor was an ass and told her she would have to take a 0 if she didn't take the exam. So she vomited before leaving for the exam and then went and took the exam. Her classmate saved her a seat in the front of the room and she sat right in front of the professor with a barf bag I had bought off the Chemo Chicks website for her when she was commuting last year and might have a problem with her "first thing in the morning" barfing she had issues with in high school (not sure if migraine or just stress related). She didn't barf (but I wish she had and then put the freaking bag on his desk - asshole)
I'm hoping that she was too sick and tired to be stressed about the exam and maybe might have done better as a result.
Poor kid.
In the meantime, she has an appointment with a Doctor of some sort that meets students right on campus. If I had known that that existed, she would have gone in September. Too bad no one gives a flying f*ck about my family and their problems. I tell everyone I can get to listen (doctors, advisors, everyone I know - strangers on the street - not really, but practically) and DD has told her advisors and even the school hooked her up with a mentor program (which didn't help) and NO ONE told her about this resource!!!!! My husband was looking at medical providers covered by our insurance and found these people. Too bad HE didn't look sooner. Asshole. I don't know how he found them. I looked to see what Neuropsychologists were covered and couldn't find any myself - since my own doctor recommended I see one. Too bad my husband ignores problems instead of tried to help with them until is is either too late or almost too late. Mr. 11th Hour. One of the many reasons I'm taking escitalopram.
So, I hope she can get some help quick from these people on Monday. Poor kid has been struggling with adhd (or something) and anxiety as a result for years. Tried adhd meds - didn't like them.
ok - I'll stop writing now. (((((TOL)))))
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No need to be sorry Chris - love reading your stuff!
It's feast or famine here these days - all our lives get busy. Just taking a quick break to read and now I need to cook some kale for my father-in-law because it is his new favorite thing
Back soon.
(((TOL)))
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Thank you so much for your comments K, Joan, D & Chris. Yes, dementia does suck..... takes those we love to a different part of our world.... I am so sorry, Chris, about your Mother. How hard that must be for your family. You mentioned her being very quiet. I did notice that with my SIL, but she was always such a good listener that I thought that's what it was at times. But now that you mention it... I know the brain MRI didn't show evidence of dementia, but she has had several TIA's, I think that's what I want to say, throughout her life & they think that was the cause, or at least contributed to it. She would always tell me I was in her heart, forever, & she will always be in mine.
Yesterday, the 12th, was my Mother's birth day. She would have been 81. God, I miss her.... I envy all who still have their Mothers in their lives, she has been gone 36 years........ I was 26 & my first born was only 10 1/2 months old when she passed. She would have just loved my daughters.
Have I told you all lately how much I appreciate your support & kindness, your "hugs" & shoulders to cry on at times?
Sorry for the downer of a post, just reflective, I guess....
♥♥♥♥♥
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please Val,keep us posted
U no we r all prayin for U
AND
all that's involved with ur SIL.
Home is where the heart is,and,this is ur home
Xoxoxo FireKracker,
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Val........praying for you girlfriend......lost my mother in 1984 to colon cancer.....miss her everyday.....I was her only child........her joke was........after having my "Ducky", I knew I could never do any better then her, so I stopped...........truth is my father left her right after I was born, and it was her and I till I was 14 years old, when she married my step father..........the only father I ever knew..........
I loved and respected her for raising me to be the person I became.....she did it with hard work by cleaning the homes of the rich people, and working in a laundry for years before getting a respectful job at the IRS, where she retired from........She was quite the lady...I loved her dearly..........and so did my 6 children........she was one in a million......
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Val I am so sorry that you have to deal with this and thoughts and prayers to your brother...alll of these diseases suck.....and we appreciate you also.....Hugs!!!Ducky such good news for Graysen....it was so nice down the shore, didn't go anywhere but you know what I mean...
Fire.....thinking of you tomorrow you will b in my pocket...
Happy Sunday!!!
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