In hns & Jo's pockets today.  Let us know asap Jo what it is please.

I agree with Marlegal, I think out fearless leader just jumped on her ship & sailed away without a word of ta-ta or sayonara!Hope she's having a blast!

Will be there for you today HNS - I will bring the wipes to get rid of the sticky fingers from the cinnamon rolls. I think we better have something to wash them down with also - tea/coffee would be wonderful.

Jo - get back to us asap - hoping it's nothing that can't be taken care of quickly and painlessly.

Went sledding yesterday with family/friends/neighbours/kids of all ages - there was about 30 of us on the hill. Then had everyone back to our place for homemade fries, burgers and drinks. What a blast. Thought my legs would be wobbly today from walking back up the hill (waaaaay more fun going down) but it is my shoulders and upper arms that are stiff - wth?

Well kids, I'm sitting here at the cancer clinic waiting to see a picc team...should be fun and it doen't SOUND pain free...tomorrow is chemo and hercepton so I really don't want to use my only good vein...



These pockets sound jam packed so I sent Jim downstairs for treats at the Tim Hortons here in the clinic. All the hospitals have them now, well at least in Ottawa .



LOL Barb! See what happens when you play like a kid....we suffer for days!



If you vomit hns they'll charge extra!!!! I like warm cinnamon stuff. Xoxoxoxo

I had started answering before reading all and my prior post was outdated so that's why I deleted it!

Jo, I look forward to an update. I hope there was nothing painful involved...one day a week of torture is certainly enough.

HNS, I'm sorry about the burping during your test ... doughy treats have a tendency to repeat on me and I forgot my Tums. My bad

Can't wait to hear Eli's stories after the cruise ... hope she's having a blast. Wish I were there with her. Actually, I wish I was still at my daughter's like I was last week, holding her adorable new son. Gotta keep the memories...gotta keep the memories

Hearnsoul I did "fallpel" down the waterfall, it was not easy bit I did it, slipped a few times, but got back on the program and did make it down!  The kayaking was very relaxing, the hike was really tough but made it, have to relax now!  Great job on your yests they are not always pleassant and it is hard to be still all the time!  I wobbled and fell today before I went down the waterfall!!

Jo gladyou are seeing someone., I get cellulits in my breast and have to get to the clinic right away for antibiotics.

I must say that I have been more adventourous this trip we have done a lot of hiking and things that I would not usually do, don't know if I am losing any weight but I am truly getting A LOT of needed exercise!

Back from cancer land! Geez, got home at 6:30, made supper, we are pooped!



6-1/2 hours to find out nothing we didin't know! I had more concern from the nurses and pharmacist than tweedle dee & tweedle dum the 2 on call docs at the clinic. Tweedle dee sent us over to the PICC team at the hospital to assess my port...well..there are 3 nurses...that's the team, they can't order tests, drugs or repairs. The head nurse said I don't know why the dumb doc sent you here as we can't do anything for you...he should know that as he's the onco doc and they know we're the nurses...and we don't deal with ports. So..she looked at mine and said yes it's infected but I'm not a doc...she was pissed that they sent us there and wasted every bodies time..she was nice and we were all pissed off at doc tweedle dee. She then called the clinic to talk to tweedle dee and found out he was gone home but doc tweedle dum was there and that doc would look at my port.



So off we trotted back to the clinic and the doc looked, said oh, well it's infected but not cellulitis...she was slightly concerned that it might be septic and then said it would go directly to my heart if it was. OK...we said what should we do? She then called my elusive onco dr. Clemons (who was on call today but to busy to see me so he sent the original tweedle dee that was soooooo vacant). He said (she's pallative care) just give her oral antibiotics and do a culture from the port and her vein and tomorrow we'll shove the chemo in her only good vein as we can't use the port because it's infected.....and she (me) can refuse treatment if she wants.....I'm ready to shoot myself by now...I told Jim it's not the cancer that will kill me its the f*cked up doctors.



Soooooo because I listened to the nurse when she told us to get my bloodwork taken downstairs AFTER we came back from the PICC team (cause it's getting late) and to make sure we came back to the unit to tell them what was decided. I ended up getting 2 picks downstairs (cause my veins are rollers and she was having a bad day.....really?) and 2 more pics later from the same nurse that told me too bad I had my blood work downstairs as they could have done it here cause they had to do the cultures anyways...Arg!



So....the doc tweedle dum gives me 2 scrips as some of my bloodwork had already come back and my potassium was low, ok, I've been having problems since chemo with that....she then writes the dumbest script for antibiotics that don't even exist....we had gone back to the hospital pharmacy as it was easiest as now it was close to 5pm. We were there for over an hour as the pharmacist had put several calls in to talk to the stupid doc that NEVER returned her calls...that poor pharmacist, because she feared I might be septic she would call me at home but if I had fever to go directly to ER...well shit...I'd had this going on for a few days and was soooo fed up I told her to forget about the antibiotics as I was going back there tomorrow for chemo and would deal with it then...she had a look on her face...the doc had stressed several times to us, in front of everybody on the floor, that if there were any problems she could easily be reached at the number she wrote down for the pharmacist....she never got back and hopefully she'll be on tomorrow.....



So that was my day! I get to do this again tomorrow....if I'm not dead by then....social medicine.....

Still no solution to my port problem other than to try to save it as I really really need it.



Now Hns about Tim Hortons.... The best coffee in the world...no wait....the best was in New Orleans....okay..Timmie's donuts yum yum yum!

Marlegal, I recently discovered that burping after carby food is a sign of insulin resistance. I have had that on and off for many years, only now found out what it means.

Momine, I was making a joke about burping while in HnS's pocket during her test

barsco - ugh, that stuff made me sick all day working it's way through my system. I had no idea today would be so miserable!

I won't get my results back for 2 weeks when I see my MO again. I will gladly wait for her - once I called the surgeon's office to get the results of a biopsy early, and that lady could not read the report right. So I asked her to fax it to me, but my fax machine wouldn't work.  I decided from then on be patient and wait for the doctor and not get some garbled up nonsense that just makes you worry!

Jo - for crying out loud, don't you want to just smack them! Going to the doctor really tries my patience on a good day. Although when I came home from my PET scan yesterday, I was going on and on about how nice everyone was and that was even without Xanax, haha.  I hope tomorrow everything goes smoothly.  Timmy's sounds yummy. They have donuts in the hospitals there?  Here it's practically just health food, and who wants that when you feel crappy!

So eli set sail without saying aloha? She better bring back some amusing stories. (or make them up)

Jo, man, I hope the docs are on their toes today for you. We already feel bad enough but to be treated badly makes it so much worse.

I managed to tear my cornea in my right eye on Monday. So please forgive any typos. I have been going to the eye doc every evening to get it debreded (sp?) and checked for infection. Bright lights hurt so I have been off the computer for a few days. Staying in dim rooms and sleeping alot. One of my friends said to me today, maybe I was starting to do too much and this is the universe's way of getting me to slow down. If I could have seen her better I would have decked her!

hns - hope the barium has worked it's way through and you are feeling better. Can't  blame you for wanting to hear results from the MO rather than get a bumbled up report. We will wait with you.

macatacmv - sending you healing vibes in hopes that your eye gets better soon.

Looking forward to hearing Eli's tales of the high seas!

Jo - so good to hear from you. Poor Jim - I bet he is rethinking that retirement about now huh? lol  I sure hope that Cdiff does not make an appearance - that would be too much. Is the cloxacilon to prevent Cdiff or to address the infection that you were talking about the other day?

You are sooooo entitled to fear the whole cancer and treatment scenario. There is certainly nothing welcoming about any of it.

Feel better my friend!

My sister came over today to cheer me up, I'm so sick from the antibiotics    So we played with some scarves (she wants me to get a wig..but I think I'd be to hot)....so this hat is from the angels at the cancer clinic that   volunteer their time and make these hats....I wasn't to crazy about them till Lynn said turn it around like Lucy!  So Voila....my Lucy look!  She is my fav actress of ALL time.  She reminds me of my mom, even looked like her.  My mom had a crazy life...perils of Pauline!  She and her sister went to France in 1939 to visit her aunts and uncles, cousins etc. and yep....shortly after the Germans invaded France and she along with thousands of other people stuck in France at the time had to report to the Germans weekly as they were British Subjects and Germany was at war with Britain.(nuther time)

Barb, the antibiotics are to prevent me from becoming septic from my port infection....  xoxoxo

Jo - your sister sounds like a great friend to have around. I'm sure you two had a blast with the hat. Your Lucy look is fabulous. The story about your Mom sounds intriguing. Would love to hear the rest of it some day.

Feel better soon.



HNS - that scan really knocked you for a loop. Strange that it would do that to you. Maybe it was the barium? Glad you are feeling better though. Hope you are enjoying your bloody mary.

Has anyone heard from Barbe1958 lately? Last I remember she was going to

Toronto with her sister.