2012 sisters
Comments
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Best of luck juneaubug!
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Hope everyone found some energy to enjoy some of the weekend. I spent most of Friday on the couch with the fun bone pain from Nuepogen shots that I had posted about. Tylenol helped and I got through the day. To my surprise I got up on Saturday and it was gone!!! I figured I still had a day or two of it to go. So evening plans for my nieces 19th birthday dinner party with all the families was a green light. I was apprehensive about just how good I was feeling and kept expecting the worst but it never happened! The shots really must make a difference because last time without the shots I didn't feel this good throughout the 3 weeks.
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halfcan: yay for feeling good. So happy for you.
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I am new. I am Jen. I am scared.
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Jen- Welcome! I understand being scared. We are right here for you. Feel free to vent ask as many questions, one of us (or alot of us), will give you advice or be here just to agree with you.
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Jen - welcome... sucks to be here but as chrisrenee said you will find some great support and comfort here. Ask lots, as she said, one or a lot of us will be here to answer any questions. (((hugs)))
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Should've said that the beginning is the scariest part. Once you have a plan in place it does get easier, really. I am sure all of us felt exactly the same at the beginning... now we talk it all out whatever we are feeling. Its a roller coaster of a ride... as you said YOU WILL SURVIVE !
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jen - so sorry you are here, but welcome. I'm 37 with a 2 and 4 year old and remember those early days after diagnosis. Tazzy is right - it starts to get better once you have a plan and more information to help you navigate. If you need to talk to someone, please don't hesitate to private message me. I recall the fear and anxiety felt by a young mother just getting this diagnosis and would be more than happy to speak with you. Good luck - and do stay on this thread, as you'll find so much love and support!
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I hope your day was a wonderful one, Juneau!
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I am so overwhelmed. I am still waiting on the HER2 status to come in, the results from the gentics test (taken fri), the results from the MRI (taken sun), meet the chemo guy (tomorrow) and then the big one that i am TERRIFIED of the bone and CAT scan (thursday). I found a lump on my back pelvis...i just know! My back is killing me - has to be stress, please be stress. Test, wait, test, wait, test , wait. Let's do something already! I can hardely look at my kids. My work is letting me work from home - which is good cause I am a HOT FREAKING MESS!
They want to do chemo for 4 months, then remove the girls (expanders), then raditation.
I am such a power house at work and now i'm a freaking puss. I am hoping that after these tests and I know the whole picture, I will get my spunk and spirit back.
I am just so scared and can't calm myself down. I'm scared for my hubby (my best friend) and my dear sweet kiddos.
Phew...deep breaths and yes I know I sound like a complete freakaziod right now. I apoligize.
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Jen- yes take lots of breaths, without hyperventilating
. All will work out fine. If your husband is anything like mine, he will be your biggest cheerleader. Unfortunately, all the tests just come at you non-stop. I was diagnosed in May 2012. Here's how my testing went.
may 21 mammo, may 22 bilateral sonograms may 23 bilateral biopsies Lt stereotactic core bx Rt sono guided bx may 24 wait/ angry/ cry/wait/angry may 25 @1115 got results Rt breast non cancerous fibroadenoma Lt breast IDC June 1 meet with BS June 5 BMX June 9th meet with Onc June 10th bone density and Ct chest/abd/pel June 11th Nuclear medicine whole body bone scan. Sept 11 TE's placed and hopefully 12-4 exchange surgery. Don't try to think about the negative things right now. Think about how you are going to kick Cancers butt and be there for your kiddos and your husband. Thinking positive goes along way. Trust me. If you need to talk feel free to PM me or for that fact any of us. We are here for you, we are big cheerleaders too.
christy
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jenjen, I am glad you found us. I found this thread before dx not knowing how much it would mean to me. It is a highlight of my day now, no matter how good or bad I feel. The fact that there are so many women your age also helps.
juneau, thinking of you and hoping for a good, first day. Sunny for first time in days in Vancouver and hoping for same there. Front page of our paper today was runners from our province doing either a DIY NY marathon yesterday or heading to Staten Is. to help. A 60 year old runner from Vancouver says: he has one piece of advice for Vancouver race organizers: "Be prepared for a Natural Disaster." Remember our big earhtquake the day before "Sandy"? No control over weather and BC at least not yet!
halfcan glad the S/E gone and for me, day 7 of cycle, much better than last time. The only teeny comlaint is the icky mouth taste. Bald; yesterday the fair falling out pissed me off, today with lint roller, no biggee! Doing yoga without cap/scarf too and acceptance is awesome.
Sorry for going on, but last night when I was buying the lint roller at a drug store, the young cashier was just plain nice to start with. She really seemed to mean it when she asked how we were and how our day had gone. As I was finishing up, she noticed my survivor Run for the Cure shirt and asked if I had done it. I lifted my little cap a bit and then she blew me kisses with a huge smile and said "I love you!." What a nice response!
Marian
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Hi Jen, I'm glad you found this group. It's so hard at first. For me the first couple months were the worst-- almost continual panic. It gets easier. One thing that seems to happen to everyone is every little ache and pain or unusual bump we never noticed before now causes us to think "oh no, cancer!" but try not to assume the worst, you won't really know until the test results are back. Keep breathing and do what you can to keep stress under control Ask for anti-anxiety meds if you need to.
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Dr called about MRI results...found something in other breast, he didn't seem concerned (yeah heard that before..LOL), so I will go have an US to be sure before I have the CT and Bone scan. Freaking all these appointments. I know I will stop being such a freakazoid soon just be patient with me. xoxox
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marian: you know what helped that disgusting mud pool taste in the mouth for me... red apples. It was the only thing that actually tasted as it should. That is lovely lady who blew kisses - wow! love those stories
jenjen: deep breaths hun. This really is the hardest part. The waiting just plain sucks. You'll feel as though you are going from appointment to appointment. I had all the scans at the beginning. Yes, they saw something in my left boob too.. my Onc said we think its only a cyst and if it is anything the chemo will kill it.... no consolation I know. I also had the bone/ct scans - all clear and positive vibes to you for the same. Never, ever feel you have to apologise for how you are here and you dont need to ask for our patience either... we get it. This site can save your sanity. No matter how supportive your husband is they still have no idea of what we are going through... we all get it here so just get those emotions out - do not bottle them up. When I was dx'd in January I never ever thought I'd have an end date. Now I do. After chemo, surgery and now rads my end date is November 14. Yeah OK have to have hormone blockers for 5 years but whatever to keep bc at bay. You will get your spunk and spirit back .. tenfold but for now focus on you and kicking cancers butt.
Ann: so true eh? every pain/ache/bump used to be oh no cancer. Now... not so much.
Its a beautiful day here in the Okanagan so nice to see the sunshine again. Hugs and love to all you beautiful wonderful ladies xx
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And another thing jen when you see your oncologist tomorrow, is your DH going with you? if not try and take someone... but what I wanted to say was write questions down before you go and make sure you write down the answers. Its a time of information overload and you will never remember it all. (((hugs)))
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Jenjenl, I am so sorry that you have to go through this anxiety. One would think you have enough on your plate as it is?! However, worry won't change the outcome, but it will make you very miserable. So try to stay busy, and do take Ann's excellent advice. People don't believe it, but this is actually the worst stage of the whole ordeal. Nothing can compare to that initial, paralysing shock of being told you have bc, and then the waiting for tests, scans and results - it really is hell on earth. After a while you sort of get used to it, and it is not so scary any more. Weird, but true. Keep us posted, please? You will find comfort here, guaranteed. (((BIG HUGS!!!)))
Juneau, can't wait to hear how your first day was at the new job. I'm sure you have charmed everybody there!
Marian, experiences like the one you had with that friendly cashier make this journey more bearable. People everywhere were super friendly and nice to me too as soon as they realized what was going on. It was amazing and uplifting. I remember one young assistant at a beauty counter in The Bay. She found out what was going on, got tears in her eyes, and it turned out she was giving Look Good, Feel Better classes. She gave me a bag of free Lancome products, and actually came around the counter to hug me when I left . . . it meant so much to me. Good for you on keeping up the yoga through chemo - I did not have the energy, and was too embarrassed by my bald head anyway, stupid of me, I know. Should give people more credit.
Tazzy, I'm jealous of your sunshine!
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Jen, sorry you have to be here but it's the best place for support, advice and venting.
Everyone is right, take a deep breath....this is the worst time.....once you have a plan
and get started, things will become easier, I know hard to believe. -
Hugs to you Jen, nothing else to offer that the others haven't already. The waiting for results is the worst part. Hang in there, positive thoughts your way!
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ramols... so glad you are safe. If you find you are having trouble with travel to your appointments, call your local American Cancer Society and see if they have someone available to get you there. That's one of the services they provide and mentioned to me when I called them about something else.
Hope you are able to return home soon. -
Ladies up north: PLEASE LET THAT SUNSHINE COME OVER THE BORDER!!! I am so tired of seeing and walking in the gray that I actually shut the shades and turned the lights on. I love Seattle weather and my favorite times are the fall and winter, but really, just an hour of sunshine would do me good.
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maryah: sending sunshine your way from the Great White North
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Yes my hubby can come with me tomorrow so that helps. I am reading up on all the chemo meds and trying to come up with the appropriate questions. From what I have heard this guy is brilliant but not a warm and fuzzy guy. I don't want him to hug me and rub my hair just fix me. I'll let you know my feeling on him tomorrow.
Hope people up north are starting to get power. My parents just got it. In fact whenI have to talk to my mom she used to have to go to the liqior store...LMAO!
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Hubby promised me a week in Tofino when I'm done with chemo. I cannot wait to hit the beach with my puppy (okay, 110 lb, so not really a puppy, but don't tell her that.) walk and meditate and walk and meditate and watch Craig surf.
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Hi ladies - I've been lurking here for awhile but you're all so talkative and supportive I just can't keep up. Just thought I'd let you know I'm here and so happy to see those of you that are nearing the end of this mess. I'm just at the "hair fell out this week" stage of things. Chemo #2 coming up on Thursday. So glad to be past all the testing, waiting, testing, waiting . . . Now it's time to just hunker down and get rid of any cancer that's lurking. Of course my only symptom was a big lump under my left arm and now I've got another one. My brain knows it is just scar tissue but it still freaks me out sometimes!
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Beth- welcome! This is an amazing group of women here. Glad you are now here with us. As we said earlier we give lots of advice and you may have some very different opinions from others but we are here for each other. So sorry your having to do chemo.
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Maryah...happy to share our sunshine with you! I am 2 hours north of Seattle and it has been a beautiful day. It's been a month since chemo started and today I walked over 2 miles and it felt good to do some light hiking. Flat trails mind you but I'm very happy with this day!
Welcome Beth. :-). I hope you find this place as comforting as I do! -
Jen: thoughts with you for tomorrow. Let us know how you get on - we're here for you.
maryah: Tofino is beautiful. Dont know when you finish chemo, but hope the sun shines there for you. Definitely a good meditation place.
Beth: sorry you joined the club no one wants to be in. This is a truly great place to land. These wonderful ladies have kept me sane... well sane'ish
Feel free to let out whatever emotion you have. We join in pity parties with chocolate, wine, margaritas !!
halfcan: hasn't the weather in our beautiful province been beautiful today. So happy you managed a 2 mile walk. I even spent time in the garden and greenhouse today. Still have a few flowers out which really should've died of last month.
I think we all need a group hug:
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Tazzy...today was ultimate awesome! Tomorrow is back to the wet stuff for a few days at least. I feel blessed that I almost feel "normal" and no chemo again till the 14th!!! Must be the Nuepogen shots because round one never felt close to this good. :-). Thanks for that group hug again...it is my fav next to your grinning avatar! Hugs
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Welcome Beth, Jen (from one Jen to another). Welcome to our family!! Whatever is in your mind, or your heart; can be expressed freely here. It's a long emotional journey and I couldn't have done any of it with out this family to reach out to. I have cried, screamed, laughed and cursed freely here. I have just read other posts for days when I was unable to pull it together to post myself; and I knew that I was not alone.
So...my first day working (at my new job) was really good. We have to reorg the department (my boss and I), but it feels great to be in the world and utilized my brain for something other then worrying.
Hugs to you all! Going to make dinner for my hubby.
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