2012 sisters

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  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited November 2012

    Juneau and 2fried, will be thinking of you today.

    "illness is the night-side of life, a more onerous citizenship. Everyoe who is born holds dual citizenship in the kigdom of the well and in the kingdom of the sick. Although we all prefer to use only the good passport, sooner or later each of us is obliged, at leat for a spell, to identify oursleves as citizens of that other place.

            -Susan Sontag from her 1977 book "illness as a Metaphor

    Siddhartha Mukherjee, in his book "The Emperor of all Maldies, a Biography of Cancer," has this as her first quote and I think for us, it is a good one.

    SmileMarian

  • cowpower
    cowpower Member Posts: 293
    edited November 2012

    Shari - Ann is right (seems weird to type that because its my name too and I dont run in to too many "no e" Anns!) I finally realized I could either use my energy to try and fight the anxiety or use medication to do that for me while I focused on moving forward. I was surprised that the meds didnt make me feel loopy or drowsy, just better able to cope. Don't hesitate to ask for what you need, especially now, at the beginning of the journey.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    Juneau: open those pockets... coming in from London.   Will bounce back and into other pockets when needed next week.

    HUgs and love to all xxxxxxxxxxxxxx

  • jenjenl
    jenjenl Member Posts: 948
    edited November 2012

    Today is my 1st day alone since sugery.  Mom went back to CT yesterday, hubby's working all day/night, kids are at daycare and I have this list of random things to do to just keep busy for the next two weeks until chemo plan is determined.

    I find myself sad today, sad for what is to come and then I come on here and read the stories of ladies at the end and just think in a year hopefully that will be me.  It's too quite...I think I should turn the music on. 

    My objective today is to work out this shoulder soreness and shave my armpit...is that asking for to much? 

    Have a good day...good luck with all surgery's, chemo SE and everything. 

    Jen

  • cowpower
    cowpower Member Posts: 293
    edited November 2012

    Jenjenl, I am a stay home mom and know where you're coming from. They days can stretch long and quiet while the kids are gone and there is a temptation to slide into bad thoughts. I found myself knitting for hours at a time and watching british tv shows on Netflix. I didn't know about this site then, but I wish I had. Can you drive yet? That does open up your horizons a bit.

  • Aruba
    Aruba Member Posts: 543
    edited November 2012

    Juneau and 2Fried,   Hope you are now in the recoup mode... Keeping the coffee hot for you!

  • kslansky
    kslansky Member Posts: 142
    edited November 2012

    Thank you all so much for your words of wisdom.

    Shari -  I'm right with you (only I am 47 with 2 teenage boys and a hubbie).  I have a melt down everyother day...generally by myself.  The web is an evil place.  I stopped looking because of so much negativity.  I was told today (in my initial "wellness" consult) to just breathe.  The worst fear is that of the unknown.  Keep the faith!

    Had a chemo class yesterday, wig fitting today and Chemo starting Monday!  A&C get ready 'cuz here I come!

    Does anyone know about taking glutamine supplements during chemo...Taxol in particular?

  • KarenZ0305
    KarenZ0305 Member Posts: 487
    edited November 2012

    KS good luck your first day in the BGC! You sound like you are going in with a great attitude and that makes a world of difference!



    As far as supplements go my MO said no to all vitamins and supplements except calcium and K. Her answer to why is that they prevent the chemo from getting to the cancer. This is just my humble input 😌

  • jenjenl
    jenjenl Member Posts: 948
    edited November 2012

    cowpower - I got everything done on my list and cleaned out the sock drawer...felt better once I got moving!

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited November 2012

    The pockets get pretty crowded ... How are things. Waiting to hear.

  • kslansky
    kslansky Member Posts: 142
    edited November 2012

    Karen- Thanks!

    That's pretty interesting about the supplements. My mo said to continue my normal multi and calcium plus add a probiotic (Endomune), B6 and 10 g of glutamine i norder to reduce short term and long term side effects of Chemo.

  • kslansky
    kslansky Member Posts: 142
    edited November 2012

    Hey..

    Does anyone know of a good book(s) for a husband to read.  I need some recommendations.  If this isn't the place to ask please refer me to the right topic.

    thx!

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited November 2012

    Kslansky.....can't help you there, but there is a Book Club thread.

  • 2FriedEggs
    2FriedEggs Member Posts: 640
    edited November 2012

    Checking in! Thanks for the well wishes and for being in Juneau and my pocket.  Joanne and Websister  you can get out of one of those crowded pockets now lol Aruba-love the "heart coffee pic-I had one cp before I left the hospital a bit ago and am having a cup now. Didn't even take a pain pill yet-went straight for the coffee lol Juneau was having a bit more done than me since this was my second go round with the squishees so guessing thats why she hasn't checked in yet. Ready to sleep of the anesthesia for now so I'll have to catch up with posts later and see if Juneau is on yet.  Take care.

  • Nkb
    Nkb Member Posts: 1,436
    edited November 2012

    Kslansky- there was a study on glutamine just finished 5 year double blind re use to prevent or mitigate neuropathy with taxol. My MO said it showed positive results and to go ahead and try it. 10 grams three times per day the day before, day of and day after taxol infusion is what he suggested The powder is cheaper and can go in a smoothie or stirred ( repeatedly) into another fluid. The study showed worsening neuropathy for carnitine so he specifically wanted me to avoid that. Said the vits hadn't really been studied much for that and data was very limited.



    One article is in Oncology Letters PMC3392572 titled "Proposed medications for taxane-induced myalgia and arthralgia". The scroll down to the part about glutamine.



    Discuss with your MO first.

  • cowpower
    cowpower Member Posts: 293
    edited November 2012

    KS-My MO said no supplements, especially antioxidants, because the whole point of the chemo was to oxidize stuff. Good luck with first chemo. Remember to take all your antinausea meds and I am betting you will be ok. I even took happy pill (ativan) beforeI left home on infusion day. Never cared about anything!





    Jenjen. Wow, you must really have been moving. My sock drawer has not seen my tender attention in a couple years! Glad you are feeling better. If you're feeling sad tomorrow (or even if you aren't) log on here and I'll look for you.

  • juneaubugg
    juneaubugg Member Posts: 951
    edited November 2012

    I'm home, I'm sore and I'm hungry! .... And I can push on my right breast and it DOESN'T OFFER RESISITANCE!!!! Yay!!! More later.. Thanks for the company ladies. (2fried: hope yours doing well too!)

  • cowpower
    cowpower Member Posts: 293
    edited November 2012

    Juneau, CONGRATS! You are one tough cookie- I needed to sleep for twelve straight hours after just having my port removed! Hope you are relieved its all over with.

  • liefie
    liefie Member Posts: 2,440
    edited November 2012

    Yay, Juneau, you're done! You sound really well - must be the new 'girls' boosting you!? I'm so jealous right now.

    2Friedeggs, so glad you're home too. It has to feel so good to be where you are! Sleep well!

    Marian, thanks for that quote. It really gives a lot of perspective, doesn't it? Dragonboat - now that's a lot of fun. I was on a team for a few years, but unfortunately developed painful chronic tendonitis in both shoulders. Had to let it go, but I still miss the cameraderie, and those lazy, hazy summer afternoons on the water. Lovely! Competitions are fun too.

    To those of you who don't feel so well, hugs to all. We all had days like this, but there are always better days ahead. Best wishes!

    Tazzy, you must be having a lovely time. I will wave at you when we fly over England en route to Amsterdam next Tuesday!

  • websister
    websister Member Posts: 1,092
    edited November 2012

    Great to hear from you 2fried and Juneau, good to know all went well. The pockets were a little crowded ;)



    Kslansky - my MO was OK with probiotic, Vitamin D, calcium/magnesium supplement and Vitamin B complex.

    A good book for husband's is 'Breast Cancer Husband'







  • cowpower
    cowpower Member Posts: 293
    edited November 2012

    Cpongrats 2frie. Rest Up and be well.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    2fried and juneau - yeah! Glad you made it through. Here's to hoping the rest of the recovery goes smoothly and quickly!

  • mcook301
    mcook301 Member Posts: 509
    edited November 2012

    Yeah ladies - congrats on getting surgery over today! I have mine scheduled jan 31st! Would have been nice to get it done before end of year but oh well. Glad to hear it went well! My ps said she might have to take some fat from tummy? I say hell take it all:) but was wondering if anyone else had this done. Silicon or Saline mmm? So many decisions. I am only about small C so excited just to be back to none rock hard tatas!



    Had to cancel herceptin infusion tomorrow as I got an Nasty Sinus infection and chest cold so my week keeps testing me big time but I am hanging in there. Just not going as planned

  • Shari0707
    Shari0707 Member Posts: 448
    edited November 2012

    Just checking in and saying hi

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited November 2012

    kslansky, I had the book Websister suggested on my list but have not yet got it so will go ahead with her recommendation.

    2friedeggs and juneaubugg, glad to hear surgeries went OK! Happy healing too.

    I asked my MO this week about glutamine but she has given me an rx for Gabapentin to try first cycle of Taxol. So far when she has suggested options they have worked out so hope this will also work. Chemo nurse says only certain % it works for.

    My daughter did a video of family hair buzzing night just before Hallween and came over last night for dinner and showed us her 2 minute edited version. It is fun and so if anyone interested here is the link. It was actually a positive time with my family rallied round and I can honestly say that my baldness is not a big deal for me. I have ordered a wig (insurance paying 80% which helps) but I am going bald at home and at yoga and am working on my scarves and caps and Buffs.

    http://breastcancereh.blogspot.ca/2012/11/buzz-cut-night-at-leightons.html

    SmileMarian

  • 2FriedEggs
    2FriedEggs Member Posts: 640
    edited November 2012

    McCook glad to see you posting and hope your feeling a little better.  I had a revision today- heck actually yesterday; I've had so much coffee since that even my pain pill isn't helping me sleep so I lost complete track of time. Anyway my ps took a little fat from my thighs to put in the "upper poles". Even though I told her to take atleast 30lb worth and throw away what she didn't use, she only took a small amount :(. It doesn't seem to have been enough to reduce my thigh at all- just gave me a black and blue mark-lol. Can't tell yet if it increased the upper poles or not. I'm almost afraid to look inder the bandage for fear that I'm going to need a four cupped bra because she said that since some of the fat reabsorbs she tends to put in extra.  As far as silicon or saline there again that is another one of those personal decisions that come into play with bc. When I was researching it for myself I found like everything else, there are advantages and disadvantages to both. Here are some of the ones I found or was told but I couldn't swear to any of it. But it might hel[ you with questions for your doctor. Most go with the silicone because they are more natural looking and more real to the touch. Now that they are a "gel" they are no longer considered dangerous like they used to be because if they leak they stay in a gel form so it is easier to remove. One disadvantage with the silicone was that they advise you to have an MRI every two to three years and while some had no insurance issues, others said that their insurance wouldn't cover the MRI for that purpose. Even though I hate MRIs with a passion my first thought was that the MRI might spot tumors etc but a radiologist told me they aren't the same intensity or something as one used to detect cancer so it is solely for checking the implant for leaks;I assume that's the same with every radiologist but not sure.  As far as the saline, if it leaks since it is saline there is no danger to your body but they usually leak big and you know it. My cousin used to be a flight attendant in the "olden days" of mostly saline implants and always had stories of a fellow attendants breast implant deflateing-that would be a little embarrasing!lol Another advantage of the saline I was told was that they maintain your body temperature while sometimes the silicone are cold. The saline supposedly can be put through a smaller incision when you have to change them because they can be deflated for removal and filled after insertion.The saline supposedly also have a lower rate of capsule contracture.  Disadvantages though of the saline are that they aren't as soft and natural looking as silicone and I think they said can ripple easier. My PS really didn't have a strong opinion herself and says she has had good results with both and left it up to me. I ended up with the saline as I never know if I'll have the same insurance and didn't want to have to worry about having future implant MRIs. Also I am always cold so I didn't want to risk my implants possibly be cold too. lol If I was younger or single then maybe I would have leaned towards the most natural look and feel of the silicone. I don't know though as far as the look and feel of the saline, it's not near as "firm or unnatural" looking as I expected after reading reviews-kind of like water balloons I guess lol I don't remember if it was on here or another thread that someone posted about the "silicone gummies" being the new implant rage. I didn't research those though since they were never mentioned to me. Good luck with your decision.

    Well I'm going to go make another attempt at sleeping off my anesthesia and pain pills.They had me pretty punchy but not tired lol. Hope everyone finds their happy today. Weekend almost here!!! 

  • allurbaddayswillend
    allurbaddayswillend Member Posts: 355
    edited November 2012

    I forget (chemo brain!) if I checked in here recently. I am 1 week, 3 days PFC! I had a Dr's appt everyday this week. :P  I got my tats for radiation which I start next week. I get my port out on Dec 3rd, I hope, I'm still waiting to hear an exact time but my rads nurse said I would hear today. I am glad to be moving along. My MO wants my GP to check out my heart a bit more before we decide on the oopherectomy next year so I am trying to get that done during THIS calendar year. I need a pap smear too so, git 'er done while I've maxed out my out-of-pocket. I'm going to see my dermatologist in Dec too - an appt that I had made way back in April because I thought I'd be done with everything by now. :/ but I won't change it because this dermatologist is always scheduled out for months! all this is supposed to happen along with Holiday shopping and mailing (which my family is not even that BIG on but there's some to be done, and with the likelihood of a snowstorm slowing everything down here for a few days at some point? wow. and I know some of you are even BUSIER! Best of luck! truly.

  • Nicole503
    Nicole503 Member Posts: 295
    edited November 2012

    Good morning ladies,

    Today is 17 days post surgery and I am meeting with a medical oncologist to talk about chemo/hormone therapy, and then heading off to Nordtrom for my "falsies".  I'm nervous about the first and happy about the second.  The flatness of my chest in clothing bothers me and I like the idea of having the option of a breasty look when I want it.

    Wishing all of you a very good day!

  • Sue2690
    Sue2690 Member Posts: 43
    edited November 2012

    Hi...  I've been lurking for a while and will post an intro soon but I just had to share this with someone who would *really* get it.

    xkcd.com/1141/

    If you liked that one, check out these other two (I don't much like the second one, being Stage 3...)

    xkcd.com/1048/

    xkcd.com/931/

    Sue

  • stride
    stride Member Posts: 470
    edited December 2012

    Sue, that last one nails it.

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