In shock

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  • nihahi
    nihahi Member Posts: 3,841
    edited May 2013

    Waving, waving, waving, cheering, woohooing, applauding, waving, waving, waving!! ((((((((((x)))))))))))))

  • caitlin61
    caitlin61 Member Posts: 214
    edited May 2013

    Wonderful to hear from you Liefie - so glad that it all went well!



    Jenny, pleased that you are feeling great just one week post rads. Thanks for advice re: left side issues. I will definitely ask about breath holding.



    Edi, glad you are online again! On the whole, sounds like the shed man is doing well - so pleased to hear it!



    Feeling less fatigued than I usually do 1 day post-chemo. Think I had a better sleep last night.



    More later ladies ....

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited May 2013

    Liefie-sending gentle post-DIEP (((hugs))) your way........love you, girl! You did it!



    Much love to all you lovely Bellies! Will try to post again later......



    XO



    Namaste and God bless - Jackie

  • Alive4Five
    Alive4Five Member Posts: 2,394
    edited May 2013

    liefie!!!!!!!!! So happy you touched base with us and let us know you are coming along! :) Take 'er easy, don't overdo!  Gentle (((hugs)))! xxx

    Will post more later, as I am in quite the 'mood' today w/DH myself, Edi ;)..... grrrr 

    Boy, some days are just.......well..... 

    Anyhoot love and prayers to all you lovely ladies! Websister, glad your bones were so photogenic...smile and say cheese! heehee

    xoxoxox to ALL!!!!

  • websister
    websister Member Posts: 1,092
    edited May 2013

    Liefie - left a message on the Survivors thread for you but so happy to hear you are doing so well



    Edi - so good to hear from you again, maybe since you missed Bingo this week you will win twice as much next week ;)



    Jennie - yay, glad skin is healing up so well for you



    OK, ladies - I got a call from the cancer centre this a.m. telling me I have an appointment with my MO on Friday, May 24th. That means she got the results back already. The way my mind thinks is that they don't usually waste appointments for good results, I would think she would just phone those like she did my lab results. Trying not to 'go there' but it sure is going to be a long week before I see her.



    Love and hugs to all

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited May 2013

    Websister, I wouldn't assume anything... My MO doesn't give any results over the phone... When I had PET scan, echocardiogram, etc. they were all fine, but I had to make the trek up there and sit in the office and pay for a visit to hear that...!

  • nihahi
    nihahi Member Posts: 3,841
    edited May 2013

    My Lord, between Liefie and Websister my blood pressure is on a rollercoaster!!!! 

    Websister....not even gonna try to say "don't worry", cause that would be the natural reaction of any of us, I think. What a slippery slope this journey is....wanting info and answers, but not wanting to "hear" what those are sometimes. It could well be, that the appointment will be that of "nothing has shown up.....so now let's talk about what else could be checked".....but I know that's not what your emotions are telling you. Surround yourself with that wonderful family, enjoy the grad plans for your son, pull out all of your coping strategies, and plan on us "hovering" around you in cyberspace with thoughts of peace and strength. There have been two beautiful, double rainbows in the evening sky this past week. Surely that means something!!!!  Sending you hugs ((((x))))). 

  • websister
    websister Member Posts: 1,092
    edited May 2013

    Thanks, ladies. I like the double rainbow, Nihahi.

  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited May 2013

    Websister - pulling for those "nothing there so where do we go" kind of appointments. Time for us to circle around you, hold hands and pray for those results. Like Nihahi's suggestions - busy yourself with grad plans with your wonderful son and other family matters. Hope Rod is attentive as usual. Read through last part of your blog. I've read parts but not consistently. Your writing style is lovely. Have a restfully busy glowy weekend.

  • Traii
    Traii Member Posts: 1,138
    edited May 2013

    Good Morning Ladies and my, have you all been chatty today Laughing

    Liefie, such a joy to wake up and see your name pop up on here. I'm so glad you are sitting up, no pain and recovering well. You are such a trooper Smile

    Edi, bloody MEN. !! That is all !!! So glad to hear shed man is eating and doing well. Prayers being sent his way.

    Websister, Websister, I am praying on overtime for you that your scan results are ok. Surely the MO wouldn't let you wait until Friday next week for results, one week! My mind would be going crazy in overtime. Just like me phoning for my liver results. I knew my Liver doc doesn't like giving results good or bad over the phone so I bypassed him and went straight to my BC nurse that I have a good relationship with..... she still needed to ask for permission but there was no way I was going to wait 2 weeks for the results. Can't you put yourself out of much un needed stress and ask someone for results ??

    Thinking of all of you ladies, gotta go because DS is hungry and wants breakfast and just pulled out a packet of Salt n Vinegar chips.....hmmm I don't think so !!!

  • websister
    websister Member Posts: 1,092
    edited May 2013

    Traii - you are a good mom, maybe he can have some chips later ;)



    Luvmygoats - thanks for your kind words



    I will definitely stay busy. My thoughts are that scan was yesterday and I was told that MO would have results by Tuesday, 2 business days. The fact that she appears to have gotten them already today and asked them to arrange an appointment for me for next week is a concern for me.

    After the lab results were back, she called me and asked how I was, which is what led to the bone scan being moved up and the ultrasound added urgently. I would think that an oncologist would know the concern that would be generated getting a call with an appointment and no explanation and would not choose to do that unduly.

    If I was the oncologist and the results were good but I wanted to see the person and discuss 'what now' I would call them like she did this week and, first ask how they are, second tell them there was nothing to be concerned about on the scans and then tell them that I would like to bring them in for an appointment next week so I could examine them and discuss where we go from here.



    My rant.



    Can't do anything until Tuesday as it is a three day long weekend here. So, since I can't I will take the wise advice given and have a restfully glowy weekend, making sure I spend lots of time in the meadow looking up at that double rainbow.



  • puppymama09
    puppymama09 Member Posts: 77
    edited May 2013

    Thank you so much everyone, you have brought "good" tears to my eyes.  You all have made me feel so much better already.  This waiting is the worst, I just want to know what I am dealing with so I can fight this battle, I am ready to get started!  

  • liefie
    liefie Member Posts: 2,440
    edited May 2013

    Hi girls,

    Had a lovely afternoon nap, and feeling refreshed. I've lost the catheter, oxygen and IV pipes already. Yayyy!!!!0nly the 3 drains remaining. Was stark nekkid under the covers till this morning when all these pipes came off, then put on hospital garb. Not going to create extra laundry wearing my own pj's.

    Websister, big hugs to you! Try to enjoy your weekend without worrying too much. As the others said, we never know what these oncs are going to say, so don't go 'there'. Sending positive vibes and prayers!

  • liefie
    liefie Member Posts: 2,440
    edited May 2013

    Welcome Iceburg! So glad you found us!

  • nihahi
    nihahi Member Posts: 3,841
    edited May 2013

    Holy c**p liefie! Nothing left but the drains.....that's amazing!!!!! You are definitely ahead of where I was at that point. You are rocking your recovery big-time! Did you ever find out if the te was under the muscle?

    Websister...rant away...I know I'm standing in the meadow shouting a few choice thoughts myself, on your behalf.

    Iceburg, this journey certainly teaches us a whole new understanding of patience and fight. Always keep in mind....we get it!

  • liefie
    liefie Member Posts: 2,440
    edited May 2013

    Nihahi, I'll try to remember to ask my PS tomorrow. She has a darling little baby bump, still as pretty as ever.

  • Alive4Five
    Alive4Five Member Posts: 2,394
    edited May 2013

    Hello lovlies! xx

    websister, Will be keeping you in prayer!

    Agree whole-heartedly your 'rant' re: results... Bless you girl!

    Stay strong and try not to 'go there'! (((hugs))) xoxox Double rainbows do sound quite lovely! :)

    liefie, you sound so amazing!!!! Coming along quite nicely it sounds like! Wonderful! Knew you had this!!!! :)

    nihahi, always there with a kind word of support... you are a doll! xx

    Edi, agree about the MEN thing... mine was less than his best today, thereby spilling it over onto me...ugh, good to hear shed man is attempting some real food! ;) xx

    Traii, Jennie, movie, caitlin, maria, dakota and luvmy, and anyone I missed, in my thoughts .... peace and prayers with big hugs to you all...xoxoxox 

    Will post more later. Been so busy w/son's talent show today, another one's graduation this Sun. afternoon, and the list goes on...

    iceburg, again we are here for you! (((BIG HUGS)))!!!! :)

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited May 2013

    Websister-I am praying nonstop for you......unhappy that's you are being forced to wait so long :(. In your pocket BIG TIME! Sending loving vibes and gentle (((hugs))) your way.....can you feel them!?!



    Liefie, I am speechless! You are indeed rockin' the DIEP recovery! Love you, sister!



    To the rest of my favorite Bellies, sending a big (((hug))) and lots of love to you all.....will try to jump on tomorrow.....trying to get packing for trip to Japan sorted out..........



    Namaste and God bless - Jackie

  • Ruuthieann
    Ruuthieann Member Posts: 6
    edited May 2013

    I was diagnosed today with BC.  I am so depressed.  The doctor called me on the phone and told me.  To say I was "In Shock" is an understatement.  Then he started to explain the type.  I heard NOTHING because I was still in shock.  I had to run down and get the report and try to decipher it.  (Which is REALLY hard!).  I googled HER2 positive 3+ and I'm thinking I have some type of agressive cancer that's going to kill me.  Probably the worst kind.  I'm stressing out!  It's horrible the way I feel!

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited May 2013

    StayCalm.....  ohhhhhh boy do we understand!!  Welcome to the club that nobody wants to join, but let me tell you one thing, you will not find a more supportive group of women anywhere!  These ladies are the best.  So I'm glad you found us early on in the process, anyway.  Try to stay away from Google, seriously, I know it's hard, but that just leads to no good things.  Ask here instead.   :-)

  • Ruuthieann
    Ruuthieann Member Posts: 6
    edited May 2013

    Thanks, it was a miracle I found this.  I just wish the doctor would have called me in and explained this in person.  I go talk to the surgeon on Wednesday.  This HER2+ doesn's sound like a good thing. Also, it has mitosis 1.  Is that good or bad.  I just don't know anything and it's driving me crazy.  Am I being a hypochondriac or am I going to die?  It's like I don't know what the answer is.

  • scouser47
    scouser47 Member Posts: 963
    edited May 2013

    Hi beautiful sisters,

    Staycalm, your name on here says a lot, it is not easy to do so but it is good advice. Like the sisters will all say you have joined a club NO ONE wants to be a member of. Even so logging on here is the best thing you can do. We know the icey fingers of fear that are now gripping your heart and soul, please as Jennie says keep away from Doctor Google. I did it and had myself dead and buried, 10 months later it has all been treated and my life is back to some normality.
    Remember one thing, we are ALL here to listen and hopefully make you smile now and then. It is a journey full of waiting ( the worst part ) for results etc, but once the path to follow is given to you, you will put one foot in front of the other and know that this band of Warrior sisters are all around you.
    You don't need to be brave on here,  everyone does it for the family and friends but we KNOW how it is, come on here and be angry, sad, or just rant, we understand.
    Do you have a breast cancer nurse yet ? Here in England we are given a nurse on diagnosis who we can ring and ask questions of anytime. Check out things like that and don't despair.
    Big (((HUG))) to you, keep that chin up and FIGHT the bc bxxxh. You WILL win. Edi (Scouser) xx

  • scouser47
    scouser47 Member Posts: 963
    edited May 2013

    Websister, Heart goes out to you, sure all will be ok but this flippin waiting soooo cruel. Your lovely family will lift your spirits and the meadow and rainbows, plus tea and cakes there will soothe you.xx

    Liefie, goodness never mind warrior you are an Amazon lady, well done bet the staff love having you there. Keep on getting wellxx pic of you and the sisters on your journey.

    Nihahi, hope you are still healing well, how is DD hope she is helping out as much as she can. Meeting youngest DD and GS's at lunch time in kid's play place so we can gossip whilst they throw themselves into pools of balls ( not moose ) lol. slide down slides and generally cause chaos.xx

    Traii, DS and chips soooo like my GD's I have just demolished dish of english strawberies I kept back from dinner dessert last night, love those things and are supposed to be an anti cancer fruit too.
    Hope you are feeling happier and things soon move on.xx

    Jennie, you sound really good,nice to hear from you xx

    Dakota, here's to a lovely weekend for you and your little ones, hope night out was good, any hunks ? xx

    Bearcub, hpw are you these days, how long is your hair now ? mine growing like a mad weed soon no need for wig. xx

    Luvmy, (((HUG))) xx

    Movie, do you need a hand with the packing ? I will lie nice and flat in case to hold everything in place lol. xx

    Caitlin, hope you still doing well xx

    Must go and clean up this hell hole before I can escape and have fun, LOVE to all xx

  • scouser47
    scouser47 Member Posts: 963
    edited May 2013

    The Sky does amazing things....Denham Sunsets..

    Sky over our meadow at sunset xx

  • scouser47
    scouser47 Member Posts: 963
    edited May 2013

     Photo: Never give up!

    For the warrior sisters xx

  • websister
    websister Member Posts: 1,092
    edited May 2013

    Stay calm - sorry to have to welcome you here but glad you found us. HER2 can be considered more aggressive however there are treatments now like Herceptin which have been a breakthrough. It is a type of breast cancer where many gains have been made and it seems more all the time.

    I'm sorry you received the news over the phone, not the best way for sure.

    You will have a plan soon enough, that really helps.

    Mitotic rate is how quickly the cells are dividing - 1 is low, 3 is high - so 1 is good

    Sending hugs

    Take care, we're here with and for you

  • websister
    websister Member Posts: 1,092
    edited May 2013

    Edi - thanks for the meadow pic and the ocean saying, enjoy your GS's today

  • Traii
    Traii Member Posts: 1,138
    edited May 2013

    Liefie, you are amazing. Keep up the great work girl :)

    Edi, love the pics, the last one is great :)  Your GD sounds just like DS....cheeky !! He DIDN"T have any chips for breakfast...lol I got him in time !! He did have chips at the party today. He had a great time and so did I!! No I wasn't allowed on the jumping castle but I did manage to get into the big slide (lucky butt didn't get left behind) Lol I told you, I'm a little girl at heart !! Dragged DH along. My cousins daughter was invited to party also...so we got my cousins DH to come as well......well.....we were wondering where the 2 'boys' were...we found them in the 3 year old area throwing the balls at each other......well at least they were in the area of their 'brain age group' lol......then we went back to their place for some dinner it was a great day.

    Iceburg, keep up with that great positive attitude , You said it girl "This waiting is the worst, I just want to know what I am dealing with so I can fight this battle, I am ready to get started!  " and you know that we will be right there with you in your pockets

    Jennie, How are you going ?

    Alive4five, how are you feeling ?

    Websister, you are allowed to rant. You are allowed to do and say ANYTHING on here. You are my inspiration and you are a patient person. We are all there in the meadow with you x How did your visit with mom go today? Is she getting better ?

    Movie, you know that I will come along and help Edi with your luggage ok!! We promise to keep quiet !!

    Staycalm (well your name says it all) !! Welcome to the place no one wants to be, but we are here and we are here for eachother. We welcomed Iceburg to our little family here yesterday. The waiting is the HARDEST and once you speak with your onc it will all start making sense and then a treatment plan can take place.

    Try keeping off Dr Google, statistics are outdated. These boards are full of wonderful information and ladies that are going through exactly what you are going through. Breath in and out, take one day at a time. Vent on here. Go outside, scream, shout and cry. We all have !! Just remember, there are so many treatments out there now . You got this girl. Stay positive I'm not going to say 'don't worry' because I know that we all do. You have come to the right place and we are glad you have found us. Keep us posted

    Dakota, how was the concert......?? Did you have fun ?

    Nihahi, you're not going hiking this weekend are you ?

    Jennie, hope you've been well.

    Caitlin, so what are you and your mommy getting up to this weekend ?

    Hope you all enjoy your day xx

  • nihahi
    nihahi Member Posts: 3,841
    edited May 2013

    I am constantly blown away by how different our "moments" are, yet how united we are for each other.......

    Websister....waiting to attend an appointment, without knowing the "facts" that make it necessary, but has enough knowledge to understand it is a cause for concern.....

    Staycalm....waiting for an appointment, has the "facts" that make it necessary, but does not yet have the knowledge to understand what the meaning/concerns will lead to.

    We are here for both of you, and for all of us. So many prayers and hugs and healing vibes going out to you, the earth is surrounded by angels.

    Iceburg....stay with us, it will get better, and you will feel stronger. You just need to find out when and how to start fighting!!!!

    Websister..hope you got some sleep last night. It's a beautiful day today, so much nicer than the forecast. Hope you and family enjoy the day.

    Staycalm....I am so, so sorry you got that kind of news via a phone call. So not right!!!!! Please take someone with you to all your future appointments, that can be supportive, and a "backup" set of ears for you. Take a list of questions, as a way to help you stay focussed, and get the name and contact info for a support person that you can contact with more questions later, because you surely will have them. If you have the gumption, I would certainly make it well known to everyone in your treatment team, how inappropriate it was for you to receive the "news" and dx info by phone call. 

    Edi....love the sunset photo. Not sure what got into your and Alive's hubby's....mine got out of bed "in a mood" today....don't know how they live with themselves sometimes....I'm just thankful the weather here is nice today, cause I'm gonna leave him in the dust until he smartens up. I use up enough of my still limited energy during the week, just trying to keep daughter functioning, I figure it's his turn today. 

    Luvmygoats....I feel like a real heel....I keep meaning to ask if you and yours are ok after the Texas tornadoes. Not sure where you are in that huge state, but I want you to know I have been thinking of you.

    Caitlin...hope the se's for the LAST AND FINAL CHEMO are not too bad.

    Alive....game plan getting closer...you are sooooo a fighter...it comes shining through in your messages. You will amaze us all, I'm sure. So glad the sinus/whatever thing has settled down for you.

    Jennie...so, what ARE you doing with all your free "non-rad appointment" time???? Some fun and well deserved reward things, I hope.

    Traii.....as a former potato chip addict....I see nothing wrong with chips for brekkie....they are a veggie, aren't they??? Just slug back some OJ....good to go! Of course, that is now in the past for me. I weighed myself yesterday for the first time since surgery.....turns out I have lost 10 pounds in 5 weeks. bye bye alien!!!!!!!!

    Maria....keep that music going...you and Dakota will be dancing in the meadow today!!!!

    Movie....so great to see your posts, with all the business you must have pre-trip.....but I ask myself...."how much does she need to bring, to go sit nekkid in the hot tub?????" (chuckle chuckleLaughing).

    Liefie....you're amazing....how's the walking coming??? Now that the catheter's gone, I bet you're really glad you did all those toilet squats pre-op!!!! Any drains out yet? Any discharge talk???? Remember, there might be a "downer day of exhaustion" on the horizon.....pretty normal occurance....just let it happen, it'll pass. 

    Love you ladies. Have wonderful days.

  • nihahi
    nihahi Member Posts: 3,841
    edited May 2013

    Traii....I love your enthusiasm for life....don't ever grow up!!!!! Have a great day!

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