2012 sisters
Comments
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Ramols.... I do agree on your take on surgery. Keep your eye on the end game. It's really not so bad. A few hours UNCONSCIENCE on the table and a bit of resting.
Digital... Yes got oncotype before saw MO. I'm a 22; and I'm envious. -
I so get the photo thing. My DH has a nice picture of me as his phone screensaver. It was taken ably 2 weeks before I knew, we were in a a great little vacation. I kind of hate to see it. How little I knew about the major life change about to happen....ugh
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Had an MRI yesterday... "they will let u know in two to three business days". Was I mistaken was I on an interview. ??? Ughhhhh
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Junebugg - I also had long hair when I was diagnosed and decided to cut it short after my first chemo treatment. It made me feel like I was in control (sort of). I also had my head shaved when the hair started falling out, it made it easier and also gave me a sense of control. Good luck and sending HUGS your way.
Ramols -- I don't know why the upcoming surgery decision is so hard and causing me so much stress. You are not the first to say it is easy compared to chemo. I guess it is the unknown and finality of the decision that is stressing me out. If I choose mastectomy there is no gonig back. Hopefully my meeting with the BS in a few weeks will help.
Thanks to all and HUGS all around.
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chrissera: that's how I feel to. I have felt so outta control at least I can decide when to take my hair off. But I'm still scared and saddened and angry etc.... 😖
Ramols: just my 2 cents. My decision was made based on the number of women I know personally who have had lump followed by 2nd surgery followed by MX anyway. And by then nipple sparing was no longer possible. I figured just get it out and over with at once. I also will not need rads which was the swing vote. This was just for me though. Happy with my choice.
Ladies... Last fill this morning. Love, LOVE my new size! Who recently mentioned getting the boob job they wanted at 20?! That's me as well!
2fried: I might have passed your ostrich eggs by....! 😁
I wore my new tank top bought by my friend for me, another BC survivor to the PS. They laughed so hard when I walked in (just FYI all my Drs are woman) "Yes they're fake! My real ones tried to kill me!". Oh and got swimming clearance. That gives me one week pre chemo to pretend to feel normal this summer.
That's it for now. Sick kitty to the vet now. -
Popping in for a very quick moment! I'm still 'vacationing' at my mom's, attempting to heal, had a couple too busy days and paid for it LOL Such is my nature ;-)
Welcome to all of our new ladies...sorry you're here but at least the company is great!
lostinmo- *hugs* pick yourself up, dust yourself off and get those fists into position ;-) You can do this!
*hugs* too all of those struggling right now... we can do this and we will!
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juneaubugg Wow You filled fast! I have one more fill in a couple weeks then its squishee time for me. I am SO ready. I told Tazzy I wasn't sure if ostrich eggs or bull testicles were larger but she couldn't find a comparison to post. I am assuming that the testicles are bigger though. So if you passed my eggs then I guess we can conclude that you've got balls! lol I still have skin issues from my nsdmx so I still have to wear a small bandage and can't swim; haven't been able to swim since last year because of all my surgeries and lumpectomies and MX and skin issues but then since I live in Florida I shouldn't complain because maybe I'll be able to swim by fall or early winter. Love the tank top-I bet the ps office got a kick out of it. I've have been going braless lately and loving it! Never thought I be saying that in my 50's lol I hope my squishees allow me the same opportunity. Well, hope you know we'll be thinking about you and praying that the BGC isn't as bad as you are imagining it to be. Hope Kitty is ok too!
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After a year of debating it I resigned from my job in March. I was tired and burned out (I had just told my husband that my job was killing me) and looking forward to taking a break from work before finding a new career track. Because I was always on the road I was 6 months late getting my annual mammogram. Because of this, the first thing I did after resigning was hae my mammogram. I had never missed one and all had been ok. I expected the same with this one. No such luck. They called me back the next day to come back for a mammogram and ultrasound. It was then they found my tumor. Ironically, my lateness in having the mammogram actually worked in my favor. Had I had it 6 months prior it would likely been missed or noted as an anomaly to be looked at at my next mammogram, thus giving my tumor more time to grow.
I had had a lumpectomy, radiation, and have started an AI. After a rocky start with the first AI the new one is working well to date. I am still learning to deal with all of this. Meds, diets, lymphadema, osteoporosis, etc. It's been a little overwhelming. Some days I'm good and others, like today, I am teary and frustrated. I'm sure it's adjusting to the completion of my surgery, radiation and my new medication; not to mention finally having a chance to be unemployed for the first time in my life. I have learned a lot on these threads as I try to find my own way path through this disease. I hope one day I will be the little old lady sitting next to someone with cancer telling them that I had it 45 years ago like an awesome woman did at church one Sunday. I also hope that I never become the person that sits down next to someone and tells them about someone they know that had it and died after a totally unexpected recurrence. I still haven't figured out what kind of ignorant person does that, but I've had it happen.
Anyway, that's the thumbnail version of my story.
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Hi Ladies, just wanted to pop in and say hi and let you know I am not so fearful of surgery as I was yesterday... I hope that lasts. I am in a happy place today. I took myself for a lovely walk along the lakeshore and had lunch there and now I am doing some gardening.
Welcome Mini - like we say to all the new ladies, sucks you have to be here, but you have found a great place to land.DH is off golfing tonight so I will catch up with all the posts then. I am happy for him to be out with his buddies. He has been following me around like a little lost puppy. Made me realise its so very hard for him too.\
Hope you are all having good days and will chat later tonight.
Heres to the KCA Band - that's one bit I did see as I was scanning through.
Luv ya xx
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Mini1, a new career track is so exciting. I graduated college at 40. This site is so wonderful. I haven't worked since April and it has been nice to come on here for education and support, as well as to support others. I saw my onc yesterday and after my upcoming surgery/healing, I will be going on AI. Is it as tough as it sounds? I'm afraid I will be shriveled up in no time. :-/
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Hi everyone
Welcome, Mini1
Tazzy - It is so good to hear that you are feeling better about the surgery today, your walk sounds wonderful. Hope you spoil yourself tomorrow and are able to stay just busy enough but not too busy to enjoy nature and time with your husband.
Juneaubug - love the tank top! and 2Friedeggs - love your comment that Juneaubug has balls
I know I'm not going to be able to speak to everything that's been posted but love to share in your ups and downs
Today I got my prescriptions filled for the meds for side effects, I'll have these for when I return from vacation. I was called today and told I have chemo on the 13th at 0930; I thought there would be a clinic day first, the day prior so I'll need to get that sorted out before I go on vacation so I take my meds at the right time and not too early.
Went and totally disinfected my Mom's room at the lodge so that would be out of the way before chemo starts, don't need to me coming in contact with C. Diff after chemo starts or her getting reinfected once she's out of hospital.
Had my hair cut a little shorter today and then I have booked an appointment for August 28th for the remainder. It is good to be able to control what you can. Going for my wig fitting tomorrow afternoon after my MUGA scan and lunch with a friend. Then Thursday is the portacath insertion. Busy times. So looking forward to getting totally away for a week, hoping nothing happens to change that ... I will think positive thoughts.
Take care, everyone
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One more thing, does anyone have a suggestion as to where to get buffs? There is a video of a lady with alopecia on a thread in the forum re: cosmetic things and she shows how to wear a buff, she is very attractive and wears them well but I don't know what kind of stores to find buffs in; noticed that you mentioned them Juneaubug.
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I hate this. This whole processes sucks. I know "newsflash", eh? I never used to worry much about my health. I seldom got sick, and if I did, I recovered quickly. If the doctor ran a test and said everything was OK, I took their word. BC changed all of that.
I had a lump in 2010, got my first mammogram. Scar tissue. No worries. Great. Well when I had my second mammogram the "scar tissue" turned out to be DCIS and IDC. Got that removed. But I can't relax. Every little thing becomes a crisis in my mind. I have what my PCP says in a sebaceous cyst. Do I believe her? Well sort of, but no, I don't not really. Fortunately I have my 6 month Mammogram coming up, in 3 weeks, and then I'll see my RO... and hopefully he'll say it's nothing, and hopefully, he'll be right. But I don't know if I'll ever be as blissfully ignorant as I was.
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Websister, there is a buff website. I just typed in "buffs" and it came up.
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I tried to send this earlier but the web page timed out and I lost everything. I doubt I will get everything down again... Whoops!
I felt pretty good today. Got a 2.5 mile walk in and did some errands. Seem friends from my old job came by and gave me a bunch of food, it was fun to see them again. I started doing some exercises to keep my shoulder loose. I am a little worried that my AND incision is more swollen and sore now. I hope it won't form a seroma... I stil haven't heard from the breast clinic about my mammogram. I will have to call tomorrow if I don't hear from them early on. Wold like to get that done so that I can move n to the next surgery.
Juneau, loved the story about your mother. Your tirade and her reaction were awesome! If you feel comfortable show us your new hair photos.
Aruba LIKE. Here is to KCA sisters
Ramols glad the little guy is feeling better. Having a stomach bug in the house is always horrible. Here is to boob jobs paid by insurance. Lousy way to get it but at least we deserve some perks. Or should I say some perky ones!
Digitalcowgirl you have a keeper DH. Hope your TEs ease up on you a bit.
Mini1 welcome. Sorry you qualify to be with us but glad you are here! Hope you are having some fun at this point and enjoying life since you stopped working. I have decided that if my cancer ever recurrs I am quitting work too. I need to switch my insurance to my husband at some point to be safe though. If this shit come back I am going to spend every minute with my family that I can and live life as fully as possible.
Tpoly and everyone... It is so normal to be scared. I am six months into this and am still scared. It doesn't stay so all consuming but this has changed us forever. You have friends here though that have been through all of this. I hope you can get some comfort out of this place. Have you checked out any of the forums for single people with BC? There is life after this stuff. Lots of it. Hope your head isn't spinning as bad as mine was at the beginning.
I am going to go watch a Breaking Bad and drink a beer now. Nighty night! -
KCA, I love it!
Met my RO today and was examined, scanned, mapped and tattooed! LOL, had this happened pre BC I would have felt violated. I start 7 weeks of Rads next Tuesday. I talked to my RO about the fatigue SE, he does not seem to be too concerned that it will get any worse because of my MS; however, he did add the standard disclaimer that it "effects everyone differently". So, we will wait and see and hope that the meds I currently take for fatigue will continue to do their thing should the fatigue get worse with rads.
I hope everyone has a great night!
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Ramols: Back a work already? You are a trooper. How long before I can garden again... I know I'm going to be wanting to be out there - great therapy for me.
Digitalcow - your DH is a keeper for sure - they can certainly step up to the plate when needed eh? Hope the Merlot worked... normally does
Dakota.. sorry for your wait for the MRI results. Keep us posted.
Chrissera - definitely the waiting and the unknown that scares the crap out of us.
Juneaubug... happy you like the new you... seems you are definitely in competition with 2Fried for the biggest. Love that t-shirt - want one.
Hi firestorm - carry on recovering.
2Fried... love it... Juneau you have balls.. ha ha ha really laughing out loud. Thanks needed that.
Cindyl... deep breaths and praying for B9 results.
Jpmom - apart from the swelling still sounds like you are doing so well. Hope you enjoyed your beer.
Aimz good luck with the rads when they start. Yes before our dxd can you imagine how we'd have all felt with being touched, sliced, diced, tattooed by all these different people?
I know that I have very likely missed some posts or comments. Thinking of you all. Goodnight and sleep well xx -
websister - I had no idea what buffs were so I looked them up online and found this site: buffusa.com. And I found the same demo vidoes on youtube of the woman you mention - who is beautiful (with her fake eyebrows and eyelashes - what an inspiration!). I actually just ordered 3 of them online. Free shipping if you can wait 5-7 business days for delivery and no sales tax either. $23 a piece, and there are lots of beautiful patterns. Thanks for the tip and good luck finding some you like. I can't believe I'm going to say this - as there is nothing exciting about the upcoming hair loss... but I might be excited to try these things out and see if I can rock them.
This made my day better. Been feeling really bummed as I found out today that I might have to push off my chemo start since my 2 year old is due for his chicken pox vaccine - which is a live vaccine. Best info I could gather today is that chemo patients need to stay away from vaccinated kids (when its a live virus) for 30 days. If this is true - I'd be set to start chemo before those 30 days run out. Going to call the oncologist's office tomorrow and beg them for advice and information.
Nighty night ladies. Sleep tight.
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I took a day off from our little "sorority" and realized how much I missed reading everyone's posts. My heart aches when I read all of the difficult situations everyone has to endure because of this horrible disease that is trying to rob us all of our lives.
Today made Day 5 of packing my open wound from my lumpectomy. I do see progress and the hole is getting smaller but it is slow progress. I see my surgeon in 3 days so I am anxious to see what the next step in the healing process is. My DH and I are getting pretty good at the whole packing procedure but I still hate it! Its embarassing, demoralizing and just plain yucky!!!
I had a short heart to heart with my 15 yr old son yesterday about the seriousness of what I'm going through. He said he tries not to think about it because it upsets him. I really don't know what goes through either of my kid's heads concerning this. Truly I try not to talk about it too much with them because it upsets them and scares them. They know the basics of treatments, side effects, appointments, etc. but we have never discuss things like survival rates, stages and things that are scary to teenagers. Life sure has gotten complicated.
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Websister... The hospital gave me the name if local locations, and my insurance company also gave me some of the same names. Also found two online places and requested free ones. http://www.goodwishesscarves.org/good_wishes_scarves.php and gailafund.org. I'm still investigating more. I start the Friday before you.
2 fried.... My husband said cantaloupe, I say soft ball (punn intended).
Jp... Hair cut tomorrow at 4:15 eastern time. I will try to post new avatar within 24 hours.
All... Here is my experience of late... Now that there are no more decisions left to be made. I have my orientation tomorrow at the oncology location for chemo preparation and I have P/T for the cording under my arm which is causing some trouble fully extending my arm and a little pain. All I have to do is keep moving forward THROUGH IT. No more fucking percentages or options. I still have 12 weeks of chemo sand then a 6 week wait for my exchange surgery.... But Just for Today I FEEL RELIVED.
Sleep tight ladies.... -
PS Tina... (((hugs)))
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Websister... One more... https://chemobeanies.com/
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Good morning eveyone
I've been trying to read and catch up (again).
Tazzy- glad you got to go camping something I am looking forward to doing is getting the RV headed down the road.
firestorm- glad to see your still vacationing!
Welcome to all the newbies sorry you're joining us.
jpmom-wish I had your energy to get out and walk, the heat makes it impossible here.
tina-My DH has talked to our 14 yr old, but I'm not sure what was said. He is understanding when I don't feel good. For me him being the age to understand some makes it harder on me. I hate that he is living with this.
Off for my post op appointment today. Maybe I can find out how to get my arm to move better. It hurts when I try to stretch it out fully and not at the incision. Makes doing those exercises painful.
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Ramos and Juneaubug - thanks for the sites and info re: buffs, glad it was also helpful for you, for anyone else that is interested in good scarve and makeup tips here is the blog of the girl who did the videos - http://eyelineher.blogspot.ca/
Ramols - what a worry re: live vaccine for son/ chemo - I hope you receive good advice and guidance from oncologist office. When I asked for a week extension they agreed but told me they like to aim for no more than six weeks postop to start
Tina - no fun packing wounds, hope things clear up quickly
Tazzy - light gardening should be OK fairly quickly, I was told no lifting of anything over 5 lb for four weeks postop and that due to the lymph gland removal and lymph edema risk that I should protect that hand and arm from scratches/bites
Off to get ready for the day so I can be on time for MUGA scan -
Good morning all, I just got back from my walk today. I love my walks. It is therapeutic for the mind and body. Would rather run but I will come to that...
Juneau I love your attitude we should all be like you more. Keep it up and spread the positivity. Those stats don't mean anything to the individual anyway. They give us an idea of how likely it could be to have a recurrence etc but any one person can beat those odds. For the individual we eith get a recurrence or we don't. We either die from it or we don't. Even if th ere is a 90 percent chance of recurrence there are still those that don't get it so let's just be on the good side of those odds no matter what the stats are for our situations.
My DH told the kids about my illness when I was at work. I couldn't bear to be there. I would have cried. The kids asked if I was going to die of course and we answered no. Until proven otherwise or something changes radically, i am not going to die from this. If it so happens that things change we will deal with it then but as of now I am not and that's all our kids at their age need to know. Tina, my heart goes out to you in talking with your 15 year old. They are more sophisticated in their understand of this and their questions are no doubt harder to answer.
Tina, hope those wounds heal fast, that must be very aggravating.
Aimz good luck with rads. It will be good to get it started and get it over with. Let us know how it goes! I am hoping to get mine started in a month or so.
Lostinmo sorry your arm is giving you so much trouble. You are only 2 weeks out, take heart, it will be hard work to get that arm working well again but stick with those exercises. Are you going to a physical therapist?
Websister, good luck with your MUGA scan!
I am going school shopping with my middle child today. Time to give her some mommy time all to herself.
Have a great day ladies! -
Jpmom... Thanks. Its taken years of recovery from addiction to be able to try to live in the solution and find acceptance instead of getting mired in the WHY of it all. I too admire your attitude along with the humor from Tazzy, 2fried and soya....
Waiting in the office for my chemo orientation... And you are all with me... Keeping me in the SOLUTION, the FUTURE, the end game...a LONG, FULL, CANCER FUCKING FREE LIFE!
Maybe I'll take a walk before going for that haircut... You make them sound so wonderful. -
sorry to be the debbie downer today - but I need to let out a scream. Why is it so f'ing hard to get someone to answer my question about vaccines and chemo! Between the pediatrician, surgeon and oncologist - can no one help me figure this out in a timely fashion? I don't know when to bring him in for his shot and the longer i wait - the longer i risk pushing off my chemo. ARGH!!! Feel like i've been running in circles with this on the phone all day and spilling my guts to every random person who happens to pick up the phone. I appreciate that they understand my predicament - but can they really not round up a helpful answer for me? F'ing cancer...
thanks for listening/reading...
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Scream RAMOLS scream. You have every right to scream. Is there anyway the babies chicken-pox vaccine can be delayed until after your chemo rather than delay your chemo?
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Ramols, whats your pediatrician think of delaying the vaccine a few months? If your little guy isnt in daycare or doesnt have a lot of contact with other kids it would be a minimal risk?
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Thanks 2fried and jpmom - my pediatrician is fine with delaying his vaccine, but he goes to camp two days a week and will be in pre-k two days a week. And his big brother is in camp three days a week and will be in pre-k five days a week. And while I realize the odds of him picking up chicken pox are pretty slim - since most folks stick with the vaccine schedule - I'm thinking the worse option is having him get chicken pox while I'm on chemo. Since i'm doing chemo after surgery and my margins are clear - i have to imagine pushing chemo off for a few weeks isn't too detrimental to me physically. It's just mentally - wanting to get started already so I can get finished. Every delay pushes the whole thing out further and further... My dear hubby talked me off the cliff a bit and pointed out while it wouldn't be ideal for all - worst case scenario is that I move in with my mother-in-law for a week or two while the 30 days runs its course. So since it is almost 5pm and no one has gotten back to me - i think i'm going to take the bull by the horns (this disease really is all about losing control of your world and trying to take it back, isn't it???) and bring him in for the vaccine tomorrow and then just see what the oncologist says when I go for my meeting on the 18th. And if they give me any grief about it - I'll give them a piece of my mind. Just another bump in the road, right? Thanks all. Love you ladies!!!
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