2012 sisters

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    halfcan:  no chemo til the 14th... my last day of rads.  Enjoy each and every day you feel good, no matter what the weather.  Thanks for  your sweet words - hugs right back at ya. 

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  • liefie
    liefie Member Posts: 2,440
    edited November 2012

    Beth, welcome here. It's not what any of us would have chosen if we had a choice, but we are like family here.  Sounds like you have a positive attitude, and are fighting this beast. Good for you!

    Jenjenl, so glad your DH can go with you tomorrow. Good of you to prepare to ask the onc lots of questions. This is such a confusing new world when you are diagnosed, and the onc is the best one to give info. As long as the guy is brilliant, the bedside manner does not matter that much. Hope you can find some peace.

    Maryah, Tofino is fun! I hope that sunshine comes out for you tomorrow if it hasn't today.

    Halfcan, glad you are feeling so good - yes!

    Juneau, glad you first day went so well, and you still have energy left to make dinner. Nice to feel somewhat normal again, hey!

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  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited November 2012

    Juneau- so glad your first day went great. I know I felt at ease when I went back to work after my BMX and my TE placement. Well since you are making dinner for the hubby I will take anything that doesn't have broccoli or cauliflower Money Mouth. lol

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    Juneau: so happy your first day went so well.  Mmm.. dinner - something I should start thinking about.

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  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited November 2012

    Tazzy it has been a beautiful day in the province. As for dinner, I am pressure cooking an organic chicken who just finished her laying days last week - lucky us! And I am looking for a recipe in my mom and grandma's ancient cookbooks for their dumpling recipe. Just hope the energy holds up to finish! My DH is playing his first golf in years with an old friend whose wife has been NED 7 years so I bet they are talking about us. LOL.

    Juuneau, glad about first day at work!

    I love Tofino!

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  • jenjenl
    jenjenl Member Posts: 948
    edited November 2012

    I do have a question - is there a forum for husbands of wives with cancer?

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  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited November 2012

    Jen- I haven't seen one, but that doesn't mean that their isn't one. Have you done a search on the main menu?

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    Jen: yes there is - there is a forum for Caregivers, family, friends etc. and a husband has started a link - yours may want to join in that or maybe look for another or start one himself. 

    http://community.breastcancer.org/forum/16/topic/789717

    deleted all the formatting ???


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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited November 2012

    Juneaubug.....glad your first day went well....smooth sailing from now on💃

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  • juneaubugg
    juneaubugg Member Posts: 951
    edited November 2012

    Tazzy...YAY!!! GROUP HUG GRAPHIC!!!!! 😁

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  • websister
    websister Member Posts: 1,092
    edited November 2012

    Jenjen - welcome and sending hugs, I will be thinking of you tomorrow. Regarding support for husbands, there is also a good book called 'The Breast Cancer Husband' that my husband took out from our Cancer Center library.



    Beth - welcome also, sounds like you've made it through some of the hardest parts, including the hair loss, glad you found us



    Juneaubug - so glad to hear you had a good day. That re-org shod keep you busy and occupy that mind with things other than BC



    Halfcan - sounds like you are having a good week, so good to hear



    The sun has been shining here for the past two days also, what a difference it makes, I sure hope our efforts to send some south work ;)



    Not about to run races but so glad to be in a week 3, we are looking after the grand kids this weekend while my son and his wife get away so lots to do to prepare but looking forward to it.



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  • Cindi74
    Cindi74 Member Posts: 363
    edited November 2012

    Jenjen,  If a doc hasn't given you an anxiety med, now is the time to get one.  Funny how a pill can calm you for each scan and procedure.  I find just knowing the bottle is in my purse helps although I've probaby taken 6 in 3 months.

    Also, read the stuff about diagosis and scans, etc on the BC site.  Several times. 

    I found a couple of times I would wake up in the morning either SAD or FEAR.  Your brain works as you sleep,so I decided I would give mine something else to think about  Got happy audiobooks  (Funny Thing Happened on the Way to White House), (1000 Years of Laughter)  (Garison Keiller Prarie Home Companion monologues, podcasts free) Got cheap earphones and went to sleep listening and listened all night.  Woke up in good mood.  No sleeping pills or happy pills needed.  Worked for me.

    Once y0u get a plan, it gets easier.  I got a wig I liked, so when I lost my hair, it wasn't a big deal. 

    I praise the port.  Most pain I have had was nurse sticking for vein two days in a row.  Black and blue and swollen.  With port, and numbing cream (be sure and get prescription)  NO PAIN.

    I am on a thread (Chemo, Sept thread) where 50 of us from  US,  Engand, Canada, Australia started Chemo in Sept.  LOTS of great advice from those just ahead.  Youngest, I think is 20.  Lots of young mothers.

    So sorry you are here, but I can tell you that this BC.org has helped me in so many ways I can't count to endure, hope, and be happy.  Hugs, hugs, hugs.

    Oh yes, I'm the grandmother of our group (75),  I wander from group to group and learn from all.

    You are going to be fine.

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  • Cindi74
    Cindi74 Member Posts: 363
    edited November 2012

    Jen, I think there is a thread for caretakers.  I know I exchanged messages with a husband that was very concerned about his wife's Side Effects.

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  • teeballmom
    teeballmom Member Posts: 322
    edited November 2012

    Jen: Welcome! I have 2 little ones, too. You will get thru this and we're here for you.



    Beth: Welcome! I love Fort Collins. We lived in Castle Rock and hope to move back but I think I will be too scared to leave my ONC. We're here for you.



    I remember when I was diagnosed How scared I was and it was hard to get through a day without all of the fear right there in the forefront. It does get easier as time passes.



    Take care.

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  • teeballmom
    teeballmom Member Posts: 322
    edited November 2012

    Jen: When I met my ONC I had been warned by my other doctors that she was a pit bull and not warm and fuzzy at all. Well, I have to say I would not trade her for anyone else, even if she is a pit bull. I hope your doctor works out for you, too.



    Take care.

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  • jenjenl
    jenjenl Member Posts: 948
    edited November 2012

    Cindi74 - interesting you should ask.  They did prescribe me xanax time released.  I was not very keen on taking it bc it makes me a little too loopy at work, i found when i was facilitating a session i was stumbling over my words - like I was drunk.  Maybe it's just getting used to them.  BUT I did notice when I didn't take it I would cry, cry, cry and cry some more - big waves of emotion.  Another reason I didn't like to take them is I battled a pill addiction about 12 years ago (among other addictions).

    I took one before I went for the MRI and I actually fell asleep in that machine. I'm sure I drooled all over that machine Smile

    I just want these initial tests to be over and to execute the plan and feel like I am doing something. 

    I hope everyone has a good and dry eyed day.

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  • KarenZ0305
    KarenZ0305 Member Posts: 487
    edited November 2012

    Hi everyone!



    Welcome to all our new friends. This is the place to be. The love and support is amazing snd it's nice to talk to people going through what I am. Drs help with questions but sometimes I'm having a stupid SE and it helps to know I'm not the only one! And a really good place to just babble away and make no sense whatsoever because we will understand!



    So yesterday we went trick or treating but it wasn't the same. Kids had a blast but didn't feel right. BUT it was a momentous moment for me. Yesterday I left the house for the first time without anything on my head! DH and I have the same buzz cut now and I asked him how he can go out in the cold without a hat on! I was nervous and self conscious but no one looked at me like I was an alien so I guess it's time to put the scarfs back in the accessory pile and not the necessity pile!



    A nice thing was I went with my sister and we stopped at her friends house (a survivor!) and she showed me a book she had made of the blog she did during her journey. With pictures of her buzz cut too. It was great and I thought it was a nice (weird to say I know) reminder of how strong she was during a terrible time.



    Juneau - so glad your first day went well. I was thinking about you too!



    Happy day all. Day 20 of rads for me now that their power is back then off to warehouse club for some stock up! And to check out some new Christmas decorations! I love Christmas! The decorations, friends, food, atmosphere, music...

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  • Aruba
    Aruba Member Posts: 543
    edited November 2012

    I was down to my undies in the voting booth when I remembered it wasn’t a changing room. Remember to get out and vote on Tuesday!

    This is sooo true with all our dr. appts.....

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  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited November 2012

    Aruba- that is so true. Everytime I go into a Dr appt I'm looking for the robe to change into. When my PS comes in I wish I had the balls to stand up open the robe and say "tada" lol. But he would probably just smirk and tell me to sit my ass down and cover up!

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  • Aruba
    Aruba Member Posts: 543
    edited November 2012

    Chrisrenee...lol!  At my last rads appt..my RO was out of town so had a nurse practioner just do vitals and a skin check.  I reminded front desk that RO said I was to be seen.  So this practioner (female), took me into exam room and said "oh, I don't see a robe for you to change into..."   Up until this BC, I ws very modest, but said "No problem, don't worry about it" and whipped my shirt off.  She was out of her comfort zone I think as she examined my chest quickly and then said "you can put your shirt back on and then I'll do your vitals.  Maybe I should ask my DH to take me to a nude beach on vaca now...NOT!!!

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    Aruba : Oh that is so true and I love Maxine.

    Wishing good vibes and mojo to everyone's way.  (((hugs)))

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  • liefie
    liefie Member Posts: 2,440
    edited November 2012

    Jenjenl, just a quick suggestion. Maybe try half a Xanax next time. It should still have the calming effect, but  you probably won't feel so loopy. Hope you get things sorted out today. When the plan is in place, the fight can start, and you will feel much better. Hugs to you!

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  • Outdamnedspot
    Outdamnedspot Member Posts: 297
    edited November 2012

    I just have a question about anti-anxiety meds.  When first diagnosed, my GP gave me an anti-depressant, Remeron, and I took it for 7 weeks.  It helped me have some great sleeps, but also in need of a nap by 3:00 pm.  Not to mention the intense carb cravings.  It made me feel 'flat', so I weaned off it over a two week period.  

    Now I am finding moments of teary anxiety...fell apart in the dentist chair today, sweaty and just feel like crap.  What would be a good once in awhile anti-anxiety med to take?  Fast acting for those moments you just need some help.  

    It's quite possible I will feel a whole lot better after I see the MO next Tuesday for Oncotype results.  This waiting is hard...as you all know. 

    I know my GP will have an answer, but I am curious to what some you might take for those moments. 

    Thanks for your help.  Hugs to everyone who posts here...couldn't do it without you.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    I swear by half a xanax as needed. I never used any pills before my diagnosis - and got my first bottle the day of my diagnosis. I have never taken more than 1/2 a pill. And I've rarely taken them during the day. I use them when my brain is running a mile a minute at bed time and I can't shut it off. And it seems to do the trick. I have used it on occassion during the day when I've had a panicky moment or felt a massive wave of anxiety come over me. I find it acts pretty quickly, doesn't make me loopy, and just takes the edge off. And I don't feel addicted to it at all. I got a bottle of 30 pills in June and still have some left in there. Good luck and hope that anxiety eases up!

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  • Cindi74
    Cindi74 Member Posts: 363
    edited November 2012

    My radiologist prescribed Alprazolam .5 meg twice a day as needed for anxiety.  This was before biopsy starting the bc treck.  I had been prescribed this before for panic attacks which I got in hospitals.  (3 attacks and I was the patient only one of the three times.  (hubby was the other two).  

    Then Oncologist prescribed clonazepam  .5 meg.  1/2 tablet every day. 

    I have only taken one of either when going for scans or now, chemo.  Last chemo took 6 hours.  Am not sure whether she spent so much time putting in saline because blood pressure was low or because the medicine was slow arriving.  Watched a good movie, read several magazines. No real pbm.  Actually I was pretty cool.  However, I know one day I went just for Neulasta, I had to wait over an hour and a half because there had been an "incident."  If there  are going to be any incidents,  I need  calming help.

    I think you are not suposed to drive with either.  Marked with "Can cause dizziness".

    I don't drink, smoke, and the only pills I ever took with any regularity were birth control, bones, and acid reflux, and I haven't been too regular on the last two. 

    Oh yes, there were those hormoyn pills my OBGYN gave me 25 years ago for hot flashes (actually I liked them since they made me feel warm.  I'm always COLD), heart (no pbms here in family) bones.  Was concerned about bones since my mother broke a lot with  osteoporis.  Now I learn that those pills probably contributed to my getting breast cancer.  Go figure,.

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  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited November 2012

    Hi ladies I told ya'll over the weekend I was spending time with my grandmother. This is my hero, she is a 46 yr survivor of bc, she was diagnosed at 31. She also did not have to have chemo or rads. I love this fiery chick with all I have.

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  • Scorchy
    Scorchy Member Posts: 240
    edited November 2012

    Juneau: So happy to hear about your good day!

    Tazzy:  That hug always feels so good.  Thanks!

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  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited November 2012

    has anyone heard from mrscich lately? I don't think i've seen a post from her in about a week.

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    chrisrenee... a 46 yr survivor... give her a hug from me - we need to hear from more people like her.  Especially on our down days.   what a woman, what a spirit.

    No not heard from mrscich... ???  MRSCICH...WHERE ARE YOU ????

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    Just checked the Members List... MrsCich has been hanging out on the chemo boards... well last post November 4.  As long as she's OK Laughing Makes me feel like a stalker checking that out, but I just like to know.. ha ha !!

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