2012 sisters

My older sister gave me a pink pashmina yesterday that a school friend from eons ago gave her to give to me. Her friend had BC 5 years ago and she wanted me to have it. I will pay it forward some day. Funny too because I had just got my FedEx from headcoverings.com an hour before and I have to admit I did order a pink sleep cap that matches perfectly and also that I plan to wear to yoga. Pink has never been my fave but sometimes things come our way that have real meaning. 

FYI, day 6 of AC and it is sure a roller coaster. I am still walking 5 k a day but unlike many of you who seem to have constipation, it is the opposite for me. However I just called my nurse help line and the nurse was great and very reassuring. Also had Neupogen # 3 tonight and no S/E. So on it goes...

Marian

Hello Ladies



Seems like forever since I have posted but I do read everyone's post. So much going on here so I won't address all of you but I have been thinking about you all. I have been working a lot and nesting mostly at home. Like people mention it seems to be my comfort zone and I was usually a person who never watched tv or stayed put bf Bc. I need to start getting back to my walks and get my muscles moving but I can't find my motivation. Mmm? Maybe tomorrow! I had a work trip to Dallas last week. When I got to the airport security line I don't know if it was the fact I had not traveled or hormones but I started sobbing right there. I was so over whelmed that I finally could take a trip and some sort of normalcy but everything was different. I was happy and sad at same time. I could not control it so I guess part of healing.



Then I was sitting in my budget meeting ...listening to people complain about trivial stuff and all I wanted to do is scream at them, my last year I have been through hell! So please complain to me:) of course I didn't but it is hard to stop thinking about BC and all of us and what we have and are going through. Every day I meet another women who has BC and it makes me so mad! Why can't they figure this dam disease out so none of us or anyone has to worry about it? Ok that is my vent



I had surgery in August and still can't raise my arm that had lymph nodes removed very much:( I have cording pretty bad so that kind of sucks! It seems to get better some days then seems to go back to same state other days. I try and stretch it a lot so hopefully it will just take time. I need to shave my arm pit but I can't:) I joke w my bf I am going to have longer hair than him. I have to figure this out soon.



My exchange surgery is scheduled for Jan. and I hope that recovery is less than my first one. I almost think hell leave the bricks in I don't want anyone else cutting me open again. But another thing I have to get through to get through this dam journey.



Other then those things life is ...well I guess getting back to some normalcy. I will be done with herceptin in June and I will be taking a trip to Italy to celebrate! Even if I go solo:)



Lots of hugs sent to all!

Michelle

Mcook, yes you need to have some Physio. I am still having it (again) .. Went after my surgery, during rads and now back again. My PT uses acupuncture and that seems to help, along with the deep messaging and exercises.

As for your rant ... You deserve it. There are times that I want to say to people "suck it up" ...

Thanks ladies I was sent to LE clinic but they just gave me at home exercises and I think I need more help. So I will find another place

To pink, or not to pink... that is the question? 

Here is a link for everything that is LE.  Cant remember if I posted this before or if we spoke about it... darn chemo brain.  

http://stepup-speakout.org/

juneau...hope your walk went well - thank you.

for all those I am not addressing (and those I am) ((((hugs)))).   I will go back later today and read all the posts.... my brain at the moment is just not absorbing a thing.

Well I completed the walk, all 3 miles Iof it, although slowly. I haven't done much exercise at all since dx so I am proud that I could walk the whole thing. My daughter's were there ans they would get ahead of me walking faster ans then wait around a corner and cheer me on... Made for an emotional day. You were all there with me.... Now definitely need a nap before dinner.. HUGS to all and may we all grow stronger with each passing day.

Way to go Chrissera! That's fantastic...we are all proud of you!

Ps. Just in Parsippany. nj today; where i walked; was 11,000 people and $790,000 raised.

Chrissera & juneaubug - thank you, thank you, thank you.  congrats girls for all you have done.  Now rest up, you deserve it.

Chrissra and juneaubugg congrats from me too!

Mia1984, more information will come your way soon so you can make informed decisions. As you say you were shcoked, and it takes time for all to start to absorb all that is thrown at us in a hurry. This is a good site to be on and with an incredibly sharing group of women.

Marian

Chrissera and Juneau- Congrats on finishing your walks. I am going to try and make that my goal for next year. I have not had the most energy since all this has started. We are so proud of ya'll

mia- so sorry you are here with us. We understand the shocked and disbelief in this diagnosis. You will receive more information as it goes on. Don't jump to quickly to what you want to do. I had 9 days from the time I went in for all my tests to think it over and speak with my husband and mom. The hardest part is when you are in the surgeons office and they have pen in hand wanting to know what you are wanting to do.  I could tell my family all day long what I was going to do, but as soon as my surgeon asked I broke down and lost it right then and there. Weigh all your options first and make the best decision for YOU. If you chose to do the full mastectomy, you get to look forward to having perky boobs that are built for you, the size and shape you want . I had the BMX and I am so glad that is the way I went and I don't regret it. Hopefully I am just 2 months away from having my permanant emplants put in. Good luck and we are here for you when you need us.

For anyone who has a Kindle there is a free book today called 'Strength Renewed: Meditations for your Journey Through Breast Cancer' - don't know it it's good but it is free to download and it has five starts from those who have reviewed.



Here's the link -

http://www.amazon.com/dp/B008PRGSJ2/?tag=booksontheknob-20

Mia1984; welcome, you're in the right place. You've already got some great advice. Take your time and decide what is right for you once the surgeon provides you all the options. Just remember you will live with the outcome (what your breasts look like) forever. Any road you chose, I now know, is no easier then any other. Each surgical option/treatment option comes with its own pros and cons. Hang in there and feel free to vent here when you need to...we get it! I also have Crohn's disease. It's certainly made my journey more challenging, however the only way through this has been to keep moving forward. I'm sick of additional frustrations but I really have no choice.



Websister; that SUCKS. You had an opportunity to forget about BC for a little while and it got spoiled.



Mrscich; can I tell you... Hot flashes were absolutely the worst part. Be grateful it's not summer anymore; if that helps at all. (((Hugs)))



Mcook; nice to knowing you're getting on with living, but we've missed you.



Has anyone heard from Scorchy?! Scorchy...where are you?

Web sister, I'm on Taxotere and Cyoxan...2nd dose was Friday. Even though I feel crummy now my SE's have been nothing to the borrow stories. I've had no nausea, nail issues, etc. I know it all may still come but I will count my blessings for now. Please don't let the horror stories frighten you. As you know, everyone is different. I hate when people push unwanted advice on me. I've had so many people tell me what I "should be or need to be doing" because they know someone that's had bc. Really? You know someone? I AM SOMEONE WITH IT!!!!! I appreciate the advice but I don't want to to talk with women about their stories unless I damn well want to. I like it here. BCO is the group of women I want to be with. I I don't want to talk, I don't. Same with reading. Thing is, I care tremendously about all of you even though we've never met. You all are my rock and I love you all.



Juneau, thank for saying your hot flashes were as bad. I feel like a freak. By the way, I was wondering where Scorchy has been as well. Anyone hear from her??

Hi all - Look up Scorchy's profile.  She has been posting today on bone mets thread.