How Many Are We?

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  • barsco1963
    barsco1963 Member Posts: 2,119
    edited May 2013

    Oh JTilCT - sorry to hear that those damn mets have found their way back. Of course we will be here for you at anytime that you need to be here - through the good, the bad and the ugly. Just hope that tx will knock em back again and you don't have to hang around for long, if you know what I mean. Hoping that the spot on the ovary is nothing to worry about.

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited May 2013

    As of today, the list now has over 300 names.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2013

    I found out today that I have no evidence of cancer! I'm on a chemo vacation!

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  • barsco1963
    barsco1963 Member Posts: 2,119
    edited May 2013

    Veggy!!!! Awesome news for sure! Here's to a loooooong well derserved vacation. CELEBRATE!!!

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited May 2013

    veggy, doin' the happy dance for ya!  

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  • Moderators
    Moderators Member Posts: 25,912
    edited May 2013

    YEAH, Veggie!!!!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2013

    Thank you! I never thought I would hear the words... chemo vacation. Eight abraxane treatments later... I'm smiling.

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited May 2013

    Congrats Veggy! Happy dancing for you!! Woohoo!!!!!!

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  • hendricks1
    hendricks1 Member Posts: 88
    edited May 2013

    Add me in there!  I too feel a bit guilty as I seem to visit when things are going rough.  Diagnosed with mets to liver in August 2012, got better with Abraxane/Perjeta/Herceptin only to get news yesterday that though my other issues are doing well, it's travelled to my brain.  Didn't know that those drugs don't help you there-they don't cross the blood/brain barrier.  I'll be starting a trial, radiation as last resort.  Cancer sucks!!

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  • hendricks1
    hendricks1 Member Posts: 88
    edited May 2013

    Sorry to be a downer to the thread.  Congrats Veggy!  So happy for you!

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  • chickydee
    chickydee Member Posts: 46
    edited May 2013

    Oh hendricks1 honey, you're not a downer. We're all in this with you. You're in my prayers.

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  • barsco1963
    barsco1963 Member Posts: 2,119
    edited May 2013

    hendricks - never feel that you are pulling anyone down - you feel what you feel and we all get that. We have all experienced days that we need to have a good cry and let it all out. 

    So sorry that the mets have appeared in your brain. Although the drugs don't cross the blood/brain barrier, there are tx that are available for brain mets. I am pretty sure there is a brain mets thread also. You are sure to find others in a similar situation and lots of information and support there.

    As I have said before - we are here for one another through the good, the bad and the ugly. No matter whether you are here every day or once a year. No one goes it alone!

    ((hugs))

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  • jocanuck1951
    jocanuck1951 Member Posts: 1,003
    edited May 2013

    Hendricks, this is the place to be for ups and downs...backwards as well...



    Veggy!! WOO HOO.......so happy for you..throwing my arms up waving madly!!!!!



    Jo

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  • speech70
    speech70 Member Posts: 12
    edited May 2013

    Me!

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  • Bighair
    Bighair Member Posts: 13
    edited May 2013

    Please include me:  Bighair

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  • amlg1
    amlg1 Member Posts: 596
    edited May 2013

    Count me in..Hendricks I have also leptomeningeal,I am celebating 2 years since I have it.Didn't think I would be here today writing this.My onc.said people with ,and having herceptin do better.Just had brain scan,and everythinf status quo.My onc and nero on,said some of the chemo does go through BBB.Stay positive,I think that helps.For me it does.

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  • cthynsh
    cthynsh Member Posts: 41
    edited May 2013

    I'm here too. Still shocked. Declared cancer free 2 months ago. Brain and lung mets 4/2013

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  • onestepatatimetosurvive
    onestepatatimetosurvive Member Posts: 16
    edited May 2013

    Add me to the list.  Stage IV with bone mets.  

    I love this site for the realistic information I can find about any BC topic on my mind.  There's nothing better than people who have "Been there, done that." or are currently "doing that".  Thank you ladies for the support!

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  • muthom-stage4
    muthom-stage4 Member Posts: 23
    edited May 2013

    Add me to the list....Just diagnosed

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  • Kellygrl77
    Kellygrl77 Member Posts: 41
    edited May 2013

    Can add me. I only come on once in a great while. Has been just over a year now from March 2012.

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  • hendricks1
    hendricks1 Member Posts: 88
    edited May 2013

    Hi Ladies-Welcome to this elite group : )  I know you will find great support and encouragement.  Hugs to you all!

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  • Idun
    Idun Member Posts: 127
    edited May 2013

    Count me in.

    I´ts now over a year since my mets to spine dx.

    Hugs, Idun

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited May 2013

    To the above post: hope you don't mind my asking, but is your screen name "ldun" or "idun".

    The way the font is on this forum, I can't be sure if the name starts with a small L or a capital I (i).

    To muthom-stage4, please forgive me, however, in compiling the list, I requested names of ladies who come to this website who had been diagnosed stage iv only up to April of 2013.  It's not really an ongoing list. We were curious to know at a particular point in time, April 2013, approximately how many women members on this forum were stage iv. I know you understand.  We certainly are here for you, and are glad you found the website.  You will gain much support here.

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  • starbrightlyshines
    starbrightlyshines Member Posts: 344
    edited May 2013

    I don't know what number I am but I finally got the courage to join all of you. I have been a lurker, too afraid that it might somehow make it more "real" if I signed up. Just who I thought I was kiddding I don't know because it doesnt get more real than this......and I am scared. I was diagnosed stage IV from the start in October 2012. They have never found a primary tumor but I have mets to thr GI tract and bone. My GI tract is doing much better and I am trying very hard to remain positive. I have 5 children at home and my heart aches daily for them. I hope it gets easier, right now I find it very difficult to cope with the uncertainty of living with this.



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  • chrissyb
    chrissyb Member Posts: 16,818
    edited May 2013

    Hi Starbright and welcome.........this dx sure is scary but with the help and support of others here, it makes it easier to get through.

    Love n hugs.   Chrissy

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  • SoupyJake
    SoupyJake Member Posts: 1
    edited May 2013

    I've just started coming to this site. I am Stage IV, diagnosed on September 15, 2009. Please add me to your list. Thanks!

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  • Gtiger
    Gtiger Member Posts: 27
    edited June 2013

    Count me in. I've been stage IV for 19 months. I joined over a year ago but never post. I've been so lucky and feel guilty. I do so admire all of you. I have spinal mets and have been on femara and xgeva for a year and a half. It worked well until this week and I learned I have new mets to the thoracic spine. The others were in the lumbar region. I am hopeful.

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  • Katja83
    Katja83 Member Posts: 9
    edited June 2013

    Add me to the list. Stage IV with liver and bone mets

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  • hendricks1
    hendricks1 Member Posts: 88
    edited June 2013

    Good for you Iflyatiger-Don't feel guilty-be thrilled! Sorry to hear about your new diagnosis but hang in there!

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  • Gtiger
    Gtiger Member Posts: 27
    edited June 2013

    Thanks hendricks1 and bless you! We are neighbors. I live in South Carolina.

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