2012 sisters

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  • halfcan
    halfcan Member Posts: 253
    edited October 2012

    Anyone get red cheeks and chin from maybe the steroids? BGC yesterday. I didn't have this SE on my first chemo. Never know what to expect do we! Hugs to all.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited October 2012

    Miranda... happy you are feeling better again.  I had more SE's from the neupogen shot than the chemo.   I would definitely call your MO about the itchy spots.  Cant say I suffered from that, but then we are on different chemo regime.  Call sooner rather than later.

    Halfcan: this one I can help with.... I did get flushed with dexamethasone/chemo... not every time either - no rhyme nor reason to it.   Again call your MO if it doesn't go or just to confirm.

    Hugs and pleasant sleep to you all xx

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited October 2012

    Miranda sorry don't know about the yeast down there and LOL, not TMI! I have to be careful about TMI with my family with my chemo bowels. 

    Halfcan I got bright red cheeks for day 2 and 3 and looked so healthy! Ha! My first yoga class on Day 4 I did a downward dog and had to stand up as my face got so hot as I guess the blood rushed in. Steroids!

    A little pelvic pain today from Neupogen I am guessing and I was a bit stiff on my walk, took Tylenol before yoga and it seems to have disappeared. Knock on wood (I do a lot of that now). Tazzy, we are all so different with S/E!

    I did blog post #2 today and realize this is the most mental energy I have expended in ages. Feels good!

    Good night all!

    Marian

  • liefie
    liefie Member Posts: 2,440
    edited October 2012

    Miranda, it sounds to me as if you may have a type of allergic skin reaction from the chemo. I know that some people develop rashes and even acne from it, so this seems quite likely. During chemo I had to use a barrier cream you-know-where, because the stuff that was flushed out burned me so badly, but it was not a rash though. Maybe contact your MO before it gets worse.

    Halfcan, yes, I also had the red, slightly swollen face a few times.

    Good night all, and sweet dreams!

  • KarenZ0305
    KarenZ0305 Member Posts: 487
    edited October 2012

    Hi Cowgirl! Just wanted to say glad your tumor was benign. We have a friend who's wasn't and its been harder than I imagined. Don't worry about scaring those kiddies just tell then the other guy (pesky CA) looks worse after kicking his butt!



    We have a close friend who lives in Chandler. Moved there 2 years ago and is coming home for Christmas. I can't wait. We've missed him so much.



    Miranda def call yr MO about those itchies. Probably just a SE and they can give you a cream. And the eye blurriness I had too. Hated it.



    Halfcan I hated leaving the house because of the redness! Felt so self conscious.



    MrsCich I agree - way cool job! Must be great on take your child to work day!



    Ok ladies time to start battening down the hatches for Hurricane Sandy! Must have essentials Ben & Jerry's and Hagaan Daaz!



    Have a wonderful day and much hugs and comfort for those going to the BGC today andfor those getting over the hump of their treatment this week.

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited October 2012

    Miranda, that could be yeast or chemo related reaction or folliculitis (inflammation or infection of the hair follicles) or even just that the hair is starting to grow back. Best to see your doctor about it, it is impossible to say without looking at it.



    I probably won't be on as frequently but I will be here. Life is getting in the way! You guys are all strong and will get through this. I don't know what I would have done without this site and you ladies. I am happy to say that life is moving on. BC is still on my mind daily but not quite as densely as before. Now that I won't be in active treatment maybe it will fade that much more. I still check the circumference of my arm daily for LE and am dealing with skin burns and pain but I can already see that it is fading. As I hope that the specter of BC will fade somewhat. Not that we can ever leave this completely behind us of course. But once we are done with these treatments it is time to live.

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited October 2012

    Thanks jpmomof3, I hope I am looking at BC your way by next fall too.

    Marian

  • websister
    websister Member Posts: 1,092
    edited October 2012

    Good morning all. Quick check-in, a little cold and gray here, thankful for a warm house and no real need to be anywhere today so I will get what needs to be done out of the way and then take some time just for me to read, nap or whatever for the rest of the day.

    Celebrating with those who are celebrating and sympathising with those who are experiencing any side effects - surgical, chemo or otherwise.

    Take care, everyone.

  • halfcan
    halfcan Member Posts: 253
    edited October 2012

    So happy for you jpmom! cowgirl, big sigh of relief! Thanks for all the replies on my steroid cheeks. :-). That is what I suspected but felt good hearing from you gals. Going for my first Neupogen shot today and needle teaching to do at home. Glad I don't feel too bad so far this am of day 2. And I have rosy cheeks! Hope we can all have a good day. Big hugs!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited October 2012

    halfcan - self administration of the shot is easy and doesn't hurt at all.  You will be OK, really.  (((hugs)))

  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited October 2012

    my rant for the day.

    I really hate stupid people! A friend of mine posted on Facebook that Women will never be equal until they can walk around with a bald head and a belly. I told him that Cancer patients do it all the time and they are much stronger than men. Then someone says that's not true and that it isn't a credible argument. Then it was brought up that someone hasn't seen women like that. My response was "because we hang out in different circles. I hang out at the hospitals and cancer centers. I don't get to go party and be a dumb kid and have mommy and daddy clean everything up for me."

    end of rant.

    other than that I'm having a decent day. Ran late for work this morning overslept and really just had no energy to get out of bed, but I did. I seem to lose more and more energy as the days past. I know I'm getting sleep because I wake up before my alarm on most days. Hope everyone is having a great day, no SE's and no pain.

    hugs to you all!

  • lukefrancis1
    lukefrancis1 Member Posts: 40
    edited October 2012

    people are so loving.....and willing to share! hugs are good!

  • KarenZ0305
    KarenZ0305 Member Posts: 487
    edited October 2012

    halfcan - I agree with Tazzy - it doens't hurt at all. I was afraid to do it because I am a chicken with needles but my friend who is a nurse did it for me and it was a good excuse to get together. The needle is so small and short. You'll do great!

    Chrisrenee - ok so you know the commercials that say stuff about a world without cancer? Well in addition to that I would like a world without morons! Sometimes people just speak without thinking. Tell him men will be equal to woman when they can push out a baby while planning the week ahead!

  • allurbaddayswillend
    allurbaddayswillend Member Posts: 355
    edited October 2012

    I'm chiming in with others to say Stay Safe if the storm hits your area and I hope it doesn't mess up anyone's schedules either!

    Hi Miranda, I'm glad your pain pills worked. Check with your MO about the nausea and the pubic area itching. My MO sent me home with 2 anti-nausea meds in the beginning. It ended up I only could use one of them but it worked for me. Maybe you need two! I also got lots of my celiac disease skin rash during most of my chemo and it only let up just recently and I think it's cause my immune system is pooped out. it's called dermatitis herpetiformis, it's very itchy and bumpy. I follow my diet very strictly but something about the chemo treatment either thinning my skin or something or the Neulasta shots triggering my immune system really made it flare up. I mostly get it in typical areas - tailbone, nape of neck, elbows - but because of the severity of it during chemo I had it flare up elsewhere a little around "labial and mucosal" areas, so around mouth, pubic and nasal areas (esp in those areas, my MO thinks it's because of the thinning of the skin). If you are prone to some skin conditions or rashes like I am I wouldn't be shocked if they flared up after my experience. Also, a tip I was given that I have followed religiously is to clean my toilet a lot! You want to get as little splashback as possible, iykwim. And as lifie said, contact your MO before it gets worse. I also had blurry vision for a few days after chemo. It's not as bad now with just the taxol but when I was getting 2 at once (AC) it was pretty bad the first couple of days and then went away. definitely let your MO know, he/she will check your eyes but it's also not uncommon, fyi.

    halfcan, I got really red the day after AC. I was told it's pretty typical with the Cytoxan and with steroids too.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited October 2012

    chrisrenee... in answer to your 'friends' stupid post:   Women are way stronger then men any day.  We get a cold they get the 'man flu'.  In the words of Betty White - “Why do people say "grow some balls"? Balls are weak and sensitive. If you wanna be tough, grow a vagina. Those things can take a pounding.”  Dont you just love her.Wink

    Hugs and minimal SE's to all.  And yes, stay safe if you are on the East Coast.


  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited October 2012

    Karen- I agree. That's my biggest flaw is that I can't stand stupid people. I don't have the ability to deal with them.

    Tazzy- Betty White is my favorite Golden Girl! I love her and I want to be like her when I grow up. I mean what can you say about her that is terrible? Nothing at all, she speaks her mind.

  • _Ann_
    _Ann_ Member Posts: 769
    edited October 2012

    Boy I'm behind-- this thread really moves fast.  Congratulations jpmomof3!  Back to life with you!

    Tazzy, your coworker's comment was really a WTF moment.  Correct answer to that question is Yes for everyone.  But what the heck did she expect you to say?

    Crisrenee, I've seen that comment too-- slightly different "... when women can walk around with a bald head and a beer belly and still think they're sexy".   I repeated it to my DH and he said "but do those men really think they're sexy?"

    Cowgirl, wow, what an ordeal to go through in the middle of BC.  So glad for you that it was benign.

    MrsCich, congratulations on going back to work.  16 hours sounds like a good amount.

    Read scary things about Hurricane Sandy today and hoping all are prepared.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited October 2012

    I love Betty White too - our hero.  I love anyone who speaks their mind.

    As for a response to the Manager's comment... I wish now I had said 'likely not before you honey'.... always think of these things after - darn it.

  • Cindi74
    Cindi74 Member Posts: 363
    edited October 2012

    Miranda,  I am not on the same chemo as you, but the 3 pack of Emend has been all I have needed to have NO nausea.  Also, I begin taking claridin one a day beginning the day of the neulasta shot and for 8 days after.  I have had no bone pain.  I learned this on one of the threads.  My Oncologist oked it.  Also learned on a thread to keep a bottle of water by toilet and wash pubic area when peeing.  Chemicals are very toxic.  All these things have helped.

    I understand there is a study of the claridin for bone pain going.  Internet says that only about 25 % of people get it, but that it can be quite severe.

  • halfcan
    halfcan Member Posts: 253
    edited October 2012

    Back from needle teach and first Neupogen shot. All went well and didn't feel a thing. I get 7 injections ... 1 each day in a row but know some do it every other day? I am on 3 week chemo cycles and don't know how they decide the Neupogen frequency.

    Tazzy....I loved the Betty White quote! That woman rocks!

  • liefie
    liefie Member Posts: 2,440
    edited October 2012

    Tazzy, you could also have told her that her chance of dying in a car accident is much higher than your chance of dying from bc. In the end it's just better to turn away and not say anything . . . some comments are not even worthy of being acknowledged.

    Still haven't connected with my onc. He phoned last night while I was on the phone with my daughter. He left a message for me to call him between 2 and 4 this afternoon, so hopefully I will get to speak to him then.

    I finally started the walk/run interval training in the gym this morning. Not that I can call it 'running' by any stretch of my imagination. It's more like a slow jog, but it is faster than walking for sure - LOL. Will try to ramp it up as I build more stamina. Before bc I could run a few kilometres, want to get back there. Also want to lose about 10 lbs, and this will help me reach that goal. Don't want any unnecessary fat cells sitting around producing estrogen!

    Halfcan, glad your Neupogen shot went well. I ended up getting fewer shots than were initially prescribed, because my white cell count skyrocketed through the roof with all those shots during cycle 1. For the next three cycles I got three shots per cycle. Never had much pain from it either. Hope it's the same for you!

    A good, SE free day to you all!

  • Megroy23
    Megroy23 Member Posts: 32
    edited October 2012

    I am so happy I've found this support group! I am only in the beginning stages of kickin cancer's ass but congrats to ALL who are still strong after the bitch of battles!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited October 2012

    I agree liefie... some comments are just not worth a response - but a slap upside her head would've felt better Wink

    megroy welcome to this wonderful thread.   We are all at different stages of our dx and please ask any questions you may have.  This is a roller coaster of a ride, but yes we are all strong after the bitch of battles.. love that !   This is our sanity.  You can cry, laugh, rant.  Whatever emotion you want to get out, get it out... we join all pity parties, normally with chocolate and martini's.  

    Hugs and minimal SE's to everyone - stay safe anyone in the line of Sandy.

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited October 2012

    Megroy, welcome.....sorry you have to join out club, but here you will get nothing but support and advice and a place to rant and rave if needed.

  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited October 2012

    Megroy- welcome and as Tazzy said we join all pity parties. When you have one on here its never for just one. Have you scheduled your surgery yet. There is lots of information from this group. Things that I didn't even think of. So feel free to ask any and all questions nothing is too small

  • _Ann_
    _Ann_ Member Posts: 769
    edited October 2012

    I learned something new today.  Two glasses of prune juice plus two bowls of Fiber One cereal plus four Senokat-S tablets all in one day actually overshoots the anti-constipation target.  Frown

  • SusannahW
    SusannahW Member Posts: 470
    edited October 2012

    Ann, I found that a small glass of pear juice eased my constipation when I was on femara.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited October 2012

    Ann... you made me laugh with your post.   Not because of your issues... but the way you wrote it.  Only on these boards could we write/read something like that.

    Love you all xxx

    Oh and if I haven't said already - those in Sandy's path - stay safe.

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited October 2012

    Ann, LOL! I have lurched from one extreme to the other this week so did laugh out loud. Guess we have to be able to laugh at how our bowels also join this crazy BC bullshit. Of course no pun intended.

  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited October 2012

    Ann- that is hilarious! After my TE placement I was on the hydrocodone and antibiotics, so you can imagine what that does to your system. I wad complaining about my stomach after a week of taking all that. My husband goes to the store buys prune juice exlax and stool softeners. Within 4 hours I was dying! I could not stay off the porcel god! I was running for about 8 hours.So never again will I ever drink prune juice ever again. I will die first of pain before all that.

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