Here's what cheezed me off today

I would give that same warning to Benzos such as Ativan, Xanex, etc.  The doctors will tell you they will help calm you and they are right.  The thing they don't tell you is they are physically and mentally ADDICTIVE!  If you take them as prescribed (god forbid), you can get hooked in just a few weeks.  The body gets used to them and then more is needed for the same effect.

I've never had an addictive personality, but Ativan got me good for a bit.  My body was in the worst habit.  Fall asleep at night, wake up at he magic 3:00a hour, take Ativan and go back to sleep. Breaking that cycle was one of the toughest things I had to do.  I still keep them around for an "as needed" situation, but I'll stick with my multi-vitamin and fish oil only!  Hopefully not taking Tamoxifin doesn't come back to bite me in the ass (or boob).

Purple-totally agree to look into the drugs SE that will be taken. The Dr/nurses/med team is to caution or let the pt know about the SE but because of info overload or whatever it is hard to take it all in let alone remember everything:o Often the med team will send home info on meds but it doesn't hurt to gather info.



AND we are all made up so differently. If something works for you, like your friend purple, thats great. Why fix it if it 'ain't broke:) glad she has something that helps her. Now we can find something for this dang cancer:o



Happy Saturday to all. Hope you're able to enjoy it:)

Ro------hey swinging to the Blues and some ordinary voldlka-----effexor sucks ----way big time,  but it's the docs, little mama camma downer of this last decade.  Previous drugs --- to many too list.

I personally believe in Savella/ milnapricin. I take it at a <recommended daily dose. 25 mg BID versus 50 mg Bid-twice. It was used in Europe for ten years before our FDA approved it here---so it has a track record. If it was here for that long it may be close to moving to generic---forget what proprietary time is. What pisses me off--is the drug intoduced to the USA market in 2009, after ten years use in Europe was given Proprietary rights to Forrest pharm until 2021. Duh, not a new drug, Forest just bought the rights to it. FDA approves as a new drug. FDA---sucks-------The future will show The Fda as a tool to Pharms.

Comment s about Effexor are sooooooooo true.....But the ones prescribing it are not taking it. PLus are they getting kick backs of some nature for prescribing it or are they just on the train-----everyone else is prescribing it---can't be held accountable if it's the drug of choice of X number of prescribers.

SSRI and SSNRI's are great, but each has it's quirks. Just like the Benzo's Xanax is aprazolam----can be highly addictive--glad to hear above friends has kept it at one a day.---cool---remember the Blues are on. Next benzo valium--best skeletal muscle relatant ever that was invented, but then found out that it was an anti-anxiety agent---so soon forgotten about skeletal muscle relaxation--only a short few years after introduction early 60's. Has in the last decade been refound for what it was invented for--could make more of the story, but want to check Insomnia thread

Here's what cheezed me off this week... not knowing what symptoms are from chemopause, menopause or simply normal!!  I want to know if the aches and pains are typical of a soon to be 48 year old.  What about the eyesight, etc.  I don't feel old, but my body feels way older this year than last year.

purple, was your meno at 41 from something other then typical meno.  41 sounds very young.  I think I read 52 is average, so I felt okay that I'm there.  I'd be way bummed if I was a 30 something with chemo and had a permanent meno.

Anyway, my eyesight is okay except one day a couple of months back I found I couldn't read small print on bottles anymore.  Bought those 1.00 glasses at CVS.  I've always had great eyesight and could thread a needle in literally "a blink of an eye."  Not so much now.

Oh yeah, your eyes are fine, Rocky.

No...it's odd. My mom was 41 and my sister was 41  too!  When I started with hot flashes etc ...my gyn said I was way too young. I explained the family hx and he said thee is no such thing.  I finally convinced him to test my hormones, and lo and behold!

I was out of whack for app 1 yr with symptoms and then it was like it never happened.

Early meno is supposed to be very protective against BC.  ( HA!)
I just found out my ER PR status is ER 100% and PR close to it .

Go figure.

Reality-Sorry you had that experience & that you are going though this recent dx. It isn't fun. I wish I could say it gets easier but it just becomes more manageable or that we accept it? Not sure how to describe this life changing event. It's just plain bad luck. 68-70% of people who get bc have no family history. RRR. Whatever is my new word for cancer events, changes etc. It's out of my control. I wish you luck.

What cheezed me off-trying to put pictures on BCO! OMG! Has anyone found a secret? 

Thanks Rockym! I'm going to try that again now:) I'll let you know how it goes:) I think I missed a step, or two:0

Testing...

Rockym you're a genius! I tried before & couldn't get it to work. Even following the "help" info. Thank you SOOOO much:)

TallM, your welcome and beautiful picture!

chatter99, I can be paranoid with the best of them... that is why my Facebook account is under an alias name and I have no friends, boo hoo :-).  I only use it to upload pics to BCO and to see what some Facebook people are up to from time to time.

P.S.  I never post a pic of myself, although I did post a picture of my hair that was cut off and lying on a table in 14 braids.

what about snapfish ?

Maybe it would post the same way thru them ??

I feel that I can be very outspoken sometimes and just like to keep my anonymity.  Also, with what I have been though (and all of us for that matter) and what I have shared, I like to keep that kinda hush hush too.  I could only imagine if people I know in my day to day life knew some of what I share :-).

Hello to all - Had to share this one with you - One busy-body, who is not even a friend of mine, told another busy-body, also not a friend - in fact, someone who "stabbed" me in the back several times when we were teaching together, decided that I was "terminal" and decided to spread their diagnosis for me around our small town and adjoining small town. A good friend told me what was happening and advised me that I do not even have to deal with it as she took care of it. She emailed the offenders and advised them that at this point, even though I'm stage IV, I am not labeled as "terminal". My diagnosis is currently, "chronic disease in treatment" - my God, give me some hope - idiots! So glad I have a protective friend, who is very active in the community.

Off to care for grandchildren - Have a good one.   

Sher

Just had a nap and thought about my previous post when I woke up. I really am not a bi**h. I rarely even mention my dx or complain to anyone but those on these threads. Was just having a tough a.m. My daughter apologized and all is well. Best wishes to all for a good day- that's my plan!

Sherry