Starting Chemo June 2013!?!?!
Comments
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Netter be careful with thin skin fruits and wash them thoroughly you could get fungus's from fruit I saw this first hand. Not fun:(
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I had zofran as per chemo, then Decadron in IV.follow by A and C. Every nurse and pharmacist think I will be ok for AC in the treatment centre. Because I didn't feel anything when I did TC. Well totally surprised. Now I took an extra stemetil at one and half hour ago. But I don't feel help too.
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Jjl, call your Dr office day or night they have an on call Dr. They will try a new nausea med. I endured three days of throwing up, some people get sick or do not respond as well to the anti nausea meds.
Dlm425, the feeling of war or battle or the internal build your feeling is a normal reaction. Your body is gearing up to fight the toxins that where just injected into your body. I had the same feelings...all normal. Considering what's happening to your body. -
Now a little about my day 8 from A/C dense dose (every two weeks) feeling pretty good. Slight headache after a long week at the office and a rush visit to the hospital as I had a bad experience with my port catheter slipping down into my heart by 1 inch (nope not exaggerating) they performed the port surgery over on my day of chemo without any anestsia. Couldnt have any anestesia because I'd eaten food that morning in prep for chemo. My heart is still jumping a little in my chest, which prompted a unscheduled visit to the dr. they assure that these are not long term issues simply my body dealing with the chemo and trauma to my heart.
Chuckling as I type this..... As my post from last night was all rahrah-sis boom ra!! And this email is doom in gloom, but really it's all been doable. Just a few bumps this week.
Back to.... Day 8. Sore throat with a few sores in my mouth. Rinsing with Biotine and soft toothie brush with arming hammer toothpaste. Slight headache. My hair which I had 16 inches cut off into a short flapper style do in prep of losing it, is starting to Shead slightly this evening, my scalp feels a little itchy. Eyes are a irritated red haven't done anything about it as its not bad.
My Nurse called me today to tell me to lay low and don't do much this weekend as my white blood count is low 1.26 as of day 5 which this weekend it will decrease even more... Danger danger. I told her I feel fine considering. She told me in no uncertain terms!!!! Lay low stay out of trouble.
I've gotten a reputation at the hosptital as just pushing thru which can be good and bad.
Currently I am sitting watching tv slightly pouty over being grounded.
Hope everyone is healing and dealing!!! -
Hi! I've been reading these forums for awhile and they've been a Godsend! I've been both comforted and educated! I had my port placed today and start chemo on Tuesday. I'm really hoping the anticipation and fear of the unknown is worse than the actual thing. I'm bracing for the worst. I have my shopping list ready for this weekend; stool softeners, claritin, head coverings, etc. I'm hoping to keep working as much as I can and I have 3 kids to keep up with as well. I'm sure glad you all are here!
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Hi Melrose
I just wanted to check how you are doing after chemo? How soon did you feel like yourself ? X
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It's All the drugs!!! It sucks!
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fab1- The first 3 weeks after the final chemo were like the 3 weeks following any of my chemos. Unfortunately, there isn't an on and off switch for side effects after the final chemo. In the months to follow, there were times that I was achey and sore. My joints and muscles would hurt when I would try to stand up/ get up after sitting or laying in bed. My feet hurt also and I would shuffle slowly until I had been up for about 5-10 minutes. I would always take my time about rising to my feet to stand up because I wasn't sure if my bones would hold me. It took several months for the joint pain/muscle pain to dissapate. As for the hot flashes that I had during chemo, those have stayed because I'm on the Tamoxifen. Hot flashes are a side effect of that drug. My hair is now 3 1/2 inches long and came back a little wavy, a little greyer, and evenly. I haven't had to get a trim or hair cut since I cut my hair in a pixie after my first round of chemo last year. My eyebrows and bottom eyelashes which fell out towards the end of chemo, returned and fortunately have not fallen out. The other places where the hair left ( arm, leg, arm pit, down south, nose, ears) also returned. I know that I'm a very fortunate person because I do feel good and haven't had any major lingering side effects.
There are suggestions that I can give to all here
- Eat healthy, regularly and well because your body needs the nutrients to help it rebuild and recover. if you are having trouble figuring out what to eat, here are two books that I used: Eating Well Through Cancer by Holly Clegg and Gerald Miletello, MD and The Cancer Fighting Kitchen by Rebecca Katz. Both books helped me figure out what to eat so I wouldn't have to think about it.
- Sleep well which may be difficult at times. The mere act of laying down is resting the body.
- If you are tired/fatigued, rest.
- Get some exercise everyday. I know each of you will reach a point that you may feel out of breath and can barely walk because something hurts or you are just plain tired. Get up and walk. The exercise helps your body to produce new blood cells.
- Stay hydrated. You can drink water, gatorade, juice, tea, ginger ale and even flavor your water with fruits. Eat jello, popsicles, icee's, slushies, watermelon, grapes ( fresh or even frozen ones).
- Keep the communication lines open with your family. Don't assume that they know what you need or how you are feeling. Try to remember when things are stressful that this is a new experience for all. You see, this event in your lives also includes your family also. Yes, this is a new adventure full of challenges and new experiences.
- Love yourself and be easy on yourself.
- Take your time with everything. I know that each of you just wants to get out of chemoland and on to the next phase of treatment. Take some deep calming breaths and slow down. You will finish here before you know it. I have never been in a hurry about my treatment plan and taken it one day at a time. Each of you will have that chance to push the "Restart Button" with your lives and bodies. It will have happen.
Wishing everyone a wonderful weekend and minimal side effects. No matter what, it's all good, Ladies.
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Good Morning everyone- I wanted to report a little about my first chemo day for those of you who might be scared, as I was, about the actual process of receiving your first treatment.
My husband took me to treatment with our little cooler and chemo bag. The first thing that happened is that the nurse tested out my port to make sure they could get blood flow back through it and it worked like a charm. I really hated that thing because it was sore after placement and I hate that you can see it so clearly through my skin. It looks like an alien about to pop out of my chest. But, I have to say, once the initial sting was over of them putting the needle into the port, there was no more pain that day. So, as for now, the port is my friend.
Then I walked back into the actual treatment room and one of my crazy friends was sitting there in a recliner, hooked up to an iron transfusion that she had needed but postponed until she could have it at the same time as my chemo! She had saved me a seat and had a little gift bag sitting on it. What a nice surprise! I had thought I wanted to go alone because I thought I might be crying, sick, etc. Just didn't know what to expect and didn't want anyone to see me.
Well, it turned out to be - i know this sounds weird- but an actually pleasant day. My best friend and I chatted and looked at pictures on my computer, drank lots of drinks, and the super nice nurses just came and changed out my medicines every now and then. TCH plus Aloxi, Decadron, and Emend. My husband ran out and got lunch. Everyone in the room seemed fine- a few were sleeping, a few brought friends and were talking. No one was throwing up or crying as I had worried about. I guess I had built it up in my mind that it was going to be so horrible and it wasn't for me at all. I know some people do have things go wrong so I don't want to be disrsepectful to that. Certainly things can and will go wrong. But for me, everything was easy that first day at least, so if you're just going in for the first time- try not to be afraid.
The only weird thing that happened was that sometime during the process my face and chest looked a little sunburned. Not sure what that's about.
Yesterday was also the opening day of Man of Steel and I am a huge superhero movie fan. I felt very normal and was able to take my whole family to see the movie (3 kids: 15 (g), 13 (g) and 10 (b)) so I was extremely grateful for that.
This morning still feel pretty good but I know that a big wave is getting ready to hit me. That's kind of the scary part- knowing that it's coming but not knowing when. When I told my sister about the wave analogy, she said, "and just like a wave, when it comes, you will ride it whichever way it takes you and not be drowned by it." I like analogies. Or is that a metaphor? Either way.
Hope everyone has a good day today.
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What r u guys eating?? I know we r supposed to b eating healthy, but I'll eat anything that sounds good!!!!
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Hope everyone's weekend is off to a good start.
Hubs and I went out for dinner last night at a new restaurant in town!!! I had a rasperrry martini and a glass of wine. Felt terrific to do that. If the first cycle is the hardest to adjust to and even with that I'm feeling great by the end of the following week I'll take it. Means I can have a good week in between and summer is not a write off. Oh happy day. I'm on a dose dense protocol of every 2 weeks so not much recovery time in between.
Rain - you are one pretty lady. Your short hair looks fantastic. Great transition look. I hope your white count comes up. Take it easy til then, even if you have to force yourself.
Maureen - how awesome to have your friend schedule her infusion for the same time as yours. The actual time in the chair is kind of pleasant.
Trm, MaineRottweilers, dlm, flaviarose, AMBNH, Tasharka, jjl - you are all just coming through your first round. Wishing you all well. Check in when you can.
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Ocean--the first cycle is the worst? My biggest complaint is not being able to sleep. 😔
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Hello all brave girls day 2 of first chemo and neulasta shot. Slept pretty good with ativan feel a little sick today but still not so bad. Rain. How long till your wbc are low. And when does the bone pains come from the shot?
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Alibeth me ativan for nausea and helps to sleep
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Stay strong ladies ttyl sending all good thoughts
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Dlm, I didnt start to get bone pain until 4 days after shot. I think its different for everyone. Extra strength Tylenol helped.
Looks like 9 is the lucky number this round. I feel pretty good compared to a couple of days ago. Hang in there everyone. -
Really tired and no appetite today.
Got my Neulasta shot also today. -
Tasharka - hang in there and take the rest you need. I wasn't really bone tired until day 4. Remember to take constipation medication as it is very important at this stage and drink lots of fluids to get chemo out of your body.
Take Care
Rain - what new haircut wa Netter talking about? I only see the same picture? I also got a new haircut ---- shaved head ---- wasn't as bad as I thought. -
The thought of having to have chemo, scared the heck out of me. My maternal grandmother passed on because her body could not handle the effects of chemo, same with her daughter, who passed just two years ago. Of course, they had stage iv colorectal cancer. But still, the idea that something that is supposed to help me live longer, could potentially kill me is very scary.
Had my first Chemo treatment on the 13th. Wasn't anywhere near as bad as I thought it would be. Woke up the next day with mild nausea, but I had been given a shot of something to help with that and some medication to help with it. But not knowing what to expect, I was a bit scared. I am getting Taxotere and Cytoxan, with a day after shot of Neulasta to boost the white blood cell count. So far the only thing I am not overly excited about is the acky feeling I get from the Neulasta. Though I know things will get much worse.
My 17 year old is having some fun with the experience. She dyed my auburn hair blonde, something I have not done since I was in my mid twenties. I also got a haircut so that the impact of losing it will not be so dramatic. I can honestly say that is one thing that scares me, losing my hair, and it changing color when it comes back.
I am finding myself more tired than normal, Friday night I was out like a light by 8:45p. Not normal for me.
Today, despite feeling like the looser in a prize fight, my husband and I took our older daughter to a festival. I regret going because of the aches and pains. But at the same time I am glad I went. Because, other than those complaints, I other wise still have energy to do things, and not knowing how long that will last I want to take advantage of it.
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Raysnbucs,
You are correct in getting up and moving...it helps to fight that exhausting feeling.
Did you try the Claritan 24 to ward off bone pain. It has worked for a lot of people.
Take on morning of Neulasta shot and then one a day for the next 7days.
I am sorry to hear about your grandmother and Aunt.
Glad your daughter is joining in the experience and making it fun.
Wishing you all the best in your journey.
Pat -
How did you make out. My chemo was the same day. I huddled in bed for 3 days. I have got to kick my super powers in .
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Day 3 of first chemo and I listened to all you ladies ahead of me in tx. I took the clariton, I took the decadron, zofran, Emend, and ativan, to sleep but now they said to stop decadron, and Emend. I wasn't constipated until today Bc theday.afterchemo i had diaherra. I need to finish the week for work hopei can make. Doyoureact thesame way with all tx or is it the accumulative effect that gets you. Please letme know. Thanks again ladies you are all awesome...
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Ginger- I friend requested Ocean on FB. She mentioned fb pictures of food and I was like whaaatttt food!?? Friends indeed! Kitchen Salli is her handle. Love food! Are you on FB?
Ocean- thank you for the compliment, it was tuff cutting my hair, will admit I kinda like the short do guess I've been hiding behind my hair all these years.
Dlm- my bone pain didn't start till last night. I walked a ton yesterday thinking exercise is a contributing factor in bone pain. More you move the more it triggers the blood cell growth in your marrow. This is a good thing!!! Walk and daily exercise is important and will make you feel better.
Ocean- also on Dense Dose, so just like you I was happy to at least have a few good days between treatments summer won't be a complete wash. But becareful girl, your in the nadir zone where we feel fine but your body is not able to fight off anything. Easy easy does it.
Hope everyone's Sunday is starting off to a good one. I miss my morning coffee. :-( -
Why aren't you drinking coffee??
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Coffee Taste awful since chemo. Can't eat red meats either. I've got bionic smell and foods taste like metal certain food more so then others.
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HI wonderful ladies! Day 7 of first chemo. I didn't know this discussion existed. THANK YOU for creating it. I just found you all and you have made me feel like I am not alone. I am 38 yrs old with 2 girls 7&9. It has been a challenge.
My onc said to take clariten first 2 days after shot and I didn't have pain. I have had a "medicine head" or head ache sort of. Like I didn't want to lift my head off the pillow. BUT like ALIBETH, I CANNOT SLEEP! I am driving my husband nuts. Does anyone take Ambien? I took one last night....didn't sleep....who does that? HELP! My docs ofc doesn't check my WBC until I go in for my next treatment. Should I be concerned. Dose dense, every 2 weeks.
THANK YOU LADIES...
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Hi, I will be starting chemo this Thursday and reading through your post as to what to expect. I've two questions:
In ref to constipation, its mentioned different kinds of laxatives. Does over the counter, like ExLax, not work?
Also, and I know everyone is different..but wanted some idea..I am off on Friday and Saturdays, so was trying to time this so I wouldn't have to use a lot of my time, so I scheduled on Thursdays. Should I have scheduled Weds? A bit confused on the day counts that are being mentioned.
Thanks for any help you can give. It seems a long the way, I have had so many decisions to make,,and have made some bad ones..so trying to get the last part right!
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Just-Julie (like that I love will n grace!) I took NyQuilzzzzzz. Helped me get back into a sleep pattern. The headache - yep had that too. Water and water and when you think you drank enough more water. And Tylenol.
Ckmoss- if you have a m-f work schedule you choose Thursday treatment that should work good.
For lack of better ways to say it. I was never a good pooher so the constipation got me. However I was prepared.... Prune juice my friends one big iced glass of it each morning. Then mid day i ate three dried prunes for snack. The water water and more water. -
lol..I have always been an extremely good pooher...lolol..but lortabs lately have gotten the best of me..exlax. has worked ok. someone told me hummus because of fiber content and thats worked as well, but wasn't sure if this was some kind of Godzilla constipation was about to get hit with..lol..I feel like I'm about to get on a very scary roller coaster..with lots of loops and death defying drops.
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ckmoss- I had the same chemo regimen as you.... Cytoxan/Taxotere. I had chemo on Tuesdays and felt fine on Wednesday and Thursday and then the downhill slide began on Friday. If you don't work on Friday and Saturday, you want to make sure those are your recovery days. One just really never knows for sure how one will feel after the chemo.
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