How Many Are We?

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  • j1e1n1a
    j1e1n1a Member Posts: 132
    edited April 2013

    201

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  • Jacquee
    Jacquee Member Posts: 14
    edited April 2013

    263 - long time "lurker" first time poster. This is an amazing community, one that is very bitter sweet for sure! Stage 3 in 2010 my daughter was 1 then 12/12/12 stage IV attacked. I lurked back then (2010) joined (2012) and already I have a new outlook on my prognosis. Thank you all!

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited April 2013

    Hi Jacquee and welcome to the sisterhood!



    Love n hugs. Chrissy

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  • 35_smiling
    35_smiling Member Posts: 90
    edited April 2013

    I am not sure what number I become. I have bc and mets to my spine. I lurk around too.

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  • Cullensm1
    Cullensm1 Member Posts: 8
    edited April 2013

    Please include me. Thx

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  • jthcrawford
    jthcrawford Member Posts: 1
    edited April 2013

    I am a newbie.  Add me.

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  • sparklysue
    sparklysue Member Posts: 68
    edited May 2013

    Sorry,not been on for a few weeks and missed post. Please add me in - 52, mum to an 18yr old, Stage IV from the start with mets to the bones (spine, hips, ribs and other). Sue

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  • tx_anne
    tx_anne Member Posts: 13
    edited May 2013

    You can add me.  I mostly lurk.  

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  • laurab69
    laurab69 Member Posts: 15
    edited May 2013


    I am rececently DX stage IV. I went for my pap smear and three days later I was having a full hysterectomy and two lobular carcinomas removed from both ovaries. Not to mention bone mets in my leg and shoulder. What the heck haven't even finished my reconstruction yet. Very worried and scared not sure what to exvpect.any advise?

    Laura

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited May 2013

    laura, I added your name to the alphabetical list.  

    It seems to be very hard when you're first diagnosed with stage iv.  For me, in time, I learned coping mechanisms.  I take a mild anti anxiety pill, tho I don't take any anti depressants.  I've learned to live with the disease and push forward to go about doing things I want to do despite the stage iv.  It's a huge adjustment, yes, but take it a day at a time.  Sometimes I had to take it an hour at a time.  You will find much support on this forum.  God bless.

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  • EvaPerone
    EvaPerone Member Posts: 94
    edited May 2013

    Please add me. Stage 4 since Nov 2011. Thx, Heather

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  • MemaSue56
    MemaSue56 Member Posts: 2,129
    edited May 2013

    I just checked the list...WOW...I had no idea.  You can add me too.  Thanks for doing this!

    Love, Prayers and Positive Healing Energy to all,

    Sue

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  • packaging
    packaging Member Posts: 19
    edited May 2013

    Don't post often but read a lot! Stage 1 in 2004. Stage 4 in 2012.

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  • hope10
    hope10 Member Posts: 58
    edited May 2013

    Hope 10

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2013

    Count me in, damn the luck!

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  • susan3
    susan3 Member Posts: 3,728
    edited May 2013

    susan3 :)

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  • Reality
    Reality Member Posts: 782
    edited May 2013

    Me, too. 

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  • 4myangels
    4myangels Member Posts: 355
    edited May 2013

    Something has been bothering me about this list. I don't want to upset anyone and I'm sorry if I'm asking this in the wrong way but . . . is this meant to be an active list or just a list of all of the members who have been on these boards? The list keeps growing and growing and I'm afraid this list might become very difficult to look at down the road. We've already lost a couple of women since it was started.

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited May 2013

    I don't mind the question.  

    I will not be adding any women who are diagnosed stage iv after April of this year. I will not be deleting any women who have passed. I added only women who asked to be added, therefore alive at the time the request was asked, April 8, 2013.  All I wanted to do was have a general idea of how many members of bc.org are stage iv at this current time. That is why the list is under the title 'Alphabetical Us, April 2013.'  

    The list keeps growing, but is only women diagnosed up through the month of April. I check whenever anyone asks to be included. Yes, I still get a pm or two daily from stage iv gals asking to be added.  If you were to look at the profile of any of these women on the list, you will see they have all been members at that time, none are 'new' since the start of May. There were also a couple women who did not seem to be stage iv who asked to be added to the list, I'm thinking perhaps they were confused what the list was about. They were not added.

    I hope this explanation helps.  Yes, the stark reality is that we will lose women on this list.

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  • Redmond
    Redmond Member Posts: 17
    edited May 2013

    please add me in....DX Jan 2013 stage IV

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  • raysnbucs
    raysnbucs Member Posts: 74
    edited May 2013

    You can add me, to this most unfortunate sisterhood. 

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  • Michelle21
    Michelle21 Member Posts: 19
    edited May 2013

    I am #201.

    First dx 2002

    Local recurrence 2007

    Mets 2010

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited May 2013

    Your names have been added, ladies.  At this time, there are 292 names on the list.

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  • Gum
    Gum Member Posts: 1
    edited May 2013

    You can add me.  I was diagnosed stage IV in January 2013.  Was stage IIb back in 2006, made it 7 years and then BAM!  I don't post much (this is actually my first), but I drop in now and then to look for info and inspiration.

    Heather

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  • saskie
    saskie Member Posts: 205
    edited May 2013

    You can add me as well - I was diagnosed stage IV in April 2012 when lost use of legs and it was mets was found in the spine.  Couple of vertebrae completely damaged pressing on spinal cord.  After extensive 8 hour surgery, 1 month in the hospital and an additional 3 months in back and neck brace.  I am happy to say back walking, gardening.  Maybe not as energetic as before but could be the Xeloda dragging me down - MRI last wednesday showed things as stable. 

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  • justagirl
    justagirl Member Posts: 730
    edited May 2013

    I was only diagnosed with the mets in January. Add my name please

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  • kkdanville
    kkdanville Member Posts: 12
    edited May 2013

    Add me...

    I am recently diagnosed in March and have a thirst for the knowledge  and inspiration you provide.

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  • Marj2007
    Marj2007 Member Posts: 163
    edited May 2013

    Add me - Thanks a bunch,

    Marjorie

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  • pbstice
    pbstice Member Posts: 1
    edited May 2013

    You can add me. Diagnosed Oct 2011.

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  • JTilCT
    JTilCT Member Posts: 32
    edited May 2013

    I'm in too.  I hardly ever post.  When things are going well, I don't even go on the site.  I finished chemo in October and my last CT scan in February showed only 2 tumors .25 cm. each!  Chemo worked awesomely!  Had a scan last week and "They're baaaaack" so now I'm back.  Is it wrong to only need you guys when times are bad?

    Anyway, will probably go on Xeloda so I have been reading here about it.  Thanks to all who have posted such valuable info.

    Can't figure out how to put it in my signature but I have lung mets.  I also get monthly Zolodex shots but didn't see where to put that in my signature either.  Oh and this scan showed something on an ovary so will have to deal with that as well.

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