Access to the Picture Forum - READ 1st POST

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2013

    Ellischestnutgirl,

    Please read the first post on this thread to understand what the picture forum is and how access is granted. It is not part of bco. You are still very early in your recovery and swelling, bruising etc., are quite normal. You did not mention what type of recon you had.

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  • nowheregirl
    nowheregirl Member Posts: 894
    edited August 2013

    Sorry girls but right now, I can't give any newbies access to our forum.

    BCO performed maintenance a couple of days ago and ever since then, the search feature has stopped working although it's supposed to have started working according to them. Without being able to see what people have posted, our screening process can't be done, thus no new access till they fix the search feature.

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  • mpepper311
    mpepper311 Member Posts: 3
    edited August 2013

    Hello All,



    I am new to this forum so I understand that I will likely not be able to gain access to the pictures. Just a little about me: I was diagnosed with DCIS in February 2010 and had two lumpectomies along with internal radiation. This was the protocol for my type of cancer, well they say DCIS really isn't cancer. Anyways three years later almost to the day, same diagnosis same side, same location. I went for a bilateral mastectomy with immediate reconstruction using tissue expanders. Due to the location of the catheter on the side of the radiation I was only able to expand to a small "b". I have had the expanders for 6 months and scheduled for surgery on the 28th of August. The side where I had the radiation the expanders kinda pull in due to radiation tissue damage. So far the plan is to exchange the expanders with silicone implants and fat grafting at the same time. IF only I had known the damage radiation would have caused I would have gone the mastectomy the first time around, oh well I guess hind sight is always that way. The surgeon suggested there was a possibility of drains again! Oh those dreadful drains! They will have me use the binder for some time on the breasts and tummy where he is taking the fat graft. I am so ready to move on and get this over with. He has suggested there will be possibly 3 or more fat grafting which may take up to a year or more. So much to take in and try to be normal day to day, hot flashes, dressings, etc, etc. So that is my story, hope to get to know some of you on here.

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  • randymich
    randymich Member Posts: 19
    edited August 2013

    Hello, I need help helping my friend figure out if she has IBC. I have pictures of her breast. Im looking for answers.

    Hoping you or anyone can see my friends pics and identify or see if this looks like IBC. I wrot the disscussion board as well. Here is what I posted.

    Hello,

    My friend came to me and showed me her breasts and they have a horrible rash eczema looking, purple dark oozy itchy. Painful durring flare ups. She has no insurance. I took her to a clinic and the did pay for her to get a mamogram and ultra sound. They found no tumors, but skin was thickend. So they did a biopsy and we are awaitting answers. Its been one week. The biopsy was done a week ago and now her breast is oozing fluids that fill a maxi pad. The doc was not in and said that this can be normal.

    My friend is so scared. The doc seemed not to concerned of IBC. What else can she doe with out Insurance. I can send a pic she sent me. We need help. She has little kids and I want her to be here.

     She was denied by Med-ical.

    Can you recomend where we can go to get help. She lives in Contra Costa County.

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  • Moderators
    Moderators Member Posts: 25,912
    edited August 2013

    Although the tech team is still working on a few things, the search function is back as planned. We're sorry for the interruption in the great work of the reconstruction picture forum.

    • The Mods

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  • Lilah
    Lilah Member Posts: 4,898
    edited August 2013

    Randymich -- The Picture Forum referred to in this thread is focused on reconstruction, not diagnosis.  I hope someone who reads this forum is in CA and can offer other suggestions.  It does sound scary.  Have you looked for any threads here on BCO that discuss IBC and/or California residents?  I would suggest also checking the American Cancer Society website for resources directed at women who have no insurance.  Also there is a place in the Los Angeles area (sorry I have no idea where Contra Costa County is so it may not be nearby) called, I believe, the Pink Lotus Center... and if I'm not mistaken they have or know also of CA resources for women without insurance, so even if you aren't near them they may be able to direct you to a place that IS near.

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  • Moderators
    Moderators Member Posts: 25,912
    edited August 2013

    randymich, you and your friend can also learn more about resources for those who are uninsured or underinsured at the Paying for Your Care section at the main Breastcancer.org site.

    • The Mods

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  • janeishere
    janeishere Member Posts: 1
    edited August 2013

    Hello, I am wondering if with the greatest respect I might be able to access the iamges of other women's mastectomy surgery. I am through the second breast cancer which appeared 12 years after my first. But I have just found out that I am not only brac 2 but also brac 1. I have known for about 10 years I am brac 2 and I took the advice of the geneticist and had oophorectomy in 2007 where they found ovarian cancer and then had a lifesaving hysterectomy. Now I must make the decision of whether to have radiation and wait a bit longer or jump in and get the mastectomy and deal with what, since reading as much as i can, is the somewhat complex decisions of reconstruction. I was hoping to have the reconstruction at the same time but I get the sense that this is a rare event and many things must line up correctly. Therefore I would like to know what I am up against and hope I can share at the end of my journey. Thank you cheers Jane

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  • Moderators
    Moderators Member Posts: 25,912
    edited August 2013

    Hello Jane, and welcome to Breastcancer.org.

    For more information on the process for joining the reconstruction picture forum, please read the first post of this thread (really the second post). You can get to the post directly from this link.

    • The Mods

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    Trying to post photos to picture forum (using Photo Bucket) and totally unsuccessful. Any suggestions where to get help? Thanks!

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  • planetbananas
    planetbananas Member Posts: 206
    edited September 2013

    Are you getting error messages or is it just not working?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2013

    It's just not working (not sure if it makes a difference, it's not a PC, it's a Mac). Plus, how do I ensure there is no public access to Photo Bucket? Thanks so much!

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  • Gwenie56
    Gwenie56 Member Posts: 24
    edited September 2013

    Hello to all the courageous ladies out there ~



    My name is Gwenie and I am TN and have been posting on that site and also posting to some privately about my journey. I had a double MX with expanders last September after 5 months of A/C and taxol. In November I had 35 rounds of radiation on my breast that had the cancer. Then waited around 6 months for all to heal before exchanging my expanders for implants. My non radiated breast is great with implant ~ after 3 months the RADIATED breast started leaking fluid and sono was done to reveal I was retaining more fluid behind the implant and it needed to come out. Due to loss of vascular support from the radiation the breast just wasn't healing. My doctor said he felt like he had been kicked in the gut because of ALL his patients I had the MOST PROMISING outlook of a total healing for a radiated breast! Wish I wouldn't have been in such shock from cancer that I would have researched more and known the failure rate. Oh well, hindsight and also I am an optimist and probably would have done it anyway.



    All that to say, I am now on the road to researching whether I should stay with a gnarly looking mastectomy and great left breast or go for the DIEP, lat flap or single prothesis. My next forum is the prothesis one but wanted to check out here for stories / pictures of the different reconstructions look like when done. Also to read about the struggles that you come with each. I am so tired of surgeries and drains but I want to be a good steward of my body and do what is good for me all around.



    I can relate to mpepper311.



    Thanks for reading and sharing,

    Hugs, gwenie



    PS ~ I read the disclosure at the beginning of this forum and agree wholeheartedly. I do have pic's along my journey and am willing to share. They only show the breasts. :)

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  • planetbananas
    planetbananas Member Posts: 206
    edited September 2013

    2nd Time Around, there should be a setting in Photo Bucket that keeps your pics private, I think you can even separate the albums. I don't know a lot about Macs but Photo Bucket should give you a URL for each photo which you can use to access the photo on the message board. Sorry - I might have more advice if it were a pc.

    good luck, gwenie

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  • TinaT
    TinaT Member Posts: 2,300
    edited September 2013

    Hi gwenie - sorry you've had such a disappointing surgical experience.  It's amazing how we all really have so much in common, yet each story seems so different.  Definitely a roller coaster ride with ups and downs, good days and bad.  I think we all do some second-guessing during the down spots, but like you I know I would have made the same decisions even knowing what I've learned along the way.

    Good luck with your research and decision-making.  Hang in there...

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  • Moderators
    Moderators Member Posts: 25,912
    edited September 2013

    2nd_time_around, when I post from Photobucket using my Mac it gives a choice of 4 different links to share the photo. For a pic going to BCO I use the link labelled "Direct," but it may be a different choice on the reconstruction picture forum. Check the instructions nowheregirl provides - very likely you'll see the format to use there.

    Also, here's the link to Photobucket's help center info about privacy settings.

    • The Mods

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited September 2013

    I have PM nowhere girl and haven't heard back. So no response means no? Or is it not working, I thought I read that the problem was fixed.



    I would really like to find someone who had a breast lift then got BC down the road. I start my reconstruction on 9/23 and I really managed to freak myself out from reading everyone's issues. I hope the next step is the right step. I really feel for all the ladies out there who seem to have nothing but troubles as they go through the process of rebuilding their breasts. I hope it's worth it. I can't wait until I'm done and get back to normal. Is there normal again? I have been taking pictures and willing to share.



    Sue

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  • Moderators
    Moderators Member Posts: 25,912
    edited September 2013

    Dear Sue, 

    She has probably not yet checked in. Perhaps PM her a reminder, in case. 

    Best, 

    The Mods

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited September 2013

    I did. On 8/24 & 8/28. Is there someone else?

    Thanks



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  • TinaT
    TinaT Member Posts: 2,300
    edited September 2013

    You can try to PM lilah...

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  • Tracy516
    Tracy516 Member Posts: 183
    edited September 2013

    Would live to share my photos of my double mastectomy with DIEP flap. I had on August 15 2013. With so far no comlpicatrion. No stage 2 yet and would love to see some:).

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  • Lilah
    Lilah Member Posts: 4,898
    edited September 2013

    Please read the first post.

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited September 2013

    Thanks for the info. I did and she contacted me.

    Sue

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  • JMWilson
    JMWilson Member Posts: 3
    edited September 2013

    Hello ya'll. I'm new to this site so I know I cannot get into the picture forum until i post a few times. I understand that the pictures can be of a very personal nature and the moderators need to be careful with who is allowed in.

    Here is my story. I was diagnosed in January 2013. Soon found out that it had mestasized to my back bone and was just starting on my liver. I started chemo in February and finished in April. (4 treatments) Next I had a bi-lateral mastectomy with tissue expanders put in at the same time of mastectomy surgery. Then radiation started in June. I finished 28x of radiation on July 25. Ive had my TE's filled or expanded twice and next i get silicone implant surgery on October 8th. A month later i should have nipple construction surgery. Then i will get aerolas tattoos. I have taken pictures throughout the process and i would be willing to share on this site. I searched the internet for pictures and information when i first started on my journey, & there were very few i could find and most of the stories were horror stories and scared me more than anything. I want to be of help if i can. My scars are minimal at this time and i want women to know that there are good reconstruction stories out here.

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  • chiquita
    chiquita Member Posts: 135
    edited September 2013

    I do like to see how a reconstroction is done and look like after the surgery...I had my mastectomy 5 years ago and I did not go for reconstroction but I feel like going for that now...please help me with that decision...thank you...Chiquita

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited September 2013

    Well, my recon is delayed a month because I caught a cold. So my question is anyone out there who has had a delayed reconstruction due to a breast lift? It's been 4 months, all is healed up nicely but my chest hurts most of the time and I still get sharp jabs. Is this normal? Will it go away when I get the TEs? Also, the fatty area under the arm pits hurts most of the time. Why? Normal? Any help or ??? will be appreciated.

    Sue

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2013

    Smaarty or anyone else,

    If you'd like info on recon or feedback on what you're experiencing, you might want to search for a thread dealing with your type of recon. You're more likely to get a response there than on this thread.

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  • mrtw43
    mrtw43 Member Posts: 198
    edited October 2013


    Hi, I have completed my Dmx with immediate DEIP recon and am approaching the stage 2 surgery. The wonderful ladies on the deip 2013 thread have been very helpful and informative.


    I would like to access the picture forum. I know I need to send a note to the moderator but how do that?

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  • bdavis
    bdavis Member Posts: 6,201
    edited October 2013


    mrtw43... you need to PM nowheregirl

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  • wandawoman
    wandawoman Member Posts: 25
    edited October 2013

    Hello All,

    I am currently in the expansion process. I had BMX 8-8-2013 with TE placed 8-15-2013. Actually, I think I am finished with the weekly "fills"....I am much more uncomfortable than I thought I would be. Prior to placing the expanders, I had a general goal/size of where I wanted to be and I must admit I am a little disappointed that it looks like I won't be reaching that goal. I have at least a 3 month wait for pocket healing before the exchange can be done. I guess the decision now if what type of implant to use for the exchange. So far, this process has been much more painful and overwhelming than I imagined.

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