October 2013 Chemotherapy

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  • SuckitBC
    SuckitBC Member Posts: 34
    edited November 2013


    To my fellow Wednesday warriors, I am dreading tomorrow, but ataying positive. Good luck to everyone!

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited November 2013


    Spiritbless,


    Thank you for your favorite verses as I am going to jot down a few in my "Cancer Journal". Hang tough ladies.


    I had my 3rd tx this week. Skin is terribly dry and I am so cold this evening shaking chills. Hugs to you all((((Hug)))))


    Furfriend

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited November 2013


    Vintagegal- glad they decided it was a go today:). You will have to send pics of the tattoo!! Sounds awesome


    Debdylan- not sure why your MO won't give Neulasta other than everyone has different practices. If MO wants to do dose sense (every 2 wks) then I think it's a given to do the injection. In had to stop Neulasta after first round due to reaction and my my counts would just not hold without it for dose dense so I had tomorrow to every 3 wks.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2013


    Oncotype Dx uses a 21 gene profile, Mammaprint uses 70. Both tests have limitations with regard to hormonal receptor eligibility and age appropriateness, and it is actually kind of difficult to compare them head to head - kind of an apples and oranges thing. Here is an interesting link:


    http://www.news-medical.net/news/20120710/MammaPrint-more-cost-effective-and-clinically-useful-test-than-Oncotype-DX.aspx


    There is a Mammoprint vs Oncotype section of this link:


    http://www.medscape.com/viewarticle/779016

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited November 2013


    Vintagegal,


    My MO told me the same. Most are able to handle the Taxol a bit better. Good for you and your last AC!! I just had my 3rd tx and have one more AC to go. All these SE's makes me crazy in the head, LOL!


    Furfriend

  • Headeast
    Headeast Member Posts: 619
    edited November 2013


    SpecialK, I printed the Links you suggested and will present to my MO. Thank you so much!

  • Pam358
    Pam358 Member Posts: 294
    edited November 2013


    lg - sorry to hear you had a mini anxiety attack today during treatment. The ativan might be a good idea no need to suffer through that...there is plenty of other stuff we have to muddle through without meds. Last time I had a funny sensation during my Adriamycin infusion - just a wave of a funny feeling that was coming and going. The nurse assured me it was normal and would probably be over when she was done pushing in the chemo and she was right. Not making me look forward to it tomorrow.


    VintageGal - Congratulations on the last A & C


    For me, I'm on medical leave and am not working during treatment.

  • TeamKim
    TeamKim Member Posts: 568
    edited November 2013


    lg -- I take an Ativan about 45 minutes before treatment each time -- so far it has controlled by anxiety very well.


    Furfriend, be sure to take your temperature when you have chills and shaking. On Friday, after my Neulasta shot! I had the same thing, as my fever was rising to 102.8. Call your MO if it gets up over 100.5, as there are a lot of reasons fever can occur and they want to get on it, whatever the cause.


    Spirit -- thanks for the verses. I prints them and put them up on the bathroom mirror.


    Schoolcounselor -- sorry to hear you are knocked out. Me too, this time. Seems like the fever from the Neulasta shot really kicked my butt. Or maybe I just was still a little weak from tx 1 and each time I will start out a little more in the hole. I hope you are taking care of yourself and you bounce back soon.


    Special K -- thanks for the link about comparing Oncotype and Mammaprint. My BS and MO were adamant about Mammaprint! but it will be useful to read more about it. MO also sent my sample for a "BCI" test which (as I understand it) is still building its database, but is designed to show the effectiveness of extended hormone therapy. My results showed there would be little to gain from Tamoxifen beyond 5 years. Factoring all the tests together, MO says with my treatment regimen, my chance of recurrence within 10 years will be less than 5 percent -- and that doesn't take into account the benefit from rads. While that is reassuring, I have been on the wrong side of the odds a couple of times in this BC journey, so I try not to pay much attention.


    I went back to work today after chemo #2 (which was Thursday). I HAVE to work since I am a contract employee and so I need to finish out my semester. But I was really dragging today. My office is in an historic building with no elevator and I have to climb stairs to my office several times a day. I find I can only go up a short flight then need to stand for a few minutes on the landing to regroup before I tackle another short flight. Had to allow extra time to get to my classes today. Luckily I planned it so the students are doing presentations so I don't have to stand through class, just sit in the back and grade them. In between my two classes I ate a little lunch, then closed my office door and laid on the floor with my feet up for a little while. I came straight home after my second class today and took a 2 hour nap. I am lucky that I have the kind of job that I can just leave when class is over, so I was actually only at the University for 7 hours. Now, after dinner, the low grade fever is back, so I will take Motrin and turn in early.

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited November 2013


    I'm working through my treatment, chemo on Fridays every 2 weeks, #3 this Friday. I take off the Monday after but probably could go in but I rest and run errands if I feel like it. I am a RN and work in a doctor's office, but my coworkers have been very helpful. Also I am 57 years young, lol. I usually work with one of the docs but can be on the phones if I feel tired and need to sit. It has worked for me so far. I hope it continues this way.


    I had my breast ultrasound today and the tumor is much smaller with one area only seeing the biopsy clip, also nodes are smaller too! Woo Hoo, chemo must be working! So relieved


    Good luck to the Weds group and everyone who is having tx this week!

  • Annecy
    Annecy Member Posts: 54
    edited November 2013


    Good luck to the Sisters going for TX tomorrow ! Will be thinking of you! (HUGS)


    70 Charger- I love the cartoons!

  • Headeast
    Headeast Member Posts: 619
    edited November 2013


    Good luck to all on today's chemo. One less to go!

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited November 2013


    Thinking about everyone today!


    Yeah I called MO got the Ativan script and felt better after few hrs. So far so good today. Pam, it started with adriamycin for me too. Last time I was fine though. Huh oh well. I will prob take before I go next time.


    Feel ok otherwise today! I am supposed to go to Justin Timberlake concert on Sunday night but might have to scratch that :(

  • mfm48
    mfm48 Member Posts: 110
    edited November 2013


    lg - I took the ativan before my last two chemo treatments. I'm using the cold caps so the ativan has helped me get through that as well. I've also taken them as sleep aids those first few days after tx when I am on the steroids. I sleep really well on it.


    teamkin and headeast - I see you are both on the TC regimen as well. I feel like I am not as energetic as my first two tx. And I have still have pain in my back/abdomen at night that is really bothersome. I feel so tired and just don't feel like doing anything beyond making dinner, shuttling my kids where they need to go. Im just saving it for my kids when they get home from school. Are you feeling the same? It doesn't help that I have this traveling rash that makes me itchy all the time!


    My last chemo is next Thursday. I am trying to smile and be positive when friends/family are like - almost done! Just a few more days. They just dont' get it that its not done till the SE's are done.


    Good luck to all of you who had chemo today or tomorrow. Prayers for you that the SE's are minimal and the treatments are doing their work!!

  • Headeast
    Headeast Member Posts: 619
    edited November 2013


    @SpecialK Ditto! You are special! No idea the sold wig tape!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2013


    Awww thanks you guys! Just trying to be helpful and encouraging, I am happy to do so! People extended their hand to me when I was in your shoes, so just paying it forward!

  • wrenn
    wrenn Member Posts: 2,707
    edited November 2013


    Adding my gratitude and appreciation to Special K. You are very special. Thank you so much.

  • Macy187833
    Macy187833 Member Posts: 182
    edited November 2013


    Hello ladies! Hope everyone is doing okay this week. I had infusion #2 a week ago. Still feel pretty good; a few more side effects this time around but overall, I can't complain!


    Has anyone experienced dizziness?


    I went back for my one week check up and mentioned that I have felt dizzy. Kind of like the feeling you have when you first step off a merry-go-round. No nausea and the dizziness comes and goes. I've had dizzy spells for a long time; usually when I've been sick or really stressed. Because of this, my MO wants to do a head CT just to be sure. I'm seriously freaked out because of the test itself and the associated cost. I already have enough medical bills to pay.


    A nurse told me that it could be dehydration that is causing the dizziness. I'm going to amp up my fluid intake but seriously, I'm stressed out. This whole thing is bad enough but a head CT? Nooo!

  • JennH8
    JennH8 Member Posts: 65
    edited November 2013


    I have missed a lot over the last few days but reading through I see quite a lot being said about how cancer has taken our looks. Are any of you familiar with the Look Good, Feel Better classes? They're offered all over the country as far as I can tell. If your area isn't listed, you may check at the cancer center you go to anyway as I have a friend who lives in NY who found one even though they didn't show one close by. Anyway, I'm signed up to go on the 18th. Really excited actually. We deserve some pampering after all this. Here's the website if you want to look into it. http://lookgoodfeelbetter.org/

  • SchoolCounselor
    SchoolCounselor Member Posts: 452
    edited November 2013


    Hi jenn,


    I went to one of those it was okay, I got a lot of great make up and some tips on how to draw in eyebrows when they are gone.


    I got a free wig today from ebeauty.com. It is gorgeous and I have been wearing wigs for years. You ladies should look onto it. It made my day today which has been a rough one with SE. Stomach cramps, my MO said take Motrin and Benadryl and if I don't feel better in a half hour, off to the ER. I have 15 minutes left....,,, sigh

  • Macy187833
    Macy187833 Member Posts: 182
    edited November 2013


    Debdylan, that is exactly what my dizziness feels like. Thank you so much for responding; you have no idea how much this helps me feel better.


    Your dizziness went away then? Did you do anything to make it better?

  • wrenn
    wrenn Member Posts: 2,707
    edited November 2013


    CT of the head is about the only scan that doesn't freak me out. Only your head and neck go into the machine so if you are claustrophobic it isn't bad at all. I had one with contrast and it was quick and easy. Unless you are freaked out about results but hopefully that is just a side effect. If you are worried about the cost i wonder if they can hold off on the scan to see if it improves? It is one thing after another with this stuff isn't it? Hopefully we will get through in one piece.

  • Pam358
    Pam358 Member Posts: 294
    edited November 2013


    Treatment #3 in the books.....5 more to go. At least I'm 75% finished with my A&C. I was feeling more anxious today about treatment, not really sure why. Some of it was certainly the fact that I was going to get something that is going to cause SE's I don't want for the next several days. So I took my own advice and took an ativan before treatment. The nurses were happy about it, no need to suffer. They were also mentioning anticipatory nausea...that some patients truly get nauseous just entering the clinic or getting ready to go to chemo. My MO said he's heard of patients throwing up in the grocery store when they see their MO or nurses from the clinic.


    School Counselor - hope your side effects resolved and you didn't need to go to the ER or if you did have to go to the ER they were able to help you.

  • Headeast
    Headeast Member Posts: 619
    edited November 2013


    macy, something that is just plain weird with my chemo treatment is that my vision is not as good as before, and it is hard to read, like I need reading glasses or sometimed I feel like. I cannot drive because I cannot focus my eyes on the cars passing by. It is not dizziness or maybe it is? I don't know.


    Get tour test done and most probably is not anything to worry about. Good luck!

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited November 2013


    funny you're talking about vision...yesterday as I was getting my last pre med (I think the steroid) I got the weird ocular stuff like I do with a ophthalmic migraine. Vision disturbances, like a bright sun burst in a corner, with blurriness. Never thought it could be the med. But it went away within 15 minutes. When I have a migraine like that it lasts longer & I usually have to take my rx.

  • LiLi1964
    LiLi1964 Member Posts: 331
    edited November 2013

    Good Morning Ladies

    Off to treatment 2 this morning.  Wishing all those who join me in treatment day have a peaceful treatment with manageable side effects!

    My hair started falling out yesterday; seems I've waited too long for the shave but wanted to hold on to it as long as possible.  I didn't think it would affect me too much; remembering back to when I lost my breasts.....losing my hair seemed insignificant in comparison.  But I'm mourning it's loss nonetheless.  I have an appointment to have it shaved tomorrow afternoon but I'll have to be using my hats until then given how much is falling out. 

    Nothing's easy w/all this damn disease.......

  • LiLi1964
    LiLi1964 Member Posts: 331
    edited November 2013

    Has anyone tried this gel headband for wigs?  It looks like it would work well but I'd appreciate any feedback on how anybody who has one/tried one thought about it:  http://www.headcovers.com/175/cushion-band-gel-headband-grips-wigs/

  • Macy187833
    Macy187833 Member Posts: 182
    edited November 2013


    Ladies, I feel better today. Thanks for the reassurance. I guess it was just not what I was expecting from the MO. I figured it was my BP or something. So, I was kind of shocked was all.


    Yesterday was one of the most difficult days I've had so thank you for the support.

  • uds17
    uds17 Member Posts: 183
    edited November 2013


    CT ladies- I have a question for you:


    For the past two days (I am now day 7 post my first infusion) I find that the only way I can feel remotely strong enough to do anything is to eat every 2 hours, otherwise I get really weak and shaky. I'm even waking up spontaneously in the middle of the night to eat. This was not the case before chemo. Has anyone else had this experience??


    Thanks for your wisdom and support!

  • TeamKim
    TeamKim Member Posts: 568
    edited November 2013


    Uds-- I eat frequently in the week following treatment, but I am not really hungry, especially once my taste buds go bye bye for 10 days or so. I was told to eat small amounts frequently in order to feel as well as possible. So your body is craving the right approach. This is no time to diet -- so if it helps, snack away!

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