2012 sisters

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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited November 2012

    Tazzy.......so love your attitude.......however, you are going home AGAIN.....now I really am jealous......lol....wish Incould come with you and would ask to be DROPPED off I Glasgow.......lol

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    scottie:  something for you to look forward to next year... as Nike says 'just do it'. 

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  • halfcan
    halfcan Member Posts: 253
    edited November 2012

    Thanks Tazzy.  I've been trying to putz around picking up stuff and do laundry but think I will head to the couch and book 2 of the Hunger Games.   Marian-This was the first set of Nuepogen shots .... 7 days in a row ending yesterday.  I didn't get any se's till today...go figure.   Now even my jaw is bitching at me! lol

    If I don't get on here and post this weekend...I am thinking about all you ladies and hoping you are having a good weekend and few se's.  Smile

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    halfcan: couch and a book - perfect therapy.   Oh! and naps in between are good for you as well.

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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited November 2012

    Tazzy, maybe I'll take you with me next year and we can do an old fashioned pub crawl💃

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    count me in Scottie, count me in.   Nothing quite like a good old fashioned pub crawl - hic !!

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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited November 2012

    Tazzy, you'll have to start training now to keep up with a Glaswegian.... .lol....

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    You aint kidding there.   Mind you I have a good trainer - my DH is from Northern Ireland. 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    Was sad to have been out of communication with all of you for so long, but we were completely off the grid for a few days with no internet and minimal phone service. Thankfully we were rescued mid-storm by a friend not far, who was staying at a house with a generator. He literally drove across town through the storm to pick us up at our house and whisk us away, as we no longer felt safe in our house after watching at least 4 trees take out both our cars, the kids playhouse, lots of fencing and small trees, part of our roof/gutter, and a basement window. I seriously packed us up in 10 minutes and threw my kids in the back seat of his car without any carseats. Stayed with them for few days until my mother-in-law got power and opened her doors to us last night. While we didn't sustain anything near the tragic water damage the south shore of long island did - I live in a pocket of town heavily populated with gigantic, old trees. So many of them came down and took power lines with them. Think it's gonna be a long time before we get power. Thank goodness we have someplace to stay! It is so sad to go through my neighborhood and see all the damage. My neighbor across the street has a gigantic tree in her kitchen - crushed it to smithereens... But of course - cancer waits for no one. Somehow I managed to round up child care and get to my herceptin infusion on Wednesday. Now lets hope we can scrounge up some gas for our rental car by Wednesday so I can get to my next Taxol treatment. All things considered - seeing what others are going through here - I feel lucky. We are safe and sound and our house is still technically livable. It just needs some fixing. Cars and roofs can be replaced. Loved ones can't. Anyhow - just wanted to share my Sandy story. Managed to read all that you wrote while I was off the grid, but can't possibly respond to you. Glad the rest of your northeast ladies are safe and sound. Hugs and love to all!

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  • MirandaSW
    MirandaSW Member Posts: 35
    edited November 2012

    halfcan, I had the exact same pain. Percocet was the only thing that took away that head/neck/back pain. Luckily, it only lasted 2 days. The second day was worse, but after that it just went away. It was the third and fourth day after my Neulasta.But, before chemo my WBC were 8000, 4 days after Neulasta WBC=13000. I guess it works!

    Since I have only had one chemo so far (next one a week from today), my hair is just now falling out. I cut it short Monday to prepare. It seems like just if I run my fingers down several strands come out, Im sure it will get worse. How long does it typically take to fall out enough to warrant a shave. I dont want to shave too prematurely...

    I was gonna put in pics, but I dont know how...

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    Ramols:  My gosh what an experience - but you did it.. cancer or not you got your family out thanks to other wonderful human beings as well.   As you said, material things can be replaced.   Thinking of you lots and sending hugs to you all.  Take care honey. Cannot even imagine the devastation there.

    MirandaSW - I booked an appt. at my cancer agency the day I looked in the mirror and saw more forehead than hair.   I did it then as I felt I was back in control.   I'd say do it sooner rather than later, but it really is a personal decision and you'll do it when its right for you.

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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited November 2012

    Tazzy, maybe I should take you're DH instead of you then.......lol

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    scottie, ha ha.... he would think it was his birthday, christmas and everything else rolled into one and I know he'd just love it Wink 

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  • liefie
    liefie Member Posts: 2,440
    edited November 2012

    Ann, I have been feeling like this about cancer for a long time now, that it is not the big deal that it was in the beginning. I just did not say it, because it almost feels like a betrayal, right? But yes, I got used to it, weird as it may sound. The other day I found all my results papers, and read through them quite matter-of-factly, not in the panicked, scared-to-death frame of mind I had in the beginning. I am so glad it's like this. Imagine living in that fearful state of mind all the time! As time goes by, one learns to cope. There is no other alternative.

    Tazzy, yay for finishing rad #21 today - only 7 more, right? You're getting there, can you believe it? You must be getting excited for your trip - what a nice thing to look forward to. We are going to South Africa for a family wedding in December, and will be staying for the month. My DH's knee is still swollen after surgery, he had it drained yesterday, and this morning it is just as swollen again. He cannot take time off work now, because we will be away for so long in December. At least the knee can rest and recover then, hopefully. Don't know who I will dance with at the wedding though . . . I'm planning to have a ball. At my daughter's wedding in July I did not have the energy, and my feet were still too swollen from neuropathy, but I'm back!

    Miranda, my hair started falling out and five days later I had it shaved. It was just too messy to deal with hair falling everywhere from the shower, bed, couch etc. The fact that I have a Golden Retriever who sheds just as much did not help either. I went to my hairdresser, she shaved it, and all the ladies working in the salon were at the front desk when I wanted to pay. They would not let me pay, and they all hugged me and cried. I had to console them, and tell them I would be okay. It was so sweet and touching.

    Marian, hope you have minimal SE's over the weekend, and that there will be many silver linings!

    Ramols, so glad you can stay with MIL until your power comes back on. The destruction that I see on TV is simply unbelievable. Good thing you could stay on time with the Herceptin too. Best wishes!

    Halfcan, I had the same pain from Neulasta. Tylenol took care of it. Enjoy the book and couch routine. One of these days you will be healthy again, and won't have time to lie on the couch any more - LOL!

    Everybody else, hoping for minor SE's for you all, and a wonderful weekend.

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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited November 2012

    Tazzy, you are very sweet, but I have to tell you I am a 65 yr old who used to feel like a 45 yr old.....now I look and feel like a 90 yr old.....trust me your DH wouldn't enjoy that birthday and Christmas.....he'd be asking for a refund......lol

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    Scottie: dont be so sure... anyone who takes my DH on a pub crawl would make him a happy chappy.  Plus he's dealing with a 52 year old who is more like 92 yrs now - so he's used to it.  But then why should he have all the fun... I'm there on the pub crawl Wink

    liefie: what fun.. a wedding in South Africa.  DH and I visited Cape Town and surrounding areas oh my... about 18 years ago.   I loved that place and we even contemplated emigrating there before deciding upon Canada.  Beautiful country.  I am sure they will be lining up to dance with you.

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  • liefie
    liefie Member Posts: 2,440
    edited November 2012

    Thanks for the kind words, Tazzy. About recovering from rads, the rad onc said that one week out would be the climax of the SE's, and she was exactly right. Fortunately I had no open burn wounds, just some very angry, itchy red spots which hydrocortizone took care of. As far as fatique, I did sleep a lot back then. Now, almost 4 months post rads, I still sleep 10 - 11 hours some nights. Some evenings I just can't stay awake past nine, and some mornings when I wake up, DH has already left for work, and he starts at 9.30 in the mornings. So I guess rad fatique is still an after effect, and our bodies just take their own time to heal and recover. Come to think of it, sleeping is not such a bad SE, is it? LOL.

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  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited November 2012

    I found that I was "winded" after rads and that even a nice paced walk would tire me.  It has taken about 4 or 5 months to get passed that.

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    well I managed 12 hours sleep last night... but boy did I feel good today.  And 2 days off - woo hoo !!

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  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited November 2012

    I would love to sleep 12 hours in a row so maybe that can be another silver lining when I do the rads! 

    Ramois so glad to hear your news and that you are with MIL and warm and safe with the kids!

    Am so glad that we did the buzz cut on Monday night when it was just starting to fall out. The past 2 days after my shower the bathtub is full of little hairs so when my MO said Monday it would happen in the next 4 days she was right on!

    Have a great weekend all!

    Marian

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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited November 2012

    During rad treatment I slept like a baby, sleeping ten hours every night. It allowed me to keep teaching without getting really tired.

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  • Jennie93
    Jennie93 Member Posts: 1,018
    edited November 2012

    My hair has been falling out like crazy the last 3 days.  I knew it was inevitable but it's still a shock.  Now I understand why everyone says to just buzz it off when it starts.  It's everywhere!  And my scalp is so tender all of a sudden, I should have done it before now.  I just couldn't quite bring myself to do it.   :-(

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  • gonzard222
    gonzard222 Member Posts: 55
    edited November 2012

    Websister- hello and thank you for your words. Hope things are well with you! XOXOXO

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  • gonzard222
    gonzard222 Member Posts: 55
    edited November 2012

    Hi Teeballmom! Thanks for the warm welcome!! Hope all is well with you! Said prayers for you!! XOXOXO

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  • MirandaSW
    MirandaSW Member Posts: 35
    edited November 2012

    I meant to say welcome too!  I am sort of new here too.

    So, I changed my avater pic to my short hair. About a year ago I had LONG hair and it is naturally curly.  Bald is going to be a big transision from my big sexy hair.

    I feel like its time to shave, but my husband is having such a hard time with this, he isnt ready yet. He is my biggest downer.  I am already at the 'let go and let God'. Since my diagnosis, I have been positive and just roll with it. Whatever will be, will be.  I can only do what I can do...and I am. All the necessary treatments. DH, however, is scared and angry. I get all of that emotion from him. He just can't really accept ANY of these changes very easily.

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  • gonzard222
    gonzard222 Member Posts: 55
    edited November 2012

    Juneaubugg--thank you for your prayers! I am excited for you that your so close to having your te's out and will pray your exchange goes well for you!! XOXOXO

    Ann--thanks for the warm welcome also.... I didnt know that IDC began as dcis. I guess that makes more sense as to why I would have both. I see my MO on thursday so I plan to ask her about the additional tests to see if they would be beneficial or not but yeah it would be reassuring to have them come back negative. Thanks for the info!! Sending prayers your way!!! Hugs!! XOXOXO

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    Miranda... you look beautiful and your hair will grow back.  Sorry your DH is having such a hard time but honestly hon... this is about you!  You have no choice whether you are ready or not - its happening.  Time to put on his big girl panties and start supporting you.   I always said I think it is harder on our spouses - they need to fix things and this they cant.  Sooner your DH understands that sooner he will stop being a debbie downer.  You dont need to have the added stress of how he is feeling.  

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  • gonzard222
    gonzard222 Member Posts: 55
    edited November 2012

    Teeballmom.....so glad your results came back normal! Its great to have so many people thinking and praying for you!! 

    Juneubug...so glad your safe! Good luck on your new job and your colonoscopy as well! I have been praying for everyone affected by Sandy and will continue praying for you as well!! Take care!! XOXOXOXO

    Ann...I am not there yet, I have the "I still cant believe this is happening" at one min and then its like "well lets get going with whatever i gotta do and get it over with", and then I totally get scared. Prayers for you!!

    Christy....sending prayers for you!! been talking to you....lol

    Sending happy thoughts to everyone reading this and Praying for you all to be strong and help you endure what ever stage of your journey you are on! I am so encouraged at how strong you all are!!

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  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited November 2012

    Robin- thank you I'm so excited about meeting up with you next Friday!

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  • gonzard222
    gonzard222 Member Posts: 55
    edited November 2012

    Christy-- Me too!! Laughing

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