Starting Chemo June 2013!?!?!

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  • jjl
    jjl Member Posts: 68
    edited June 2013

    Hi everyone, I will start AC at this Friday.

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  • carla53
    carla53 Member Posts: 264
    edited June 2013

    Hi jji- I see that you've been through chemo not too long ago. So sorry you are having to go through with it again. Good luck with your treatment on Friday. May your side effects be few.

    Carla

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  • staceysjourney
    staceysjourney Member Posts: 4
    edited June 2013

    Hi there! I'm a little late finding "my group", but so glad to see there are so many of us in it together! My first treatment was 6/10: A/C, so this is Day 2. Just a little nausea this morning. Took a Zofran to try to stay on top of it. Neulasta shot yesterday, took Claritin yesterday & today. My ribs feel a little bruised. Overall...so far, so good!

    By the way, I do believe the fear of getting started is much worse than going through the actual process on the first treatment. I also wanted to get in the car & drive FAR AWAY! But I just kept telling myself that I had to "do it afraid" for all of these amazing people supporting me. And I've truly surrendered to God's will. There has to be a bigger purpose for this experience, and it's my mission to find it, as I hope we all do. Looking forward to seeing our group name change to June 2013 Survivors!

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  • OceanWarrior
    OceanWarrior Member Posts: 96
    edited June 2013

    Hi Stacey, 

    Glad you found our June group.  Sounds like you are managing quite well for day two, that's great.

    I agree - the build up in our minds before starting is more fearful and dramatic than the actual time in the chair.  Having the first one under my belt feels good.  I was super calm, ready to go but when the nurse rolled up with the cart and all the gear - I got so scared and the tears started flowing.  Same thing happens to me EVERY time I'm rolled into an ER.  Fine and doing my breathing....then once on the actual launchpad....shed some tears.....get that over with and I settle down.  

    I'm feeling pretty good today.  Staying close to home and cozy.  Turned on the gas fireplace to take the chill out of the room.  We have rain here on the west coast.  

    Have a good day everyone.

    We've got some ladies starting cycle one tomorrow.  Let us know how you are doing.

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  • Brooksy
    Brooksy Member Posts: 12
    edited June 2013

    Started chemo on June 7. A & C for triple negative First few days went really well, now I am really sore to the touch especially around my neck and shoulders, i feel wiped out . Is this normal? I see my doctor today.

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  • Alibeths
    Alibeths Member Posts: 656
    edited June 2013

    Brooks it can b from the nustela shot??

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  • Gingergirl1
    Gingergirl1 Member Posts: 36
    edited June 2013

    Brooksy - the fatigue is normal. I found that started about day 4. You seem to get all kinds of weird side effects, I even had the odd jab of pain in my mouth. I am on day 8 and this is the best I have felt. Yesterday I had bad muscle spasm in my lower back, today it is gone. Head still feels odd but physically feel more energetic. Expect the unexpected.

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  • BabyRuth
    BabyRuth Member Posts: 264
    edited June 2013

    I finally got my port placement date.  I will be getting it put in on June 19th.  I am not sure when I will start Chemo yet as my oncologist wants me to wait a few weeks after I get my lymph nodes out.(that might throw me into the July group)  We are also still discussing the different Chemo options available to me.  I am pretty sure we are set on perjeta and herceptin with taxotere being the likely third piece.    

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  • Tasharka
    Tasharka Member Posts: 16
    edited June 2013

    I'm 37 years old and I'll start adriamycin and cytoxan this Friday.

    My first treatment and nervous and worried about side effects.

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  • AMBNH
    AMBNH Member Posts: 119
    edited June 2013

    Hello June Chemo Sisters.



    I start my first round tomorrow - A/C. My anxiety is growing by the minute.....



    But then I look at my family and friends. They are counting on me to fight like hell. Well, here we go!

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  • Alibeths
    Alibeths Member Posts: 656
    edited June 2013

    I had my first treatment. Ac. U will b fine. The anticipation is the worst. Hang in there. And get a port. Hurts at first but much easier! Xoxoxo

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  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited June 2013

    BabyRuth - We have the same port placement date. Good Luck! I also have to get re-excised to widen the margins on my right side - not happy about it but BS seems to think this will reduce the rads dosage so I'm good with it - just wish both the rads oncologists agreed! Had one say yes, had another say it didn't matter. Urgh! I'm looking at last week of June / First week of July to start round 1. We'll see... meet with med onc the 24th... trying hard not to think about SE's - she seems to think I can stay on top of them. I'll cling to her optimism!

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  • Netter
    Netter Member Posts: 107
    edited June 2013

    Got my hair buzzed with girlfriends present.  SOOOOOOOOOOOOOOO tired!!!!!  Would love to show all of you pics but can't figure out how to do it.  If anyone has ideas let me know.

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  • Alibeths
    Alibeths Member Posts: 656
    edited June 2013

    How u feel netter??

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  • dlm425
    dlm425 Member Posts: 209
    edited June 2013

    Netter facebook?

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  • BabyRuth
    BabyRuth Member Posts: 264
    edited June 2013

    Would love to see pictures Netter! I am not really sure how to add them but if you click on help down below, I bet it will tell you. I hope you get some energy back! Keep drinking lots of fluids.

    Dyvgrl- I will be thinking good thoughts for you as we both get our ports placed. This is my second go round with a port and chemo so I know alttle bit of what to expect, but I am still a little nervous.

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  • dlm425
    dlm425 Member Posts: 209
    edited June 2013

    How about JUGS (just us girl's):)!!!!! I start AC tomorrow and I'm not Happy at all. People say "So you ready" I don't think I will ever be ready. Welcome all new June bugs sorry and hello all at once. I went to the store today and there was this lady that I knew was dealing with the same demon as us so I started to talk to her... so beautiful and was done with chemo end of April I picked her brain. She said its not as bad as I thought. My anxiety is through the roof. Don't know if ill even sleep tonight. What do I need for treatment

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  • dlm425
    dlm425 Member Posts: 209
    edited June 2013

    Not looking forward to chemo brain saw ghat first hand today whiles talking to this woman I had to tell her my name 3 times and what is with the chemo eyes.

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  • dlm425
    dlm425 Member Posts: 209
    edited June 2013

    I hate these cinder blocks te they Suck. Going to get filled tomorrow am because chemo is in afternoon. Do they expand during chemo

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  • Alibeths
    Alibeths Member Posts: 656
    edited June 2013

    Dlm, bring a friend, book, iPad, n snacks. You may be there all day!!! Actual infusion is fast, but everything else takes forever!!!! You will b fine.

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  • rachel22
    rachel22 Member Posts: 54
    edited June 2013

    Hi all - I'm new to the boards and will be starting chemo on June 17. Had my port put in last week. Nervous and anxious about starting but ready to get it over with! Glad to have found other sisters on this site. Wish you all well!

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  • Gingergirl1
    Gingergirl1 Member Posts: 36
    edited June 2013

    Netter I think you post pictures by going to your profile page, pick settings then you can upload your picture in the avatar part.

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  • Gingergirl1
    Gingergirl1 Member Posts: 36
    edited June 2013

    dlm425 - there is a thread back in the main part that says important thread for newbies - you should be able to find a list of possible things to bring there.



    I found first chemo day very I eventful as most people will tell you. We all build it up in our heads before we go. Try and stay calm.

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  • kmurphy
    kmurphy Member Posts: 55
    edited June 2013

    I've reading how everyone who recently started their chemo is doing, and I get both anxious and soothed by everyone's different reactions.  I know it was really rough for a few of you and hope your doing better.  How are the working women doing?  I am going to be attempting to work through all this also.  Am I crazy to think that I can have chemo and then go into work?

    My Onco said that the people who have more difficulty tend to be the women that had lots of morning sickness, sea sickness, motion sickness, etc.  Would you say that applies to you? 

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  • Gma04
    Gma04 Member Posts: 62
    edited June 2013

    Hi puppy mama , I will be starting chemo also last week in June please let's stay connected. I need all the support I can get. All the ladies are so brave I hope I can do the same. So sorry for all the ladies that are having such a bad time it's just not fair. Thanks for the info on purchasing prosthetic. They are just so expensive!! I just can't handle being one sided.

    Thanks for all the encouragement. Hugs for everyone.



    Gma04

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  • Gma04
    Gma04 Member Posts: 62
    edited June 2013

    Annika 12

    Have you started chemo yet. I think we got our port about the same time. However I think my chemo starts last week of June. YUK,!!!

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  • IngridJ
    IngridJ Member Posts: 121
    edited June 2013

    Hi everyone,

    kmurphy- I am rarely ill with motion sickness etc and its true that I had little neasea, popped a pill once...So that theory holds for me..

    Netter- hope you are coming good.. Phew.. What a long haul.

    Rain- hope work has been ok..

    AMBNH- hope you are holding up..?

    Ocean hope you're still improving...

    Good luck dlm and Allibeths, Same BabyRuth and Dybgrl... I took nothing to my chemo; no bag, nada... A takeaway coffee if uou can believe it..,,I was in denial though!!!

    dlm- chemo brain could come in handy in the future.!! That's what I'm thinking.,,

    Hi Rachel22 - welcome!!!

    Raining here and cold (Melbourne Australia), good luck to anyone starting I've missed.,. xx

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  • IngridJ
    IngridJ Member Posts: 121
    edited June 2013

    Allibeths- oh just realises you've already started..!! Hope the first few days are going ok x

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  • IngridJ
    IngridJ Member Posts: 121
    edited June 2013

    Ooops..!! Missed Tasharka too.. Welcome and hope Friday is uneventful..

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  • Sweetie1972
    Sweetie1972 Member Posts: 84
    edited June 2013

    Thinking of everyone starting today hoping you don't have a bad time.

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