Early Stage Natural Girls!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Hi Mini, you know about that study, I'm willing to bet that they'll eventually discover that the huge amounts of greens and iodine containing food in the Asian diet constitute the breast protective nutrients, not soy.

  • graced
    graced Member Posts: 104
    edited August 2012

    Someone recently told me that pea protein is also estrogenic.  I use the Vega protein powder in my morning shakes which includes pea protein so I know I am not sure if I need to stop this or research this further.  Has anyone heard about this as well?  Otherwise the Vega powder has so many good things in it - probiotics, greens, etc.  I guess I have to find multiple other sources to get the benefits of that one.

  • Mini1
    Mini1 Member Posts: 1,836
    edited August 2012

    Ruby - that could very well be. Maybe soy is what is making the stomach cancer rate high. Wouldn't that be ironic? They also found was that when people from countries with low levels of various cancers came to "westernized" countries and they adopted our way of eating, their rates of cancer went up exponentially. It was the same for breast, colon, stomach and other cancers, so it takes ethnicity out of the equation and puts diet smack dab in the middle of it; yet the medical community at large treats nutrition as an after thought in most instances.

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited August 2012

    So true Mini. "The China Syndrome" basically says that cancer is a disease of affluence. They find a very strong link between protein consumption and cancer. I don't know if I mentioned this in this room. I know I mentioned it somewhere recently.

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited August 2012

    I do know that meat is very bad for you as it stays in your system for days---also I think we eat more fatty foods than people in other countries.  That may make a difference.

  • Mini1
    Mini1 Member Posts: 1,836
    edited August 2012

    Limited amounts of hormone-free, grass-fed meat can be just fine. It's more what we do to it and how much of it we consume. Beef is harder to digest and should be limited to once or twice a week if you choose to eat it. For some people, it can be beneficial depending on your nutritional needs, but again it's quality over quantity.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited August 2012

    mini you asked about the ER% and if it would be lower with out your hormone replacement.  The way I understand it when they are checking your tuor for % it is the % your tumor reactsto estrogen so hormone replacment would have no effect on that number.  Now if they were checking your hormones that would be different.

    Purple my path lab did not do % either.  Rather it was graded so with that and my onco type report I was able to figure out that I was barely ER+.  My onco also said positive is positive and needs to be treated that way.  Although not really sure how much effect the anti hormonals will have on me but too scared not to use them as I already found another lump in my other breast that I had to have removed.  Scare my Dr's and me but luckily it was B9.  Trying to stay fit and eat right and my MO is big on supplements.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Graced, I learned here from Abigail Smile that all legumes are estrogenic, peas, beans, etc.  I read that everything that grows in fact has phytoestrogens, it's the reproductive part of the plants.  I don't worry about consuming any foods (except soy) in its natural state, I do however stay away from the most estrogenic herbs.  I would think therefore that pea isolat or any plant extract for that matter is a concentrated form of phytoestrogen

    Have you heard of rice protein or whey protein to replace the one you have.  There are so many out there which also have all the other goodies added.

    For example, I have a few 'powders' and rotate them into my smoothies:

    Sprouted, Non-GMO brown rice protein from Heartland Gold, that one is pure no other ingredients

    Advanced Whey from AOR, that one also pure, no other ingredients

    Schinoussa Sea Veges plus more than a dozen different berry extracts

    Amazing grass Greens Superfood - chocolate flavour, yum with all the different grasses, barley, wheat and a dozen other ingredients

    Maybe the Vega brand you like has other products without the pea but with rice or whey ? 

  • graced
    graced Member Posts: 104
    edited August 2012

    Thanks Ruby!  I'll check out the products you mention.  Whey is not an option as I am following a vegan diet.  Vega was great because it also has protein whereas amazing grass, which i've used before, is all green but not much protein.  I'll have to get various ingredients together and make my own combination.  There's a product idea - BC smoothie supplement powder that specifically targets our needs!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Interesting Graced, can't seem to find it, can you link, would like to see the ingredients, txs !

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Thanks Graced, is that the one you mention about: 'BC smoothie supplement powder that specifically targets our needs!'

    oh....rereading your post, now I get it....this product does not exist yet...lol, you had my hopes up for a minute there Tongue out

  • Mini1
    Mini1 Member Posts: 1,836
    edited August 2012

    Sherry - Darn. Not the answer I was hoping for about the hormone levels. Oh well. Not many of them are these days. :-)

  • graced
    graced Member Posts: 104
    edited August 2012

    Ruby, a few of us should put our heads together and develop this product!

  • Mini1
    Mini1 Member Posts: 1,836
    edited August 2012

    Sign me up. I'll take a truck load of it.

  • graced
    graced Member Posts: 104
    edited August 2012

    Mini, you're one of the heads we need to develop this! ;-)

  • Mini1
    Mini1 Member Posts: 1,836
    edited August 2012

    I don't know how much I have to contribute but with synergy I think we could do it. We certainly couldn't do any worse than some of the stuff out there now.

    I go to see the naturopath tomorrow. Wish me luck. I go see my onco doc next week. I'm interested in seeing what both have to say. Someone posted a study on another thread that showed a substantially lower 10-year survival rate for those that do not use any adjunct therapy. It was rather lengthy but mentioned nothing about what they consider no additional therapy. Were any of these women using natural supplements? Eating diets with cancer fighting foods? It's frustrating that they publish these studies but do not conduct studies comparing things like DIM and other natural alternatives to Tamoxifen.

    It is so hard to look at numbers knowing they are real people and I could be one of them, but I still feel that the cure is worse than the disease in some instances.  I know that sometimes it's necessary and natural is not right in every instance. My husband survived thanks to chemo, and I did radiation but I don't feel Tamox is right for me. At least not right now. Does it ever get any easier when you are bucking the system?

  • graced
    graced Member Posts: 104
    edited August 2012

    Mini, good luck with both appointments!  We are ahead of the times in some ways.  I think we are following our instincts but the brain is second-guessing. Maybe over time, we are more confident in our choices and it will get easier.  But I suppose on some level, it will be a lifetime of evaluating and re-adjusting our plans. Especially if and when there is more information/research on these various topics.  It gets tiring explaining to people why we are not just following 'doctors orders', however Tamoxifen's data speaks for itself.

    I am grateful we all have each other here.

  • reba1cat
    reba1cat Member Posts: 3
    edited August 2012

    I have recently been introduced to Suzanne Sommers books regarding bio-identical hormones.  It is been 5 years in October that I was diagnosed with breast cancer.  I have had my breasts, uterus, and ovaries removed.  35 years ago I had my thyroid removed.  I have NO hormones.  I am miserable.  Has anyone tried the bio-identical hormone approach?  Isn't there a quality of life compared to quantity of life? 

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited August 2012
    Mini, my MO basically said the same thing as that study, telling me how much slimmer my chance of survival was by not doing anything. Considering the fact that I am, indeed, doing something by changing my diet and my exposure to toxins, I found her comment decidedly un-helpful. Undecided
  • Mini1
    Mini1 Member Posts: 1,836
    edited August 2012

    Dunesleeper - I'm half expecting mine to have the sme reaction. I know he has had cancer himself, but I don't know what kind. Sometimes that helps, but it can also lead to I did it this way and look at me I'm fine now so you should do it this way too. I'm trying to go in with an open mind though. He may surprise me. I guess if his mind is shut and he won't follow me, I'll find another Dr. who will. I'm not going to go in and lie and say I'm taking the meds when I'm not just to stay his patient. I want a doctor I can be honest with and get honest feedback from, not one that's going to charge me a fortune to tell me I need to take the meds and if I don't I have a death wish. I don't goosestep for anyone.

    Reba - Are you talking HRT as in hormone replacement? Bio-identicals? If so, IMHO, run far and run fast. I took them for a few years and yes they helped with the things you mentioned. They also likely accelerated my cancer rate. They ddn't cause it because it had started before I took them, but it aggravated it and brought it on sooner than it would have; possibly by as much as 10 years. I was done with them when I got diagnosed. If I can't even eat soy, I certainly wouldn't use HRT.

    Graced - I agree. Part of me wants to agree with the convenetional therapy, but my gut says no. It was my gut that told me a year before they diagnosed me that something was wrong with me and no one beieved me, so I think we're pretty in tune. :-) And even if the studies show 15-25% of the so-called non-treated patients died, that means 75-85% lived. Why? Was it because they made changes and did things like took DIM and other supplements, changed their habits, improved their QOL? Has anyone studied survivors to what they have in common? Obviously it is something because there's a bunch of them out there. Where are those studies? Does anyone even care? It doesn't feel like it.

    Ok, after that cheery start to the morning I'm off to the naturopath. :-)

    HAPPY FRIDAY!

  • Mini1
    Mini1 Member Posts: 1,836
    edited August 2012

    OK, on a totally unrelated topic, does any use pink salt for cooking or medicinal purposes?

  • graced
    graced Member Posts: 104
    edited August 2012

    I have some Himalayan pink salt that I have used when making barks of chocolate with nuts and cranberries.  They were holiday gifts.  It is really tasty sprinkled on food too.

    Mini, how was the naturopath?

  • Mini1
    Mini1 Member Posts: 1,836
    edited August 2012

    Not what I had hoped. Spent more time with the accupuncture, which was great, but not as much info as I'd hoped for regarding nutrition. I thought I'd made that clear when I called and made the appointment, but apparently not. The accupunture was great, my back has never felt better, but I had wanted more nutritional information. I can't really afford to go back soon since I've not worked for 6 months and it's not covered by insurance, but I will go back again when I can afford it. It helped me feel better physically. Better than a massage actually.  But I'm frustrated as I am not finding what I need. But I will keep looking until I do, or I'll figure it out for myself if need be. If I had to do it all over again, I know what I'd study!

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited August 2012

    They don't study the survivors who choose alternative treatment. You'd think, if they were really interested in helping, they would at least stay in touch to find out what we are doing and what success we are having. I had read that others were promptly dropped from follow-up because of going alternative, and it happened to me. At least the nurse at the breast clinic allows me to go to their support group once a month. I just can't talk about my choice of alternative. Well, it wouldn't do the ladies there any good to hear about it. They are all conventional.

  • graced
    graced Member Posts: 104
    edited August 2012

    THere's no money to be made in studying brussels sprouts!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Reba

    I'm so sorry you're miserable. I've done bioidenticals the whole time and a number of other things. I take thyroid hormone too and a number of supplements that Suzanne Somers does--but not nearly all of them. My oncologists are solidly behind me but they're very experienced with using hormones on breast cancer patients. I don't check in here much anymore but you can always PM me. If the BCO program works right I'll get an email notification. I see the program has changed since I was here last.

    I hope everybody is having a lovely summer, enjoying each day to the fullest. A 42 year-old friend died suddenly of a heart attack recently and it has given me new perspective.

  • Mini1
    Mini1 Member Posts: 1,836
    edited August 2012

    Yes, unfortunately it's all about the Benjimans when it comes to research dollars.

    Not a lot of support in a support group if you're not allowed to talk about what you are doing. Why does everything have to be so cut and dried? I get so sick of the the your either for us or against us mentality in everything these days. We talk about being open and accepting, but it usually requires the person that disagrees with you to change and accept your opinions, not vice-versa. It's such a crock.

    Reba and Lucy - So this is bio-identicals for people with cancer?

    HAPPY SATURDAY!

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited August 2012

    Dunesleeper - some statistics on women using CAM therapies published on the Clinical Trial and research forum - worth reading as it does show you that there is follow up in some cases.

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited August 2012

    Nice susieq. If mine comes back I'll have to remember your name so I can let you know. You can ahem "support" another lucky lady with that information.

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