Fuzzy's Romp Room
Comments
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Ducky you and your son are in my thoughts.
Veggy sorry u had a rotten day hope you can find something to feel good about, either way you have us.
Lauren know what you mean with the tamoxifen. Some days i just keep crying and cant stop. All i want to do is sleep, or at the very least just sit here like a lump i'm so tired. And i am still trying to do my regular job.. heres hoping it gets better.
Hope evryone has some good plans for the long weekend. As for me i'll be working. -
Thanks ladies...................
Fuzzy.............shitty day here too......shitty month actually....shore ended early, and took the "gusto" out of the end of the summer.............my daughter is going tomorrow.......my college grandsons are playing their first football game.......would like to go to both places.............daughter said "Mom, go to the game if you want, we're only going down Saturday morning, and coming up Sunday evening to avoid the Labor Day traffic........so i could opt out of the shore......................now what does that mean.............................it means being alone all day Sunday if I decide to not go to the shore, which is the day of my husband's death.......................not a fun time to be alone..................what do I do........sit and feel sorry for myself...............or wait for an invite, that might not come..................of course Labor Day won't be any different cause we will be home then too...........................and its suppose to be a rainy afternoon.........just what you need to remind you that......................sometimes "life sucks".
Oh well, have to make a decision............sometimes I hate my life...................
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Ginger I have optic migraines too. ---without the headache. They can be so cool. I describe it as looking thru aprism with bright light behind it, with water falling over it. Can be quite beautiful. They wanted to put me on meds for it--INDERAL. 1988. I asked if it would be necessary--change frequency ofoptic migraines--would reduce incidence, I already knew what inderal would do as a Beta Blocker. Said no thanks I'll just enjoy the visuals. Did learn to stop driving when one started and wouldn't prepare or pass meds. 20 minutes almost to the second from start to finish. Considered the AURA for standard migraines that have the range of headhes with it. Found it in a medical text in 1988---first described by father& son that had the same Aura. They did this in 1850. Picture in the text was identical as to what mine was. Cool
GGthose horses are beautiful, thanks for sharing, Clydesdales are gorgeous, but these ar breathtaking.
mama V-----all sounds happy on the homefront:) YAY
Essa love you the bird still scares me---but way okay that's who you want to be right now. "Crunch, and just try to mess with me babe"---From that prospective Yay bird.
Crog so glad to see you--hope all is continuing to improve with walking. We love you , no matter what the time has been
Sommer -shit ,best on recovery, keep us uptodate. are shoulders are here for support
Nancy Love and hugs
Fuzzy---make the phone work, cuz . Stopped on the way home from shats run. gave a gal name and # for "play dates."
Rider hang in there girl we are all in your pocket--------
Dunes okay metal --lungs/large intestine-------breathing what and pooping what? LOL Make up your own words to that. Not denigrating. I set my house up according to Feng Shui. Was buying wine for the week-end--saw a label. FU-Ki---swear to my foot, available in plum or suki. Almost bought it for the label.
To all when trying to catch up. Start at top off page---if you want to write a note, start or complete the note on the bottom of that same page. Read next entry do the same. Then submit and go to the next page. You then don't have to remember. it's done you already wrote the note you wanted too. So, you may have multiple entries that follow on the next page, we all get memory loss. See ya'll next page
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Essa and Dunes--what is scientifically neat is acupuncture is HOW OlD in chinese medicine. Since you both have the books you will be able to say an exact time. But I'll jump and say>1500 years. Western medicine nullified everything that got us here. If humans hadn't learned how to survive, we would have died out a very long time ago. What has been surmised is that early humans survived b/c they watched what animals ate. Then the cultivation stage. Healers used herbs and roots to heal. Too much has been lost about early healing elements b/c of arrogance. The introduction of Penicillin was created to the 1930's and_________(?). I have a folk medicine book that describes from the USA civil war "That those soldiers that had bread applied to the wound that had blue-green mold did not develop infections" DUH PCN.
Have a recipe for sore throat--that everyone thought was Grandmas--found it in this same folk med. book. That now is about 180y/o. If it got written down then, who knows what the oral history on it is? Back to Superbugs, had the orthodox medical establishment not discounted local healers, would we be in the mess we are in now. Frankly, I don't think so. We had a good thing going with the refinement of antibx therapy--the system just didn't use it in a thinking manner which goes back to arrogance. Which if you read about the number of cancers in the last century with our exposure and antecendants exposure to chemicals---duh. breaks in genetics. Now we are the reciepents of arrogance that coincided with lack of respect for the thought that new is not always better.
Then there is Lister---who advocated washing hands before surgery----well back to square one.
Essa---not to be able to go out without a shotgun------hmmmm Well sounds like Detroit city in the 60's--being an ass. We didn't have guns, but went through several riots. The fear is there. Can't leave a close area. Hearing gunshots. Seeing flames. Polarization, except it was human against human versus animal against human. I think I'd rather live with coyotes.
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SAS. Thanks.... I am doing ok. Went to my surgeon. Couple of weeks ago and he said the bypasses look good (they did anultra sound) but it looks like there is some scar tissue.. So on September 28th I will be having another angiogram so he can see what is going on. Always something.
Cindy -
crog - hi!!! Good to "see" you!
ducky - prayers for Vincent!
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Ginger thanks about Marybe------we can make a change-----or follow what is----most hospitals have a way of sending greetings to patients through computer. Our problem is we have screen names for a reason --anonimity. But those that know the reason for anonimity can help----it's our mods. We can ask them to develop a system that those that want to maintain anonimity can send greetings of health and recovery. Extra work on their part. BUT gives us a way to communicate to a member that the community is with them. It's doable, you have the place. Ergo, insider knowledge to something i.e a full name, but even if a full name isn't available. The screen name can still get it through. The patient declares communications received through BCO be sent. It may be that all communications go to one i.e Ginger, then forwarded to Marybe. Once the process is set up----should be a snap. Talk about support, talk about love, talk about community in action. This message will be C&P'd to the mods. We will await their reply.
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Fuzzy, I believe I remember the school throwing out the 3000 year old figure. Let me see when the Yellow Emperor lived. Much of the information was compiled during his time. Tradition holds that he reigned from 2697-2597 or 2696-2598 BC.
I got phone calls from the plastic surgeon's office and the hospital, so it appears everything is a go for Tuesday - very ... early ... Tuesday. LOL. I look forward to being rid of this tissue expander, even though I am grateful that it really gave me no real trouble. It is just very uncomfortable. Maybe I'll start to feel normal again after this surgery. Nah. I wouldn't count on that. We are forever changed. Well, I believe I am forever changed. I do need to get a grip on myself though. Sometimes I act damned luney, and not in a good way. ;>)
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Oh. I finished Chapter 4 in my computer repair book. No easy task. I also cleaned off my desk. I'm betting the desk got cleaned just so I could get away from that book. LOL
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Sent message above with several recommendations how to make it work. Once set up should be no problem to do. It just needs us to follow up and keep asking.
Ginger send love and hugs to Marybe ---she has been along time member and supporter of BCO and there for newbies. Blessings for her
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Marybe in my thoughts and best wishes
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Nancy...you deserve a lovely long break!!! Are you planning to go anywhere? How is SKK? I Have never heard of Day Companions...what do they do? You were right about DD...and I hope it gets better from here...now, how are you sweetie?
Sassy...I'm with ya on the arrogance thing. Add big business and government to that and presto!! Our healthcare system as we know it.
Dunes...oh it'll be so nice to have that expander out!! I'm so jealous!! But, in your pocket and thrilled for ya! Computer repair book? OMG. I wouldn't get past the cover without going crosseyed! LOL
Crog...in your pocket too! Those angioplasties are a trip. Where are the doing it at?
Ducky...I'm sorry about your day and the weight on your heart this weeekend. Did you decide what you'll do? Big hugs for you. There isn't a normal...its just gone. I've resorted to "winging it" and even that's Fd up.
Veggy...how you doin'? Kinda scared me with your Walkabout...
oh crap...I think I just erased part of this post. Gr....
DD PPMadonna called me tonight to thank me for coming up and some other small talk. It almost felt normal except my heart is still smashed. I hope this is a start to fixing this mess. I feel very betrayed and deeply saddened...even now. I can't explain MH to her...or anyone for that matter. It hurts and its embarrassing and just too complicated. My oldest is home for the weekend so I will just try to focus on that...
Hot Flashes...oh man oh man. Who named them "flashes"??? Obviously a man or someone who has never had one. More like Hot Tsunamis. Or Hot 5K's...Hot Sessions....anything but a "flash".
Well, I can't see this entire post until after I submit...but I hope everyone sleeps well tonight! I have some light lavender candles lit throughout the RR, set flasks of brandy in each of your rooms, I'll keep warm milk on the stove, and I'll begin setting up for MidNight Margaritas...
Special, Leahlee, Gracie, GG, Granny, Lauren...everyone...just sending out some love: ) -
To all this thread was started by Renasaus(sic). it was considered by the mods to be so important that it isn't just a thread it's a forum----hot flashes.
http://community.breastcancer.org/forum/78/topic/770796?page=1
i was very active on it till brain tumor showed it was growing-----that's effectively 11 months ago. I suggest reading the pages till I dropped out. The group was actively seeking answers. Most since then have been people that didn't read from the beginninng. Therefore, repeating many of the same questions and solutions. All after was much of the same.
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posted on another thread Friday night vodlka and tonic- and angry
A minute ago, edited a few seconds ago by sas-schatzi
The worst thing in the USA medical research history was the limits put upon stem cell research. We have the greatest research capabilities of the world, the greatest application skills--yet it could be turned off by one person. Our President. Set us back by years, b/c he had a a belief. Clucik'em. Stem cell research is the future. IT IS THE BEGIINING OF THE END TO DISEASES THAT CAN BE CONTROLLED. Science research should not be controlled or limited by the government----or one person---the second George will go down in history as being really stupid about this one question, not withstanding the war. But his stupidity about limiting scientific research just was stupid
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Fuzz.........going to the shore...........will leave in about 1 hour with my daughter, and her husband..........I love this man......he is the kindess, sweetest man, that was ever born........I have wonderful sons, but I always say "when the made Kevin, they broke the mold".................He is just an amazing man..........
We will be coming back tomorrow night to avoid the traffic on Monday, and they are calling for rain in South Jersey in the afternoon, so why not just go on Sunday.............I'm just glad I won't be spending Sept. 2nd alone.....this is a horrible time for me, even after 21 years of not having my husband it still hurts around this time............he died on Labor Day, 1991., back then it fell on Sept. 2nd...
I hope you have a good Labor Day too Fuzzy, and like I always say...............It is, what it is, and what doesn't kill you just makes you stronger........................hugs
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I have been up since 4:30 am..........went to bed at 12 am...............got up to go to the bathroom, and could not go back to sleep.................had to get up early for the shore, but not that time....................alarm was set for 6:30...........well it gave me time to catch up....................
Vincent leaves today..........I will text him a little later...........I just hope he does ok................actually I think he is probably on his way already ................check in is 12pm, and he has to drive to Providence, RI, from the Philly suburbs................his Dad is driving him......................long ride, and my son drives like a "nut"...........so I hope he gets there in one piece, and my son back home the same way ...............he is horrible behind the wheel..................................ok, ladies, talk to you when I come back tomorrow night...............thank God for you all...............don't know what I would do without you...............you all are my "spark", when everything gets dark..................keep on keeping on.......love you all
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Ducky I hope you have a lovely day at the shore. You are wise to hold onto Vincents gift, he is in the prayers of many here. Hugs Ginger
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Ducky, your DH must have been a crazy level of awesome. You're love for him is still shining so bright. Big bear hug sister...
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Love right back at ya Fuzzy! I've been trying to read through all the posts....got tuckered out at about page 12...so just gonna jump in at the end.
Sas - nice to see you too. Love that there's a nurse who can be my go-to girl! Thanks for all you do around here.
Ridergirl - nice to meet you. Another pamidronate sister....they're hard to find. Only in Canada eh?
Fuzzy, hope you're feeling better. Your daughter will wise up....trust me. That self-involved, entitled thingy only lasts so long. Take all the love and understanding you need from everybody else in the meantime.
Hugs to all who need them.
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Fuzzy - I wish you were shopping with me today. I was waiting for a parking space to open up when two idiot girls in a hug SUV pulled up behind me and kept honking the horn. I stayed put and let them honk. It was a good space, close to the store. They finally got the point and backed up. I thought if you were there with me , we could have done some major b**** slapping. How therapeutic that would have been. Thinking of you!!!!!
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Gracie - MUAH MUAH MUAH!
Nancy - PM back at cha love!
Veggy - oh hell ya!!!!!!! Them bitches would have woke up next week!!! How dare they! And, I've got some serious anger issues LOL! I'm so proud you held your ground!!! Are we twins??
BLTs for lunch today....with Turkey Bacon....who's with me? -
Remember that movie scene where the girls in the new VW steal a parking space from Kathy Bates and call her old or something? She responds that she has more money and better insiurance and proceeds to pulverize their car with her big old car. I LOVED that scene.
Ginger
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Fuzzy -BLT's yum!!! I have't had my lunch yet.
Ginger-I remember that movie. I can't remember the name of it. I would have needed a tank to damage their SUV. My car is tiny compared to theirs.
I got the prescription filled for sleeping pills that the oncologist prescribed. She gave me thirty. I read the insert and I am only to be on them for 7-10 days. I am really starting to believe that she is trying to kill me or make me some kind of addict. -
Fried Green Tomatoes?
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Nancy...(((hugshugshugs)))...please tell me you giggled a little too...at least at the nut kicking? LOL makes me giggle!
Veggy...my Oncologist walks on water in my world but...he gave me meds that interact with Tamoxifen. A pharmacist should be able to help you with which ones go with which ones...but, I had a medicine management doc and it took him 2.5 hours to figure my drug mess out. So, with the whack job you're dealing with...you Might want to check it out. There's an android app for drug references too that's really good...starts With an E...if you really want it, just let me know. Epocrates? I think?
Marybe seems to be improving!!! Man, she's a tough cookie. I followed her thread but never posted, until late. It was great to read that its looking up.
Oh I can cook good Bacon...the family likes the real stuff. I don't brag about much of anything, but when it comes to cooking meat...I got this. I cook it by smell more than anything. I don't eat it so I think I'm more sensitive that way. Weird I know...LOL. Try it sometime! You can actually "smell" how well done a steak is...or how rare.... -
LOL @ the meds thing. The hospital wanted me to make a list of my medications. I asked them if they wanted my supplements too. They said they did. They won't know what to do with that list. hehehehehe
Oh God! I should have gone to church this evening. Instead I took a xanax. I was so bored and wound up at the same time. Too much studying. Of course, I took frequent breaks to clean the house and even cut up vegetables. It's amazing the things I will do to avoid doing the thing I am supposed to do. At least it was productive.
I really wanted to drink some beer, but that would have just made me want to smoke . . . obsessively. So, green tea. Lots of green tea.
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****waving at everyone, flying thru on my broom******. Y'all have a good night, and though I don't eat meat, that BLT sure did sound good...
I'll come chat when I'm in a better frame of mind.
Peace all -
Just popped in to.check on evrybody. Hope everyone is doing at lleast one fun thing this weekend. And now ...i want bacon!!!! lol
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Ginger and all-- Melissa will be taking the suggestion about contacting members to the staff meeting tuesday. She sounded very upbeat in her response. IOutlined how hospital portals already exist. etc. So, may be we can get something going. Will keep you aware of mods response.
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Gracie nice to meet you too. Yes we seem to be a pretty rare breed although i believe its also called Aredia and i have seen a couple others on that. Zometa seems much more common but is not covered by OHIP.
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