In shock

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  • nihahi
    nihahi Member Posts: 3,841
    edited February 2013

    Beautiful morning here, hope it is for everyone where ever you are. 

    Edi, your place is going to look like a palace soon, complete with "throne room"! Hope you don't have to spend too much time in there cause of se's. Wow...quite the response from the bio oil! There sell it here too, maybe I should start stocking up on gallons of it for my future "excavations"!  Once the carpet is in, is that the last of the reno's or are you just getting started? 

    Traii...does your little guy like to jump in all the puddles when it rains? My kids used to seek out the biggest, muddiest ones they could find. Last of summer for you.....21 days until Spring for us! It'll still snow more, no doubt, but you can just feel the change in seasons already. April 12....Dakota and I. 

    Websister...I was reading your blog....surely you must be multiply cloned, to accomplish all you do in a day. Sounds like your Mom is settling into her new place? Hope so, as that would make you feel so much better for her. How is her hip rehab coming? 

    Scottiee.....Hope that flu bug (I think that was you) is on it's way out the door. You keep having some yuck weather don't you! Son ok... or is it wait for more tests still?

    Movie...quite funny actually the similarities in our worlds! Maybe we're mountain sisters??? Have you ever found a good spot to find Beargrass???? In Alberta, it is only found in Waterton Park, and we've only found a few of them, scattered here and there. I know they bloom on about a 7 year cycle.....maybe this will be the year! I'd love to get some photos of it in bloom. When we're hiking in the spring and summer, we go nuts with photographing wildflowers. 

    Dakota...think of you EVERYDAY! Do you have family around to support you other than you and the kids? (though I realize sometimes family isn't a source of help). I would love to hear that you make some Dakota time a regular date on the calendar. That would be a perfect replacement for chemo dates, don't you think!!!!!

    Liefie, Adagio....hope your noses are still above the waterline! My sister in Seattle reports RAIN, RAIN AND MORE RAIN.

    Keemo...when you going skiing again????? 

    OK....can't go through everybody's name everytime.....doesn't mean I'm not wishing you well. Off to start the day (after another cup of coffee). ((((((((XXX))))))))) to all

  • nihahi
    nihahi Member Posts: 3,841
    edited February 2013

    oops forgot to ask...keemo.....did you find out why the interest in Vitamin D levels? I'd be interested in hearing about that.

  • scouser47
    scouser47 Member Posts: 963
    edited February 2013

    Nihahi, on about the twelth cup of tea. Awash but really thirst.
    Day started so beautifully then went txxs up !! Had to empty all of our bedroom into box room as back bedroom is plumbers work room.
    Finished by 8.30 am which was a good job as carpet fitter came early. Luckily I had cleaned floor with my steam mop.
    Carpet all fitted in ten minutes. Perfect. Room much warmer and quieter after laminate.
    Bathroom was going great but electrics a disaster. This house had an extension built before we moved in and they put an enormous steel girder in which means wiring can't go the way it should.
    Wrinkly butt will finish just the shower next week as he has too go to hospital for tube down the throat tomorrow. Poor man is worried sick.
    Bed coming tomorrow so sleeping in " sun " room ha ha tonight again as other beds are in a heap.
    Felt good until about 11 am then think steroids wore off, so weak and tearful and DH seems to expect me to carry on as if ok. Why do they do that ? If he feels out of sorts the world grinds to a halt.
    GD coming for tea after school. I need her to stop me murdering DH.
    When rooms sorted over the weekend, that will be it for a little while.
    App came for mapping and tat for Rads this morning. Having all that straight after second part of CMF next Tuesday.
    First day of spring 21st March here, still really chilly but sun is shining.That is my Mum's birthday so must go and tidy her resting place and have a good talk to her.
    Still oiling arm and it certainly helps. My girls got me using it after it sorted their stretch marks. It is sooo gentle and smells divine.Sure it will help you and the girls.
    Will come back later after GD fone and dinner eaten. xxxx

  • nihahi
    nihahi Member Posts: 3,841
    edited February 2013

    (((x)))'s Edi,

    Hubby probably doesn't know how to help you through the crap stuff, so like many men, he figures the best thing is to just soldier on. It is a way to handle it, but if you're like me, it would make you feel so much better, if he would just "acknowledge" that he realizes how you are actually feeling, instead of him seeming oblivious to it. I really think that's the thing that works for me....I know when things can't be changed, but it seems to be harder on me, when I feel like I'm not being "seen or understood". Maybe you could put him on a straight prune diet for awhile, so he could get some quality throne time of his own! Wink (just kidding....maybe!). My Mom's birthday was Feb 25. Miss her and my Dad everyday. Tell her to say "Hi" to my folks for me, ok.....George and Georgia. Dad was Scottish, Mom was Swedish, which likely explains my stubborn side! 

    Off to play in the sunshine now, I'm taking my camera today, so maybe I can catch a photo or two for you. (((((x)))))).

  • Hoya03mom
    Hoya03mom Member Posts: 135
    edited February 2013

    Greetings....It has been one year since I first felt the lump...ended up being DCIS...but in several locations and pre-cancer indications on other breast so I eventually, after 3 lumpectomies, decided on bi-lateral mastectomy with modified DIEP reconstruction.  Surgery on 7/25/12 and cancer free!!  If anyone who is trying to decide wants to contact me, I would be happy to discuss why I went the way I did (two sisters with cancer did impact my decision!).  I am so glad I went the way I did...still some residual effects, but all in all, a positive outcome.

    I spoke with around 20 women before I decided and got great input including questions to ask MD, so if you have questions about anything, please PM me or e-mail MiamiU72@aol.com and put cancer question as subject.

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited February 2013

    Hello lovely ladies! I took yesterday off b/c of "issues" due to the two antibiotics I am on. Didn't want to complain b/c it is so trivial.....



    Nihahi, so glad you love your surgeon. So important to be able to trust the person who holds your life in his/her hands. I feel the same way about mine.



    @ Beargrass-I have only seen it in and around Glacier.......and on the high trails around Mt. Hood, as well as the Three Sisters Wilderness area of central Oregon. Most prolific in Glacier, though. Would the Banff-Jasper area have it? I would think so, as well as the Revelstoke area of BC? I must say, in all of my years of making my annual "retreat" to Glacier, I have NEVER seen the wildflowers more beautiful than last summer.....if I can figure out how to do it, will post a few photos.



    Edi-love your wonderful sense of humor! We NEED to have one in order to survive , don't we?



    Scottie, you are a strong woman-hope all went well for your son. It's hard enough to be dealing with our own health issues, but having children with issues certainly makes the BP rise.



    Traii and Dakota- two amazingly strong young women-bet you have no idea how much I look up to you. The big "C" is hard enough, but to deal with it when you have children at home........wow!



    Liefie, I need to learn to eat healthier, like you. I know I could do better than I do. Pet your Siamese for me. :-)



    Hoya-welcome! I am a DIEP-flapper(s) as well, and despite a few post-surgical complications, would do it again.....in a heartbeat!



    Hope all of you have a wonderful day......my only advice? If you see a cockroach-squash it real good! :-).



    Namast and God Bless. Jackie

  • liefie
    liefie Member Posts: 2,440
    edited February 2013

    Good morning girls,

    DH did not wake me up, so I missed my yoga class. Yikes! It seems when I'm still sleeping, he does not have the heart to wake me up. Love my yoga, but oh well, sleep is good too. Will go to gym later and do my own thing.

    We had wet snow falling a while ago, but not at the moment. Still waiting for the deluge to start. Hope it won't be too bad, because we have to drive down island to Chemainus tomorrow to go and see the Buddy Holly Story in the theatre there tomorrow night. We're meeting friends and also having dinner there before the show. Hopefully rain storm will be over by then. 

    Will check back later. Have a good day everybody!

  • keemo26
    keemo26 Member Posts: 29
    edited February 2013

    Nihahi - regarding Vitamin D - My MO said that there were studies suggesting a link between low levels of Vitamin D and breast cancer. She didn't make a huge deal about it but said that she wanted to check my levels to get a baseline for where I am, and if low, we would come up with a plan. I did spend some time on Johns Hopkins and various other sites and they all seem to support what she is saying. Guess a little sunshine is now my friend! 

  • liefie
    liefie Member Posts: 2,440
    edited February 2013

    Scottiee, how are you, and how is your son?

    Moviemaniac, if the fruit was all I eat, it would be commendable, but this last week I totally fell off the wagon. Due to eye surgery I could not exercise, and had to stay home last week where everything in my pantry cupboard and fridge kept calling my name. Now I am clawing my way back again, but it's not easy. I am addicted to sweet stuff, and have such a battle to stay away from it. Fortunately I can now exercise again. Have given the Siamese princess a hug from you. She miaows (spelling?) thank you!

    Edi, when you are done with your treatments, you will have a brand new home to go with it! In a way I think all the work that is being done distracts your attention away from bc, and makes this time of chemo and SE's go by faster. Helps DH too to stay busy with these things - no time to dwell on negative thoughts. Still remember during chemo last year from March till May how glad I was that I had DD's July wedding to organize. It was a lifesaver for me, because it gave my such a wonderful thing to live for and look forward to, as well as something which kept my mind occupied and away from the dark thoughts. At first I was so very rebellious as to the timing of my bc at the same time as the wedding of my only daughter, but soon realized what a Godsend it was.

    Nihahi, looking forward to your photographs! Not raining here at the moment, and the snow that fell earlier has all melted, but we're not out of the woods yet, not at all. The forecast says 150 mm of rain for the west coast of Vancouver Island in the next 24 hours. Will get DH to check the boat in case we have to use it for a quick getaway - LOL!

    Websister, Traii, Dakota and everybody else, have a wonderful day!

  • nihahi
    nihahi Member Posts: 3,841
    edited February 2013

    Hi Ladies, Sadly, no eagles today. Great horned owls, chickadees, nuthatch, flickers, woodpeckers, canada geese and ducks. Oh well, still a lovely walk. 

    Movie, Banff-Jasper too far north for Beargrass. Waterton is the only known area in Alberta, but some of the southern mountain ranges in BC do have some. Not sure about Revelstoke, think it's probably too far north. Yeah, wildflowers were awesome last year. I've been to the wildflower festival in Waterton 3 different times. So many bears there, that it's great to go when there are lots of people on the trails. They have some really good photography focussed hikes and stuff during the festival.You should check it out sometime. You'd have to go the long way around to get there from where you are though, as the road over the pass from Glacier to Waterton is still snow bound at festival time. I'd love to see some of your photos.

    The Vitamin D stuff is quite interesting. Thanks Carla and Keemo. I've been taking 2000 per day, as in our part of the world, we don't have enough sunshine over the winter months, plus, I always try to wear a high spf sunscreen. (Still got skin cancer anyway, but could have done that damage as a child). Interesting connection to bc though. My mom and one of her sisters both had bc (diagnosed after me). They both were raised on "farm milk" so no added Vit D, both were fair-skinned Swedes who didn't really seek out the sun. In fact, my Mom avoided much sun, as she would break out in hives if she got too much. So likely, their D levels were pretty low. Hmmmmm. Maybe I"ll up my intake a bit.

    Liefie....hope your still above the waterline!!!!!! 

    Traii, Edi....how's the se's. 

    Scottiee.....feeling better, we all hope????

    Off to Qigong tonight. Take care everyone.  (((x)))

  • bennymuffins
    bennymuffins Member Posts: 412
    edited March 2013

    Sorry for the absence everyone. I have been soooo depressed the past week and just getting worse. I am still feeling very sluggish and 'chemo-ed', especially if I don't drink enough water. I am lacking in sleep and no energy at all. I haven't seen Diamond except for one day last week when we had the ride from hell (she spooked and bolted and I barely hung on because I am so weak still). I saw the oncologist last week and he is giving me another month to recover then radiation starts. No more chemo. He said there comes a point when chemo stops being effective and starts getting toxic, and my body has reached that point. He said the radiation will help and most certainly the Tamoxifen. I asked him what the likelihood is of the cancer returning and he said he couldn't give me a number, but to try and remember that I 'got a good dose of it' and if it comes back we truly did everything we could to prevent it. I am torn because I really don't think I could handle any more chemo, and I should be happy it's done, but I can't help thinking the cancer is just going to come back within 5 years because I didn't do enough chemo. I am so sad and I should be happy. I am going to try and get out of my pajamas tomorrow and get out to see Di, but I'm so weak I can't work with her anyway so what's the point? There was a sign on the wall of the doctor's office last week that said when you start losing interest in things that once brought you joy, you might be in a depression. Uh oh. I just can't seem to get out of this slump. And it's almost like the whole cancer thing is just now sinking in. So unfair. Unfair to all of us.

  • liefie
    liefie Member Posts: 2,440
    edited March 2013

    Benny, glad to have you back, but so sorry to hear that you are feeling so rotten. What can I say? We all have those dark thoughts from time to time, so you are not alone in that. Quality of life is very important, and your body just could not handle more chemo. There's absolutely no shame in that. You have really given it your all, we all witnessed your brave struggle, and I say you should be proud of that, and trust that it did its job. The biggest recurrence prevention comes from the Tamoxifen, and you will be doing rads too. You will be fine!

    No amount of worry about the future will change anything, and it is just making you very miserable. It is better to just focus on today, on this moment that you have. Yesterday is gone forever, and nobody knows what tomorrow will bring. So today is our time to be happy, and grateful for what we have. Chemo still affected me for about three months PFC, I still felt breathless at times, my heart would race for no reason, and my thigh muscles were stiff and useless. So give it some time, and do just what you have the energy for. Baby steps! As soon as your strength comes back, you will be feeling way better, I promise. Big hugs to you!

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    Dear Benny.....You might not think so, but we are so happy to hear from you, no matter what "state" you are in. I hope you are still connected to the Support Centre, it sounds like now more than ever, you could benefit from their support. Remember that everyone is different, and the treatment protocols are based on "averages". Your body was obviously telling you it had reached it's limit for YOU, so please don't be comparing yourself to the "standard" protocal and be thinking you haven't had enough chemo to be effective. Like Liefie says, the after affects of chemo can last a longer period of time than most people realize, and I think is related to how hard it was on your body. Is your mucositis settling down? If so, please remember that you cannot build strength on just empty carbohydrates like potatoes, you NEED to get protein into you, and your nutrition has been so compromised, it stands to reason that you are depressed. Depression isn't just emotional, it also has "chemical/nutritional" components. There also is no shame in depression, after what cancer dx and tx have done to your body and soul.

    I'm not going to tell you not to be angry, or scared, or depressed....but I am going to tell you that those feelings are normal for all of us, at one time or another. There is NOTHING fair about cancer, but all any of us can do, is the best we can. There are no standards we should try to measure up to, no other cancer patient we should try to "emulate"...we are each our own person, but we are also all in this together. 

    You have taken a huge step, by coming back to this thread and posted to us. Give yourself a monster pat on the back for doing so. Please contact your support people and most definitely your nutritional counselour. If I can help in anyway, please send me a message. 

    Remember kiddo, sometimes it's one minute, one hour, one day at a time. And it does get better. ((((((((x)))))))))

  • scouser47
    scouser47 Member Posts: 963
    edited March 2013

    Hi Warrior Sisters. Saw this on the web and thought of you.

    " Sometimes the people who are thousands of miles away from you, can make you feel better than people right beside you "

    That applied to me yesterday. Felt weak, tired and wanted to just give up.
    Everything that could go wrong did just that.
    Electrics caused horrendous problem which took hours to sort and entailed the contents of the loft being brought down and walls being ripped out !!
    Wrinkly butt is a genius, he found the fault in the boiler cupboard a switch in there had blown. First time in forty years he had that particular fault.
    My horrible SIL had installed that particular switch so might have known !!
    GD came to see Nana after school and that gave me a burst of energy.
    She cuddled me and gave me a lecture on dinasours, very interesting lol.
    ED said the teachers had planted an egg in the playground and the little ones all think it is a dinasour egg. Cute.
    Bathroom gorgeous but tiny bits to be finished.Got a break for a few days and can have a soak in new bath Sunday when silicone has gone off. YAY.
    Slept for 8 hrs with many wees but DO feel better today.

    Benny, So good to hear from you, if you are feeling low ( not surprising after what you have been thru ) please get good healthy protein in and get help. The Black Dog of depression if it strikes is awful.
    I have been there and once on meds life was wonderful again. Just on them for a short while but got me over worst time of my life.
    big ((( HUG ))) X

    Nihahi, Again you are right. DH became really concerned after plumbers left. Cooked me some tea and made up bed in back room. I fell in at 10 pm and got up at 6am for tea and log in.
    He is out all day with " the lads " they meet up once a month for lunch and  few pints.
    Bed still there so may throw myself back on it if weary bit starts again.
    Will keep prunes in reserve lol.
    Wildlife wow, hope you enjoyed your outing.
    Will get Mum to say Hi to your folks. What a lovely heritage you have.
    How did they meet ? x

    Hoya, how lovely that you are cancer free Smile x

    Movie, Hope you are feeling better ? We gotta have a giggle haven't we ? Laughing x

    Liefie, I am on DH's side your rest so important. You can always fit in excersise later.
    My appetite perking up a bit so eyeing up chips, chocolate etc. Will have to watch myself as new dresses won't fit !
    You are right all this doing up of palace is making time fly by. How you did a wedding, wow, but sure it pulled you through.x

    Keemo, vit D really interesting, looking into it. How's skiing ? x

    Thinking of you all today as always.
    DH up and about so will check in at tea time here and see what mischief you have all been up to. xxxx

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited March 2013

    Hi everyone.....well, not sure what to think now. My DS had a stress test yesterday and the irregularity is still showing up!!!!! They gave him an ultrasound when he told the cardiologist he was born with a slight murmur....no murmur now, which I knew, and no leakage. They want him to wear a monitor for 48 hrs now. I didn't go with him in the end.

    I don't have a lot of energy at the moment and didn't think a hospital would be the best place for me anyway. I should have been there because my son's answers were very evasive....not surprised. In his defense though, he said the cardiologist had him in and out in a couple of minutes...WTH..



    Dakota....any thoughts? he said something about wave l and 2 being irregular .



    Benny....sorry you're in that place, hopefully not for long. I ended up having to take an anti-depressant and an anti-anxiety when needed. Don't let it get away on you, seek help.



    Edi, I hope you are feeling better today 😘



    Everybody else, will catch up later, still a bit weak yet.



    Love you all ❤❤❤

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited March 2013

    Hi ladies sorry I was MIA yesterday. I have to catch up. Scottie any more info than that??? Like what kind of rhythm??? Atrial fibrillation is most common. Get that boy to give us info ;)

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited March 2013

    Dakota....so frustrating....he has ADHD...and is unable to concentrate all the time.

    I told him to take notes.....yeah, like that happened....lol

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    Hugs going out to everyone......Been up with the alien for awhile, but also thinking it was the "vibes" I was feeling from so many of you during the night. Gosh, I just want to hug each and everyone of you, and not let go. So much more needs to be done to find a way to keep this disease from taking such a toll. 

    Benny...acknowledging that you need help means you still are looking to the future. I have read your last post many times, and I feel you are in "that place" that some of us talked about a few days ago. I know you haven't completely finished your tx yet, as you are still going to do rads, but I think you feel like the "big guns" are over with (chemo), and your fears that ca might come back are making themselves front and centre. You have not failed, you have done the very best (over the top best) that you possibly could. Believe me, I know the fears, I've been there, I was a basketcase for the very first weekend away that hubby, and our kids did after my chemo ended. He planned this wonderful getaway to "celebrate" things, and I ruined the whole trip for all of us, especially for myself, because I had forgotten to pack the bottle of tamoxifen, and convinced myself that because I missed 4 pills, (out of a 5 year regimen) I was now going to die..........21 years later, I'm here, typing this message to you. There is NOTHING we can do to change "yesterday". Let people help you find your way to the future....it's waiting for you. You're scared, but you are not alone, and there are people, support, drugs, animals, and angels to help you. You do still have lots of control over what that future will look like.....you can choose to do nothing, and be scared, alone and unable to return to the things in life that brought you joy, or you can choose to use the help that is just waiting to be accepted, and move on from where you are. I know you love your horse, but you cannot handle a large, powerful animal at this time, and I am concerned you will harm yourself and your spirit if you try. I think the hardest battle of ca, is the war of our "wanting and wishing to be able to........against the reality of the moment". Doesn't mean the realities don't change, but denial doesn't make that happen faster.

    Edi....gosh, hugs, hugs, hugs....you're human like the rest of us. Glad hubby gave you some "tlc"...maybe it wouldn't hurt to let him know a little more often that you could use some! You are such a trouper, even you have the right to walk away from the fight for a rest sometimes. My folks...small town, classic story of both dating other people, met each other, knew instantly they had found "the one". 

    Scottiee......men don't communicate "medically" at the best of times, and your son is probably doctor "deaf" like most also. If they don't hear....take this pill.....they don't understand what they hear. Some specialists don't give info in "real people lingo" either. Hopefully Dakota has some explanations for you. I don't think you would have made any difference if you had gone with him, and I think you made the right choice, in staying back to care for yourself, as you are not well yourself. 

    Ladies.....the sun is going to come up here in a few hours.......another day......another time to help each other. I just love you all so much, and would do ANYTHING to help you...(((((((X))))))))

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    Hey Dakota, I must have been typing while you posted....how's things?

  • scouser47
    scouser47 Member Posts: 963
    edited March 2013

    Scottie, kids do your head in don't they ? What a shame they couldn't write things down, Can you not ring and ask ? know it is his dx but perhaps if you explain about his attention span and the fact you are worried is making you ill. Throw in the BC card, I never did but find it does open doors.
    Hope you feel bit brighter soon. I feel better for a good sleep but have just moved all the rooms around again with DH and after three hours of hard labour lol. Chucked the bc card into the mix.
    Now being made mugs of tea and told to relax, I should cocoa !!
    DH supposed to be out with his mates but it was cancelled Frown  could have screamed as had a day of doing bits and bobs planned. Still we are shopping tomorrow will take it out on his wallet lol. x

    Dakota, hope you are ok. Hope cockroach behaving ? x

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    Traii.....what's up with you.....not like you to be quiet......

  • scouser47
    scouser47 Member Posts: 963
    edited March 2013

    nihahi, typing while you were posting !!
    You are my inspiration 21 yrs !! I would be 87. That will do me. Good advice to our beautiful Benny, she is such a brave warrior sure she will soon be back in the saddle but NOT before she can keep safe>
    hope freakin alien has calmed down and you have a wonderful day>
    love and hugs xx

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    pfft...87 is nothing, if you've still got a smile on your face. Personally, I figure after all the drugs, we're no longer biodegradable anyway, so might as well hang around and enjoy as long as we can!

  • scouser47
    scouser47 Member Posts: 963
    edited March 2013

    NIHAHI, you are right, we will be around for ever. Probably glowing lol xx

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    Benny......check in please.....(((((((x)))))))

  • liefie
    liefie Member Posts: 2,440
    edited March 2013

    Benny, you've been given such wise words from our lovely, caring Nihahi, and the same from our resident comedian Edi. We are all on your side, supporting you. Just one more thing which I had forgotten to say in my 'advice' post to you. I felt 'set adrift' after all my treatments were done, and was scared not to be so 'looked after' and checked up any more. Then I realized that no amount of present worry will change the outcome of anything in future. I realized that it would be very, very stupid of me to waste my beautiful, worthwhile, present life worrying and fretting about something that may or may not happen. Logic dictated that I stop worrying about something that I have NO CONTROL over whatsoever. If ca comes back, I will handle it then like I handled this one, and not before it is necessary. I simply will not allow it to wreck my life or to steal my joy. Like Edi, I was on medication for depression 12 years ago. It helped me to cope, I was healed, and the lessons I learned from that episode helped me to cope with this bc drama. So please Benny, seek help; it is out there, and you just have to ask. No shame in it at all. This is a brutal ordeal, and you've been through so much already. ((((BIG HUGS!!!!))))

    The following is also something to think about: Your chance of dying in a car accident is much greater than dying of bc. This never fails to give me the right perspective.

  • bennymuffins
    bennymuffins Member Posts: 412
    edited March 2013

    Good morning sisters. Well, I am half dressed ( a good sign) and the weather is promising for today. I am eating scrambled eggs with broccoli and green onions and a Glucerna. I'm heading out to the farm today but will not be riding Diamond. I might lunge her but no riding til I get stronger. I might ride Miss Big, our lesson horse. Miss Big will literally fall asleep in the arena if we don't keep her moving. She is a giant teddy bear. There's no way I can fall off Miss Big as she doesn't move fast enough. Diamond, on the other hand, is a speed demon and very spooky. I am starting her on a product called Feisty Mare and will keep working her (lunging, round pen, etc) til I have my strength back. We were supposed to do a trail riding clinic early May and now I don't know if we'll be ready for it or not, which is disappointing. So anywya, that is the plan for today, which will at the very least get me out of the house, with clothes on!

    Nihahi, Liefie, Edi, Scottie, thank you so much for the encouraging words. Makes me cry. Liefie, I guess I expected that I'd just bounce back to my normal self and my hair would start growing right away (it's not) and my strength would be normal and all would be good. I have been telling myself that this is going to be the best summer ever, but if I'm still feeling weak and lousy, I now wonder if it's going to be a good summer. I will probably have to go back to work in 3 months so I hope I'm better by then because I cannot imagine running around for 150 clients in our small hospital.

    Nihahi, I am keeping track of how much protein I get in daily. Usually it's around 65 mg, so that is good but not great. I haven't been able to eat potatoes for awhile now; I finally max-ed out on them :)  I eat eggs and cottage cheese now. Still can't do cereal as it's too scratchy. And I bought a bag of Bold BarBQ Doritos but they will be sitting in the cupboard for awhile yet. I can totally relate to your 'missing 4 Tamoxifen pills story'. I would be thinking the exact same way. I have weird pains now and of course it's the cancer coming back. And my right arm is just waiting to flare up into lymphedema. I don't want to live with this constant fear and so must reconcile this somehow. I am going to call the Support Centre and see if I can get in for next week.

    I used to read a quote to my clients who were suffering with depression and now I am reading it to myself. This is the quote, and i really do love this quote because it reminds us that our perceptions are not accurate when we feel this way, and so it's important to not give up:

    "If you have depression, you may feel exhausted, helpless and hopeless. It may be extremely difficult to take any action to help yourself. But it is important to realize that these feelings are part of the depression and do not accurately reflect actual circumstances. As you begin to recognize your depression and begin treatment, negative thinking will fade."

    And do not reflect actual circumstances....... I love that part. Every little ache and pain is not cancer. It's not doom and gloom and I have to keep reminding myself of that I guess. I wish I had some chocolate.

    I have plans to go out for brunch with a good friend on Sunday, then head over to the Calgary Home and Garden show. On Saturday I am going out to another farm where I will be sheep/dog/chicken-sitting for some friends while they go on holidays, so that will be fun. So I am at least getting out of the house.

    Okay, going to finish getting dressed and put my wig on. I miss my hair. I was looking at old pictures of myself a few days ago. Bad idea. I'm going to avoid that for awhile.

    Thank you again for the support and love and kindness and warming words. I so appreciate it and love you all ♥

  • bennymuffins
    bennymuffins Member Posts: 412
    edited March 2013

    "The following is also something to think about: Your chance of dying in a car accident is much greater than dying of bc. This never fails to give me the right perspective."

    Oh my goodness!!!!!! Wow!!! That really DOES give a different (more positive) perspective!! Thanks for that, Liefie!

  • liefie
    liefie Member Posts: 2,440
    edited March 2013

    Benny, you are a bright woman, and I can see that your intelligence is beginning to prevail - so good to hear! YAYYYYY!!!!! You are making plans again, and the fact that you worry about your hair says that you care what you look like - yay! My hair did not grow at all after my last chemo. I was bald for 8 full weeks before anything started to happen in the beginning of July. Today? I've had two haircuts so far. The hair came in snow white, quite the change from the dark bob I had before, but it is hair, and I'll take it. Sometimes I look in the mirror and think who is this woman looking back at me? Then gratitude kicks in, I'm alive and well, and life is so good again. I like that quote about depression. It hits the nail on the head spot on. You just take things slowly; this is a marathon, not a race. Before you know it, you will be flying through Edi's meadow on Diamond's back, your hair streaming behind you, your laughter ringing out . . . you go girl!

  • liefie
    liefie Member Posts: 2,440
    edited March 2013

    Benny, you are a bright woman, and I can see that your intelligence is beginning to prevail - so good to hear! YAYYYYY!!!!! You are making plans again, and the fact that you worry about your hair says that you care what you look like - yay! My hair did not grow at all after my last chemo. I was bald for 8 full weeks before anything started to happen in the beginning of July. Today? I've had two haircuts so far. The hair came in snow white, quite the change from the dark bob I had before, but it is hair, and I'll take it. Sometimes I look in the mirror and think who is this woman looking back at me? Then gratitude kicks in, I'm alive and well, and life is so good again. I like that quote about depression. It hits the nail on the head spot on. You just take things slowly; this is a marathon, not a race. Before you know it, you will be flying throught Edi's meadow on Dimond's back, your hair streaming behind you, your laughter ringing out . . . you go girl!

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