How Many Are We?

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  • Adey
    Adey Member Posts: 3,610
    edited April 2013

    Anyone remember Room 222?  (c:

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  • kristinpianista
    kristinpianista Member Posts: 30
    edited April 2013

    30

    I read frequently and post infrequently, but love having the resource.

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  • Nickie69
    Nickie69 Member Posts: 34
    edited April 2013

    222

    Diagnosed stage 4 this week x

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited April 2013

    Adey, I well remember Room 222, I was about 12 or 13 years old at the time but it was very memorable and a good show. At some point, it aired on Friday nights after The Brady Bunch & the Partridge Family, and preceded The Odd Couple and Love American Style.  All shows that I watched!

    Okay, just a check here:

    kristinpianista, you would be #222.

    Nickie69, you would be #223.  Sorry to hear about your dx. You will find great support at bc.org, tho.

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  • MaraUK
    MaraUK Member Posts: 147
    edited April 2013

    Hi Everyone



    Been lurking since February. I was diagnosed with mets straight away.



    Have found this site so helpful while I was being a dormouse and coming to terms with it all.



    Hope to meet you all soon.



    Hugs

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  • MaraUK
    MaraUK Member Posts: 147
    edited April 2013

    Sorry forgot to say my number 224



    Also can you say we're is best for me to chat to you all



    Bye again

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  • Jill49
    Jill49 Member Posts: 494
    edited April 2013

    Based upon the last post by TXGigi, I would be #201

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  • MustangIA
    MustangIA Member Posts: 177
    edited April 2013

    Guess that makes me 226 (Edited to update number/cross posting)

    I have posted early on, but mainly lurk now.  DX 6/2011 - NED since 8/2011 on Femara. 

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  • Kelloggs
    Kelloggs Member Posts: 965
    edited April 2013

    I'm 227....post a bit and lurk alot.  Love all of you active Stage IV sisters, you've helped more than you know!

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  • Aerial
    Aerial Member Posts: 194
    edited April 2013

    I got your pm, so count me in.  I was diagnosed with Stage IV metastatic breast cancer to the spine in November of 2011.  (I had a second primary tumor in my right breast and a mastectomy in June of that year.)  My mets were discovered after an auto accident and a CT scan for internal injuries.  Faslodex/Zometa combo has kept me stable so far!

    Thanks for counting us!  According to my research, the percentage of people who get "mets" has not changed in decades.  We ARE living longer these days so, here's to us...with hope and hugs! 

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  • Priscilla0929
    Priscilla0929 Member Posts: 90
    edited April 2013

    Priscilla is here...Stage IV DX 6/11 with recurrence 3/13- Not sure what my # is but got the message

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  • kfontaine
    kfontaine Member Posts: 118
    edited April 2013

    not sure what number i am now...confused.....sorry i am a late comer....

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  • Craftylass
    Craftylass Member Posts: 33
    edited April 2013

    I don't know my number . . . got the pm . . . okay to add me in. 

    February 4, 2012 had final diagnosis of Stage IIIb.  Neoadjuvant chemo, followed by lumpectomy (clean path report), followed by radiation.  January 3, 2013 moved to Stage IV with mets in every vertebrae but two, including a fracture at my C4; mets on both sides of my pelvis and mets in one rib (on the opposite side of my initial cancer).  Been taking Tamoxifen and have had monthly injections of Zoladex and Xgeva.  Zoladex wasn't able to control the estrogen, so I had my ovaries removed two weeks ago.  (I just turned 50 in February.)

    Tomorrow, I have my MRI and PET/CT to check current status.  I waffle between thinking there has been regression to there is significant progression!  I'm expecting anything from "the cancer is gone!" to "you now have mets in your lungs and liver!"  I don't have a lot of middle ground expectations.  Laughing

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  • Z28Femme
    Z28Femme Member Posts: 99
    edited April 2013

    Craftylass,

    I sure hope you get positive news from your scan. I will be crossing my fingers for you!

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  • Prosper2
    Prosper2 Member Posts: 13
    edited April 2013

    Let me try #232

    Whew that's a lot of women energy stuggling and staying positive.  I am getting to leave on a vacation to see family six months after diagnosis.  Gratitude grows and the journey with cancer becomes a larger journey.  I learn so much from these posts.

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  • Angelm
    Angelm Member Posts: 18
    edited April 2013

    201. Diagnosed in 2011 with stage 4 with bones mets to my spine, hips, pelvis, and skull. Thank you divine mrsM for your efforts on our behalf.

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  • MaryGLA
    MaryGLA Member Posts: 330
    edited April 2013

    Would that make me 233?

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  • Moiralf
    Moiralf Member Posts: 1,056
    edited April 2013

    That's it. I'm totally confused on our numbering system.

    But welcome to us all and we stand united and vocal.

    So good to hear from those that don't usually post but have taken the time to log in.

    Moira

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  • Ca1Ripken
    Ca1Ripken Member Posts: 1,254
    edited April 2013

    234.... I think!!!  I am new as you can see in my signature.  Having rads to sternum and sacrum... started Herceptin, Fosladex, and will start Zometa next week.  Switched from Tamoxifen to Arimidex.  I am 44... with 3 children... the youngest is 6. 

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  • Ca1Ripken
    Ca1Ripken Member Posts: 1,254
    edited April 2013

    Still 234... but it's Zoladex, not Fosladex!  

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  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited April 2013

    Oh Dearest Divine Sister!  Thank you, thank you for putting our list together!   I will be 235...or whatever number is right :)

    When I was FIRST diagnosed in 09, I remember reading, "Please respect the privacy of Stage IV.....".  That truly scared me and I was so glad I didn't have to log onto that forum.  After diagnosis #2 in '11, I was still safe.  On 12/20/12 (the day the world was supposed to end...my family says it did for us), the day of my 3rd diagnosis, stage IV liver mets, the first thing I did was come home & log onto "Please respect the privacy of Stage IV..." thank GOD you were all there for me!   

    Wouldn't it be awesome if our number stayed the same...no one had to join and no one had to leave!   XOXO 

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  • Peachy810
    Peachy810 Member Posts: 26
    edited April 2013

    235 for me.  Thanks for compiling this, Mrs. M.

    I rec'd your pm.

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  • Evans1128
    Evans1128 Member Posts: 93
    edited April 2013

    I also got your PM. My name is Kesiah I am 30 with a one year old child. I was DX stage 4 in November 2012 with bone mets. Now have a couple chest nodes and spots on liver. I am guessing from the last post I am number 236.



    Thanks

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  • makaryne
    makaryne Member Posts: 30
    edited April 2013

    237 - used to be very active - continue to liaise with the women I met on breastcancer.org from 2006.  DX Stage IV- 10/16/2013 - metastasized breast cancer (bones, lungs, brain).  I will be 49 next week and am really feeling my age. I used to joke that I planned to retire at 50.  I didn't mean permanently!!!!

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  • KiwiCatMom
    KiwiCatMom Member Posts: 2,553
    edited April 2013

    I guess that makes me 238!  I haven't been on for a bit; still coming to terms with this all.  Diagnosed with bone mets (hip, femur, rib, T11 spine).  Had radiation treatments (1 hip/femur, 5 spine), am on Zolodex, Zometa, and Femara.  I had a pin put in from my hip to my knee as my femur was ready to shatter.  Just got approval to go to zero crutches part-time (use one part-time).  I'm still a bit emotionally fragile, but I'm sure being tossed into instant menopause isn't helping that aspect. Mostly positive with moments of sheer terror and abject depression.  The good news with menopause is that it's coming onto winter in New Zealand, so the hot flashes are a bonus!

    Thanks for doing this Ms M! 

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  • Denny123
    Denny123 Member Posts: 1,886
    edited April 2013

    201!

    11 year survivor of Stage 4 with original liver mets.  Now with recurrence to lymph nodes behind sternum.

    Denise

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  • Denny123
    Denny123 Member Posts: 1,886
    edited April 2013

    oops!  239 I guess.  Didn't see the last page.

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited April 2013

    I have put the compiled list of members on a new thread:

    Breast Cancer Topic: Alphabetical Us: April 2013

    I'll add any name to the list if requested, and will include stage iv women diagnosed up to and including April 2013.

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  • tammie
    tammie Member Posts: 738
    edited April 2013

    Count me in.. stage IV mets to bones n liver 9/2011.. Now progression to brain,and rt. lung with bone and liver progression 2/2013.. Still battling on.. how many are we up to?

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  • Swannay
    Swannay Member Posts: 98
    edited April 2013

    Add me to the list. Swannay mets to bone and liver.



    Thanks

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