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  • jojo68
    jojo68 Member Posts: 881
    edited January 2014
  • new_direction
    new_direction Member Posts: 449
    edited January 2014

    jojo YES im on the artemisinin wagon - doing a Little of everything. Think I mentioned it before. Im not taking it every single day. I read at some point the uptake was reduced when taken constantly. So take 200 mg every other week'ish.

    There is a combined product i think of the 3 variations of artemisinin... They have different properties - half life and polarity etc.

  • lightandwind
    lightandwind Member Posts: 754
    edited January 2014

    Momine, I haven't downloaded the podcast but reviewed the powerpoint on diet and looks like it's confirmed a lot of the things we already knew and some things that we've recently discussed on the comp forum, re; fiber, etc. Anyway, thanks for posting. 

    Jojo, I sent you a PM about the Art.

    new2bc- I took ALA for awhile, really made me feel better at first too. Supposedly helpful for a lot of different ailments including bc. Careful though, from my experience, after several weeks to a couple of months of taking it regularly it starts to deplete the body of nutrients, especially b vit- particularly folate, b1, and b12. Also depletes iron. Anyway, after this happens it becomes a balancing act that is almost impossible to get right. Supposedly is risky to supplement w/ iron so I just stopped taking ALA for the most part. Every once in a while I throw it in.

  • Momine
    Momine Member Posts: 7,859
    edited January 2014

    Light, you are welcome and I agree. The diet woman sounds like she is talking to preschoolers, but stay with it, because her info is sound. The exercise one is presented by an onc, who is researching exercise and she is interesting. In summary (what I can remember from both presentations):

    Keep BMI at or below 23.

    Eat 7-8 servings of veggies and fruits a day. Make sure to eat a variety of different produce and it is important to eat the whole fruit or veggie (not juice etc).

    Go VERY easy on full-fat dairy. 

    Make sure some of your fruit/veggie is berries.

    Make sure to eat veggies from the cabbage family, preferably daily.

    Eat fatty fish.

    Eat nuts.

    Lean protein like poultry is fine, but red meat should be max 4X a month.

    Alcohol is OK in moderation (3-6 drinks a week).

    Get 25 grams of fibre per day.

    Eat 3-4 servings of beans/lentils per week.

    Supplements and vitamins are largely useless, better to get nutrients from whole foods.

    Get a minimum of 150 minutes of exercise a week. Walking is fine.

    Exercise is correlated with vastly reduced risk of recurrence, especially if you get more exercise than you were getting before DX.

  • abigail48
    abigail48 Member Posts: 1,699
    edited January 2014

    gary said the other day to eat a handful of nuts daily:  or nut butters, they often contain added sugar though I've found.  almonds, macedemias, walnuts, pecans he mentioned recently.  & brazil nuts.  found some organic brazil nuts w & turns out my spice grinder makes nut butter.

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    about the BMi, I have always been underweight...but I still had BC. Does it really matter? 

  • leggo
    leggo Member Posts: 3,293
    edited January 2014

    Probably not, but I think it would have a lot to do with how well your body heals after trauma and how well it handles the treatment (s). There's a lot of extra stress placed on vital organs when you're overweight.

  • Momine
    Momine Member Posts: 7,859
    edited January 2014

    June, this stuff is based on averages and statistics. You will always have outliers and nothing we know of so far will reduce your risk to 0. I have never been clinically overweight. At my heaviest, I had a BMI of 26. That was when I was 9 months pregnant. 

    But looking at stats, staying slender is strongly correlated with lower risk of recurrence and of all the factors I have seen studies/recommendations about the #1 in importance is always exercise. Again, it is correlation and it is statistics, so you can run 50 marathons and still get a recurrence, and someone sedentary may go along being cancer free for the next 40 years. All you can do is play the odds.

  • lightandwind
    lightandwind Member Posts: 754
    edited January 2014

    Momine regarding the diet from the podcast, it is interesting that the webinar from the alternative perspective that I attended last year had the same diet as this one from a more conventional perspective. Glad to know that the two camps agree on that. All except for the "supplements are useless part", it was the same. 

  • lightandwind
    lightandwind Member Posts: 754
    edited January 2014

    Juneping, I have a friend who had also always been very thin. who was 5'6 and weighed 118lbs who was diagnosed the same time as me. I was 5'6 and weighed 158 lbs at diagnosis, the most I ever weighed, so for me I think the weight was a factor. I weigh 132-134 now. One thing we had in common at the time though was dense breast tissue. Did you have dense breasts? This seems to put many in the high risk category. 

  • Momine
    Momine Member Posts: 7,859
    edited January 2014

    Light, I think it is because there actually are some studies that at least hint at what might be a useful diet.

  • hjpz
    hjpz Member Posts: 348
    edited January 2014

    I truly agree that dense breast tissue is a risk factor too! 

  • GlobalGirlyGirl
    GlobalGirlyGirl Member Posts: 269
    edited January 2014

    Momine - Thanks for the synopsis! I like that there are guidelines. Especially about the red meat - max 4x a month.  

    Nut butters are awesome, especially if you're underweight.  I was always a yo-yo'er when it came to weight.  Now that I don't eat dairy, wheat, or sugar anymore, I've lost a lot of weight. Too much, I think. I think nut butters help keep the weight from going down further.

    The breast density is definitely a risk factor. Are You Dense?

    Haha on the article title. Mine are Category 4. Only 5-10% of us have them.

  • Momine
    Momine Member Posts: 7,859
    edited January 2014

    Global, welcome and I agree on the nut butters. I eat some on slices of green apple. 

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    lightandwind - lol yes i have dense breast tissue. got a call back on my first mammo bc of my very dense breast tissue. checked out fine...it was my left breast they're looking at. skipped a year and here i am. it's my right breast got the MX. it's kind of ironic and funny...

  • new2bc
    new2bc Member Posts: 559
    edited January 2014

    lightandwind,

    Thank you for sharing your experience regarding ALA. Did your test results show that vitamins B1, B12, iron and folate were being depleted? I recently asked my doctor to test my vitamin B3, B6, and B12. She told me there is a possibility that my insurance does not pay for all these tests. She talked me into just testing B12. I am just wondering if you periodically test for these vitamins or should I say your doctor allows you to test for these vitamins. Anyone else has a different experience with Alpha lipoic acid? While I was researching, I learned that it is better to take R lipoic acid instead of ALA.

    Globalgirly,

    My breasts were also extremely dense which puts it in category 4. I wonder why they did not tell us that they can not see clearly behind white shadows (dense areas) and asked us to come back every year for screening.

  • lightandwind
    lightandwind Member Posts: 754
    edited January 2014

    new2bc- my primary doc did the tests a couple of times and found my b1 and b12 low. I have gotten shots for these on a couple of occasions. I figured it was the ALA since this is a side effect.  Haven't had a problem with it since I stopped taking it daily.

  • GlobalGirlyGirl
    GlobalGirlyGirl Member Posts: 269
    edited January 2014

    new2bc - Right?? What I don't understand is why those of us with extremely dense breasts can't just skip the mammogram and have a yearly MRI? Or every 6 months for those of us who already have breast cancer. I'm sure it has to do with cost, but what's the point of a yearly mammogram if they can't see if something is wrong? Plus, there is no radiation with MRIs.

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    i read that MRI is less bad but still some kind of bad effects to our body. ultrasound is probably the least worst among all those screening tests.

  • hjpz
    hjpz Member Posts: 348
    edited January 2014

    Ugh!  I was just  getting recovered from my breast cancer diagnosis and decided to be proactive and have my ovaries checked via ultrasound since I have the BRCA2 mutation and was told there is a "solid cyst" on my left ovary!  I had a blood test done and will know in 2-3 days if it is positive (CA-25).  Anyone else have any ovary issues too?  I am trying to remain positive but my OBGYN appeared to me to think it was not going to be good news (she didn't say as much but I could tell).

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    hipz

    oh...i am sorry to hear that. but it could be just a benign cyst...

  • hjpz
    hjpz Member Posts: 348
    edited January 2014

    I hope so! I have bad luck with things being benign though! Thanks :)

  • new2bc
    new2bc Member Posts: 559
    edited January 2014

    Hi hipz,

    I hope you get good news on your test. When I asked my ob/gyn to do the CA 125 test, he told me that this test is not too reliable. I don't know if he just didn't want to do the test to save money for the insurance company or he was telling the truth. You can ask your obgyn also. I think monitoring the ovaries again in a few months by ultrasound is a good idea just to be sure. Your ob/gyn may suggest to come back in a year but be proactive and monitor the size in a few months. I hope everything will be ok. Breast cancer is enough for all of us.   

  • hjpz
    hjpz Member Posts: 348
    edited January 2014

    Thanks! My oncologist always checks my CA 125 and I was actually due for my blood work in March. I read it is not reliable and if it is the same as the BC marker I have no faith-- I just had my yearly BC blood test in Aug. and it was in the normal range ( same time I found my BC!)  I am trying not to stress myself out as I can't do anything until I know more. I was just really excited to start working on balancing my hormones naturally so I will try to focus on that again as obviously they are out of wack!

  • new2bc
    new2bc Member Posts: 559
    edited January 2014

    hipz,

    Was the test in August CA 27-29? Was this test normal at the same time you had breast cancer? Wow, if this is the case, I feel more scared for all of us BC sisters. I guess the best thing is to have faith and hope for the best. My hormones are out of wack too. They tested my hormones twice and both times my estradiol hormone is very high. I take indole 3 carbinol, ground flaxseed and some other supplements. What are you doing for hormone balance? I am on Tamoxifen and sometimes I think it is causing the ovaries to keep making more and more estrogens.  

  • abigail48
    abigail48 Member Posts: 1,699
    edited January 2014

    re ground flaxseed:  don't add it to oatmeal ie don't kook it, add it raw on top of cooked.  it turns into glop if you cook it

  • hjpz
    hjpz Member Posts: 348
    edited January 2014

    new2bc - since my first BC diagnosis in 2001 I have had regular blood work done.  I used to have it every 3 months but then it went to every year.   In Aug. 2013 I had my blood work done including the CA 15-3 blood test.  My level was 21.3 (anything under 31 is normal).  This is the same time I  found a lump that ended up being cancerous.  My previously mammogram also found nothing so my faith in medical testing is not very high at this point.  

    I have been reading about hormone balance a lot and was going to try to really limit my sugar and up my veggies (I am more of a fruit fan but need to eat more veggies). I am also amazed and scared the more I research all of the xenoestrogeons out there!  So many.  I was going to change some products I use to avoid them as much as I can.   Lastly, I am looking into starting a small does of progesterone cream  during the last two weeks of my cycle but haven't done that yet.    I asked my OBGYN if I should have my hormones tested and she did not think it was necessary because I was both estrogen and progesterone positive??  I am not a doctor but something is off with my body IMO.  

  • abigail48
    abigail48 Member Posts: 1,699
    edited January 2014

    & if you use organic dried cranberries on your cooked cereal you won't need any sweeteners for it

  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited January 2014

    If your tumor has progesterone receptors, why would you want to add that hormone?  As far as I can tell, medical science has not figured out how to address PR+.  They test for it, record it, but then just forget about it.  I haven't found any research on how it works, or whether there is any way to block progesterone.  Confusing, and frustrating.  Does your onc have any clarity on this? 

    As for your gyn not being concerned about balancing hormones, the theory there is that estrogen receptors are not the least bit concerned about the source of the estrogen they might glom onto.  From their point of view, any estrogen is yummy estrogen.  That said, your tamoxofen should take care of the estrogen issue, but I would guess, if you are premenstrual, balancing estrogen still might be a good thing.  The best way to reduce the estrogen produced by your body fat, is, sadly, to lose its source: body fat.  I did ask my onc about balancing estrogen and he was pretty clear that as I am post menopausal, there is only one source of estrogen in my body and weight loss is the key for me.  I do wish I could just take some herbs and forget about it!

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