The Hermit Club

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  • Teka
    Teka Member Posts: 10,052
    edited April 2013
  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2013

    Laurie- music has a way of bridging people together in ways that pure words cannot. I am glad you found a way for your husband to understand you need his support. As others have said, he is probably terrified and just in denial and pretending everything is okay. You are going to get through this, and we will be going through it with you too!

    My doctor visit today went well and my concern was not an issue. My BP is very high though, so my dose of BP meds are going up. I am going to watch some movie rentals in awhile to slow down. Life of Pi and later Les Mis.

    CVMarilyn- I saw that musical here a few years back! You are going to love it!

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited April 2013

    hope everybody is ok,k went to a breast cancer conference (LBBC) today which is 20 min from my home and will go back tomorrow, long day tired but awesome conference if you have metastic breast cancer, more good information tomorrow, looking forward to it....eyes are watering can't read the boards but will catch up.....was there 8 to 5.....tomorrow 8 to 1....oh it is in Philadelphia!!

  • markat
    markat Member Posts: 909
    edited April 2013

    Blondie hope you got some rest last night and have a good time today! Come back and tell us about it when you feel like it!



    Jazzy, my BP skyrocketed after being diagnosed. I remember my first appt it was 112/68. Last week it was 130/80 :( Which is still borderline but high for me! Hope you enjoyed your movies! I want to see both, even if Anne Hathaway is one...I kid!



    Grover thank you! I'm sending you big hugs! Please check in and say hi!



    Laurie, glad your DH listened and responded. Hugs to you!



    Skittle, what an awesome way to explain the experience! Seriously, you should try and sell that or something :) My DH's first reaction when we found out was, "they can zap it and get rid of it right?" Funny guy! My husband sounds a lot like yours, would literally give you the shirt off his back but don't ask him to emotionally describe that experience.



    Hi to FL! Hope the job is going well! Hi Teka, Marilyn, Bgirl!



    Whaevah our show was pretty good. I love Vince Vaughn, it seemed like he was reading his lines though!

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Hannibal show

    1st show (gross)

    2nd show (ok)

    I've seen all the Hannibal movies, and understand the plot for the show.Tongue Out

  • markat
    markat Member Posts: 909
    edited April 2013

    Yes it was gross! I haven't watched the 2nd one yet. The guy playing Dr Lector is creeeeepy :)



    I'm currently addicted to a Netflix original show, House of Cards. Kevin Spacey and Robin Wright (Penn) are the stars. A political show. I love Robin Wright's hair cut in it. My hair is way too curly still to pull it off though.

  • LaurieParr
    LaurieParr Member Posts: 270
    edited April 2013

    Happy Sunday girls!

    Markat...thank you for the nice words. Haha...yes, my husband would give you the shirt off of his back too, but forget the emotional crap.  He is really good when there is something he can "do".   For example....AFTER I have surgery he will be AMAZING because he feels he is being useful.  Makes sense.

    We went to see "42" yesterday. It was GREAT! SO inspirational.  On TV I have gotten into "Bates Motel". I really like it. It is dark and riveting. :) 

    My kids are doing well. My baseball boy's broken foot is healed and he is back on the field. My daughter is frought with morning sickness, but I just smile and tell her, "The sicker you are honey, the stronger the baby is getting."  I love them so much.  I worry though about my daughter Paige. She seems to mirror me with medical issues including terrible Endometriosis.  Now that I have BC, (first in my entire family history)  I wonder what that means for her. And so this horrible journey continues.......

    On a happier note,  we are off to spend the day at the county fair. It is one of my favorite things in life. I love the 4H building. :)

    Love and light to you all,

    Laurie XOXOXOXOX

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    I was watching the Bates Motel show, but need to catch up on missed episodes.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2013

    Hi ladies- movie review for your sunday. So I read the book Life of Pi a few years back and loved the story, and think they did a good job with the movie. The story is captivating and many good messages in this film. Something tells me the hermits here would like it. It has beautiful cinematography.

    And I watched Les Miserables which brought me to tears several times. All those folks dying in the French Revolution! But think they too did a good job with putting the play into the film. And who knew some of those actors could sing so well too! I saw Les Mis on Broadway back in the 1980s when it first came out and remember sitting there with my friends and we were all crying then too. The fact I am on Arimidex and have no more estrogen does not help either (LOL!)

    Hot winds here in NM today so not a good yard/gardening day in the end. Doing inside things instead!

  • whaevah
    whaevah Member Posts: 354
    edited April 2013

    I don't know if I can watch the Hannibal series...after the "garden" episode I am creeped out! DH loves it, figuresUndecided

    Yes markat, it did seem he was reading his lines..but last weeks show was so funny this one was just ok for me. Thinking of you often...in a none creepy wayKiss

    *waves* to all, hope everyone has a good week

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2013

    Markat- I have had BP issues for years. I have always managed it with diet and exercise, but when I had to have unexpected surgery last fall unrelated to the BC (this other thing happened first), it went high in the hospital after I was home to do the post surgery pain. So my visiting nurse and PCP decided I needed to go on Licinopril. She just upped it by 5 mg yesterday to get things under control after it read high again.

    I think I may be potassium deficient as this raises BP. I also have had leg cramps lately which is a sign of potassium deficiency. So I am also eating bananas, mangos and apricots which are all K-rich foods. 

    Hope everybody had a peaceful weekend. Wishing all the hermits a good week!

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited April 2013

    Laurie, country fair, that sounds fun....glad ds is healed, and love when preggers get sick, cause I was.....

    back from the conference or rather recuperating, cause had to get up at 630am in order to get there, parked and ready for the breakfast, lol it was awesome....so excited and happy that I went....

  • camillegal
    camillegal Member Posts: 16,882
    edited April 2013

    Hi everyone--I've really taking hermitude to the next level lately. OOHH

    Laurie that was such a good idea about the song..this way u'r DH could be alone and listen. And now u'r son is back in action and u'r poor dgtrs. got morning sickness. I'm glad tho that u feel better about u'r DH, it'll make this so much easier for u.

    Skittle that was brilliant if anyone's DH has been in the service--Good idea--u'r so smart.

    All of u are smart and teach so easily and even tho it's hermit time u all have so much to give and u'r all be ding well.

    Grover is it u about the port tomorrow--Try not to worry it's easy really and then when u go for chemo they'll be able to just plug u up 123--Please try not to be to afraid--u've gotten everything in place and it's not as bad as u may think, everyone is different and u caan ask us anything if u'r not sure about something (well not me, I know nothing) 2 yrs of chemo and I know nothing--when I hermit I hermit right thru all of it hahaha-operations and all.

    Markat u sound so different from when we first started u'r so much happier and I'm so glad but don't stop coming here cuz u were my first friend here and I would miss u so much.

    I admire all of u so much u don't know--u'r even in my conversations with other people, cuz my friends tell me don't get on there it could be depressing and I told them the threads I talk on and I've said believe it's not we laugh, Teka always makes me laugh. It's a compliment Teka

    OH Bates Motel I know u know who it's based on, but it gives me the chills that it's mostly true. O

    OOHHH, of course I watch all the true story sickos on Bio and that other channel lot and of course my scary movies. So I'm goofy too. I just hit something and that's what happened.

    OK I screwed up my Onc. app't AGAIN I wrote down Tues and It's Monday tom. and now I don't have a ride. the date and day always get me. So I have to call in the morning, cuz I actually have questions, I shoulda paid attention right?

    So we'll see how this week goes--pain is pretty bad my new pain meds help but make me tired during the day and not at night WTF So I take my other meds. Gotta keep them straight.

    OK I get back to u and I hope u all feel well.

  • grover
    grover Member Posts: 44
    edited April 2013

    Jazzy- Les Mis is the musical my sisters & I went to see this weekend:) A bit smaller scale than Broadway (Hippodrome in Baltimore), but still incredible! The singing was wonderful (men MUCH better than in movie), and gave me goosebumps (and tears a few times too!). It definitely made my weekend:) When I figure out how to add a quote to my signature, it will be "to love another person is to see the face of God." I have so many supportive, generous, & loving family, friends, and friends of family, I feel like I'm seeing Him daily.

    Cami, just saw your post...I admire your choice to NOT learn all the technical stuff...I'd probably be less worried if I knew less. I just have a sick need to know it all! I'm hoping I fall asleep during procedure, even though I'm not going under general anesthesia! Thanks for your encouragement!/>I wish everyone a peaceful easy week...

  • Skittle
    Skittle Member Posts: 400
    edited April 2013

    Busy group!  Can't keep up.  Panel sounds impressive and well worth sharing.  Conference sounds informative (yet exhausting.)  Grover--prayers are with you tomorrow.  Markat--you amaze me with your ongoing strength, with family and mom, and self.  Camille--you somehow seem the glue that keeps us together.  I love your bubbles of thoughts that rise to the top.  Laurie, Markat, Camille--thank you for kind words.  I tend to babble a bit too much, so hesitated to go off on that metaphor.  (But you all make me smile... With all our dh's giving their shirts off their backs, we have a lot of half-dressed men bopping about.  I just had to laugh at the mental picture, since we are all having to take the shirts off our backs for the evil bc!!) Sorry if that sounds warped.  I know I'm tired...  Teka--Cool    Hugs to each hermit.  Hoping a good week lies ahead for us all.  (Oh, random just fyi--Sonic has "happy hour" all day tomorrow due to tax day.  Don't know how many Sonic fans are among us.)

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2013

    Grover- so cool you saw Les Mis in play format! My preference for sure. And the men did not sing as well as the ladies in the movie. I remember the play had the most amazing singers. And I agree, the statement about "to love someone is to see the face of God." Powerful stuff.

    To all the other hermits, good luck with your treatments this week and all the rest you must do! Hope everyone is getting big fat refund checks this year! Kiss

  • camillegal
    camillegal Member Posts: 16,882
    edited April 2013

    Skittle u are so cute, I wish I could squeeze u'r cheeks, not hard tho.

  • Lily55
    Lily55 Member Posts: 3,534
    edited April 2013

    Leg cramps can be sign magnesium deficiency

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited April 2013

    hey hermits....thought I was staying in today but was invited to dinner tonight so will go, but means I have to get a shower...lol....guess that is ok, lol...

    Cam I also have spoken about this site and the people on here especially at the conference, numerous times.....

    hope everyone is well, it is cool here in Philly about 50ish, not warm enough for me....have a wonderful day!!!

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2013

    Hi Blondie- dinner out sounds good. You go girl!Cool

    Is there anything from the conference you can share with us? I know it was oriented around Stage IV but thinking they may have talked about many good things there. No rush, but just interested to hear what positive things you came away with once you are settled. I can tell it was good for you!

  • LaurieParr
    LaurieParr Member Posts: 270
    edited April 2013

    Thinking of you Grover. My heart is with you.

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited April 2013

    Jazzy I will let you know when they put it on the website, they taped all of the workshops and said it would be put on the net within a month....the food one was awesome....

  • camillegal
    camillegal Member Posts: 16,882
    edited April 2013

    Oh girls no one here is from Boston right? or went to see the Marathon I hope--right now I'm glued to the TV with this horrific attack on the marathon. I can't believe all this crap. All the people involved and they're all there to raise monies for charities. IDK this boggles my mind,

    But I have to say Blondie u seem so much more relieved or in a better place after going, I hope that's true.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2013

    Hi hermits- it has been a hard day. First the news that a friend lost both her mother and her sister to cancer this weekend. Then this Boston bombing. The world is not a friendly place today.

    I hope there is no one here who has been directly affected by the bombing. I know we are are all affected by the ongoing violence in our nation.

    I have many marathon type friends and all are okay and know people that were running the race. But it is the crowds that go so badly hurt.

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Sadly, many soft targets!  

  • bgirl
    bgirl Member Posts: 538
    edited April 2013

    Attacking the vulnerable, it is so sad.  Used to be that there was some whacked "moral standards" about targeting the weak.  Bless everyone who was there,  too much trauma to go around.

    MO yesterday, bloodwork good.  Had a chat about tami SEs and not sleeping.  He does not like that I am not sleeping more than 1-3 hrs most nights.  So another pill, told me to take it and then go see my PCP to discuss `my pain and sleep issues` as she has the better capacity for on-going follow-up.  Ugh! 

    More drs apts. more pills,  ... can`t we just press rewind ... when did I become this?  Ok there was my whine with breakfast.

  • cvmarilyn
    cvmarilyn Member Posts: 179
    edited April 2013

    Hi All <3  Pulmonologist was really nice : )  DH went with me - he was worried....anyway we saw the scans and it is so timy -looks like someone tried to erase a dot - it's smudgy. Anyway -  so tiny that there's nothing to do at this point - probably not cancer - but due to "my history" it has to be watched - so a follow up CT scan in 6 months.  Sometimes I think all this watching - but then again - yea for it!

    Menopuase was so funny! I especially loved the scene where the woman was holding up the sexy lingerie to her not size 2 body - and trying to figure out how it would look on her.... I could so relate!!!

    Today I go in for my Herceptin - Pdrug (placebo or perjeta). Then only 4 to go!  Is anyone here doing Arimidex?  It gave me hot flashes so they put me on Celexa which lessens the hot flashes but now I'm hardly able to cry.  I hate that - I want to cry sometimes - but I hate hot flashes - what to do?????

    Thinking of you all -

    Marilyn

  • camillegal
    camillegal Member Posts: 16,882
    edited April 2013

    Jazzy a u'r friends Mom and her sister. WTF oh how horrible--I'm so sorry to hear that.

    Marilyn I hope it goes well today for u. Tht's why we're on so many meds- one takes care of the other and so on and soo on. It's a cycle of the drug companies making a fortune on us. LOL

    And I had to turn the Boston bombing off for a while watching it just to much--I can't stand it and I truly pray no one has anyone that would be involved in harms way there. Prayers go to their horrific times.

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Valerie Harper, lives in the moment with cancer.

    "Life," Harper whispers, "is amazing.   Live it to the fullest.   Stay as long as you can."

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    My crocuses are starting to bloom!

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