Fuzzy's Romp Room

I'm waiting for the surgeon to call with the pathology report. I'm too tired to worry.

Lauren, I loose more things myself.  May I suggest some of the places I find stuff?

The car, look under the seat and all around it!  Found 2 pairs of reading glasses this morning.

My gym bag, one of the pockets!!

basically places it should not be like the powder room sink counter?

 best of luck and breath deeply

Fuzzy, how was acupuncture?

I've had it. Plain and simple... I've had it. Its been one week of pain, one week of not sleeping soundly, one week of not eating, one wee of these stupid drains poking me and coming open in the middle of the night. Its been a week of why me's. I've isolated myself. Yell at me all you want, I don't care.

I haven't looked at myself yet in front of a mirror. I have the go ahead to take a shower and don't want to. I don't want to see or especially feel where the breasts were. The thought of it grosses me out. I don't want anyone else to see it either.

Pathology came in. It was behind the nipple at the 12, 3 and 6 o'clock positions. There was 3 lumps. The biggest was 2 1/2 inches.  I'll need chemo, again. I'm so sick to my stomach now and soon I'll be sick to my stomach for another 4 months.

I know i had to do this. It was the only decision. It saved my life blah, blah, blah. I guess I need time to mourn and have a humongous pity party.

The good news... the right breast was fine.

Veggy standing in the shower always helps, a few times a day helps, it washes away energy too, you will feel so much better tto do it, just don't lookkk, close youreyes, enjoy the water flowing. 

I went back to page 82 to read forward, the mom story and turkey breasts, funny, too fun.  Hubby does that too, then HE argues about what I saiiid.  He is deaf and wants to arguue to prove I said what I did not, does not go over too welll unless I am happy.  All the man wants iiis too makkke me laughh so I try to let him.

One day in grocery producee I said to him, pick out some corn and I will meet yooooooooou in the frozen foods.  I am leaving andsee him searching the fllooor. What are you doiing? I ask.  He says You told me to getthe worm and take it outsiide.  All the women in prooduce burst out laughing, I had to laugh but that says it allll. The man i always lost by my perspective and by his it is all my fault bcz I don't make a bit of sense to him.  PS he has heariiing aiiiidds and they 'don't wororkk'.

Sommer - page 82 - what a funny rant, if anyone missed it do read, Sommer even threw a fridge door!  You go!  I want to do that somedayy.  This Bc will bring out the piss in a woman, tht's foor certai nn.  LOoll

Not editing my LE tyypoos lately, takes longer and computer makes LE wich is worse after punch biopsy even worser, computer does not make anything better, not better ecxcept talking to you all..  Tooo bad I havve to work at comppuuter to ake any oney. 

Love this - wooonnderiif there is non toxiic painlesss tatoooing? 

Caught up on reqading watch one movie, and all the thoughts are gone,but attached an old mouse and can look back more easily.

Crog--happy that you are getting a response from physical therapy. Screw the insurance company for being so short sighted as to not continue therapy. Instead of encouraging all to reach the highest degree of recovery, they look at $$$. Well Cluck'em. So, back to the old days. Teach someone in the family what you have learned. Then have them work with you. Several are better, and put them on a rotating schedule. This is how it was handled with polio. Which is actually the origin of PT. AND it was begun by an Australian outback nurse. Nurses in Aussie land were called SISTER. So, it was SR. KINNEY that started it all. There were three of us with polio in 1952--two years before the vaccine. My poor mom put the three of us through PT daily for 4 years. She said she gave up then b/c we were to hard to handle. She did a fine job under the circumstances. I remember being so limber, that I was like a pretzel. Worst of it, I could fit into the weirdest places b/c of being a pretzel, it's a wonder I survived b/c of hide and seek---we never knew the dangers of hiding too well.  So, sorry I didn't think to suggest having a family member taught. Check with your doc, social worker, church out reach --anyone you can think of to help instruct whomever will help you. There are exercises you can do on your own, but there are others that need a helper.

Contact your insurance company and try this "You have left me without a complete means to continue therapy, You can either approve further therapy or allow my helpers instruction to learn to do my therapy. By not continuing therapy with the needed exersizes, I likely will not improve, my condition perhaps will even decline. That will lead to more insurance outlay of money for the complications that will ensue. So it is in your own self interest to provide this training of the proper maneuvers to SAFELY perform my continued PT at home. Pay a small amount for this teaching now, or larger amounts to treat the complications that could be avoided. A considered person would insightfully recognize the folly of not providing assistance" Continuing "You provide assistance to many for the education/training of primary caretakers i.e. diabetic education. Why do you deny me similar assistance? How is this not discriminatory?

Pull there chain as much as possible. Had things been handled properly to begin with, you would not have been disabled. If you remember, my first contact to you, asked if you had a lawyer. You still have time to look into that, but if that is not your wish, then at least you can continue at home with helpers that have been properly instructed.

DEssa--Worms LOL's .We could publish these fupaws.

Your doc is an ass---HUGE ASS. Take pictures in good light , keep a daily record. Write a sequential history of what was seen and discussed from his first assesstment of site when you went to him with concern for infection. Date for the first day of writing--important legally. Then daily description of signs and symptoms>>what it looks like, feeling,smell, measurements, S.e's of anti bx's, Radiation of pain>>up/down /distance from wound.Include new picture each day. The reason this is important is HUGE legally. You have documentation of the course of events dated close in time to occurrence versus trying to pull from memory. It's also of huge legal importance that the first written documentation be dated for the first writing Including a statement that this is your documentation of events in the following time period>>then subparagraph each date under this with dates and times. Once you have completed the initial documentation. Do each documentation --dated for the day it was done. Attempt to have a picture attached immediately to that days writing. Juries pay great attention to the details That I have described.

I guarantee that he has written his notes that are different than what you have described. He is legally required to document what is real, but what I read is that you both were seeing different things. His notes protect him, your notes will protect you. It would help if you had a witness to countersign your notes. He likely had a person in the room to corroborate his statements.

This is work and a pain in the ass, particularly when you are in pain, but if your outcome in this instance is poor--you have a right to legal redress.

All may see a trend in my writings re: legal responsibility, Professionals are licensed to follow accepted STANDARDS of CARE (SOC), when they breach these standards that cause permantent harm, they should be held accountable--either criminally or civily. At the very least, you can complain to their licensing board and an investigation will ensue, outcomes of complaints become a part of the public record.  Also, complaints with documentation can be made to the insurance companies that are paying the bills. Believe it or not, insurance companies take these complaints very seriously.

Essa love and hugs and hope things improve.

Fuzzy, for us may we find the minds we once had

SAS. Thanks for your response to my PT situation. Actually I just found out that my PT wrote to the insurance company and because I had those 2 operations this year I may be entitled to some more PT. just waiting now to see what happens.... I have put in for disability and I am sure I will be refused (I think most everyone is the first time anyways). So when they refuse me I will hire a lawyer at that point and go from there... I appreciate all the help that you have been to me. My husband actually helps me with things at home in between PT visits. They have showed him things he can do. You have given me things I can do. The PT feels that I have come quite aways since I started PT and that I can probably get to the point to where I don't need to use any assistance with walking. It just takes along time as you well know..

Fuzzy, one great thing you did was start this discussion thread. Another great thing you did was buy the Fuzzinator and put over 2000 miles on it. Another great thing you did was go camping and kayaking even with a gimpy ankle. You have a great haircut and you "suck the marrow out of life." Of course, live can't go like that all the time. It's got to be that damned roller coaster. I hope you will let me know straight out any way I can support you.

Veggy, I'm sure I have no helpful words for you. First, the drains. OMG how I hate the drains. And they did make me dread showering. As long as they were tucked into those little pockets inside my mastectomy cami, I could be pretty cool with them. I did not want to see them, and I did not want to feel them pull. I did deal OK with the seeing them to measure the output, but I never did get OK with the showering with them. Still, I did feel a lot better after each shower. Best of all for me was the application of peroxide to the area around the drains. For some reason that always made me feel cleaner. This is another bump in the road. OK, this is a really big bump in a road that is in desperate need of roadwork. I don't blame you for being mad. If it happens to me, expect me to be pissed (American pissed, not British pissed, well maybe both, watch out). Hang in there veggy.

You know, popping in to the Romp Room in the middle of the night is an inspiration, and makes us so glad that you're all here for each other to vent and cuss, hug and cheer each other on, mourn losses and celebrate milestones. Now if only there were a FindTheDangWallet app!

Your Mods

Fuzzy, remember the Gambler, Sweetie it's time to check in to a place . You have been holding on too long in a different way. Been there in mind, it was my solace that I figuired I could check in when I needed too. Then found out I couldn't, took my safety net away.That was along time ago.

You are reaching and wanting, call your MH counselor. ALMOST every part of you is so fighting to overcome, sweetie. But you need a break from so called reality. You need a place of quiet to lead you back to you. PLEASE, consider. L&H&P's sheila

Ohhhhh, Veggie, brings back some scary memories postop, those dang drains were the WORST.  Mine got pulled really hard when the gurney girls told me to get in my hospital bed, which they were supposed to put me in there.  So, I fell, yanked those things to where they spurted blood like a whale spurts seawater.  I says, "I think something's wrong with my drains."  An RN patched me up, and long story short, I could have sued them, but I won't voluntarily go into a courtroom.  And still, I did not personally choose to take a shower until five days later when they took out the drains.  FREEDOM!  I was happy after that.  Before that, I didn't speak one word that made any sense.

Fuzzy, I have a very bad temper, learned to control it over the years.  But lately there are times when PUUUU-LEEEEZ clear out of my zone or else!  I cry, rant and rave, rearrange the nearest room, and go outside and walk with the dog.  It's the only way.  And don't matter how important a person you might be, to lose it.  I remember President Lyndon Johnson got an operation, he was so doped, he pulled up his shirt on national TV and showed all the reporters his scar.  So, throw a little cancer in there, and you got yourself a runaway train.  Hahahaha.

Husband asked me if I barked this morning.  I've only had this wheeze for 10 years, we been married almost 30 years.  Sigh.  I'm but a bug on the wall in the hallway of my life.  Hit don't matter, my dear friends here, we're all screwed, to be sure.  There's a bit in a play, I think it was "Glass Managerie," where the mother says to son, "Rise and shine," and he goes, "I'll rise, but I won't shine."  SMILE.  Love to all, GG