Calling all TNs

Ladies has anyone had their Onc recommend Vitamin B12 and Folate after treatment? My wife's Onc originally, back in August, recommended Vitamin D, which she takes. Never had he mentioned anything about B12 or Folate before. Then at her last appointment a week or so ago he blurted that out. He also told her to "back down a little bit" on the Vitamin D. I wonder why?

Gilly: Thanks for sharing all that information. It reinforced some things I've been hearing and reading. Very nice to hear it from a doc.

Thanks njprn. I kinda thought that. Just found it weird because my wife hadn't complained about neuropathy OR low energy.

ALHusband, Do you know why carboplatin and Taxol were chosen for your wife's chemo ? Was it because of the BRACA2? I'm curious because I think the platinum drugs are a good choice for TNBC and was told I needed to be in a trial to get it, that ACT was protocol.

ALHusband:

Although a few years ago, most docs were happy with the Vitamin D level reading anything over 32.  (Mine was a 5 at diagnose!!!).   Now, since more research has come forth regarding Vit D3, most oncs like it to be in the 50's.  Mine is 58 now and my internist also told me to cut back from 4,000 units per day to 2,000, which have done.  As with any vitamin or supplement, too much of any one thing can also cause problems and having too high a Vit D level can be googled to see the symptoms.  I also take 1,000 mgs of B12 a day too.  Wishing you and your wife all the best.

Thanks for the info LRM

ALHusband, I was in the Vanderbilt trial here in Boston at Dana Farber. 12 wks of Cisplatin, Taxol and RADoo1 ( which was blinded), surgery, A/C then rads. I had done research and platinum drugs had been studied with some promising results so I enrolled. They said you get at least standard protocol when in trials therefore the A/C. I've also read that if the TN is basal like in pathology that it responds well to that drug as well. Also Cisplatin is what is used for ovarian cancer (basal like) and since the BRACA gene is close it makes sense that it would be used. I agree that it will replace a/c someday for some TN's. Plus once with A is enough!! Well wishes to you and your wife and may this all be in the rear mirror soon!!

Please read up on the B6 for the neuropathy because if you take to much B6 you will actually get worse symptoms of this. I did and read up on it and turns out it can cause numbness. I was not taking to much either, sometimes it is just a side-effects of it

J thanks and good luck to you too...............the second go around it a lot more on the mental for me than the first go around.

ALhusband I think that it might be that there are new studies coming out that to much Vitamin D is not as good for us as they thought it was. (not just cancer patients, all people)

Cocker_Spaniel,

I am new to here so do not know Michelle, however my heart is heavy as well. I send out my prayers to her and her family as well.

J

you know I been thinking about how scared we call can get with this disease but also how scared newbies would be coming on here and seeing several dying or have already gone. I can't help but wonder myself if some of our sisters are dying from something other than the cancer........Do we know? Like with Naan we all know how much cancer had taken over her body but was it cancer that claimed her life or was it pneumonia? With Michelle do we know? I am just curious as I know that in the statics for the survival even though cancer is not what takes a person they still include them as one being lost to it. I hope this makes sense and does not totally sound cold because I do not mean it that way at all.

Marsha how you doing today?

Stupidboob,

Doing good. Out with my daughter & grandson getting Halloween decorations & goodies. Now this year is going to be hard as I had the habit of eating leftover trick or treat goodies. So far been doing real well. My Birthday is tomorrow & thought I might not see another so I'm on a natural high!!!

))

Thank you for asking.

I spoil myself on just a few items & my iPhone is one. So I not tied down in reading or to reply. We should all dress up this year & celebrate the child within!!

Just received this from a breast cancer survivor in my yoga class. She does not have TNBC but we all understand this bugger of a disease.

This is AWESOME ... something we should all remember.



A 92-year-old, petite, well-poised and proud man, who

is fully dressed each morning by eight o'clock, with his hair fashionably combed and shaved perfectly, even though he is legally blind, moved to a nursing home today.



His wife of 70 years recently passed away, making the move necessary. After many hours of waiting patiently in the lobby of the nursing home, he smiled sweetly when told his room was ready.



As he maneuvered his walker to the elevator, I provided a visual description of his tiny room, including the eyelet sheets that had been hung on his window.



I love it,' he stated with the enthusiasm of an eight-year-old having just been presented with a new puppy.



Mr. Jones, you haven't seen the room; just wait..'



'That doesn't have anything to do with it,' he replied.

Happiness is something you decide on ahead of time.

Whether I like my room or not doesn't depend on how the furniture is arranged .. it's how I arrange my mind. I already decided to love it.



It's a decision I make every morning when I wake up. I have a choice;



I can spend the day in bed recounting the difficulty I have with the parts of my body that no longer work, or get out of bed and be thankful for the ones that do.



Each day is a gift, and as long as my eyes open, I'll focus on the new day and all the happy memories I've stored away.. Just for this time in my life..



Old age is like a bank account.

You withdraw from what you've put in.

So, my advice to you would be to deposit a lot of happiness in the bank account of memories!



Thank you all for your part in filling my Memory Bank.

I am still depositing.





'Remember the five simple rules to be happy:



1. Free your heart from hatred.

2. Free your mind from worries.

3. Live simply.

4. Give more.

5. Expect less.



Have a nice day, unless you already have other plans. Thank you ladies & one (Al) husband for adding to my memory bank.

God Bless.

lookingforward66 I hope you have a WONDERFUL BIRTHDAY TOMORROW.................I totally understand about not knowing if you would be here..........that is how I feel too