2012 sisters

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  • MirandaSW
    MirandaSW Member Posts: 35
    edited November 2012

    Lisa, Im on Lexapro. Its pretty good. Im a much nicer person since starting it...lol.

    Chemo #2 was Friday. They got it figured out that I get the Neulasta so I can give it to myself. (Im a nurse) Since I get my chemo on Fridays I can't get into get the shot till Monday. Then those SE dont start till later stretching my sick/sore time out longer. So we did my shot yesterday, and Im sore, achy and blah feeling today. Also I have been having diarrhea today. I didnt have that last time...not too excited about it this time.

    Oh, and Jen. I dont remember if you have to have Rads or not, but your skin will not stretch well after radiation. That is why my PS places the TE with the initial surgery to have them expanded and stretched before Rads.

    Hope everyone is doing well. We had like 80 degree weather here yesterday (it was wonderful!) and now today its only been like 30 something. I hate cold weather.

  • BetNY22
    BetNY22 Member Posts: 80
    edited November 2012

    tx, at the rate Im going it won't be for another week at least. Not glad to hear that you also had drains that long but I am glad to know that it happens to others and it isn't abnormal.

    Can't believe how quickly I tire, I wonder when this tiredness will let up. I am used to going at a very fast pace in life and really am so tired all the time. It will probably go away just before I start Chemo.

    How long was it after Mastectomy for everyone to start Chemo?

  • maryah930
    maryah930 Member Posts: 322
    edited November 2012

    My surgery was on 16 Oct; chemo start 21 Nov.  Wasn't concerned about the surgery, so scared of the chemo.

  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited November 2012

    Kj2430- thank you for that info. I wished I had asked that question sooner I would have loved to bought a pillow like that. I'm less than 3 1/2 weeks away from exchange and decided last night to go without a bra to bed. I was so uncomfortable that I only slept about 3 hours. The normal person probably would have gotten up and put a bra on. But by that time I was already pissed. Lol

    Llr- I had mine in for a solid month. I was ready to get them out by day 1.

  • jenjenl
    jenjenl Member Posts: 948
    edited November 2012

    Going to the hospital in 2 hours for surgery.  I feel like I am doing it all wrong...all i hear about is TE and recon.  I just need to put that out of my mind and focus on getting cured, then deal with the recon.  Sure bc of my lack of upfront understanding my final recon breast results (based on comments) will be challenging and might not look as good. I will just have to deal with it.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    Jenjenl - as we all say here, there is no doing it wrong, and you made the best decision you could for you at the time you were forced to make it and with the info you had. None of these decisions we make are easy - nor do we make them lightly. There are pros and cons to every side of the coin in this crappy cancer game we are forced to play. Just try to relax and focus in your next task - which will be recovery from surgery. We will all be with you today. Good luck. Hugs!

  • llr010200
    llr010200 Member Posts: 67
    edited November 2012

    Jenjenl,



    Ramols is right and so are you. Right now is about a positive attitude with a focus on healing. Beating cancer is always the main focus anyway so however that happens makes whatever decision we make the right one in some way. Only prayers and well wishes for you today. Take care

  • juneaubugg
    juneaubugg Member Posts: 951
    edited November 2012

    I never sleep with a bra on.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    jenjen:  I did not have immediate recon, nothing - just the mx.   I will review my options next August on the advice on my BS.

    Oh! and we had about 6 inches of snow here overnight - DH been out shovelling already.

    Hugs and kisses to all xxx

  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited November 2012

    Juneau, I don't know why but it's so uncomfortable when I did the other night. I don't know if I have more in my TE than you do I have 750 in the left and 800 in the right. I'm just going to keep sleeping in my sports bra.

    Tazzy- Please keep the snow that way. I don't drive well in the snow and neither do these crazy idiots here in Texas. Be safe when going out if you need to.

  • MrsCich
    MrsCich Member Posts: 409
    edited November 2012

    Hi all! Today was day 3 past treatment number 3. I felt remarkably well though. My husband and I spent the day out Christmas shopping. Little worn feeling now but its tolerable.



    For the first time since my diagnosis in August, I slept without a sports bra on lastnight. It was so nice. 😊 I'm ready to get rid of these TE's and get my squishies which of course isn't until February at the earliest.



    I hope you all have a wonderful evening!

  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited November 2012

    So glad you are doing well Kristie! I did a little Christmas shopping yesterday. Mainly gift cards but it's worth it.

    Get some rest!

    christy

  • lostinmo
    lostinmo Member Posts: 922
    edited November 2012

    Tazzy- glad you are almost done with rads. Hope it is going easy on you. Please keep your snow!

    Since I am not having recon there isn't a lot to add to most of the conversation.

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited November 2012

    Tazzy, please don't send the white stuff east. We're happy to let you keep it......lol

  • juneaubugg
    juneaubugg Member Posts: 951
    edited November 2012

    Chrisrenee: I did sleep with the bra the first few weeks, but haven't used it since end of July. I can even sleep comfortably on my side now. But I've had this TE in for 4 months now. Had to finish chemo before my exchange. I also only have one. My left breast will be "augmented" ie, you're standard boob job, to match size&shape of my new right breast when I have surgery on the 29th. I know I'll be sleeping on my back, on my wedge, but hopefully for the last time. I can't wait to not need to wear a bra padded on one side so I'm even.



    Jenjen: thinking of you. Hope your recovering comfortably. (((Hugs)))



    Tazzy; keep that snow to yourself. We could really use an unadventful weather week.



    All... Hoping you are all tucked in comfortably.

  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited November 2012

    juneau- thanks, I'm not sure if i'm bruised from sleeping without a bra or from my coughing from this sinus crap i have going on. But my left breast is bruised as all get out.

  • juneaubugg
    juneaubugg Member Posts: 951
    edited November 2012

    Chrisrenee;



    Perhaps you knocked if against something? I've done that!! Lol. It's so big and I can't feel it!!!!



    Put on your bra and get some rest! ;-)

  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited November 2012

    juneau, i already do and getting ready to head that way anytime now. 5am comes around awfully early.

  • websister
    websister Member Posts: 1,092
    edited November 2012

    Hi everyone

    It was a busy long weekend for me here, my husband and I had two of our grandchildren from Friday to this afternoon. Lots of fun and they were very good but I am tired.

    jenjenl - I did not have immediate reconstruction either after my mastectomy, there will be decisions to make after treatment is over, not easy ones I'm sure.

    Lostinmo - so good to hear from you again!

    I had an appointment with the radiation oncologist on Friday afternoon. I'm not sure if it was just the end of a busy day on a busy week but she seemed distracted and a med student did most of the questioning and exam. She didn't seem that familiar with my pathology and at first said that there would be little added value to undergoing radiation. I questioned this in regards to my pathology, she seemed a little surprised and went and printed the pathology report for us to review together. She is now going to check with the pathologist and call me within the next two weeks to update me.

    Tomorrow is chemo #5. I'm definitely feeling that this is the endurance part of the marathon for me, but I will get there. I started my Christmas shopping in August as I knew that I would need to pace myself so most of it is completed, not wrapped or anything but maybe I can convince some of my friends to help with that if I provide the paper and a wrapping party :)

    Tazzy, we had lots of snow here starting about Wednesday last week but today it warmed up, so now it is melting. For those on the East Coast, we will definitely try to keep it up north here, I hope you will have an uneventful week weatherwise.

    Take care, everyone.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    OK I hear you all.... as websister said we will keep the snow here for a while.   What I do love is that the roads are all clear to drive on.   There really are some idiots out there who think that cos they have a 4WD or truck that they dont need to drive carefully.... they are the ones who normally get the one finger wave Wink

    Off for rad # 27/28 today at 12.30.  

    websister: in your pockets for your chemo #5 today.  

    (((hugs)))) to you all

  • halfcan
    halfcan Member Posts: 253
    edited November 2012

    Tazzy - Almost there!!!  Tomorrow is the big day and you will graduate!!!!!!!   Cool  I will be thinking of you as I sit getting chemo #3 .... I'll celebrate being 1/2 through chemo, but my big smile, I will be wearing will be because I am happy for you!!! 

    websister - Good luck with chemo today!  I'm with you all the way!  Are you doing ok with the Taxotere?

    Jenjenl - No recon here either...just mx at least for now.

    Wow, it has been a busy weekend here with so many posts!  I had lots of catching up to do. I spent the last three days at Whistler with my sweets getting in some hiking and R&R too.  It even snowed on Sunday like crazy and made the village so fun to walk around and act like a tourist.  It all froze solid making the roads a nightmare to even walk on.  Yesterday the roads thawed so made the drive ok back home.  Now though it is back to reality... Frown   Labs and fill scripts today and chemo #3 tomorrow.   I know in my head it is a good thing but, it still is depressing to think tomorrow I get to go back to feeling like crap and sick again for 10 days or so.   Oh, a question for you all.... I feel like a cold may be coming on.... Would that delay chemo tomorrow do you think????   I hope not.   This is the last FEC treatment and then it is on to Taxotere.  From what I understand it doesn't make you have soooo much nausea?

    Anyone having a bad day....My heart goes out to you!  Hugs to all.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    halfcan: so glad you enjoyed your Whistler weekend.  It is times like that that remind me of why we fight this fbc so hard.    We had about 6 inches of snow here on Sunday too... now it is raining a little bit.   Would a cold stop chemo.  My MO told me that they can delay it as our blood counts are so low.  But we all know what different advice we get depending where we are in the world.  Banish cold thoughts coming your way.   Oh! I used to hate that about chemo too... just start to feel 'normal' and back we went to the BGCFrown  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    halfcan - I had a cold/sinus infection and was put on antibiotics while on AC (thanks to the kiddos), but my blood cell counts were fine, so there was no delay. They told me the only delay would be caused by low counts. So think white fluffy clouds and lots of white blood cells and you should be good to go! Good luck!

    Tazzy - can't believe you are just about done. Yeah!!! So very happy for you. I can see the end of the chemo tunnel for me. Only two more rounds to go. If all stays on course, 12/5 will be my last chemo! Will still have herceptin, but thats a cake walk compared to chemo. Also have a date for my squishees - 1/4. Can't wait. Then it'll be on to radiation and eventual graduation for me as well. I feel like I can finally see the end. I know I still have a long way to go. But being less than a month away from PFC is an amazing feeling. Never thought I'd get here...

    Love and hugs to you all!!!

  • liefie
    liefie Member Posts: 2,440
    edited November 2012

    Tazzy, so happy for you to be done with rads tomorrow! When I finished rads, I felt a bit like the dog who was chasing a car, eventually caught the car, and then did not know what to do with it - LOL! One does feel 'set adrift' initially when the treatments end, but is great to be done, to get your life back to normal, and to think beyond cancer. YAY!!!

    Those of you going for chemo, best wishes for minimal SE's. Websister, Halfcan and others, hugs to you!

    Halfcan, some people do get nausea from Taxotere. Hopefully you are not one of them. As long as you take medication to prevent it, you will be fine. I felt a little queasy now and then mostly when my stomach was empty, but that was it. Eating something always helped.

    Chrisrenee, hope the bruising issue will be resolved soon as well as the sinus problem.

    Ramols, you sound pretty upbeat this morning! Good to hear, and so glad your chemo will be over soon.

    Everybody else, hang in there. THIS TOO SHALL PASS.

  • Scorchy
    Scorchy Member Posts: 240
    edited November 2012

    I hope that everyone is okay and staying relatively strong in the face of everything you're going through.  I know we have some knitters in the group and I wanted to point you to two essays I've written on the intersection of knitting and ilnness (or, more specifically, cancer).  I hope you enjoy them.

    Warm regards to all,Scorch

    The Anchor (Part One)

    The Anchor (Part Two)

  • Cindyl
    Cindyl Member Posts: 1,194
    edited December 2012
  • liefie
    liefie Member Posts: 2,440
    edited November 2012

    Hi Scorchy,

    I read both Anchors. It is so inspiring that you find such solace and comfort in that, and it brought so many happy memories of my mother, her knitting, her embroidering, cross stitching etc.. She was always busy on a project, and could knit intricate patterns like Fair Isle etc. If one should put everything in a room that she had knitted in the course of her life, the room will be filled to the ceiling. I love how you refer to chemo as 'chemical warfare' - that's exactly what it is. I think I am going out to the store, buy some needles and yarn and start knitting something simple. My mom taught me , and I still remember how (I hope). Best wishes to you!

  • websister
    websister Member Posts: 1,092
    edited November 2012

    Scorchy - I really enjoyed your essays. Just in the last couple of weeks I had to pack my mother's things from her room at the lodge she was at and won't be going back to. I cannot remember a time that she did not knit and I also learned to knit from her as a child but it has been a very long time since I picked up needles and wool. In her things there was a large amount of wool and knitting needles, also some uncompleted projects and I was considering taking it up again, after your essays I am inspired to do this. Thank you.



    Tazzy - I am so happy for you that tomorrow is the end of radiation! I hope you have something planned to celebrate it well! What a milestone for you!



    Halfcan - Taxotere is difference from FEC. I did not have the nausea tht I did with FEC, I did have kind of a gas knot in my stomach the evening of my chemo and I have purchased Ovol 180 from Costco to help with that, I also take Pantoloc for heartburn. I did have muscle aching and bone pain, Tylenol and ibuprofen helped, also took Clqritin day of chemo and for about a week after (used for Neulasta shot also). I was a bit surprised to have diarrhea and vomiting occur on Day 5 and the diarrhea and stomach cramping lasted for about a week after that, I learned to take the Ovol 180 to help with the crampiness. I am not sure if it was just cumulative effects of chemo or Taxotere but I felt a little depressed and found that I even week 3 was difficult, with continued achiness and being tired easily.

    I hope your blood counts are good today and that the cold symptoms go away. I'll be thinking of you tomorrow.



    CindyL - I know a couple of people like that, I hope her lump is nothing.



    Ramols - almost there, you have had a lot to deal with in addition to the diagnosis and chemo, sounds like you are doing great!

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited November 2012

    Tazzy....hope you have your party dress on for tomorrow when your DH picks you up from your LAST rad and whisks you off for a romantic PUB CRAWL.......lol

  • PaEaglesFan
    PaEaglesFan Member Posts: 277
    edited November 2012

    Scorchy, Will read your posts later tonight.. heading to the MO for a 2 month FU appointment in a few min but just HAD to share this site with you.  The women at the RO's office thought I was crazy when I told them you can get a knitted boob!  http://theknittingexperience.com/knitted_knockers_program/

    and I just LOVE the name!!

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