Calling all TNs

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  • borntosurvive
    borntosurvive Member Posts: 213
    edited August 2012

    HAPPY ANNIVERSARY TIFJ!!!!!!  And what an amazing bunch of ladies.  They're so thoughtful. 

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  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited August 2012

    Congratulations, TIFJ!!!!  And I agree - that was a lovely thing your co-workers did for you today!

    (((Hope))) - wishing you an easy time with this new chemo regime, and sending lots of hope that it does the job for you!

    (((Inmate))) - missing you!

     Hi Kathy!  Has your mom recovered from your junket to Foxwoods? 

    I have been in Atlantic City for a few days. Tomorrow we leave here and head straight to Dana Farber for my 2:30 appointment - it's "Day 1" of my clinical trial.   I am anxious to get going - leaving this beast untreated for any length of time is scary as hell! 

    Sending hugs to everyone and wishing all of us Americans a good holiday weekend!  At least I don't think Labor Day is the same anywhere else Tongue out

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  • the5owens
    the5owens Member Posts: 99
    edited August 2012

    First of all I just want to say that CANCER sucks!! Just when I think I am in a good spot with everything it all changes! My emotions are all over the map and today I am angry. I am mad that I have cancer!! I am mad at the world and everyone in it!! I know that sounds stupid and childish but I can't even contain it today! I find myself snapping at my hubby and kids and God knows that this is not their fault. I am not going to ask the stupid question "why me?" because the true question would be WHY ANYONE? Doesn't God know I have 3 kids who need me to be strong and be in their lives?? I am just at the beginning of all of this and haven't even started treatment yet!! I don't feel good today and am so tired I can hardly keep my eyes open and once again haven't even had any treatments. And if one more person tells me everything will be alright I might punch them in the face!! I know they mean well but please don't tell me it will be alright when no one knows for sure that I will win this battle! I have retired to my bedroom for the night because I am not fit company for anyone even myself!! I am having a pity party and I feel guilty about that too!! I feel so weak for having these feelings!! So, tomorrow is a new day and I hope I wake up with a better attitude!! God forgive me for being such a brat!! And forgive me because I know there are many on here way worse off than me...but I needed to vent and can't anywhere else or I just get the dreaded "it'll be alright" answer!! FC

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited August 2012

    Congratulations Tif and 5 owens (((hugs)))

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  • onvacation
    onvacation Member Posts: 1,344
    edited August 2012

    5owens - vent away!  ((((hugs)))

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    (((((5owens))))))... pity party ?  I'll bring chocolate.

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited August 2012

    YAY Tif---congrats

    5owens--oh the dreaded, but, oh so normal pity party...Put on a party dress cuz I'll bring the wine to go with Tazzy's chocolate.  We get it.  Poor folks on the "outside" just can't.

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  • bak94
    bak94 Member Posts: 1,846
    edited August 2012

    Congrats Tif!!!!!!!! So happy for you, keep it going!

    the5Owens-Oh how we all soooooo understand! There will be better days, I can attest to that! Just go hide in your room and cry your eyes out. That is what is ok, to feel your emotions, don't ignore them. If you want to be pissed, go right ahead! Be angry! This all sucks so much, and it is not right that so many are suffering. I am also going through an angry stage. Not so much angry that I got cancer, but why does anybody get it? Why do we lose so many we love from this dreadful disease? Why do people have to feel like crap? It is just not right:( Sorry to barge in on your vent!

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  • borntosurvive
    borntosurvive Member Posts: 213
    edited August 2012

    Luvring:  We have labour day here in Canada :)

    5owens:  Pity party until your hearts content.  We'll all show up with whatever you need, or just sit outside your door for when you're ready for company.  We get it.  I have 2 little boys and they were the bravest kids during my treatment.  They are the best motivators to keep fighting but also the scariest reminders of "what if".  I wish you a good nights sleep and I hope you feel better tomorrow (((((((((((((((hugs!!!!)))))))))))))))))

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  • mags20487
    mags20487 Member Posts: 1,591
    edited August 2012

    5owens...believe me darling we get it...vent, rant and have that tantrum girl...get it out.  Once you tx starts you will be in warrior mode.  cyber {{{HUGS}}} to you.  we are here holding you in our arms

    TifJ...2 yrs WOOT WOOT...my doc says 2 is such a magical number for us TN gals...congrats.  Sending a piece of homemade chocolate cake your way!

    Missin my boobies Maggie tonight

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  • mags20487
    mags20487 Member Posts: 1,591
    edited August 2012

    5owens...believe me darling we get it...vent, rant and have that tantrum girl...get it out.  Once you tx starts you will be in warrior mode.  cyber {{{HUGS}}} to you.  we are here holding you in our arms

    TifJ...2 yrs WOOT WOOT...my doc says 2 is such a magical number for us TN gals...congrats.  Sending a piece of homemade chocolate cake your way!

    Missin my boobies Maggie tonight

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  • mags20487
    mags20487 Member Posts: 1,591
    edited August 2012

    double post ...sorry

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited August 2012

    Lovely, you have taken the first step by talking here about how you feel.

    Bak, I can set up a facebook group that wiould be private and secret only members on it will be able to use it and see posts.

    I will pm you my email address 

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  • Yodie
    Yodie Member Posts: 13
    edited August 2012

    Hi ladies! I'm hoping I'm not #13!!! I was diagnosed with TNBC 3 months after my 50th birthday, 8/11. Happy birthday to me! Had mammograms every year for at least 10 because I had dense breast tissue, which docs years ago referred to as "lumpy breasts". At my annual appointment, 3/11, no lumps. July 2011, I felt the lump, about an inch around. So, very aggressive (grade III). Lumpectomy 9/11; chemo (TAC regimen/6 rounds every third week) September 2011-January 2012. I had a procedure called "direct-to-implant" February 2012. All in one double mastectomy and implants. One surgery and no lousy expanders! I've been very pleased. I'm fortunate to work in a research hospital and my oncologist is a well known researcher on TNBC. I'm in a Metformin study. Have you heard about this? There's strong evidence of a link between TN recurrence and glucose, which is why some people say cancer cells like sugar. Have you heard of this? Unfortunately, it hasn't stopped me from eating chocolate and drinking wine!!! Speaking of which, I know drinking wine is often discouraged for BC patients, but I thought it was targeted for estrogen+ BC. Does that mean it's ok for us TN Girls to have our wine? I'm hoping that's the case! My question is, are any of you on a special diet? I keep thinking I should start eating tree bark or something, but haven't gotten serious about it. What about black fungus? I fear no one would want to be around me a few hours after meals, if I ate it, however, if it will increase my chances of no recurrence, I'll do it! Happy to be a part of The TNBC Blog Sisters! Have a great holiday weekend!

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  • Yodie
    Yodie Member Posts: 13
    edited August 2012

    Also want to mention, I have found the LiveSTRONG website very helpful with information on black fungus, curcumin (great for Chemo Brain!), and other food/supplement info.

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited August 2012

    Ladies ---This one is for Yodie and Titan and anybody else who likes their wine!!!  A new kind of handbag...

       

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  • Sandlake
    Sandlake Member Posts: 211
    edited August 2012

    Cocker ~ This is the perfect handbag, I love my wine too!

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  • mags20487
    mags20487 Member Posts: 1,591
    edited August 2012

    Yodie...bottoms up!  You will find many a wine lover (aka wino) here on this thread...myself included.  As far as diet...I have come to the conclusion that I am going to enjoy life and eat what I want.  So many women have lived "clean" and still got cancer so makes me wonder if it is all just a crap shoot.  Do what makes you feel good--be that a special diet or a free for all--LOL! and welcome to the TNBC thread...be sure to check out www.tnbcfoundation.org also..lots of good stuff there just for TN's

    Maggie

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited August 2012

    Yodie, I couldn't agree more with what Mags said.  You have to do what feels best for YOU!.  I do think that living a fairly healthy life style helped me get through treatment with minimal SE but I don't think that it could have prevented me from getting BC.  And after tx I have made better choices to decrease my sugar intake but continue to enjoy a good cocktail whenever I feel like it.  Ice cold beer on a hot summer day, a dirty martini with a steak dinner or a glass or two of wine with the gal pals is a good way to enjoy life!  But that is what works for ME. I do not take supplements except for calcium and do worry about some of the claims that are made about some of the "natural" treatments.  The more time that goes by, the more I am convinced that BC is a crap shot.  So many are dx with less severe stats and go on to recur and then there are the gals who have scarry numbers right out of the gate and go on to live long lives.  I am not saying toss healthy habits in the trash bin, but just saying that trying to find a balance and live life and do what makes you happy and comfortable.

    Edit to add:  Love that handbag!

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  • Titan
    Titan Member Posts: 2,956
    edited August 2012

    Hey Mags..watch it with the "wino"  comment...but seriously doesn't wino sound better than "drunk"?

    Like the purse but wondering why we need a glass...

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  • Yodie
    Yodie Member Posts: 13
    edited August 2012

    Love the bag! Love the comments! Love you gals! So! Since you had such great advice on diet, etc, what's the scoop on getting rid of these horrid hot flashes and night sweats?!? Driving me nuts! Can't take estrogen. And, anybody else having arthritis issues now that chemo is over (I'm 7mos out)? I feel like a 90yr old when I get out of bed and off a chair. Feet hurt, in particular. I don't let it stop me from exercising, however, it does impact how fast I move and, I'm typically a hyper Type A.

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  • Yodie
    Yodie Member Posts: 13
    edited August 2012

    Also forgot to mention, my oncologist said to take a baby aspirin and Ibuprofin everyday, to decrease inflammation. Something easy to do and fairly harmless, unless you have platelet issues!

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited August 2012
    I love my red wine.  Anyway, grapes are fruit
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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited August 2012
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  • borntosurvive
    borntosurvive Member Posts: 213
    edited August 2012

    I am right with you girls - red wine and chips and dip are my weakness.

    Welcome Yodi.  I am on the metformin study too.  I will try anything that will or might help.  It sounds like you're in the best hands with your MO being so well respected and informed.  Our pathology looks almost the same.

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  • Hope60
    Hope60 Member Posts: 223
    edited August 2012

    Lovely- I know what you mean.  We were diagnosed at about the same time, and our stats were so similar.  But right now there's just no way to know why a treatment works for one woman and not another. Personally I believe it's a matter of luck, mixed in with all the science. I also understand where you're at right now.  I think we all numb out from this stuff and need to take break from time to time.  Even in my current situation, I find I can't have FBC on the front burner all the time or I'll just go crazy.  It's easier said than done I will admit...I'm happy if I can have a 1 hour mental vacay right now.  BUT you are in a different place.  PLEASE continue to have your tests, exams, and have everything checked out that concerns you.  

    kathymn- That's a good question, and I plan to ask my MO on Tuesday.  The brain mets were an emergency situation, so they treated them first.  While in the hospital I had a chest xray - was told I "might" have a little something in my lung, and abdominal CT scan that I was told was clear.  I really don't know how all of this happened between now and then but I certainly plan to find out.

    Thanks for the hugs ladies...sending them right back out to you!!!!

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  • CatWhispurrer
    CatWhispurrer Member Posts: 263
    edited August 2012

    Welcome Yodi!    I am about at the same place as you.  Found the lump 9/17/11 but my team dragged their feet and didn't have surgery until Dec/2011.  Then had a port put in that ended up collapsing a lung, so didn't start chemo until late Jan.  Then 34 rounds of rads.   Just finished June 28.   My feet and hands still hurt, especially when I get up in the morning.  It is leftover neuropathy from Taxol.   I try to ignore it too when I take my walks and do yoga.   I am also taking Metformin that my MO prescribed for me when I asked for it.   I also take a baby aspirin a day and a few other supplements, like vit D3 which was low when I was first diagnosed.   That is one vitamin that I will keep taking (5000 IU/day) since low D3 is linked to BC.

     I am so wanting my hair to grow faster.    It seemed to grow so fast before chemo, but now it is a snails pace.  I have already dyed it too but I hate the way it looks.  Just want my long hair back.  I had to get a new driver's license yesterday and wore my wig as I didn't want my picture on the license without hardly any hair for the next 4 years.   I look so much younger with the wig!  I wonder what they would have said/done if I would have whipped off the wig after the picture was taken?  I didn't have the guts.

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  • bak94
    bak94 Member Posts: 1,846
    edited October 2012

    Bernie-Sounds great! Invite our dear friend Sylvia also! I haven't been over on the UK thread for awhile.

    So I did not qualify for the metformin study after all, too long out from diagnoses. I think it is good though because now my doc just prescribed it for me, so no placebo, I will be on it for sure! I am happy it turned out this way. Any side effects or quircks I should know about? I feel like a walking pharmacy! Tamox, metformin, levoxyl, lovastatin, effexor, wow.

    Going to see the onc gyn on Thursday and finally get my hysterectomy scheduled:( My mo said he treated a woman for breast cancer now she is fighting ovarian cancer and it is not good. I am brca 1 so I need to get the surgery asap. Like others have said, I want off this train!!! Tired of medical stuff! And just plain tired, but I should not complain. I started walking, my doc said 20 minutes a day no matter what and then move up to 25 in one week and so forth. I am treating it as if it is my medicine and I have to take it! I am sooooo out of shape.

    Love to you all! Hi inmate!!! Come visit us soon when you feel up to it!

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  • browerl
    browerl Member Posts: 126
    edited August 2012

    Love the handbag cocker, thanks for sharing!

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  • inmate4232010
    inmate4232010 Member Posts: 310
    edited August 2012

    TifJ....congratulations......I think it is much harder to ignore the what ifs.  I say acknowledge it each day and then say, "but not today".  It has helped me in the past tremedously.

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