For Informed People Using Alternative Treatments

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  • Fallleaves
    Fallleaves Member Posts: 806
    edited February 2014

    Sorry you are not doing well, Abigail, and sorry about the loss of your true love. I think that kind of stress causes a lot of damage to your body.

  • hjpz
    hjpz Member Posts: 348
    edited February 2014

    I think the stress of my recent BC diagnosis caused the ovarian cysts I have currently.  I am not discounting the effects stress can have on your body.  I am trying to get into Mindfulness Meditation now and how to try out Reiki soon too!  Any little bit helps IMO!

  • hjpz
    hjpz Member Posts: 348
    edited February 2014

    Good news to the ladies who responded a few weeks ago about my ovarian cyst.  I got another ultrasound and a second opinion yesterday and LOVED the new doctor.  He was talking about all these new advances and studies (including hemp/cannabis oil versus chemo!!)  He even seemed knowledgeable about my BRCA2 gene.  He told me I have 4 cysts on my left ovary  NOT 1 like the other doctor and advised that they are not worrisome to him at this time and he recommends a wait and see approach and to cancel my surgery!  It is so nice to find honest open doctors!  He even brought up a study on the internet for me that stated that mammograms are harmful to pre-menopausal women with my gene mutation!  How great is that?  Yay!

  • abigail48
    abigail48 Member Posts: 1,699
    edited February 2014

    what I earned abut controlling blood/hemhorrage:  gary says juice beets, sure am doing that, they're so hard though & can't get organic.  dr google says phosphorus:  shitake mushrooms have more than portobellos, cod, grains, nuts, coumarin:  tobacco has it as an additive perhaps for flavor in cigarettes, & it's in cinnamon.  I've used cinnamon forever.  gonna stop now.  coumarin, while delicious, is used as an arrow poison in the sa jungle, & causes excessive bleeding. going to be difficult.  I think the bleeding helped though, not sure 

  • geewhiz
    geewhiz Member Posts: 1,439
    edited February 2014

    @Momine - I suppose it is a case of  "Which came first, the chicken or the egg..?", and that is particularly true of a slow growing estrogen cancer. It could have been around for years, but I think Her2 can be a whole different ballgame. I had an MRI for a questionable spot off a mammogram several months prior. Both the mammogram and the MRI were completely clear (other than a blip that was a film issue) - Fast forward to 6 months later and 3, 3 cm tumors multi focal, multicentric. From the diagnostic MRI even, to the surgery my surgeon said it had changed drastically. In weeks. My sister is a doctor and requested the films herself saying that no way could the earlier imaging been clear. She saw them and shook her head in disbelief.

    I saw a study posted on BCO here within the past few days stating that it was better to have chemo start soon , within 30 days, after surgery. I think there is a lot to be said for hitting it hard and early.

    @Hipz - glad to hear you have someone you trust. Sounds like things are well!

  • Momine
    Momine Member Posts: 7,859
    edited February 2014

    Geewhiz, certainly true that it is not a one-size-fits-all. In my case, I had been dragging myself for years, including to doctors. I thought maybe I had a thyroid problem or something. As soon as chemo (neo-adjuvant) halved the tumor, I felt significantly better. I felt bad from the chemo obviously, but even with chemo SEs I felt better than I had felt in years and even more so after surgery etc.

  • lightandwind
    lightandwind Member Posts: 754
    edited February 2014

    Hipz, that is great news. Awesome to find a doctor who isn't afraid to be honest with you. I know some play by the book, and this can be so frustrating when what you want is options. I was lucky that my oncologist was able to recognize other options that are not standard.  Though I don't always need  validation from the doc, following my initial diagnosis, it meant a lot to me to have him on my side. 

  • Fallleaves
    Fallleaves Member Posts: 806
    edited February 2014

    Hjpz, that doctor sounds great! That's wonderful if you can avoid having surgery. 

  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited February 2014


    Hipz, mindfulness mediation rescued me years ago when stress was causing really disabling vertigo issues.  It took a long time, but it had a truly significant effect on me (physical and emotional).  If I recall correctly, the gist of the process is just to sit quietly, repeating a mantra, allowing thoughts to float by, as though on a river, acknowledging each thought/stress/issue, then letting it go, returning to your mantra. 

  • Momine
    Momine Member Posts: 7,859
    edited February 2014

    I don't meditate, but I make exercise a priority, where before it tended to end up last on the list, after taking care of everyone and everything else. It feels good to put my own well-being and health first on the list.

  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited February 2014


    In my ever-so-humble opinion, exercise is a form of meditiation--We focus on moving our bodies it prescribed ways (walking, dancing, skiing, aerobics, whatever), allow our breathing patterns to change, and separate ourselves from our everyday lives.  

  • juneping
    juneping Member Posts: 1,594
    edited February 2014

    hjpz - yay...I am glad you found a great doctor. 

  • Momine
    Momine Member Posts: 7,859
    edited February 2014

    Brookside, I completely agree. 

  • Fallleaves
    Fallleaves Member Posts: 806
    edited February 2014

    BrooksideVT, I hope exercise is a form of meditation, because I'm really crappy at actual meditation! I do feel a lot better after I exercise, mentally as well as physically. I'm also a big fan of cognitive therapy, trying to recognize and break negative thought patterns. I think it makes a difference, given my natural anxiety-ridden depressive tendencies. 

  • pipers_dream
    pipers_dream Member Posts: 618
    edited March 2014

    Global Girly, not sure about dosages on Ca and Mg but I was taking the recommended amounts listed on the label and just used the drugstore vitamins.  Nowadays my holistic MD has me on higher dosages of everything and I take a handful of pills 3x/day so don't do that anymore, but still sleeping well.  It could be due to my exercising more than I was.  

    Which reminds me--I bought a rebounder (mini trampoline) and have been having fun with that.  If you do a google with "cancer and rebounding" you'll find a lot of stuff about the benefits of this for us with BC, and it's esp good b/c it gets the lymph fluids moving and detoxes your body.  Even though I was exercising before, I do seem to feel extra special good now and that's with my little $15 model from WalMart.  I'm planning to splurge and get the cadillac model now b/c I know it's good and that I'll do it--it's that much fun.  The best part is my brain has cleared out a lot--the cancer dx really whopped my brain for a loop and I was just floundering at my new job but this week was so much better.  Here's a link to a page about the benefits of rebounding:  33 Rebounding Benefits It's a commercial site but I've seen the info elsewhere.  I esp liked this:  "4. Rebounding benefits lymphatic circulation by stimulating the millions of one-way valves in the lymphatic system. This benefits the body's immune capacity for fighting current disease, destroying cancer cells, eliminating antigens and preventing future illness.

  • abigail48
    abigail48 Member Posts: 1,699
    edited March 2014

    when I'm laying around doing the castor oil pack each week & do what I hope is lymph massage

  • GlobalGirlyGirl
    GlobalGirlyGirl Member Posts: 269
    edited March 2014

    pipers_dream - Funny you mentioned rebounding! I do it for 20 min a day as my cardio workout. It's easy, and I watch TV while doing it. =)

  • pipers_dream
    pipers_dream Member Posts: 618
    edited March 2014

    Funny GGG, I jump to bluegrass music.  

  • hjpz
    hjpz Member Posts: 348
    edited March 2014

    Thanks for all the encouragement ladies!

    BrooksideVT I am hoping I can get into the mindfulness thing because I have a lot of racing insignificant thoughts all day every day.  I am reading a few books on it and one is written by a guy who sounds like me  - my hyper - and he finally mastered mindfulness and says he has special techniques for people who find it hard to mediate so I hope it works! Thanks  for your thoughts on it.

  • hjpz
    hjpz Member Posts: 348
    edited March 2014
  • Momine
    Momine Member Posts: 7,859
    edited March 2014

    hjpz, I have seen a few things about this new test. It is intriguing for sure, and I hope its use is investigated further. 

  • hjpz
    hjpz Member Posts: 348
    edited March 2014

    Momine this is the first I have heard of it (my hubby actually brought it to my attention because he is always on the look out for cancer news).  I am also very intrigued!

  • Scandophile
    Scandophile Member Posts: 71
    edited March 2014

    SRH42,  Yes, I had a course of anti-biotics due to Mastitis right after my son was born. Within a few short months later, I felt the lump which I thought was just another blocked milk duct. Boy, was I wrong!

  • Srh242
    Srh242 Member Posts: 328
    edited March 2014

    Scandophile. : your story sounds a lot like mine. I did go to two surgeons after delivery and they both agreed I had breast cysts. Low and behold I didn't worried again for a whole year and got pregnant again :(

  • hjpz
    hjpz Member Posts: 348
    edited March 2014

    I noticed someone mentioned castor  oil treatments so I looked them up.  I see they are also used for ovarian cysts.  I may look into doing these treatments for my lymph nodes and ovaries - sounds interesting.  Thanks for mentioing it ladies! 

  • hjpz
    hjpz Member Posts: 348
    edited March 2014

    Hey I am lazy and love this thread so I am going to ask here first.  I know the actual TE removal and implant surgery is only around 1-2 hours so I was assuming I would take a week off work to recover.  For those who have had this surgery does this sound reasonable?? FYI I generally rebound very quickly.   Also, I just noticed something about some other women having drains for their implant surgery and I am NOT happy.  I hope I was reading that wrong. 

  • juneping
    juneping Member Posts: 1,594
    edited March 2014

    have you guys heard of oil pulling?? i was reading a forum about this and ladies seemed to think it's effective. it helps to detox and correct hormones imbalance. anyone tried??

    http://www.foodmatters.tv/articles-1/oil-pulling-t...

    hjpz - i don't have experience but i would think may be two weeks are better? on another thread, i know someone had a reconstruction surgery..and there're drains. anesthesia can be pretty harmful to our bodies. it also depends on what kind of job you do as well.

  • hjpz
    hjpz Member Posts: 348
    edited March 2014

    Juneping I have not heard of oil pulling.  Sounds strange!  Wonder if it works. So many interesting things out there that I have never heard of before this thread!  Thanks for your thoughts on my surgery too.  I recover pretty quickly normally so I will see what my PS thinks about time off but I always like to know about others experiences.  I do believe 100% that a positive attitude goes a long way with recovery.  I took vitamins (not E) before my last surgery and listened to a pre-surgery hypnosis CD for two weeks prior and think it really helped.  I plan to do it again! 

  • new2bc
    new2bc Member Posts: 559
    edited March 2014

    I also use the trampoline everyday but I can only do 5 minutes. I did not exercise prior to diagnosis. You ladies must be very strong to do 20 minutes. 

    jojo,

    Thanks for sharing the link about preventing cancer. They mention that too much green tea damages the liver and the kidneys.

    Anyone here takes low dose LDN (Naltrexone)?  

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