2012 sisters
Comments
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Juneaubugg, I lost most of my lashes and brows during AC. I don't mind it so much-- I like to think it makes me look young and innocent. :-) I haven't noticed any more loss now that I'm on Taxol #3.
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Went to the PS today, whatever the hell I have is still there getting somewhat better. After him pushing squeezing on them, he is leaning towards cellulitis. I go back next Wednesday and if its jot better he is going to want me to have a interventional radiologist drain the fluid via sonogram. I am still on antibiotics and probably will be for at least a couple more weeks. My hubby says I don't know how to do anything easy. But that's what he gets for marrying me, he new I wasn't easy when we got together. Hahaha lol
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Chrisrenee - doesn't sound like fun, glad you are able to joke about it with your husband. Hope it continues to improve for you.
MrsCich - thanks for sharing while getting chemo, sounds like good staff; glad the lady who went unconscious was OK
Juneaubug - Glad you are looking forward and making plans. All of you traveling will have to have big pockets so we can share in the experience. I am on similar to AC with 5 FU thrown in and I am definitely losing my eyebrows and eyelashes. Start on the Taxotere and Herceptin on Tuesday, we'll see what happens then.
Ramols - thinking of you, hope you are staying well with sick kids and last AC this week
Wishing all a good weekend -
Soooo, ultrasound shows my tumor grew from 2.5cm after the third round of chemo to 3.6cm after sixth round. I hope you all don't mind while I take a moment to scream.
AAAAAAAHHHHHHHHHHHHH &*^%^!!!!!!!!!
Thank you for listening.
At least the lymph nodes are smaller, and the tumor is about half the size it was at maximum. Got to look at the bright side, right?
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Stride - you have every right to scream. Hugs ((()))
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Scream away girlfriend!
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stride-Sending you hugs! Scream when ever you feel like it!
Tazzy-So glad that you'll be spending some quality time with you family after all this is done!
I had my 1st Herceptin infusion today and it was much better than I thought!
To all the ladies with SEs, hopw you feel better, and BIG HUGS to all!
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Stride: Big Hug!!!!!!!
Take care everyone!!!!
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I'll apologize now for not addressing everyone I wanted to - very long (but successful day) and I'm too tired to see straight. Giving myself a pat on the back after putting in a seriously long day during my good week post AC 4. Got the kids up and ready for school while I let my sick hubby sleep in. Worked the first half of the day from my home office. Then drove 30 minutes away solo (longest driving I've done since this whole stupid ordeal started) and did a presentation for work at an annual conference we always go to. Likely not my best performance - but I did it! Drove back home. Crashed hard for a 20 minute nap before hubby and I fed the kids and sent them off to babysitting night at their pre-k so we could go out to dinner at a local restaurant doing a pink themed event and donating the proceeds to some local BC charities. Kiddies are now in bed and I'm about to go treat myself to a much needed night of sleep. Websister - aside from the remnants of the last cold I never fully kicked - I seem to be staying mostly healthy this time around. The skin on my hands is red, dry, cracking and angry from all the hand-washing, but guess thats better than a full blown cold again! To those of you making travel plans - yeah! We do deserve it. We just booked a 3-day weekend with the kids for my down time after chemo and before I get my squishes. And we keep dreaming of a disney cruise for the family as our treat once I finish up active treatment sometime in the early spring next year. Anyway - just wanted to share my day. Big giant hugs to you all!
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Stride.... Yell it out girlfriend!!!
I for one am pissed that I didn't pay better attention in my LGFB class when they got I to eyebrows and lashes!! Are you ladies serious....?! 7 fucking months before they will start to come back?! Fuck, Fuck, FUCK!!!! This whole ride has SUCKED from beginning to end!!!! FUCK!! I have to go to a brand new job with no hair and now no eyelashes or brows!!! Could I be anymore nervous about first impressions with new colleagues?! Furthermore, turns out I lost the option to return to my old job, and they never even bothered to NOTIFY ME!! I'm sure they would when I called to go back.... (If I WAS GOING BACK!). FUCKERS!!! I'm so fed up! (Can you tell?!). This fucking disease has the desimated my fucking life....! It is just such bullshit to read how we are all struggling and many of us fighting for their life, from this nasty disease.
I walk Sunday, for all of us.... Hopefully i will be able to physically complete the walk. I'll post photos of me in our 2012 Sisters/making strides shirts I had made. You will all be in my pocket!!!!
(Tazzy you misunderstood me. Halloween is my three year anniversary. Can you imagine planning your wedding during this treatment?!) -
Stride -- as others said, feel free to scream away!
Juneaubugg -- That really sucks about your old job. Have a good time at the walk on Sunday...
Me, pain in the BC boob most of the time. It goes from the nipple toward where they took out the sentinel node. I mentioned it to my MO a few weeks back and he checked it along with the three other people, all students, that accompanied him and he didn't think it was anything to worry about but as the days go on, I can't help but worry. I see him before my Taxol treatment next Thursday and plan to get a more definitive answer...all I keep thinking is that the fucking cancer is back.
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Stride that just sucks. So sorry.
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Waking up from day one after second TC infusion. Got a bit of a headache but nothing coffee can't cure. Eventually I will force myself out of bed to take my steroid and anti nausea pill (as a preventative measure), Colase for constipation (thank you chemo and Zofran) drink some green drink to see if it will boost my WBC for labs Friday....then do nothing hopefully until my husband comes home at 130pm. We are supposed to go to a semi-local corn maze that has other fun stuff to do, so I'm gonna try and build up my energy (is that even possible?).
I took a 1mg Xanax and a Melatonin to help me sleep and I was still up at 3 with hot flashes and night sweats. Coldest it's been here in south Mississippi (47 out now) and I sleep half naked with no blanket at timea...but is supposed to get to 80 degrees today.
So sorry to hear about your tumor growing Stride.
I want to go to a LGFB class but the next one isn't until Nov 19!!!! My last treatment is scheduled for Nov 30th as of now. I want to learn how to wear makeup. I've never really worn any and have very sensitive skin. I was hoping to learn a lot. Blah -
Stride (((HUGS)))
Juneau - shit gets so fucked up for us. But I know you'll still look stunning and kick ass with drawn on eyebrows!
Pinky, have you had surgery anywhere else before? I ask because I have had my abdomen open a couple times (ectopic pregnancy ruptured, cesarean) and the area where the incision and damage were always goes through months of twangs and pangs before it gets back to normal. I had a lumpectomy in my right breast and a sentinel node removed in my right armpit. That breast hurts sometimes still, yes. Sometimes it complains sharply, sometimes it's dull but it's not constant with me except the nipple, man, get anywhere near the nipple and I feel it and it HURTS. It is hard not too worry but I figure that chemo is probably making it even harder for that area to heal up, or keeping it happening slowly. Certainly keep mentioning it to your Drs but I just wanted to share that I think it can take a long while for there not to be pain around an incision or two.
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Pinky: Having the same thing with pain in my BC breast, too. My Onc's physician's asst thinks it is scar tissue but my ONC is examining me on Weds before treatment. I keep telling everyone at the doctors office that I am afraid the BC is back and they keep telling me that they don't think it is. Hard to believe them, though, since I heard that 3 times before someone finally diagnosed me with BC.
Juneaubugg: that really sucks. I'm in your pocket this weekend.
Ramols: a Disney cruise sounds fun!
Take care everyone! -
Juneau - sounds like you are having first day job jitters. You will be wonderful, it does suck that they didn't tell you about your old job. Go to this website for info on eyebrows and eyelashes ... And head coverings, she's beautiful and good and in it for the long haul with alopecia.
http://eyelineher.blogspot.ca/
Also, wear lots of pockets so we can be with you as you walk tomorrow.
Pinky - I like allurbaddays advice re: surgery, pain and healing. There could also be something to do with lymph glad removal - may need to do some stretches to help, a PT may be able to advise.
MrsCich - you sound like you are doing so well, you are on top of this chemo stuff now! Have a great afternoon at the corn maze.
Ramols - good to hear from you, you are amazing!
Hope everyone finds at least one thing to make them smile today. Take care. -
Websister-thank you for the link! I've seen a couple of her scarf videos on you tube and having the pics of the makeup application will be really helpful for me today with my gypsy costume.
So today I looked real close and realized I have to shave my legs! Haven't done that in 6 months! No pit hair yet. My head and eye hair is coming back. Not so self conscious walking around without a head covering. At radiation I leave it in the locker. I think that's a good step.
MrsCich have fun today but go slow. I finished my treatment end of July and even now my DH makes me sit if I'm doing too much. Love that man! Fresh air does you good.
Juneau hope your strength is up for tomorrow! You're going to be carrying a lot of your sisters with you!
My daughter does gymnastics and in December there is a meet for Susan G. Komen and the girls will wear pink sparkly leotards with the ribbon. Even though she's not up to the level competing they are letting her do it anyway. I love watching her flip around.
Enjoy your day ladies and NO SE's!
Karen -
Junebug, sounds like you got a bad deal. My eyebrows got so thin years ago that I had to improvise. Never could get the pencil to do it right. I bought a small, hard brush with a tapered point at Walgreens. I paint on eyebrows with the brush using dark brown with a little black mascara powder to paint in new brows.
A braver friend than I had hers tatooed on.
I think my way is easy and works.
If you can manage a smile, they will think you beautiful. Hang in there. Hugs.
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Hi ladies, just popping in quickly. Have been out all morning to a book sale - oh I love books. Our local library at this time of year has a sale and most of their books are $1... for hardbacks too. Cant be bad. I bought 30
Sorry cant address you all.. have scanned through - will catch up later.
Just one thing... juneau - Thought you was superwoman planning a wedding through this shit. More importantly you are a beautiful woman with or without hair etc. Stand tall, bald, beautiful and proud. Who gives a fuck what anyone else thinks - let them go through this shit with the spirit we have. Go get 'em girl. Enjoy Sunday and take your time... wear big pockets cos we're with ya.
love and hugs to all xxxx
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Juneau......when I am worried what people might say or think, my husband always says...."why do you care, do they put food on your table?".
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Juneau- you will do great at your new job. The other company can screw off. I had thought about leaving my job when all this came about. With all the anxiety I was having. I shared it with my Manager and Director and I was told to take as much time as I needed I would always have a job there. It's great to know that they value their longterm employees, I have been there 16 yrs. We will all be there with you when you start and will be waiting for the first day update. Good luck!
Mrscich- my ONC gave me effexor xr for my hot flashes. I take 65 mg each morning. It feels great to not wake up and have to change 5 times a night and have a fan blowing right on me. If you aren't in it you may want to check with your ONC. It might help you too.
Stride- I'm so sorry that your sonogram did not bring back positive news. Scream away, we all need a release. Sometimes I feel like pulling a Malynn from Steal Magnolias at the funeral scene. Just let loose and say what I want.
Websister- yes we have lots of jokes. He makes me comfortable in my skin. After my BMX I wanted to put blankets up over the mirrors in the bathroom and bedroom so I couldn't see my scars. He told me that we were going to face this head on no turning away from it. He's my rock.
I've noticed that I'm shedding my hair again. So I'm going to my stylist to get my hair thinned voluntarily. Why not, better to be prepared rather than shocked.
Hope everyone has a wonderful weekend, take it easy and don't overdo it.
Christy -
Hello all... my family and I are walking Sunday in the making strides walk... you are all with me. There is a lot of chatter about how people feel about "pinktober" and I have my own issues, but how do you tell your daughters not to make pink ribbons for their books, or want to make tshirts for the walk? it would break their hearts cuz they say they do it or buy stuff with ribbons on it forme??
and I need your help... my hubby and I disagree about the term "breast cancer survivor" I am curious... when do you consider yourself a survivor? I think we are all survivors from the moment we were diagnosed??
Thoughts anyone? -
Chrissera.....I totally agree with you.....we are all surviving daily at different stages....surviving surgeries, chemo, rads, SE of anti- hormone meds, emotional issues
etc etc. surviving one day at a time, hopefully with lots of support from family and friends. -
Chrissera- that's a touchy subject. My hubby and I are were very forthcoming with our children. I'm not sure how old your children are but mine were 15 and 10. My daughter (10) was very intrigued about BC after my diagnosis. Since "pinktober" is upon us now she sees all the ribbons for BC around and she sees it as people supporting me and what's going on with me. If you don't want them wearing a ribbon maybe just a pink shirt would do. The more honest you are with the kids the better off they are. Kids don't want to think they are being lied to, you just have to do it at their level.
What my cancer advocate told me when she said I was a survivor and I disagreed was, the moment you found out you started surviving the disease. Very true indeed. We are all survivors whether we want to admit or embrace it. Of course I still think of a survivor being someone who was been cancer free for years. My grandmother is a BC survivor of 47 yrs. I hope you have fun tomorrow walk for all of us! -
I think we all become fighters from the first day of our diagnosis, and then as we start working through our various treatments - we become survivors. I don't think we need to feel like the end of our active treatment is the mark of survivorship. I think the minute treatment begins and we continue on with our lives as best we can - we are survivors. What is a survivor if not someone successfully making their way through an extremely emotional and physical trying event like bc?
To those of you walking tomorrow - go get 'em! I'm super impressed and proud of all of you!
Hoping you're all having a lovely day and are feeling as good as you can. Giant hugs!
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Chrisrenee, my girls are 19 and 16... I let the girlsdo what they need to, because I think it is theirway of dealing with all of this. I am not one to make waves about it. I have too much ofmy own personal crap to deal with... My motto -- to each her own!!
thanks for the survivor comments. My husband said not until your all done and it is over... let's just say I set him straight and put him on the couch for the night. :-) -
When you manage to walk out of the doctor's office after you get your DX you are a survivor. (Even if, like me, you sit in the car and cry before driving yourself back to work) When you wake up the first morning after DX you are a survivor. etc. When you die of something else, you were cured.
As for the pink ribbon stuff, well pink has always been my favorite color. I have lots of pink stuff and I wear it because I like it. I only give my money to organizations that I know do go work. I encorage my friends to do the same. But if someone gives me a gift I accept it graciously, no matter who the bought it from. I do try to do my bit to educate people when the chance is offered.
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Chrissera- I agree about not making waves. My daughter when she has questions she comes to my husband and I. After my diagnosis she had asked me if she would get it because I had it. And if it could come back. What would we do if she got it. My husbands answer on that one was " we would fight it just like we are with mom." My daughter sees all the stuff with pink ribbons on them and thinks we have to buy them all to support me. I tell her that's why me and dad donate to various charities. Now we get to add Susan G komen to our list. Good luck with you walk for you and your family.
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I asked the same question a whole back about being a survivor. One of these wise women on the board said they don't say survivor they say they are currently being treated for breast cancer and that's how I say it.
My 7 year old thinks breast cancer ribbons and everything pink is for me. Everything was breast cancer related and I had to tell her that I do not constantly want to think about breast cancer so I like I not always talk about it. She understood for the most part. -
I'm with Ramols; what she said. We survive each treatment, test, biopsy, medications, radiations...etcs etcs that we go through along this journey. It is never over. We will have appointments with Drs MOs and BSs for follow up for years. The is no end. We ARE SUVIVORS!
I we are ALL WALKING TOGETHER IN SPIRIT AT 10:00am est...... At the making Strides event. Hugs to all I need to get along of sleep.
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