I say yes, you say no, OR People are Strange
Comments
-
E - I LOATHE AND DETEST INSOMNIA.
Are your sure you can't blame the guv/mint??

Congrats on your trotting brown beauty - too adorable.
Sandy, Ambien stops working for me after a while too. The very low dose estrogen I am taking has restored some of my sleep and other meds I take help.
Edited to change order of sentences to clarify who I am talking to.

-
This I'm sure is not new, and a lot may have viewed it....but thought of several of you the minute I saw it this morning:
RETIRED HEALTH MESSAGE
As I was lying in bed pondering the problems of the world,I rapidly realized that I don't really give a rat's hiney. It's the tortoise life for me!
1.. If walking is good for your health, the postman would be immortal.
2.. A whale swims all day, only eats fish, drinks water, and is fat.
3.. A rabbit runs and hops and only lives 15 years.
4.. A tortoise doesn't run and does nothing, yet it lives for 450 years.
And you tell me to exercise?? I don't think so.
I'm retired. Go around me.
God grant me the senility to forget the people I never liked, the good fortune to run into the ones I do, and the eyesight to tell the difference.
Now that I'm older here's what I've discovered:
1. I started out with nothing, and I still have most of it.
2. My wild oats have turned into prunes and all-bran.
3. I finally got my head together, and now my body is falling apart.
4. Funny, I don't remember being absent-minded.
5. Funny, I don't remember being absent-minded.
6. If all is not lost, where is it?
7. It is easier to get older than it is to get wiser.
8. Some days, you're the dog; some days you're the hydrant.
9. I wish the buck stopped here; I sure could use a few.
10. It's hard to make a comeback when you haven't been anywhere.
11. The only time the world beats a path to your door is when you're in the bathroom.
12. If God wanted me to touch my toes, he'd have put them on my knees.
13. When I'm finally holding all the cards, why does everyone want to play chess?
14. Its not hard to meet expenses . . . they're everywhere.
15. The only difference between a rut and a grave is the depth.
16. These days, I spend a lot of time thinking about the hereafter . . .
I go somewhere to get something, and then wonder what I'm here after17. Funny, I don't remember being absent-minded.
18. DID I SEND THESE TO YOU BEFORE..........??????will return later.
Jackie
-
Hubby told me last night that he can't bring himself to purchase a pistol after all, as he feels like he'd be too much like the gun nuts running out to buy guns before "Obama takes 'em all away"....
I think he made a good choice.... but now I need to get him a different birthday gift... 
Other news... while I was in Hawaii, my aches and pains diminished by probably 75%. Last night they came roaring back with a vengeance. I pretty much spent the evening sitting on the couch and crying. This morning it was about all I could do to get myself onto the train to come into work. I was planning on working until the house sold - but I'm beginning to rethink matters. I think I'm going to retire this autumn whether or not the house has sold. Too much pain.
-
Have any of you tried melatonin for sleep? I use it occasionally, and I think it helps.
-
Cute, Jackie! I don't remember being absent-minded either.
I hate insomnia, too. I get squirrel-brain ... it runs up and down the trees all night long, chases the cats, and does everything except lie down and go to sleep.
I saw that latest NRA POS about our President's daughters. How vile, especially when the threats to our President and his family have gone up by a four-digit percentage from the last president and his family. And the number of hate groups in this country has skyrocketed, too, since President Obama's election. (BTW, I LOVE typing "our President" and "President Obama," knowing it causes some to grind their teeth in impotent rage!). I guess the NRA thugs thought that the last president's daughters were more worth protecting than THIS President's daughters.
I keep seeing the line that "most" of the NRA membership doesn't support their leadership's positions. Well -- then why are they still members? Why aren't we seeing a mass exodus from the NRA if the members don't support the extremism at the top? By remaining members, they are condoning the behavior and complicit in the actions.
Funny, I don't remember being absent-minded.
Kam, it sounds like you are adjusting nicely to retirement. I can't wait!
L
-
Me? Absentminded?
Eh, who'se "me"?

Love the list, Jackie!
-
I love that commercial about insomnia..............."What if the hokey pokey is really what its all about"!!!!!!!!!! hahahahahaha, such intellectual musings at night!
-
garden, pain is my official friend. I don't argue with it anymore!
-
It truly boggles my mind that, in a country of approx. 330M, the NRA (whose membership is less than 5M) wields such incredible power.

-
HL --- what you presented is right on the mark. The extremists in this country are a bit on the scary side......for the mental issues behind it. Seems there is total inability to use brain cells. I'm glad the Pres. is standing up to the looneys and extremists including the rt. wing nuts. What a sorry, sorry bunch ---- so out of step.
Blue...reminds me somewhat of a local artist around here. Has a little pin to wear.....says " Life is just a chair of Bowlies".
Off to work.
See ya'll later ( Hope my gun is still here when I get back ).
Jackie
-
Blue - I keep telling myself that if I am in pain at least I am alive, but I'm not certain that's the argument I want to make - especially after a month that was pretty much pain free. I am sooooo confused.
-
Maybe the dry heat and relaxation?
-
My pain is telling me to go lie down so ttyl.
-
Jackie - loved the list...
Haven't had "diagnosed" insomnia, but years ago in VERY stressful times, a Naturpath suggested Valerian Root - it really was very calming. Liquid, a few drops in water, sublingual ( under the tongue) - most good health food stores have it. Don't know if there are any interactions with medication.
Snow - it is SO beautiful, the light powdery kind, expecting rain/sleet tonight - so probably won't be as wonderful tomorrow.
the hokey-pokey, tee, hee.....
-
have a good lie down.
I was originally going to stop the letrozole while in Hawaii, but my oncologist told me not to. I am so glad that I didn't as I would have attributed all the changes to no letrozole. But instead must think hard about what was really the cause of diminished pain.
I believe the following were contributors....
Heat - each day was in the mid 80's and I was sweating ALL the time.
swimming - I was in the water almost everyday for at least 45 minutes.
lots and lots of sleep. I probably slept 11 hours each night. So I was well rested.
less stress. this one is more questionable, as I was stressed (badly) a few times due to familial issues, but it wasn't the workday stuff.
fewer/different allergens. My allergies were in play somewhat - it seems that everywhere I'm allergic to something, but I noticed that within a day of returning to Seattle, my voice was hoarse and my nose bleeding, so the allergens here are worse for me...
-
I find that even though I love cold and snow - at least for a while - my knees do get a lot more painful in cold temps.
On insomnia, I've given up on any meds. Right now, I just replay the same book on tape CD every night. It's so familiar i don't need to listen to the words. there's something comforting about hearing human speech, though, and it seems to help.
-
GG, that would make me want to retire to Hawaii for sure. So sorry you are suffering.
As for insomnia, hate it to. Did the Melatonin thing, stopped working. Tried the Tylenol PM, didn't work at all. On to Ativan, worked well for awhile, then no more. Now I have been on Ristoril(sp?) for a couple days. Working but getting up in morning is a drag.
Glad I got Netflix and youTube......looking up old movies and TV shows to pass the time late at night. -
Here's an idea. Get this guy to sing to us.
-
I bumped up my melatonin from 3mg to 5mg, and get the dual-release, or whatever it's called - so far it's working for me, but I usually do wake up multiple times a night - mostly, though, I'll fall back asleep, as long as I can keep my head from going into overdrive. This is different from when I went through menopause and couldn't sleep - now I know the cause and can usually overcome the racing brain by telling myself I'm just going crazy and not to worry about it...

-
HL
I read reports of that ad, saw a video online, and was SICK with the stupidity, and the viciousness of it. trying to create an equivalency between the Secret Service and arming teachers in schools - don't want to wake up Blue, but we could really use her IDJUTS posting about now.
So much of the viciousness was highlighted and explained, IMHO, eloquently by Gen. Colin Powell on a sunday am talk show.
-
I'm so sorry for all of you that have insomnia. It just wears you down after awhile and I'm sure that doesn't help the pain. I have no answers, really, but for those that wake up a lot, sometimes that is sleep apnea. Sometimes. I went years without being dx'd for this and when finally did, I "barely qualified," yet I had horrible headaches and would wake up several times a night. Mostly never felt rested. There is nothing like good sleep.
GG - sounds like you need a hot tub, short of getting out of Dodge. I've quesitoned where I live (in old age), but for now, there are no alternatives. I loved the PNW in my 30's, but I think not making that move then has some positives now. That moist cold.....no!
Morning Joe showed the latest NRA (real) ad this morning. Shocking. As Mika said, they've officially become part of the "fringe." They use Obama's children school situation in this ad - disgusting. One only had to watch that first Wayne LaPierre "press conference" to know the guy is pretty wack. Why the members follow is questionable.
I just discovered I own a bullet manufacturer (among other war weaponery) in my IRA - sheesh. (I bought in the days when I was technical trading and didn't care what the company did.) It's recently skyrocketed so I wanted to see what was going on....ammunition. They've sold a years worth of ammunition since Sandy Hook. (It has a short life in my portfolio, btw.)
-
-
-
Gumby, I have found that the more exercise I get, the less pain I have from the letrozole. In the beginning the foot pain could get pretty bad, but I could basically walk it off. The first 15 minutes were not so pleasant, but then it would ease a lot. I am now 9 months into it, and with a regular exercise schedule the pain is minimal.
-
Garden - the heat would definitely have played a big role in the pain levels - sorry you're suffering.
I've started taking melatonin every night again - it does work.
-
Momine - I exercise pretty diligently - when it's cold out (like now) I use the treadmill - in the summer, it's outdoors, but even in the winter I walk outside, as I have to get from the train to work and from work back to the train, and it's a fairly good hike in each direction. This pain is not (IMO) able to be overcome by exercise. I've been on this stuff for a little over a year now and honestly didn't realize just how much I was hurting everyday - until I had a reprieve while in Hawaii. I can see now that it's been much worse than I had thought. I'll get re-accustomed to the pain and then I won't think it's any big deal - until it's gone again.
But it is what it is, and I will stay on it. We (hubby and I) had a long chat with my oncologist on Monday. She said "we'll discuss you staying on it longer when you reach the five year mark." I said, "I'll give it five years, but I won't give it five years and one day unless the longer results are so startlingly better that it would adjust my current thinking." She said that currently they think the 2nd 5 years provides about a 3-4% improvement, and for me, that is simply not enough improvement. The first five years provides me an approximate 18% improvement. For 18% I'll do this, but not for 3%. I won't let her change prescriptions on me either as I'm tired of monkeying around. Tamoxifen almost did me in and letrozole certainly isn't as bad (for me). I don't want to try anything else.
Suzie - I agree, I believe the number one help in the pain reduction was the heat.
OK. End of medication whining....
-
Gumby, it was just a thought and I am sorry it is causing you so much trouble. It may also simply be that I live in a milder climate.
-
gumby - and you may also find that the longer you take it, the fewer SE's. That has definitely been my experience - now happily in year 6 with almost none. The FIRST YEAR WAS IMPOSSIBLE - can't find the words to say how awful! I'm on TEVA generic Arimidex - no change from the Brand - except Blessed Costco - less than $20 a month ;-) So low it's less than my co-pay. Nest year in Open Enrollment, I gotta remember to get a MUCH cheaper Part D - I never use it, all I take are generics from Costco.
-
$20 is the total cost??!!! Mine is $339 a month and it's a generic (Exemestane). I don't pay that much, but that is retail.
Somewhere on another thread, someone's MO told them the symptoms really start up in month 3 and slowly go away (can't remember the time frame, maybe a year?). Mine started in earnest at the 3 month mark and as one SE disappears, the next one arrives. I'm getting this last one licked with wrist splints and if no future SE's arrive, I'll be very happy. At the 5 month mark now.
-
I take melatonin, which works for a while and then doesn't. Then I take an over-the-counter sleep aid, which works for a while and then doesn't. Then I take Ambien or Klonopin, both of which work for a while and then don't.
Lately, I've been taking melatonin with the OTC sleep aid, waiting 3 hours, then taking a Klonopin. Now that's not working.
Tonight, I'm going to crush a bunch of melatonin and OTCs, mix them with Fireball rum, and spread them on cheese. Then down it with a glass of wine. KIDDING, of course, but I'm getting desperate!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team
http://www.youtube.com/watch?v=jCnAjel02lM
