2012 sisters
Comments
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Scorchy....you're pretty damned awesome yourself❤❤❤
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Scorchy,
I too feel very blessed to have found this sight and all the support everybody gives and gets to travel their own journey. As it has been said before....everybodys journey is different and yet this forum is able to communicate the same language of love and support. I thank you all for helping me to travel my journey safely. -
Well said, Scorchy. I too am so thankful I found my way here. I don't have a whole lot to say but I'm reading, and drawing strength and support from every one of you. It is a HUGE comfort to know that you can whine, cry, vent, and even cuss (lol) and you will not be criticized, you will be supported and comforted and get virtual hugs from so many who completely understand. And then you feel better and you can in turn be the encourager and supporter. I practically start tearing up when I think about this group.
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Hi ladies,
Was out of town finally able to visit my ole dad who lives alone in Fla. What a special reunion after all this...last trip was the right after I asked my BS upon first meeting if he thought it was BC and he said yes...asked if I could fly to Fla to prepare some meals before biopsy to confirm etc. So has been some time since I could go get/give dad a hug.
Scorchy, so good to "see" you and the rest on this wonderful site. This place allowed me to wallow, wail and share all the ups and downs with people that truly did understand and would be there no matter what. I try now to pay it forward with ladies on the rads board etc...to offer some comfort and understanding. But this thread was the true heart of it all and where I owe alot of gratitude. In fact, I think with the holiday season upon us, I will make a donation now in honor of us all to the BCO website. Thanks for giving me this idea!!
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Scorchy- could agree more because I believe if I wouldn't have found all of you they might have put me in the crazy house because one day I am ready to take on the world by the balls! then the very next ready to crawl in a hole and hide. I know I can come here and you all can understand the roller coaster of emotions. Some days It just helps me to type here exactly how I am feeling at that moment and you all do the same so it helps me to not feel completely alone and it got me through my next treatment or day when I wanted to just say screw it.
One thing I have learned is not to judge anyone because you can only control your reactions. I have continued to be a person of compassion and love for all. I get this trait from my father because he is the most giving person I know. He has always helped his friends in need even when he was struggling himself. He can walk into any public place and run into someone he knows or they know someone he knows even when we traveled for vacations in my younger years. He was the first person who drove here late in the night when I called him and told him I could not do this when first dia.
I hate to hear of anyone being called out for showing emotions. This is not a place to judge others but to come here amongst friends to scream, vent, cry and laugh:) -
Scorchy: you made me cry... I hope you told her to leave that site and come on over here?
I have to say, I was blessed: I never went anywhere else. I came here, to this thread, and dubbed it home. I have even tries other threads: some are ok, but none let me "put my hair down" (LOL, what hair?!) like this group in this thread. I've cursed, A LOT, YELLED... And every other angry, fearful emotion there is. Yes, this is home. That's why I created the 2013 thread too. I don't want to loose you all!! EVER!!
Scorch... Stay here. We may not have mets; but we live you and We miss you when your gone. xoxo -
Just popped my 1st anti depression pill hope it doesn't take months to kick in since I am losing my freaking mind. Have a meeting with the head shrink end of december, hopefully that will help. I just can't make that corner from negative to positive yet and it's really starting to piss me off. I keep saying that once i go back to work (working from home) in January the social interactions (although virtual) will help me with not having so much time during the day to think about cancer but I think about it just as much when I am with my kids at night and during the weekend. I am scared out of my mind. I understood my plan and had accepted it but when they changed to me to TN I really sunk into a deep hole. I feel like I have not strength or courage. Totally deflated and feeling I will get through this but battle this ongoing forever. I am scared shitless.
Chemo class on Monday, Chemo on Tuesday. Sorry to be so down.
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Jen - I'm sorry you haven't turned that corner yet and I hope you do soon. My whole journey having a good attitude is what got me through. That and ice cream! Damn dry mouth! You are a young mom who is scared and whatever gets you through this do it. If that means medicine and therapy or coming here and screaming! (Too bad they don't have Skype group here) or just hugging your family a little longer just do it. This is not an easy journey. But at the end you will look back and say I kicked cancers ass to the curb! I think working will help. I stopped during treatment and haven't even thought about going back yet but I make sure I do stuff so I don't get in a rut. Breakfast with friends, wander around Target, even an extra trip to the food store. Something to get me out and about. And I force myself to put makeup on when I go out and dress in something extra like wrapping one of my scarves around my shoulders instead of my head since my hair is now growing back. These little things make a world of difference especially when my 12 year old daughter stares at me and tells me how pretty I look.
Ok enough of my babbling. Be well and look for the 🌈
Karen -
Jen, Karen is right, you will turn the corner. Right now is the very hardest time, when it feels like sirens are going off in your ears. It may feel unbearably hard, but I know you can handle it, I know it. It will get easier, it's a process. There are tough times ahead, but good ones too. Take a deep breath in, let it out slowly as often as you can to calm yourself-breathe from the abdomen, not your chest, and when you let the breath out say something like"I will find peace", or "I am alive,". Or anything that reassures you. Big hugs to you.
Susannah -
Jen, I meant to add imagine all of us holding your hand-strength in numbers.
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Jenjen, I am sorry you are down, but you certainly don't have to be- sorry, that is. We react to all this crap the way we react, and there is no morally or medically superior way to do so. That said, I hope you feel better asap, because being depressed sucks. I know it seems like things keep going wrong at this stage, and that the rules of the game keep changing on you, but starting chemo may actually bring you relief. You will have started on an active part of your journey, and though there may be bumps in the road, you at least will be traveling on it. The treatment journey is not endless, as I would have sworn a few months ago. You are right. You are strong, and you will get there. In the meantime, hugs, antidepressants, and chocolate all help!
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Well ladies, I am doing a bit better, just getting used to the drill- aching at night, waking up sometimes from pain; digestive issues(helping me lose a few pounds(- but screw it. I just will see how it goes over the next month or so. Take Ativan whenever I need to. Ibuprofen or Tylenol when I hurt.
And hey, I had time to get used to my lovely oncotype score back in March- 38. At least there was no doubt about what I had to do. Sigh. But trying more for attitude of gratitude- doing laundry, going to my sister's for a Chanuka party tonight, may go wigless next week with my too-curly too-short hair... thanks to all of you for being there.
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For days I have been popping Ibuprofin or tylenol and I just took some not 15 minutes ago. I've been trying to be a bit productive this morning. I just noticed that my achy all over seemed a bit over the top so took my temp out of curiosity .... 100.4 and now will be disguised by the Ibuprofin! Oops! Thoughts ladies?
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Jen.
Hang in there, kid. The antidepressant will kick in and when it does you'll feel better. Damned brain chemsitry. I've struggled with depression all of my life and have taken an antidepressant for, sheesh, 15 years now (I think). You will come out the other side. And we're here for you in the meantime.
Scottie, Marcie, Jennie93, Aruba, Mccook, Juneau,
You are all so awesome! This is the paragraph I wrote about BCO:"If you want to visit boards that are truly a safe place without judgment and that are all about support, I strongly suggest the discussions at breastcancer.org. I don't know what I'd do without them: they provide an atmosphere of healing, welcome, and tolerance. Though I kind of follow only one general board and many stage iv boards, I've never seen this kind of divisiveness. It's just not tolerated."
Been feeling pretty good, guys. Pain management is working. Hope you're all hanging in there with minimal SEs.
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Lisa, I've told this story a few times but I want to tell it again to give you some reassurance. I've been on Letrozole for 8 months now. Last summer was the summer
from hell for me, vomiting, diarrhea, nausea, no appetite, lost a lot of weight. I believe
it was a combination of fear and anxiety and perhaps my L, but not sure about that one.
My GP finally put me on an anti-depressant and an anti-anxiety and I have never looked back. Eat well, gaining some weight finally and no nausea or diarrhea, although my stools are loose, probably all the fibre I ingest. Hang in there, if the AD doesn't work, try an anti-anxiety. -
I wanted to share with oyu my parting words to that Inspire conversation. I finally checked out for good. But the good thing is this: lots of people jumped on board and talked down the folks that were being so judgmental.
"If you want to visit boards that are truly a safe place without judgment and that are all about support, I strongly suggest the discussions at breastcancer.org. I don't know what I'd do without them: they provide an atmosphere of healing, welcome, and tolerance. Though I kind of follow only one general board and many stage iv boards, I've never seen this kind of divisiveness. It's just not tolerated."
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halfcan, once it has worn off keep taking your temp just to make sure and if still over 100 we all know the drill! Thank goodness for our helplines!
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Temp went down to 99*2 for quite awhile and now its back up to 100*5. Grrr. Wanted to go to bed but guess I better do the every hour monitor and keep an eye on it. This sucks....thanks BC!
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Jenjenl, stay strong. It won't be long for another test and then you'll know. Let it all out. Advice I got was vent, if you wanna cry, cry, you wanna get mad, get mad, you will feel so much better once you have a plan in place. Try to think positive thoughts!
Hug your babies. Hug them tight. It makes me feel so much better.
Try to enjoy the holidays. -
Well, here I am in the ER with 101*4. Took tons of blood and chest xray. Looking for culprit. At least they tucked me away in a private pediatric room far from all the germs! It's going to be a long night I think. Hopefully I will get to go home! Xoxo
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Oh dear! Perhaps you picked up the flu? Sending you cozy, home soon thoughts!!!
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Halfcan....sending you prayers and get home fast vibes......hoping to hear that you Re going home to your own comfy bed today❤❤❤
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Oh halfcan! We can do the buddy system! I'm still in the hospital can't break the fevers and can't figure out why. Yea!
Are you getting neupogen shots to boost your counts? Taxotere is what did me in. Made me crave sweet all the time so I thought I was doing good by making berrie smoothies but instead made myself neutropenic!
I hope by the time you read this you are resting happily at home. Keep us posted! -
Still at hospital .... Getting iv meds. Nurse had trouble with my port. Going home soon with iv in for daily antibiotics. Very tired. I hope you go home soon Karen! Yes I do Nuepogen shots.
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Positive thoughts going to Halfcan and Karen for a speedy recovery. Rest up and take care you two!
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Get better Halfcan and Karen, hope you break out of there soon!
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Karen...Just a question. How did the berry smoothies make you neutropenic?
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Halfcan and Karen-get better so you can get home. Thinking about you!
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ODS - Because my WBC were low after my last taxol. The dr said when you are neutropenic you should avoid fruit unless you can peel it because even if you was them it may not kill all the bacteria. You should also avoid fresh flowers and Mylar balloons. The things you learn! So I guess I wasn't washing them enough and I was just doing the fruit with water and ice and that did me in.
I also have a diagnosis finally! I have a pectoral seroma which probably has some bacteria in it that is not responding to the antibiotics so we are going to drain it. Then I should start responding to the antibiotics, the fevers will stop and I can get the heck out of here! -
Karen....so happy. At least they have a dx and, as you say, hopefully you can get out of there fast.
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