I say yes, you say no, OR People are Strange

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  • GatorGal
    GatorGal Member Posts: 2,550
    edited September 2013

    I love coming here and being able to catch up on the daily news ... And with great commentary, too. Loved the "love thy neighbor" t-shirt! Way too much shit being pulled by our greedy politicians.



    Seeing my onc tomorrow to get scan results and find out what my next chemo is going to be. He pulled me off taxol last week when he found out my neuropathy was getting worse.

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  • ananda8
    ananda8 Member Posts: 2,755
    edited September 2013

    Glenna,

    My DH takes alpha lipoic acid daily for his diabetes related neuropathy. Of course he got approval from his GP and his cardiologist.  It has really helped him.  His neuropath had reached to just under his knees and now only his feet are affected.

    The studies on alpha lipoic acid and chemo induce neuropathy are inconclusive.  But you could check with your doctor and if it gets the Ok then you could try it for 90 days.  Here is a PubMed abstract of the use of alpha lipoic acid on chemo related neuropathy.

    http://www.ncbi.nlm.nih.gov/pubmed/23647723

    Best wishes.

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited September 2013

    http://www.news.com.au/world-news/us-servicemen-take-to-social-media-to-voice-opposition-to-syria-strikes/story-fndir2ev-1226710644639

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  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited September 2013

    Thinking of you today, Glenna.  Good luck!  Everything crossed!

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  • lassie11
    lassie11 Member Posts: 1,500
    edited September 2013

    Good wishes from me too Glenna.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2013

    Glenna, writing with fingers crossed, and a LOUD YES to notself's suggestion of Alpha Lipoic Acid which I started taking at first to help with diabetes, and after reading about neuropathy ( mine was from Arimidex, not chemotherapy) I continued taking it once chage of diet, massive supplements got blood glucose under control.

    As everyone knows, I'm a CHEERLEADER for acupuncture - which also was part of my Well Being Package which I continue, even tho I finished my 5 years on an AI.  Still have age related osteoporosis, and a wonky knee which LOVES being stuck & looking like a porcupine every 3 weeks.Smile

    Not saying anything about politics - still hear the voice of Robert Duvall singing "I love the smell of napalm in the morning."  At least in those days, demonstations made a difference - thanks Allard Lowenstein, and still remember the TV screen when LBJ said he wasn't gonnna run....and too little too late from Robert McNamara, and to think both Kerry AND Hagel experienced the same thing. 

    My sunflowers are blooming, birds are getting ready for the feast....PEACE.

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  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited September 2013

    Glenna ... stopping by to let you know I'm thinking about you.  Hoping for great results on the scan and that your neuropathy improves.  I'm sorry it's causing you pain.

    Miss you a bunch,

    Bren

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  • pupmom
    pupmom Member Posts: 5,068
    edited September 2013

    Glenna, sending good wishes and vibes for boring results. I hated being bored when a kid, now, not so much.

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  • Chickadee
    Chickadee Member Posts: 4,467
    edited September 2013

    Glenna, neuropathy discussion here:



    http://community.breastcancer.org/topic_post?forum_id=69&id=763459&page=1



    I just went shoe shopping this morning because my feet are unbearable. I found some relief with these Mary Jane looking shoes from Alegria. Others swear by Dansko.



    Wish you some relief.

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited September 2013

    No surprises here.  The 'Paul's ' upper decks have been AWOL for quite a while.

    http://www.addictinginfo.org/2013/09/04/rand-paul-speaks-on-russia-and-syria-demonstrates-why-he-should-never-be-president/

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  • gardengumby
    gardengumby Member Posts: 7,305
    edited September 2013

    I believe that I am also becoming a convert to acupuncture.  I have had 4 sessions thus far, and definitely I am experiencing less pain.  I have two more appointments this week and three next week - and then I'm going to have to back off a bit, as I will be completely out of sick leave - I have to use an hour of sick leave a day to get to the acupuncturist before she closes.

    Sunny - when you started acupuncture, how often did you go? 

    Glenna - thinking of you today.  Hope you get good news.

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited September 2013

    another little something to think about:

    Dionne: How to Empower Workers Without Extensive Government Intervention


    In his Labor Day column in the Washington Post, E. J. Dionne, Jr. noted a very disturbing milestone, which cries out for action:

    ...New York Times labor writer Steve Greenhouse has noted, until 1975, "wages nearly always accounted for more than 50 percent of our nation's GDP." But in 2012 they fell to a record low of 43.5 percent. Those who make the economic engine run are receiving less of what they produce. And it's not because employees aren't working harder, or smarter. From 1973 to 2011, according to the Economic Policy Institute, employee productivity grew by 80.4 percent while median hourly compensation after inflation grew by just 10.7 percent.

    Dionne goes on to cite an encouraging protest, which addresses the issue and may open up a new path of action for the labor movement:

    Thursday's one-day strike of fast-food workers in dozens of cities was one of the new forms of labor creativity aimed at doing something about this. The folks who serve your burgers are demanding that instead of an average fast-food wage of $8.94 an hour, they ought to be paid $15. Assuming two weeks of unpaid vacation, this works out to $30,000 a year, hardly a Ronald McDonald's ransom.

    The protests have the benefit of putting low-wage workers in the media spotlight, a place they're almost never found in a world more interested in the antics of Miley Cyrus and Donald Trump. "They want a raise with those fries," the New York Daily News cheekily led its story on the strike.

    Key unions are helping to organize these efforts, but they don't necessarily expect formal union recognition. They want to raise wages, which is what could happen if the public responds. Companies have been frantically painting themselves green to attract environmentally conscious customers. Employers might discover, to paraphrase the old McDonald's slogan, that their workers deserve a break today if consumers (who are also workers themselves) started pressuring them to be more employee-friendly.

    Dionne explains that the protest is linked to the growing movement for a higher minimum wage and "a living wage" for all American workers. It doesn't seem like a lot to ask in this era of soaring corporate profits and growing economic inequality. Dinonne continues,

    This is part of a larger strategy to insist that tax dollars not be used in ways that hold down wages. Thus did the group Good Jobs Nation file a complaint this summer alleging that food franchises at federal buildingsin the nation's capital have ignored minimum-wage and overtime laws. The overall objective, as the National Employment Law Project has suggested, should be to use federal contracts, concessions and subsidies as leverage toward a higher-wage economy.

    There's a new idea that brings these approaches together: "Pre-distribution." The term was coined by Yale political scientist Jacob Hacker as an alternative to "redistribution" that involves "government taxes and transfers that take from some and give to others."

    Redistribution is necessary, but Hacker thinks that a more promising long-term solution is to begin changing "the way in which the market distributes its rewards in the first place." We need a fairer distribution "even before government collects taxes or pays out benefits.

    It's a simple idea, much in keeping with American principles of economic fairness. As Dionne concludes, "The genius of the labor movement has always been its insistence that if the law genuinely empowered workers to defend their own interests, the result would be a more just society requiring fewer direct interventions by government."


     

    Posted by staff on September 3, 2013 11:27 AM

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited September 2013

    GG....glad to hear you are having success with the acupuncture.  Very glad.  I experience very little pain that is not fairly tolerable to me, but I'm always thinking ( I have other family and friends )  of suggestions for people that do not involve the drug route. 

    Jackie

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2013

    SHOES SHOES SHOES - Keen Presidio, lace ups, rubber toes for us klutzy ones, tho better now I've done my time on Arimidex.  ALSO, SMART WOOL cushioned socks - wow. What a difference they make. Much more comfortable than any sports socks I've ever worn - AND they are cool in summer.  Our sporting goods store has them, last forever.  Make sure you get CUSHIONED ones, there are lotsa styles.  Also NAOT shoes are good, very pricey.  But I'm definitely committed to Keens.

    GG - started acupuncture about 5 years ago at suggestion of my oncologists.  They'd had "anecdotal" evidence ( no clinical trials) from other women with Arimidex pain, neuropathy- hospital too far from me, so started seeing a local person.  Twice a week for a couple of weeks, then once, then every 3 weeks.  Cumulative healing, in conjunction with stopping ALL gluten, wheat, the 5 whites, no dairy, you know the "drill" - now back to occasional ice cream ( Bart's 3 Geeks & a redhead) yum, yum, yum.

    ALSO - getting my vitamin d blood tests well over the 50 mark seems to help.  So many supplements I rattle, but feel good, blood glucose about normal. A very good multi vitamin, calcium/magnesium, Ubiquinol, Ipriflavone, and chinese herbal medicine ( AllerEase, Blue Poppy) from acupuncturist instead of antihistamine have about eliminated my hayfever. 

    ALEXANDRIA - Hope Wedding was Wonderful.  Happy New Year.Smile

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  • gardengumby
    gardengumby Member Posts: 7,305
    edited September 2013

    Thanks Sunny. My pgp recommended acupuncture. My onc is pretty test driven, though she is very high on massage!! The acupuncturist got po'd @ the supplements I take, but since she recommended licorice which is a no-no for er+ cancer I won't simply take her word WO doing my own checking. She backed off though when I brought up my naturopath. Anyway off to my next needle appt!!

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  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited September 2013

    Well hoping I live for many years to come but when my time comes, today I approved the donation of my parkie brain for study.  Boy are they gonna have a laugh when they access the archives of my thoughts!  Total pandemonium!

    Sorry I've been MIA.....gentle hugs to all that need them!

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  • Chickadee
    Chickadee Member Posts: 4,467
    edited September 2013

    I think your brain might be psychedelic colored. Confound them for sure.

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  • pip57
    pip57 Member Posts: 12,401
    edited September 2013

    Blue...you better hang on to that brain for a while. It has a lot of "sensitive information" in it!

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  • Chickadee
    Chickadee Member Posts: 4,467
    edited September 2013

    Did anyone else see the ABC report on the women on the border of Syria in Burka's sporting sniper rifles. They are training to protect themselves and their children.

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  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited September 2013

    Hodor!  hehehehehe!

    I have Celebration of the Lizard memorized and then I'll throw in a couple of pretty pics....

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  • RetiredLibby
    RetiredLibby Member Posts: 1,992
    edited September 2013

    Glenna, thinking of you and hoping for good results and relief. Waving hi to everyone else - have been MIA driving around with DH who is on vacation this week. Yesterday we took an overnight trip to the Eastern Shores of Maryland and Virginia to look at butterfly gardens in a couple of wildlife preserves (DH loves butterflies - not a collector, just likes to look).



    L

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  • Chickadee
    Chickadee Member Posts: 4,467
    edited September 2013

    Libby did you pick up some sweet corn and eastern shore lopes? Gawd I miss them. Corn on the cob in Tx tastes like field corn and don't get me started on those sad cantaloupes from Calif and Mex.

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  • RetiredLibby
    RetiredLibby Member Posts: 1,992
    edited September 2013

    Chick, we didn't stop ... Since it is the middle of the week, most of the produce stands were closed. Sometimes we get Eastern Shore 'lopes and corn in the grocery in Arlington, though, and the Westover farmers market on Sunday often has them. I don't generally buy fruit from Mexico or Latin America because I can't be sure they haven't used DDT (and because DH used to be a Customs inspector in SoCal and from time to time did cargo as a break from passenger ... And he won't eat fruit imported from Mexico anymore).



    As soon as I can get to the PC in a few minutes, I will post a couple of pix he took of butterflies and a couple of pix I took, just for our nature break!



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  • GatorGal
    GatorGal Member Posts: 2,550
    edited September 2013

    Thanks notself, for the info ... will def ask my onc about it next week. I really don't think the neurontin (gabapentin) is working for me. Also will look into acupuncture though I've always been afraid of those needles.



    I did get good (boring) news today. The CT scan showed NO progression. Yeah! And also a clean liver! Whoop eee dooo!! I will start my new chemo next Wednesday. Actually, I had this chemo in 1987 and since I went 20 years cancer free, I do have confidence in it. It's an old treatment and I'm sure many of you have had it. CMF (cytoxan, methotrexate and 5 FU), two weeks on, 4 weeks off. When I had it in 1987 I also had adriamycin and vincristine .... man, what a cocktail that was. I'm super excited about having the 4 weeks off after 3 weeks on 1 week off since December.



    Thanks, all ISYYSN friends, for the good wishes. I'm thankful that I have good news to report. You are all great cheerleaders!!

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  • juliaanna
    juliaanna Member Posts: 1,043
    edited September 2013

    GlennaE, Yeah for boring news!

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  • RetiredLibby
    RetiredLibby Member Posts: 1,992
    edited September 2013

    Layne Lathram's photo.

    Here are some butterflies, the salt marsh, a flower and a nice pine cone at the wildlife refuge near Cape Charles, VA.  I took the non-butterfly pix - DH took the butterflies.  We have a new camera - a little Canon SX-500 point-and-shoot superzoom - and it seems to work pretty well.  We are a Canon family - he has an AE-1 from his college days and I have an AV-1 from mine ... we are having a hard time bringing ourselves to make the transition to digital SLRs (dagnabbit, what's wrong with film anyway!), so we are easing in with the superzoom. 

    L

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  • RetiredLibby
    RetiredLibby Member Posts: 1,992
    edited September 2013

    Whooo hoooooo, Glenna!  Congratulations on BOOORRING!  I love to hear boring news -- makes me very happy!

    L

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  • Chickadee
    Chickadee Member Posts: 4,467
    edited September 2013

    Glenna, count me envious. Congrats on being boring. REALLY boring. That liver news is something I dream about.

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  • pip57
    pip57 Member Posts: 12,401
    edited September 2013

    Smiling at you Glenna! Good news.

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  • ananda8
    ananda8 Member Posts: 2,755
    edited September 2013

    Great news, Glenna.

    If you get your Onc's Ok try 1500 mg for two weeks and then 1000mg per day split between two doses.  Best of luck with it.

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