Here's what cheezed me off today

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  • Rockym
    Rockym Member Posts: 1,261
    edited October 2012

    Reality, you are MORE THEN welcome to bitch here anytime... we all do :-).  I can't imagine what you're going through, but I find humor to really be the best medicine.  Many of these little things that can tweak a person out, don't affect us the same way anymore.  For example, I was at my neighbors the other day and they are redoing their kitchen, flooring, etc.  The husband was all moany and groany about the mess that the contractors are going to make and how the cleaning people I gave them the number for missed some dust on their blinds, charge a little more then people they have had in the past, etc.

    I was standing there thinking... How about a thank you for the referral (my cleaning people rock) and how about asking how I am feeling these days, etc.  I just stood there listening to all the petty bulllshit and then I just smiled and said, "It all cleans up in the end."  I was referring to their kitchen, but in reality... that's a good saying for everything.

  • Reality
    Reality Member Posts: 782
    edited October 2012

    Thanks, Rockym - the saying is awesome! 

  • Reality
    Reality Member Posts: 782
    edited October 2012

    Had an awesome day with my grandchildren - we played outside from 3 to 8 pm as it is a beautiful evening in the Adirondacks. They truly keep me going! So do you guys - THANKS

    Sherry

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    Of course you're not a 'Bwitch' reality!


    Right now, your reality sucks- and so do some of your friends. You have to be able to vent now and then. I can only imagine what you are going through, and I am sorry for your pain.

    I hope your " tomorrow' is better than today was.


    There is always hope...always.

    My husband was stage IV in 2009.

    He has had an amazing recovery and  when ppl see him they act like they just bunped into a ghost.  He is FULL strength, 100% and NED.

    There is always hope.

    Hang on tight  !

  • 9911
    9911 Member Posts: 54
    edited October 2012

    So, getting ready for colonoscopy ... email from dr said ... "Drink only 1/2 the bottle ..." That sounds easy ... I could do that. When to pharmacy to pick-up Colyte ... it's a 4 liters jug! When is a gallon+ container called a bottle? Well, happy drinking! ... and not eating.

    YES ... "It all cleans up in the end"

    ~LA

  • TallM
    TallM Member Posts: 1,596
    edited October 2012

    9911-OMG YUCKY! I'm so sorry you "get" to drink all that nastiness:o



    I too like the saying "it all cleans up in the end:)



    Reality-everyone has an expiration date. Some sooner than later. And just because your stage IV doesn't mean you'll go before her. Gee someone could be healthy & be in an accident tomorrow & be gone.



    It's not fun to have cancer esp stage IV. It's a constant worry no matter what stage, age, dx etc. cancers just plain bad luck. But it doesn't mean you'll expire 1st. Man some people live months, years with that. It is frustrating when people ask if it's a death sentence, or your terminal or having palliative care. There coming up with more & more treatments. No one know what there time frame is except the man upstairs. Sorry you had to deal with that. Enjoy every moment & make it count:) These boards are a good place to vent, chat & learn. So vent away! :-) Here's to better times ahead:)

  • Rockym
    Rockym Member Posts: 1,261
    edited October 2012

    The funny thing about my comment, "it all cleans up in the end," was that I was such a type A for many years and I was also a neat freak.  Now, mind you, I still keep my home tidy and I teach my kids that everything has a place so they can find things later, but after kids and then after cancer, I realized that I could let down my hair (no pun intended if you are still doing chemo :-)) and that if things got dirty, the world was not going to come to an end.  I let go of the behavior (especially if the cleaning ladies were coming the next day :-)) and learned to live a little.  My life got just a little better when I figured that out.

    Okay, so I have another quote that is an original and fits our cheeze group... I was talking with a friend and we were saying how people try to bring us down sometimes.  The worst is when we are feeling good and family (or even strangers) say the stupidest things.  Well, not too long ago someone ticked me off and I told them, "Don't make me part of your bad day!"  I've been meaning to make that into a bumper sticker, but just haven't got around to it.  However, I do like to use it from time to time and you all are welcome to also.

    Tomorrow is my 48th birthday and I plan to make it a good one.  I was never much for celebrating birthdays, but now I feel a bit like... I'm here another year and I'm relatively healthy so what the hell, mine as well enjoy it!

  • TallM
    TallM Member Posts: 1,596
    edited October 2012

    Love it Rockym! It so fun to read your post:) And yes you should make them bumper stickers...both of them. Thanks!

  • 9911
    9911 Member Posts: 54
    edited October 2012

    Rockym ... Happy Birthday!

    I never celebrated my Birthday ... because everyday is my Birthday! (after BC) ... that's what I tell my husband when I go jewelry or electronic shopping. Really, I don't even remember the last time I had a REAL Birthday party. I do try to do something for my Mom on my Birthday.

     CLICKING on the "LIKE" button ... "Don't make me part of your bad day!"

    ~LA

  • TallM
    TallM Member Posts: 1,596
    edited October 2012

    (((Rockym))) Happy Birthday!!! I hope this year is a great 1. It's strange how birthdays mean more for making it another year:) Yahoo for you. Blow out ALL your candles & make a great big wish:-)

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    Happy B'day Rocky!!!!  Kiss

  • Reality
    Reality Member Posts: 782
    edited October 2012

    Happy B'day Rockym - here's a big b-day HUG!

    Sherry

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    CLICKING on the "LIKE" button ... "Don't make me part of your bad day!"


    I love these little phrases!
    I used to work in a very hostile environment.

    There was a co-worker who would always jab at me (and I bite back) and then , we would be back and forth with these left handed insults/ cutting remarks.  Very negative.


    I would come home complaining to my husband every day about she started in me, and he would always reply that I shouldnt engage , but I found it soooo difficult to just ignore her.

    Finally, one day she threw some remark out there ,  and I said :

    "You know, just because you toss the ball, it doesnt mean I have to pick it up and play>"

    She was dumfounded. .... totally speechless.

    After that, anytime she tried to engage me , I would make a similar remark ( e.g . " take your game soemwhere else" ...that kind of thing)

    With nobody to bounce the ball back to her, she finally stopped the games !

  • Reality
    Reality Member Posts: 782
    edited October 2012

    What cheezes me off every day lately is my Oncs casual "wait and see". WTH about early detection. Yep, I waited and I saw - within a year of lumpectomy, I have lung mets. Lung mets that would just be sitting there, growing, if I had not complained A  LOT about arm pain. PNP told me I read to much about cancer - oh really - who was concerned about lung mets before my PNP and Onc took me seriously? Oh yeah - ME! They thought I was just being overconcerned. Now they are in a big rush to get chemo in. They could not even wait for a port to be put in - had to start right away. I think it is crap that I did not receive a pet scan, MRI, CT scan, or some kind of scan at my first 3 mo. check up following the end of treatment for orig. tumor. I will not accept the excessive radiation excuse from them - who cares now? After six weeks of daily radiation, multiple lung x rays due to a botched CT guided bx attempt. and another CT guided bx a week later with more chest x rays - I don't even think about too much radiation anymore - bring it on. Well, I'm not waiting and seeing any longer - I have had a sudden change in vision - very strange eye vibrations and difficulty focusing, even with my glasses. I have had some dizzy episodes and ringing in my ears. I mentioned the vision problems at the Onc office yesterday, but they were only concerned with the "nose dive" my blood count took after the first infusion of my new chemo last week. (I could not have chemo this week due to the drop). 

    I spent the afternoon in bed with a severe headache yesterday - having vision problems today. I called my Oncs answering machine this a.m. and told them "I want a scan asap to see if I have brain mets. I want the mental stress of wondering gone!" I have always been a very cooperative, somewhat passive patient - I have had it now - I have excellent insurance that pays almost every cent of any procedure - there is no excuse to "wait and see" - Whew!  Thanks for "listening" - don't mean to sound peed-off at you guys - just have noonne else to talk to about it. My adult children get too upset - I don't want my son to go raving into the Onc's office on Monday, so I will rant here! lol

    Sherry

  • Reality
    Reality Member Posts: 782
    edited October 2012

    ....a little more to my rant: forgot to mention that I had an "incomplete response to chemo". The onc has known that since my surgery path report - "very aggressive triple-negative cancer"  duh? Don't you think he may have been a bit curious to see if the cancer decided to move someplace else?

  • TallM
    TallM Member Posts: 1,596
    edited October 2012

    Reality-rant away! You have every right to be concerned, frustrated, angry etc. Good luck with everything! Sometimes you just want to scream & "screaming" with your fingers seems to help:)

  • Wren44
    Wren44 Member Posts: 8,585
    edited October 2012

    Reality, You might want to consider a change in Oncs if that's a possibility where you live. I would be made as he**.

  • Reality
    Reality Member Posts: 782
    edited October 2012

    Thanks so much to all of you. I like that, "ranting with my fingers". Just woke-up from a two-hour nap with my three kitties and wonderful 15 year-old-Austrailian shepard - she is always by my side. The sun is out, I have fresh coffee, so off to sit at the lake across the street from my house.

    My best to all

    Sherry

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    PNP told me I read to much about cancer..."

    JERKS!!!!!!!

    They should be sued- that would wake their asses up!

  • Reality
    Reality Member Posts: 782
    edited October 2012

    Thanks, purple - yep, that's the same pnp who told me BC responds well to chemo! WTH?? Duh to her - mine certainly did not. 

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    Reality

    Just goes to show how different we all are . They should not make broad, sweeping statements.

    Hang tough!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    Hey,fellow cheezers! Sorry to be gone for so long, but I just had the month from hell. While my DH was gone on a camping trip, my diverticulitis flared up and my intestine perforated. Had to have emergency surgery and I lost at least 18 days from my memory. Doc said I was about 3 days from buying the farm. I now have a colostomy for the next 3 to 6 months and then I'll have another surgery to reconnect my intestines. So now my left side has half a missing boob, a horizontal C section scar bisected by an open obdominal incision and a colostomy. So, if you want some nudie pictures for next Halloween, I'm your girl! At least I've learned not to say that nothing worse can happen. Hope everyone else is feeling better and is pumped for  Turkey Day.

  • Wren44
    Wren44 Member Posts: 8,585
    edited November 2012

    OMG! You really did have the month from hell. I hope you're feeling better now and will continue to improve. (((HUGS)))

  • Rockym
    Rockym Member Posts: 1,261
    edited November 2012

    rohanna, OMG and WTF!  I was thinking about you today and almost sent you a PM.  I am so sorry you've had to go though all that shit (no pun intended... well maybe :-)).  Figures that DH was gone.  Isn't that the way it always is?  I had a flood last week and the water went from my bathroom to my basement.  DH came home to help clean up and said, "Well, at least I was home this time."  Pretty funny since he is never around for the emergencies in life.  Think I'll skip on the nudie pics this time.  Looking at myself naked in the mirror is scary enough.

  • 9911
    9911 Member Posts: 54
    edited November 2012

    rohanna - Just sucks!

    (((H)))

    ~LA

  • TallM
    TallM Member Posts: 1,596
    edited November 2012

    Rohanna! What a whirlwind. I hope things settle down for you. I think you've had enough "excitement."



    Rockym-sorry about the flood. Never a dull moment...



    Thought you'd enjoy this video a friend posted too. We can all use a laugh now & then:) What a talented dog. The owner would leave the dog home while @ work & this is what he'd do:



    https://fbcdn-video-a.akamaihd.net/cfs-ak-ash4/v/343044/997/10151177090024690_14878.mp4?oh=e24fe0a49073121e99071980c6570f2d&oe=50A87F89&__gda__=1353219126_8be494488890b272b62c22ddf52da87b



    Happy weekend to all & upcoming turkey day:-)

  • Reality
    Reality Member Posts: 782
    edited November 2012

    Oh Rhohanna - so, so, sorry for all you have been through!

  • Reality
    Reality Member Posts: 782
    edited November 2012

    Best wishes to all for a peaceful Turkey Day - When my family gets together, "Peaceful" is something we are thankful for (lol). If the younger ones toss a couple of beers with their turkey, all heck is known to break out! I was invited to my son's in-laws for dinner. Nice people, but they always invite tons people - all who want to ask me questions about me - many of them strangers to me. I decided that with my low bp issues and infected port, I am just not going. I volunteered to spend the day caring for my son's English bulldog, "Titus". Tighty and I will eat whatever we want to and take naps together in front of the pellet stove. 

    Have a good one, 

    Sherry

  • purple32
    purple32 Member Posts: 3,188
    edited November 2012

    ROHANNA

    I am so so very sorry to hear of your woes. Makes me ashamed for how concerned I get for myself .

    MY GOODNESS!

    My husband lived with an ileostomy for  a yr and then had it reversed. PLEASE feel free to PM me if there are any related questions I can answer or ask him for you.

    I certainly hope your reversal goes as smooth for you as his did for him.

    TAKE CARE!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    Rohanna-sorry about all that:(.

    Tallm you link didn't work?

    Rocky- flood sounds like no fun!

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