2012 sisters
Comments
-
Crissera, I so relate to wanting to have a conversation about something other than my treatment! It's so tiring. So sorry you're struggling right now. Your body has just been through a trauma and it's very hard to keep your mind from going nuts right now. I find they're so interrelated. When I"m hammered from the chemo my mind just goes nuts, and as my body recovers so does my mind. I hope you'll get some mental relief as the aftereffects of the surgery and anaesthsia wear off. Hugs to you. I echo the other's sentiments, there's no best decision on surgery, you made the best decision you could. I've seen women here report lasting pain and tightness from mx and you may avoid that with lx.
-
chrissera I had seen the research before I first met my breast surgeon. She was recommended by my GP in whom I have a lot of trust. I ask her, If you had this problem, is this whom you would see? She was emphatic. Yes.
The surgeon told me what I had already heard in research reports. There is no difference in life expectancy between those who have lumpectomy and those who have mastectomy. There is a difference in recurrance. I am 75, had a lumpectomy. Unexpected, 2 of 7 lymph nodes were involved so the chemo, and then rads. 9 mos. For me, I am happy and taking my chances. No one knows because every body is different and they are finding the cancers are different.
Just don't worry about it. Even those who have double mas, can have recurrances etc. Hugs
-
I haven't read all of the recent posts but I wanted to share my head shaving story.
My girls loved shaving my head. I'm pretty sure my husband and son did too. First my girls used scissors and then they all took turns using the clippers with a number 8 guard. This morning I went to get my labs (as I do every week) and they went up some but are still low. I go back in Tuesday to get them drawn again and to see my MO. Wenesday I have another surgery to remove the parts of my nipples that are open and raw. He is going to stitch them closed too. I'm not looking forward to another surgery but I am looking forward to not having any open wounds.
After my labs this morning, I went to pick up my wig that I ordered through a local non profit (Pinkheartfunds.org) and the founder of the organization buzzed me to the scalp. We had fun though. I let her shave a cancer ribbon in the back and then a heart on the side. It was fun actually. Then 2 friends and myself played with all the wigs.
It could have been a very hard day for me but it really wasn't. I enjoyed being with my friends and playing with wigs. It may hit me soon but as of now even though I don't like it, I've accepted it. -
MrsCich.....loved your story about the girls..... Sorry about the surgery though....God
we go through so much with this BC .....what kind of wig did you choose? -
Well the one I ordered hadn't come in yet so I played with a bunch of them and chose one that is a little darker than my original hair in a cute cut. The one I ordered is a cute Raquel Welch wig.
-
MrsCich...your story is wonderful - so happy for you that you had a marvellous day out of something that could be really crappy. Good luck with your surgery.
Hugs to all xx
-
Let me know about the Raquel Welch one when you get it, if you don't mind. I'm on Letrozole and have lost half my hair, plus some bald spots so I'm seriously thinking about buying a wig. Someone else suggested a Raquel Welch one for me. I'm sure you're going to,look georgeous.
-
chrissera- Hope you start to feel better soon and that you come to a peace about your lumpectomy decision. I went through the same thoughts myself. Sleep is so crucial to the healing process but its so hard to turn your brain off in the midst of dealing with all of this. Thinking of you.
-
Scottie, from what I hear....Raquel Welch's are top I the line. It's the only one my wig lady will offer. I looked through a catalog and picked one but at the place I went she has a wall full of various wigs you can try on to see if you like it before you order. And here you can get 1 a year for free regardless if you have insurance.
-
MrsCich......thank you for the info..... will certainly be looking into them.
-
NYBubbles, The Hanes sports bras are pretty stretchy and not as hard to get on as, say, my Champion brand sports bra. I'd say they are only light compression, like a tube top? I only had a lumpectomy so I assume my stretching range of my arms and boobs and all is better for doing the bra over the head. I'm not certain I'll want to wear the Hanes' during radiation so I'm interested in the Genie.
Scorchy, I lol'd at "sworn enemies at work", hehehe...
Cheers everyone, I hope the SEs and TEs aren't bad and that there are NO lymphedema or cording issues today!
-
Scorchy, I lol'd at "sworn enemies at work", hehehe...
Allur, what I find funny about it all is that we do spar--big time. Pain the ass. But when I got diagnosed she stopped. I mean, how can you attack someone with cancer?! She's got a heart, but I know she wants me to get better so that we can fight again.
-
Thanks everyone for the support and kind words. Feeling a little better today, haven't cried yet. :-) and did some retail therapythis morning, that always helps.
i bought some of the fruit of thr loom sports bras and can pull them on over my hips but have an issue getting my arms in. and the adjustable straps in the racer back part are very uncomfortable for sleeping. I have some other brand that are not adjustable. They are better for sleeping. I bought a zipper front sports bra from JCPenny that fits well and is pretty comfortable. That is my favorite so far.
HUGS to all. and thanks for being there to listen... couldn't get through this without you!!! -
I wore the zipper-front sport bra from JCPenny after my lx. It was great! If I'd known ahead of time I'd need to wear it for two weeks, I would have bought two. My surgeon said the majority of her patients got their drains out at the one-week checkup, so I just got one. Of course, I had my drain for nearly two, lol.
I'm very grumpy today. I don't know for sure why, but probably a combination of things. I haven't been sleeping very well. The weather has turned cool and rainy. After three weeks of not being hungry ever, I'm suddenly hungry all the time. (When I wasn't feeling hunger, I still ate small, balanced meals, but lost ten pounds. I dot want to gain it back so I'm eating the same small amounts... And being hungry all the time. Hopefully it will pass soon.) Also, my husband is being super clingy and it's making me crazy. I'm pretty sure I can make dinner without him standing in the door to the kitchen staring at me!
Grrrrrr. -
Cottontail... I hear your pain. Last couple of days I feel as if I've lost my mojo... dont feel sad, dont feel happy, dont really feel anything.... just here? I was blaming it on the weather turning cooler and cloudy.
You made me chuckle about your DH. Dont you love the way they do that sometimes... and I catch mine just looking at me. Mine asked me last night if I was in a good head space with where I was in my treatment, was I feeling OK? What F*&KING choice do I have I said... then I felt immediately bad for having a go at him like that.... so gave him a big hug and said I was OK. Guess its better than them ignoring our feelings ??
Hope you get out of your slump cottontail.... I have just put some good ol' 70's funk on and will do my vacuuming and dusting to that... maybe that will help
-
Rainy Sat. here in Vancouver and am getting organized for next week.
Friday was a big day for phones calls and planning. First call was from BCCA (Vancouver Cancer Agency) with an appt. Monday at 0745 for a PET scan. Big surprise as MO indicated it would not give us any more info on 7 mm lesion on lung which showed up on CT scan which was to be repeated in 3 months. Next, call from my MO. I ran into her Thurs. as I was heading into chemo teach and had just enough time (she knew I had called on Wed. with questions) to rip out the page in my notebook with the questions and hand it to her. So she called with the answers and was really good about all of them. PET scan ordered to reassure me (I figured as much) but she said also to give a baseline for the future. Onctotype tests not done here and same for Ki67. Well she did not really say not done, but of no value in my case and I do understand that. With my pathology it is not relevent; I need everything!
On my list of questions was Adjuvantonline and my MO read right from the computer what my recurrence will be based on my age (and she put in very healthy 63 y/o female) and pathology. I am high risk and the numbers are not so exciting but I am a person who likes/needs to know all and for me, it helps that I know what I am about to battle with chemo, more surgery, radiation and reconstruction.
So, PET scan in AM, 2:30 PM chemo starts and Tues. I go to "Look good feel better" and also get my first Neupogen injection. We will celebrate our 29th anniversary in between. I figure that we will save fun celebrations for the 30th when hopefully I am done with everything.
liefie, I just got headcovers.com from halfcan in Abottsford and that is on my list for today too. I have put it off long enough! If anyone wants to post/repost headcover sites please do.
Marian
-
Tazzy, I hope you get out of your slump soon, too.
-
Hugs back at ya cottontail. I dont do good with being in a slump. Am going out with DH tonight over to friends for dinner - sure that a glass of wine, good company and some laughs will help. I will make sure it does actually. Tomorrow I will spend time in my greenhouse - rain forecast for most of the day - that's always good therapy for me.
-
Tazzy.....go and enjoy yourself and try to get out of that slump....it's hard sometimes, but I know your character.....you can do it💪
-
Marian, best wishes for the chemo on Monday. Let us know how it went. The Pet scan for a baseline interests me too, because I'm wondering what follow-up tests/scans are planned for me if any. Will be asking my onc when I talk to him next time, because he has not said anything about that yet. Yep, rainy weather here too, but we've had an amazing summer with no rain from June till now. Guess it's time! I got about 8 different things from headcovers.com, and I was very satisfied with my purchase from them.
Tazzy, you have the best therapy for feeling down. Nothing like your favourite music to cheer you up. Works for me every time.
Cottontail, hope you will be feeling better soon. Lack of sleep changes me into a monster, so you have all my sympathy there. Maybe take something so you can get one good night's sleep. It makes a huge difference. I also hear you about being hungry all the time. The cooler weather does not help either, and it is so hard to stay away from food when you want to nibble all the time like me . . . I'm wondering if it is the Tamoxifen that I started a while ago, but I don't want to use that as an excuse.
-
I have decided that I can analyze, justify and try to organize all these thoughts and feelings swimming around in my head; and today, just today, I'm just to exhausted from this whole long ordeal to give a shit. Fuck my friends who can't deal with MY illness (shit their fine after all), screw the chemo drugs that are saving/extending my life but making me feel like a visitor in my own body, and HOLD ON for the new normal that will come back into my life eventually: because the old one I loved before this began... That life is gone. ***sigh***
Back to sleep for me. -
Juneau- you will find other friends that will be very supportive. The ones that can't handle our world don't need to be there. I do hope you feel better.
Tazzy- a nice dinner and drinks with friends is always a good way to cheer up. My hubby took me out tonight for dinner and movie for our 11 yr anniversary. It's always good just to have him to myself for a just a bit. I do hope you get out of your slump.
Cottontail- I wore just regular sports bras for the first 3 weeks. I had my drains for almost a month( stupid damn things, talk about sworn enemies) I just recently bought a little cheapie bra just to get out of the surgical bra they put on me after surgery.
Marianne- good luck Monday with chemo will pray for no SE's. -
Juneaubug.....I let friends and family members go that could not deal with my new world.
Let them go!!!!!!! We need people around us that will listen, support and generally be there if we need them. You are a lovely young woman and will find other friends who will give you that support. I say, let them go, because keeping them causes too much stress, which we sure don't need any more us. -
Juneau, I was talking about one friend last night ... And that I will not feel guilty for not calling her. If I look back at our friendship and it is 40 years, it has always been one sided. Look at those you are losing now, we're they really 2 ways or did you always carry them. That will make it easier. I cannot and will not carry this friend anymore. It is about ME now. Good luck and hugs. You deserve to surround yourself with caring and thoughtful people.
Joanne -
Re: sleep caps. This site has some woven items that don't have seams except maybe right on the top: http://www.hatsscarvesandmore.com/mm5/merchant.mvc?Screen=CTGY&Store_Code=HSAM&Category_Code=womens-sleep-caps
I have the roller beanie already and it is a knit cotton hat like a light sweater, not T-shirt (jersey) weave. I can't exactly explain it because I don't know "knits" that well. I wouldn't recommend it for sleep but I' thinking of getting the Itsy Bitsy Ribbon Beanie which looks to be woven. I also have the linen military cap from that place and it's one of my favorite hats to wear.
-
Joanne....I'm with you.....It caused me too much stress and sadness and now that I have let them go, and have forced myself NOT to think about them, I do feel better. You're
Right, it's all about us at the moment and if these people can't help us in our healing,
let them go!!!!!!!
PS. How are you????? -
Music is a wonderful therapy... lifted my spirit yesterday. Today I am not so much in a slump anymore... just no mojo going... so as it is windy and cold outside I am going to laze and watch movies. Thanks everyone for your kind words. Funny how these slumps just happen eh?
How are you today cottontail?
Juneau: They were obviously not real friends before your fc. I hope you manage to keep the attitude you have - fuck ‘em... this is about you. And you need to surround yourself with caring, loving supportive friends.
Chrisrenee... a happy belated 11th anniversary.
Hoping you are all managing to enjoy your Sunday with people you love.
Tomorrow back at rads... someone on these boards likened rads to Groundhog Day. Cannot remember who and that is down to chemo brain, but really love that analogy. -
Rads does eventually end, and very soon it will fade to the back of your mind. I remember setup, I remember the day the techs didn't keep good enough track of Trooper and he charged back in before TX was done and shut down all the machines. I remember a couple other conversations I had with the nurses and techs, but really maybe 6 days out of 6+ weeks? It's all just a blur and I hope it's a fuzzy memory for you soon Tazzy.
Beautiful fall day here in the Black Hills. I'd love to share it wth you all.
-
Tazzy, I'm glad you're feeling a bit better. I'm still grumpy as hell. I use music as therapy, too, but most of what I like is not very uplifting, lol. (Hey, the nineties were my formative years for music, I can't help it!
)
I will be happy when my hair is long enough for me to lose the 'cancer hat' and people stop asking me if I'm "in treatment." I've been polite so far, but the next stranger who asks me that better hope I'm in a good mood and I ONLY reply by asking them if they're in treatment for not knowing how to mind their own damn business. I don't understand why people think it's acceptable to ask complete strangers about their health. They can fuck right off. -
I'm hoping everyone had a good weekend. Mine was fabulous and helped lift my spirits. We stayed in on Friday and relaxed and watched a movie (a rare treat!), Saturday I went to a huge fall festival with my BFF and today was church, lunch with friends and then skeet shooting with friends and family, followed by an 18th birthday party for my nephew. All in all a great weekend.
Tomorrow I'm back to rad tx #21....with only 2.5 weeks to go. I have devoted the last 10 months of my life to fighting BC and I'm am finally starting to see the light at the end of the tunnel. I have a lot of odd, unexplainable emotions going on in my head right now.
My skin is starting to fry even though I have been carefully taking care of it. I'm a little worried about what the next 2.5 weeks will do to my skin!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team