2012 sisters

SusannahW

Marcie, your note is very inspiring, no matter what we've survived with cancer. I didn't have chemo, but you reminded me to see the good person I am after all I've been through.

juneaubugg

I don't have time to catch up on the thread, but just an update on my flashes and Apple Cider Vinegar treatments. SUCCESS!!!! that are one zillion times better. not gone yet, but its not even been a week. I'm taking one tablespoon the times a day in a small glass of cranberry juice.



I'll catch up later..... xxoo

Tazzy

Apple Cider Vinegar treatments juneau.... what did I miss? 

juneaubugg

Tazzy; my hot flashes have been unbearable side right after my third round of AC in September. I thought they'd let OFF, but then came tamoxifen.someone mentioned they took "ACV" for flashes, on another forum. I looked it up and then went to the store and got some organic apple cider vinegar. from what I read its 3x/day some aid 2tsp others a tblsp. being a recovering addict... more is better... so I'm taking a tablespoon 3x/day and already its significantly better. I started on Wednesday.



I'm hoping it keeps getting better. I just can't imagine another five years like this. I don't know if it's the tamoxifen, of my body still a mess from the chemo. anyone else...when did the flashes go after chemo? had anyone gotten their period back? my Dr said I would.



also, I'm not sure who said it (like Websister I've been reading but haven't had a chance to post) but my third rx was the absolute worst experience ice ever head in my entire life... and again; I'm a recovering addict, I've experience some pretty low lows in my time. however, after #4, I didn't feel anything like #3. I was so fucking happy to never have to have that red devil running into my veins again that all the SEs didn't feel as nightmarish. I was suicidal after my 3rd tx.

between the restless legs, hot flashes, bone pain, thrush, oh and a massive boil on my ass that required a lancing, yes that was the final straw.... so halfcan; I get it.... it just kept coming. ugh!



hugs ladies!

kkuziel

Recommended to come to this site. Just diagnosed with IDC. Tumor estimate less than 1cm. Scheduled for lumpectomy day after Christmas, and I'm a mess. So afraid this had spread and I'll be a stage 3 or 4. Am religious about getting yearly mammograms. But I'm sure most people here are too. Right now I just need to breathe and take things one step at a time, but I'm struggling this runaway train feeling. How did you take the first step to a sense of "calm". I'm making myself sick over this. Any help would be appreciated.

Joanne_53

Kkuziel,

I am not sure that I can give you any advice other then take one day at a time. This is a waiting game for sure. Take a deep breath, laugh and cry ... December 26 will be here before you know it. Rely o. Your family and friends and new friends here to hold your hand and help you through this.

(((Hugs)))

Joanne

Marcie47

Kkuziel,

Like Joanne said there is no answer to your question "how" and everybody handles it different. You have sooooo much in your corner!!

1st-Sounds like you caught it early

2nd-you came to the right place to get support and do your homework

3rd-it is going to feel like you need to make decisions quickly, which sometimes you might, but there is a plethora of love, support and knowledge on this sight that will help you on your journey

We have all been where you are in one form or another, take our hand and traval your journey safely and remember you are not alone.

KarenZ0305

Cottontail - have an ultrasound. I had my lumpectomy and lymph node removal in September and that is what landed me in the hospital for nine days. I had the exact same symptoms and developed a fever. Walked out with another drain tube. Don't let it go to long I would hate for you to end up in my boat!

halfcan

Ladies...I wish you all the merriest of holidays free of nasty SE's and energy to spend time with loved ones!   It has been one tough year for all of us and I know I'm looking quite a ways into 2013 to start feeling good again. 

Juneaubugg-glad to hear you found something that helps with those flashes!

Marian-are you feeling better now? 

kkuizel-welcome to the group no one wants to join.  Really though, it is the best place to come!  You can say whatever you like...no one judges here.  We all get scared and need to vent too.  These forums have become very important to me and even if I'm not up to posting, I still read them daily through notifications on my phone.   You will learn lots and ask any questions freely.  (((Hugs)))

Merry Chrismas....(((Big virtual hug to all of you!))) 

juneaubugg

Kkuziel: Marcie said it perfectly (and brought a tear to my eye). .."take our hand and travel your journey...". That first month was the worst. Once you have your procedure you'll be in the treatment game, not the waiting game- it gets a little better. If course with that comes a whole other set of questions and fears, and trials and tribulations... But we are here; and we get it. Cry, scream, curse, laugh, vent... Whatever it is, leave it here with women who will get it and never judge, but only offer unconditional support, a hug, or an ear. So for now I'll just say, I HEAR YOU SISTER." ((( BIG HUGS)))

luvmygoats

Kkuziel  Here to lend my support too. Very similar found on my yearly mammo. Clearly not there the year b4; I go the same place every year. February was a nightmare for me but it DOES (and yes I'm shouting) get better. Once you have your diagnosis in place and your treatment team together it does get easier. And we are SURVIVORS. These ladies are here for you and are awesome. I did not find BCO until after my surgery but it got me thru the crazies after that. I hope this thread stays active but many are already posting on 2013 SURVIVORS that Juneau started.

Keep busy. Enjoy Christmas. Hug your loved ones. Some I know only shared their dx with a very select few. I had to have time off from work so mine was very public, besides I'm a nurse and was working for a hospice at the time.

We may actually have a white Christmas here. I'm NW of the Ft. Worth metroplex. But the downer is DD is not driving out due to the weather. Guess our Christmas will be next weekend. Just DH and myself and the 17 goats and one spoiled nutty rat terrier.

(((HUGS))) to all my sisters here.

Tazzy

Kkuziel:  Just to reiterate what everyone here has said.  Take one day at a time and welcome to the most supporting, comforting bunch of ladies.  We all get it here and as was said, there is no judgement for whatever our feelings.   Do not bottle those feelings up.  

This time last year I was waiting for my biopsy (Jan 6) and was scared shitless.  I look back now and how far I have come, how far we have all come… you can do this and we are here to hold your hand, as Marcie said.  Marcie that was beautifully put.

Without this group of women I am sure I’d have been committed by now – they have been my sanity and I hope you can grow to love them as much as I do.

For us:

luvmygoats

Tazzy - Your smiley huggies make me tingle with love!

kkuziel

Thank you all so much. I'm blessed to have a supportive work family, my own family and fabulous friends. But hearing from you - people who have been - there really helps. You at least understand this paralyzingly fear I'm experiencing. My friends and family want to help me deal with things but can't be where I am (and I pray they never are). From the posts I've read I know you've all been there and understand where I am. I'm also comforted by the fact that most of you found this first part the most difficult. The not knowing seems to have take a toll on all of you, and once a plan was in place you were better able to move forward. I hope the same can be said for me.

Marcie47

Tazzy, I too love your group hugs and I feel the wonderful love and energy you put out here with them!!

Tazzy

Happy you feel my love and positive mojo sent your way.

Scorchy

I love Tazzy's group hug.  It's got a litle somethin' somethin' special in it! 

kkuziel,  Although I'm sorry that you are here, you landed in the very best place for support and assistance.  You can rant, rave, laugh, and cry and we'll be here for and with you.  It is an island of solace and comfort with the best people around.  You will come out the other side.  Hang in there; we've got your back.

Scorchy

kjiberty

kkuziel:  MY DX was almost a year ago. (Happy New Year to me!).  Like the others have said, the first month was the hardest-all the what if's.  I am now 6 months PFC and 3 months post-rads and am here to tell you life does go on.  People who have gone through this journey kept telling me you just have to get through it.  That's what I kept focusing on--the light at the end of the tunnel.  I had two tumors found in the same quadrant, had a lumpectomy, followed up by chemo due to a high-intermediate (28) oncotype score with no lymph node involvement.  It's okay to cry.....Also, we are here to help you!  I don't know what I would have done without the friends I have found on these forums.  They have been my best source of comfort and support.  We are here for you!

Marcie47

Scorchy- you too bring a smile to my face whenever you drop by with your various smiles, I look forward to your posts.

Scottiee1

Tazzy girl....your hugs are the best😃



Kkuzie....my dx was almost a year ago also. Found my lump two days before New Year.



As everyone has told you....this is the worst time.....once you get a plan of action, you will concentrate on that and do what needs to be done. Sorry you had to join our club, but it's the best in town with the most amazing women you will ever want to come across.

Take a deep breath.......and one day at a time.

luvmygoats

Karen - Love your new avatar!!

kkuziel

Thanks again to everyone here. Hopefully things will look better after the lumpectomy on Wednesday. You all seem to have a life beyond cancer. For the past week it seems my whole life has revolved around cancer. I already miss my life. I hope, like all of you, I'll regain a sense of my life along with this diagnosis.

blackcat2012

I am having my bmx surgery on Thursday and boy am I scared.  I have been having diagnostic testing since August and just finally was diagnosed via excisional biopsy on the 4th, so it is an up and down roller coaster as we are unsure at this point until final path results what my actual findings will be.  Good luck with your lumpectomy and you will do just fine...

NYCchutzpah

black cat and kuziel sory tht you are joining us on this darn rollercoaster, but as the others have said you have come to a good place for help and inspiration. You have not recieved a death sentance, just a different way of life. and hopefully many more years, make them count

Joanne_53

Blackcat, sorry you are here ... Please know you have lots of friends and support here.

Scottiee1

Blackcat.....sorry you have to join our club, however, you will find nothing but warm, supportive gals here.

Tracyc3771

Had my bmx on 12/17 along with 26 lymph nodes removed. Took out my port during surgery as BS felt I would no longer need it as she felt I had a complete clinicalnresponse to chemotherapy. Got a call Friday afternoon from BS telling me that the pathology showed residual cancer and that there were now 3 nodes involved. I was home alone and was In such shock that I didn't ask any questions. She stated that usually tumors melt like an ice cube when they respond to chemotherapy. Mine ended up looking like Swiss cheese. Not sure what exactly the implications of that are but I don't like it. She also stated that she wanted to talk to the pathologist on the measurements. I am scared and have been on larazapams all weekend. My husband is going to call her on Wednesday and try to get some more answers. I am scared that the cancer has spread and I don't want to be restated beyond my current IIB. Any of you have any experience with this. What is next? Feel like we are back to square one.

Tracyc3771

Sorry u are here, Blackcat, but glad u found this group. Good group of women with lots of knowledge.

Tazzy

Welcome blackcat - sorry you had to join the club no one wants to be in, but you will not find more comfort, support and love here.   You can rant, rave, yell, laugh, cry - whatever you want get it out your system - there is no judgement here.

tracy:  so sorry you are going through this again.   I dont have any experience with what you are now going through - sorry !  Deep breaths honey ((((hugs))))

Tracyc3771

Thanks, Tazzy. Just feel like I am back to July when first diagnosed with so many unknowns. DH is calling BS o Wednesday to get some answers and I will post what I find out.