For Informed People Using Alternative Treatments

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  • pupmom
    pupmom Member Posts: 5,068
    edited February 2014

    Junneping, I don't know what SE's you've gone through, but I'm assuming they were rough (haven't really been following this thread). However, it seems as if treatments have given you a much better long term prognosis. I've gotten the same treatments except chemo, which is probably the worst of the three.

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  • juneping
    juneping Member Posts: 1,594
    edited February 2014

    yorkie, 

    well, that's so standard for us especially we have positive nodes. but i am only doing the tamoxifen. with dr. wong's herbs. and i am taking some supplements but that's gonna change after i meet the integrative doc next month. 

    i read canceractive.com that there's 4 factors that can affect cancer rates...one is state of mind, diet, environmental and infection. dr wong told me state of mind is the key factor and i believe so bc i went thru a very unhappy 6-yr from 06-11. the timing seemed right according all the info i've read.

    http://www.canceractive.com/cancer-active-page-link.aspx?n=644

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  • abigail48
    abigail48 Member Posts: 1,699
    edited February 2014

    & how is is done?  with water baths or  something else?

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  • jojo68
    jojo68 Member Posts: 881
    edited February 2014

    Dr. Wong told me about state of mind being a key factor as well...he was so sweet and encouraging me to enjoy every breath of air...every fresh flower etc...Nerdy

    I do believe him as my marriage was at its worse for about 5 years up until diagnosis...and, I was on anti-depressants.

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  • juneping
    juneping Member Posts: 1,594
    edited February 2014

    i was reading a thread in stage 4, a lady called jenn has been doing complementary treatment for many years. 

    she mentioned a scan called biofeedback scan that can detect anything a pet scan can't 9 months earlier. i am going to ask my integrative doc at the next/first visit.

    jojo - i am glad you agree with me. even canceractive brought that up. it just seems a lot of conventional medical field see it as a nonsense. for some reason, i am very interested into what the causes are.

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  • juneping
    juneping Member Posts: 1,594
    edited February 2014

    hjpz - i just finished the book what doctors might not tell you about BC

    gosh there're a lot more SE than what i've been reading online. i really don't know. but since my alt doc said i must take tamxo so i'll stick to it. i am on the 2nd day of taking tamxo...so don't know the SE yet. i wanted to say i'll see how i feel two years from now but who know where i'll be in two years. i'll see. 

    i am piling some questions for my integrative doc...will post after the meeting, in a month. gosh i can't wait to meet her.

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  • lightandwind
    lightandwind Member Posts: 754
    edited February 2014

    dear Melissa, this is what you wrote to geewhiz after she, myself, and the rules of the alt forum had requested against it. Thanks for providing us a good example of "challenging"

    "Geewhiz, if it is so compelling, why don't you just post it instead of
    requesting WYO to PM it? Legitimate research isn't secretive"

    No one on these boards is so insensitive that they would go to the chemo forum and ask, challenge, or demand women give their reasons for choosing the medicine they do, even though survival stats for conventional treatment have barely changed in years.

    Geewhiz met your "challenge" and posted her research to keep from being further, yes "ridiculed" by others on this site who apparently are too lazy (aside from Momine) to do their own research. I am alone and speak for myself, but you guys have a swarm, which according to yorkie, have apparently appointed Momine as your "spokesperson",  who I guess has to do all your research for you guys too. If you are so interested in debunking alternative "myths", why not do your own research on the evidence supporting the treatment first before you come around and insist others do all the work in order to give it to you? 

    The Alternative forum has supplied you and your entourage with a ton of evidence based info, for various treatments, for which you said there was none, and still say that.  We've posted that info for you, now you don't have to go through all the work and time and energy to do it yourself. Instead of thanking folks on here for the hard work involved with that process, you say you are "waving the flag" and proudly claim that you have successfully "debunked." What is all that posturing and hooplah all about? "Fantasy" is making a claim that you you've won something when you haven't. Also, you've done nothing in your efforts to "debunk" but make unkind comments and remarks, pictures, etc, which just perpetuates an ongoing problem, a mindset, that in the scheme of things, is a barrier to getting women and men the kind of treatment they so desperately need.

     

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited February 2014

    momine is not the only one doing the research, though she tends to post the links, whereas some of us may not. As far as I can tell, she does this freely and has never expressed any resentment about doing this. If she did, I believe she'd be forthcoming and say so herself. I do know that if asked, I for one would gladly share any info I had and never tell someone to do the work themselves, if I had it readily available. 

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  • Momine
    Momine Member Posts: 7,859
    edited February 2014

    Light, just FTR, I am nobody's spokesperson or researcher (except for clients who pay and that has nothing to do with this board or breast cancer). I like to read and like to talk with others about what I have read. That is all.

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  • flaviarose
    flaviarose Member Posts: 442
    edited February 2014

    Stepping aside from the controversy, I'll change the subject.  Has anyone tried artemesinin, mistletoe or graviola?  I kind of went crazy on amazon recently and ordered them all.... also apricot kernels...... My doctor says I'm cancer free, and I just want to make sure I don't get a recurrence.  My idea is that I'll do all 3 substances mentioned above, in sequence (along with the turkey tail, etc., that I'm already doing.... and I'm planning to eat 5-10 apricot kernels every day.....

    Also someone on this thread, I believe, recently posted a recommendation for a book by a Dr. Plant, which I read.   She claims that dairy is a causal factor in breast cancer, so I'm reluctantly giving that up too..... (except for the occasional organic butter...)

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  • lightandwind
    lightandwind Member Posts: 754
    edited February 2014

    Flaviarose, sending you a PM about arteminisin, mistletoe, and graviola.

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited February 2014

    I'm glad she posted it. It is interesting, though it appears most of the research has been done in conjunction with increasing the efficacy of radiation or chemo on superficial lesions.I should think everyone here should be glad she shared it with them.

    I don't have a spokesman.

    I do frequently (unprompted) post links to research to back up what I am explaining to people on the conventional boards as well.

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  • abigail48
    abigail48 Member Posts: 1,699
    edited February 2014

    I learned about misltetoe many years ago when my dear friend richard was using it for lung cancer.  he eventually had surgery but no other conventional treatments.  he used gerson, his own version, with coffee enemas, enzymes, vegan diet, he's been cancer free for now 30 years.  I heard from him on fb just the other day.  he said at the time the mistletoe injections were expensive.

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  • GlobalGirlyGirl
    GlobalGirlyGirl Member Posts: 269
    edited February 2014

    flaviarose - I took Graviola pills for a while (a bottle's worth). I prefer drinking tea made from the leaves. My aunt lives in Hawaii and sends me a box of the leaves. It's actually really tasty.

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  • AMothersLove
    AMothersLove Member Posts: 3
    edited February 2014

    Hi, my daughter had breast cancer that spread to her bones.  Her story of chemo and radiation has almost been eight years now.  Years ago, I began to research many God given plants and herbs for my daughter.  We tried only a few but she got progressively worse.  I have been researching cannabis oil as our state is now 62% in favor of this medical cannabis for medical reasons.  All I had ever heard was people smoke this for pleasure.

    I have been amazed at the information I found on Youtube about Cannabis Oil and Cancer.  As a Mom, I pray it will pass in our state for my daughter.  Please pray for us.

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  • leggo
    leggo Member Posts: 3,293
    edited February 2014

    AMothersLove, I'm posting a link regarding legal marijuana states and marijuana-friendly states just in case you happen to live in one of the states where it's not legal persay, but personal use isn't criminal. Also, if you're in Canada, you can get it by prescription. Have you thought of perhaps growing your own?  I'm so sorry I can't be of more help. It just makes me sad and angry that those who need access to it, can't get it.

    I wish you and your daughter all the best.

    http://medicalmarijuana.procon.org/view.resource.php?resourceID=000881


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  • AMothersLove
    AMothersLove Member Posts: 3
    edited February 2014

    Thank you so much Leggo going to your link now, God Bless.

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  • flaviarose
    flaviarose Member Posts: 442
    edited February 2014

    Interesting - graviola is related to the paw paw tree, and I have a couple of those in my yard... I'll have to gather some this summer for tea!  thanks for the suggestion!

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  • flaviarose
    flaviarose Member Posts: 442
    edited February 2014

    you may be able to get cannabis oil even in a state where it is not legal.... sometimes if you ask people who know people, someone will be able to get it.

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  • hjpz
    hjpz Member Posts: 348
    edited February 2014

    juneping - glad you read and finished it.  I am doing what I always so - seeking out different types of info and then making a decision I feel is best for me. I by no means think everything in that book is 100% accurate but it was interesting and made me feel less crazy for always questioning conventional medicine (I do tend to get all conspiracy theory when Big Pharma is involved). I do find that I have had a ton of the symptoms of estrogen dominance (acne and migraines during period, dry eyes, allergies, bad cramping, excessive bleeding, ect...) which leads me to think the Dr. is onto something.  I have moved onto his other book What Your Doctor May Not Tell You about Pre-menopause for women 30-50 but I am not as invested in it yet as I was with the BC book. I will give it a full read though :)

     I am still taking Tamoxifen as well - I meet with my Oncologist in March so I plan to ask him more about it (mostly about my risk of re-occurrence without it since after my double mast. my risk is already pretty low- under 10%).I know from my first time around with BC  I need to be 100% behind any treatment I use for it to work best so that meeting will hopefully ease my mind some.  Best of luck to you as well!  I wish I liked closer to Dr. W.!     p.s. not to be slow but what is an integrative Dr.??  All you ladies have all these cool sounding people you meet with - for me it is just "oncologist" "surgeon" and "plastic surgeon" hahaha

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  • hjpz
    hjpz Member Posts: 348
    edited February 2014

    A Mother'sLove - I am sending you and your daughter my most positive thoughts today.  

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  • hjpz
    hjpz Member Posts: 348
    edited February 2014

    Sorry to hoard the thread ladies!  I just started adding organic Hemp Seed to my smoothies because I wanted to get Omega 3 and dislike fish/seafood and discovered (after I bought a large bag of it) that Flax Seed has pseudo-estrogen in it and had have read conflicting reports on whether this is good or bad for women with estrogen positive BC.  From everything I read Hemp Seed is not a pseudo-estrogen and has many positive effects.  Anyone else use it?? 

    p.s. I bought some seaweed and kelp to try as well but man do they smell "fishy".  I put just a tsp. of the kelp powder in my smoothies but I still smell it.  I can not eat the seaweed straight as it is too chewy and salty so I am going to try to make some Miso soup with it since it  was really expensive and I am too cheap not to try to use it all!  Anyone have any other recommendations for how to eat either of these things?? Thanks!

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  • Momine
    Momine Member Posts: 7,859
    edited February 2014

    Hjpz, I put strips of seaweed in veggie stir-fry type things. Just watch the salt, since the seaweed is salty.

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  • hjpz
    hjpz Member Posts: 348
    edited February 2014

    Thanks Momine!  I will try that.  Yeah it is very salty so I will def. limit it! I don't want too much iodine.

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  • peacestrength
    peacestrength Member Posts: 690
    edited February 2014

    I'm just getting caught up on reading this thread.

    Geewiz - I'm also looking into hyperthermia.  I'm doing hydrotherapy per my naturopathic.  Please let us know how your treatment in Canada goes.

    Misletoe/Iscador - My naturopathic and me are consulting with two other physicans soon regarding this - along with other possible treatments.

    I use seaweed in moderation in soups and teas.  As Momine states, be careful with using salt with it.  I don't add any additional salt because seaweed is salty enough.

    I use organic hemp seeds in several dishes.  I also use other seeds and nuts - and whole grains like millet, spelt, wheat berries, etc.

    Where can I find quality Essaic tea with the proper blend?  I need to ask my naturopathic but maybe someone here knows of a crediable source online.



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  • AMothersLove
    AMothersLove Member Posts: 3
    edited February 2014

    Thank you so much.....got a call last night.....friends of friends are all around us.   

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  • hjpz
    hjpz Member Posts: 348
    edited February 2014

    Thanks PeaceStrength!  

    So sad for you AMothersLove.  My mother passed away from breast cancer when she was only 46 - she struggled with it for 8 years prior to her death.  I can sincerely say I hate cancer. Hang in there.

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  • juneping
    juneping Member Posts: 1,594
    edited February 2014

    hjpz - it's also my first time knew there's integrative doc lol. i think they're similar to nutritionist or naturopath doc? they aim to complement the conventional treatment. the reason my onc suggested me meeting the integrative doc bc i am not doing chemo and radiation, and she knew i am taking supplements and she thought having an integrative doc take a look at what i take and see if it will conflict with taxmo. they also have in house nutritionists as well but insurance doesn't cover it. 

    here what i found might explain better than i did..

    http://www.webmd.com/a-to-z-guides/features/altern...

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  • cp418
    cp418 Member Posts: 7,079
    edited February 2014

    http://cancer.ucsf.edu/_docs/crc/nutrition_breast.pdf

    Nutrition & Breast Cancer


     

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited February 2014

    thanks, cpl. It sounds like a sensible, balanced diet. 

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