2012 sisters
Comments
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I am done! Done with chemo. Done done done.
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Palmettomom-sorry about the multiple tumors Sending you big (((hugs))). We are all here for you.
jpmomof3- I have a margarita waiting on me as well! Even if I don't drink often this one is well earned in my opinion. And I have a long list of my favorite foods I'm going to eat when I get my taste back right.
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Palmettomom3 Sorry to hear about the 3 tumors. I too had a lumpectomy on each side supposed to be for what the biopsies showed as ALH. One turned out to be IDC (which they did get clean margins) and the other LCIS. Since I had clean margins I was set for rads but then with so much family history, I changed my mind at the last minute and went for the nsdmx. I have no regrets since they found a ton of alh, adh,LCIS, cysts and fibroadenomas all thru both breasts after I had the mx. I feel like it would have been sooner rather than later before I'd have been repeating the whole biopsy cycle on all that junk. Tough choice but this stinkin cancer tests our faith and ability to make those tough choices. We're all here though if you want to vent.
Firestorm great attitude for a crummy situation. I would love to see you show up for rads like that. Take a vid and put it on youtube for us
JPmomof3 Congrats on that last chemo! Yeahhhhh. Wish there was like an FTD for drinks, with a send 2 get one free then i could send you one, tazzy and get my freebie!
I'll have to catch up with everyone elses posts later. The rains here from tropical storm "Debby" are hideous. I had alot I wanted to get done outside but that has been impossible. I had to go out in all this rain to the ps for a fill-I'm really starting to notice a sizeable difference- now maybe the size of hardboiled ostrich eggs ! (I just pulled the ostrich out of you know where as I have no idea how big ostrich eggs are-just figure they are bit bigger than hard boiled chicken eggs) They are an itsy bit sore but nothing a couple tylenol won't help.
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jpmomof3-That's fantastic for finishing chemo, I see you did chemo pre surgery, and from your profile that your tumor is 2cm IDC stage 2b. I was just wondering about your experience since I have had NSBMX with 1-step to implants and now going to see a MO. My oncoplastic breast surgeon said the chemo is optional for me, so my question to you is how come you did chemo pre surgery? Was your cancer so aggressive that it warranted chemo to kill it before?
I have a hard time coming to terms with doing chemo since its optional for me, I have no node involvements, my pathology results showed no other findings of new cancer except for the one of 1.5cm which confirmed all my MRIs and CT scans, I was IDC stage 1, grade 2, my doctor told me that the only reason he wants me to meet with a MO is due my young age (35). Just wanted to know about your experience. Thanks
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palmettomom3-Sorry to hear about your tumors, hope that you will have a treatment plan for this new discovery soon and that will put your mind at ease some what.
2FriedEggs-LOL! Ostrich eggs! Funny, you made me laugh! Another fill ,huh? Soon enough you will catch up and have the size you want!
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SoyaandPepper Sorry you have to make the decision whether or not to do the chemo. Have you met with an MO yet to see what he thinks? There is so much to all this cancer crap. I hope you like your MO and trust his opinion so it takes some of the burden of the decision off of you.
I have to retract my statement about maybe being the size of ostrich eggs. I googled size of ostrich eggs and came up with " Ostrich eggs are big. Each egg weighs as much as 2.5 lbs. and is approximately 6 inches long." Whoa! I'm definitely not THAT big (long) so I guess I have to say I'm now bigger than a chicken egg but smaller than an ostrich egg. LOL Heck I hope I know when I get to "size". I'd be so embarrased if my PS had to say enough is enough-youre done!
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Soya, when I had my lump biopsied they also biopsied a node that was abnormal looking and it was positive. So I have node positive cancer and it was a no brainer for my oncologist to recommend chemo and rads no matter what type of surgery I got. I'm choosing to do lumpectomy because they tell me that it doesn't make a difference in treatments, recurrence rate or survivor rate. I hope I don't regret it but so far I am going to stick with the decision to do lumpectomy. They are doing neo adjuvant chemo (chemo before surgery) to shrink the tumor. I have 2 cm of IDC and about 5cm of DCIS. I am very very small breasted and they wanted to give me the best chance of getting clear margins. They say that neo adjuvant versus adjuvant doesn't make any statistical difference in recurrence rates but it just seemed like a good idea. I like the idea of seeing if the chemo worked too. They will be able to see if the cancer is dead when they cut it out. Die cancer die.
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Oh, soya when you meet with your mo they may recommend one thing or another. Ask them how much chemo affects survivor and recurrence rates for your type. There is a program that a lot of them use that allows them to plug in your stats, how big the cancer is, your age and general health, your grade and number of positive nodes and mets and what your hormone recpetor status is. It tells you how many more people survive when they do chemo or hormone therapy or both. So they can actually give you a number to help you decide. These numbers are based on data collections over many years and is updated. But it doesn't take in account all factors, like whether you do radiation or are BRCA negative or positive etc. so it's not perfect but it can help you and your mo decide if any particular treatment is worth the trouble and the risks.
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Post final chemo 6 hours. Will only sleep 5-6 hours because of ambien. Will be flushed all day tomorrow. But this is the last round of side effects from chemo! Good night sistas!
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Yay jpmom! Congrats.
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Palmettomom - positive and healing vibes being sent to you as you move forward on your treatment. Sucks to hear that kind of news eh? But you know we are all here for you.
Melrose... I couldn't agree more about being patient. I have to be the most impatient person you would ever meet, but since my dx I am so much more patient with myself and my body. Still pretty impatient with everything else and everone around me though.
Jpmom... couldn't agree with you more on your comment. Yay... doing the happy dance for you - what a
feeling eh? Goodnight and sleep tight. And as I keep saying to the SE's.... this is the LAST TIME you will make me feel shit2Fried... try this chart - whoa - ostrich is large.
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Tazzy-LOL! You're too much! Great pic!
2FriedEggs-Now you have a pic for referrence! So do you still want to get to Ostrich size? LOL!
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Thanks to everyone for your encouragement! I was feeling quite overwhelmed and I knew you all would understand. Just when I thought I had a plan the rug was pulled right out from under me! Oh well...I just have to adjust.
Melrosemelrose...thanks for the advice. So true that I must be patient as the info rolls in...and with my healing. I got a call from my onc office this afternoon and they want to see me Thurs morning. They are discussing my case at tumor conference wed so I will learn what the new recommendation is. So sorry that you developed an infection that postpones reconstruction...but good news that it packaged so neatly. The emergency surgery was probably a bit scary but glad you have recovered!
Jpmomof3...Congrats on the last chemo treatment!!! I hope to find out Thursday if I get to visit chemoland. So glad to know it was not as bad for you! I hope your lumpectomy goes as easy as mine did. It was much easier than I expected. No pain meds needed after the first night! I wouldn't think you would be surprised post op since you had chemo. The bmx is now recommended because the large amount of lcis present. I agree...none of this is fair! -
Can't sleep. Leave for the hospital in 5 hours...
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I am getting used to how to reply to everyone. I am using my kindle fire and can only see a few posts at a time. Sorry if this seems crazy! I really need to get a laptop!
Lostinmo...thanks for the hugs and support! I checked out your website...how awesome! I love the experiences you are providing to your son!
2friedeggs...our situations sound similar...idc, lcis, cysts, etc. My surgeon said today that I should have the bmx since its not a case of if it comes back but when. I would most likely be having to go through all if this again next summer which I def don't want to do! I love the ostrich eggs comp! You make me laugh! What made you decide to have reconstruction by te and implants vs flap reconstruction?
Soyaandpepper...sorry you have to make the decision about chemo. I hate when they tell you it is up to you!! Perhaps the sppt with mo will help! I was told by my bs that it may happen because of my age...I am 36.
Tazzy...thanks for the support. Great pic! You make me laugh! Now we all can see where we hope to be! -
Juneaubugg...I can relate! I slept 3 hrs the night before my lumpectomy! I am awake now again. I know surgery is tomorrow. What are they doing?
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My MO is pleasant but does not hug or be emotional at all.i kind of miss that part.
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Super Tazzy That chart made me laugh hysterically! Wow I have so many more eggs to get thru but I don't think I'll strive for ostrich size-it looks like it would be painful carrying those around-maybe Rhea (now I have to google and find out what the heck a Rhea is!) I'm probably a turkey now. lol Every one having the te's has you to thank for that chart ; great for goal setting. Think the ps's need to hang it in their offices!
Palmettomom My drs seemed to be in a quandry about every thing that was going on inside me and what I should do as well. The bs was fine with lumpectomy and rads and very frequent testing (which I didn't want to be worrying about testing all the time) the ro said there were some cases where they were experimenting with radiating the lcis but I wasn't fond of getting both sides radiated and being kind of a guinea pig and possibly have it not reallly do anything but my mo was more comfortable with the nsbmx; plus add a strong family history into the mix and the fact the mri was the only thing that showed anything and the biopsies only showed alh and no lcis or idc. As far as the te's go, It was just a quicker solution and I didn't want to deal with the posibilities right now of other issues with the donor site and the extended recovery. There is alot going on in the family health wise right now so this allowed me to be back on my feet in a couple days. My husband had to have flap surgury on his leg years ago and he still has issues from pain in his donor site plus the recovery was long and tough. i know so many women that have the flap especially diep love the naturalness of the breast but my dr's said there are alot that have a tough time with abdominal weakness. Some of the others that use muscle they said have issues with weakness where the muscle was used from back or abdomen and I really wasn't up for it . I guess the te's were a quicker solution for me so that I could have breasts quicker and deal with this bc for now.There doesn't seem to be an easy solution but the te's to me aren't that bad really and it's something that can be changed down the road should I decide to go that route.
Juneaubugg best wishes we'll be thinking of you.
lisa2012 my mo isn't a hugger either. I know what you mean though sometimes you need that. Mine is very compassionate and will listen to you and answer every question which definitely helps make up for thr lack of hugging.
Have a great one everybody
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Tazzy- love the chart!
2FriedEggs-If you go with ostrich you might have to ad a back brace.
Juneau-thinking of you today!
palmettomom-I'm glad you enjoyed the website. My chemo brain lets me write occasionally. Ususally when I can't sleep in the middle of the night.
I would try to write more but the SE's from the Friday are kicking in and I feel like poop today.
Hope everyone esle is doing good!
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soyaandpepper - what is the hormone receptor status on the tumors? I hope you got lots of questions answered by your MO yesterday. WIth my grade 3, my MO could show me how the statistics for recurrence would change depending if I did chemo or no chemo and tamoxifen/ai or no hormone blocker, etc... He used a website called adjuvantonline.com but I would not use that on my own if I were you. I found it and was able to get into it before I saw my MO and just found it scary but with his counseling and he knew how to manipulate it, it made a lot of sense and was not scary or confusing.
jpmom - CONGRATULATIONS!!!!!! woohoo!
juneaubugg - I am crossing my fingers that surgery is going or has gone well from you.
Wishing everyone has a lovely day! It is hard to keep track of all that's going on. I'll post my chemo-colada recipe later - I have to get my walk in before it gets to 95°F today.
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Palmettomom/soyaand... chemo is hard, but it works and is doable - if you need to go that route (I am sure I am repeating myself again.... Now not sure if that is an age thing or I can blame chemo). Just ask lots of questions... there is no such thing as a stupid question either.
Juneau.... Sorry you couldn't sleep - but understandable. I guess with the time differences you are already at the hospital. Thinking of you - sending good healing vibes your way. We're with ya honey.
Lisa... we all need a ‘hugging onc' - maybe you should make the first move and hug when he/she leaves the office. I guess to them they are doing their job... I mean can you imagine the world if we all hugged just for doing our jobs...actually that might not be a bad idea eh? Germy, but... ??
Lostinmo... cant remember if I said as well (thanks for the reminder palmettomom)... love your website and the experiences must be incredible for your son as well as you and DH. But your son especially. Sorry you feel like poop today. That sucks. Lets be 2 poops in a pod - cos I feel crap too.
Allurbaddays.... Is it hard to keep up because of the chemo brain fog or the chemo-colada's I wonder - hee hee
I am really sorry if I missed saying hi and sending hugs to anyone. Even feeling crap, if I don't check in, I miss you guys.
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I had TEs too, easier recoverybplus that's what my PS recommended and seems to do. My cousin who just had a preventative. BMX (brca1 pos, sister and 2 cousins with cancer) had a "permanent to implant" procedure where I guess they don't have to expand? Not sure. But she said she has to do an outpatient something to "adjust" it. I would have loved to skip having another surgery which I still have to set up. TEs don't bother me much now- and I am about a rhea egg (375ccs, on me like a small C like i was before) and that seems fine size wise.
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Hi ladies,
I am taking a break from work for a few minutes. in the middle of a 12 hour shift. those kick my ass when I am feeling good, they really suck during chemo, but I am happy I am working... I have the usual flushing post chemo/steroids. slept ok with the help of ambien. I am just thrilled to have the last chemo behind me now. PFC day 1!
Tazzy that egg chart is hilarious. I am about a cockatiel now, will be a finch by the time they do my lumpectomy. this must be day 3-4 after your last chemo, always the worst for the taxol, but just think you wont have to do it again! yay yippee yay! You'll get through it and be feeling good soon.
Best wishes and big hugs to Juneau, hope you can update us soon!
Lostinmo, sorry you are feeling bad too, hang in there. big hugs!
I agree with that Adjuvant website. I really dont recommend using it on your own without the guidance of your MO. I did for myself and the stats can look pretty scary sometimes without proper counselling. I got depressed for a while after looking there. The stats dont mean anything to the individual and that website is pretty good but it cant take in all the information about you. Your MO is a much better source. That website is what a lot of MO's use to help get an idea of the benefit of chemo and hormone therapy.
Hugs to anyone feeling like crap today! and even if you arent!
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2Fried..... turkey is perky
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Wow - I have a LOT to learn. I am new to all of this... My doctor found a lump just about a month ago in my left breast. Since that time - it's been a whirlwind. Right now I know i have IDC in my left breast and that it has spread to at least one lymph node. I just had some suspicious lumps on my right side biopsied late last week and am awaiting the results. The good news on that side though is that they didn't see anything worth biopsying in my lymph nodes on the right. I was told due to the placement and size of the lump on the left side that I'd have to have a mastectomy. So at 37, I have decided I'm just going to get them both out and rebuilt the same. And considering I'm an Ashkenazi Jew and my grandma had two separate BC occurrances - I imagine my BRCA1 test might come back positive. I don't have any of the info about hormone receptors yet, so clearly need more info on exactly what I have where. But what I do know is that I am set to have a double mastectomy on July 10th, to be followed by 16 weeks of chemo. Looking like a yucky summer for me, my hubby and our two little boys. Any thoughts any of you have to share would be great. My head is still kind of spinning... Thanks for sharing!
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Ramols, welcome and I am so sorry that you are having to go through this. You are so young as are a lot of us on this website. I was 41 when this all started at the beginning of the year and have 3 young kids too. there are lots of 30 somethings here too with kids. I know your head is spinning. I remember the feeling all too well. It does slow down at some point but you still have a lot of information coming. At least you have one of the big decisions made in terms of the surgery and have a plan. Its a start. I wish there was an easy way to get through this. You can see my stats below. My story is similar, I have a 2cm invasive mass with 5 cm of DCIS. I too know that i have a positive lymph node. I am small breasted but am trying a lumpectomy first, so far i havent shown any disease on the other side and my BRCA test wa negative. I am doing chemo before surgery and will have radiation. I and all of us will be happy to answer any questions we can. Ask away. cry, bitch moan, whatever you need and share the good things too. Whatever else happens this kind of thing changes your life but it can really make you appreciated the small thing and the important things in your life more. you are probably already noticing that some of the things that used to worry just arent important any more. This is a good group and i hope you stick with us. there are a lot of positive tough people here that have been through a lot and have been through what you are going through. Best wishes.
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Welcome Ramols, I am also fairly new to all this, had my first chemo treatment on the 22nd, today is not too bad.
I have found that reading the posts has really helped me to understand that all the emotions we feel are normal....but at times I thought I was going crazy.
The women on here are a strong supportive group and it has helped me so much.
I am one of the old ones here - 66 - I feel so bad for all you younger women that have to go through this terrible ordeal.
Sending Love and Hugs.
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Thanks both for your responses. I didn't realize how comforting it would be to see and read personal responses from complete strangers. Everyone has been telling me to join some kind of support network and I kept putting it off as I am trying to keep my life (and my kids' lives) as normal as possible while I still feel healthy. But my brain is getting the better of me with all these unknowns still out there. Waiting for biopsy results on my supposedly "cancer-free" side is a total drag, and waiting for my PET scan (scheduled for this Friday) is a major issue too. I just want all the unknowns to be out of the way. I desperately want to know exactly what we are dealing with so we can come up with a full and final plan to kick this thing. Having those unknowns still lingering out there really lets your brain run away with some morbid scenarios. And not that I'm saying death is any less scary when you don't have kids - but the fear of leaving my little ones behind is paralyzing at times. I know positive thinking can play a large role with physical illness, so I am doing my best to remain positive and optimistic - but the unknowns are the worst. Thanks for listening out there!
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Ramois, hope we can help. I know it's helped me in the 6 mos since diagnosis, double mastectomy, and then chemo. It's like you are trying to become an expert and understand many levels of medical stuff when you are pretty upset and worried. My kids are in early 20s so I didn't have the young ones. My sister's kids were 7 and 8 when she was diagnosed at 44. Hard.
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Ramols- So Sorry that your joining us. Please feel free to ask any questions, rant, cry, scream or whatever you need to do. We are all here for you. I've been doing chemo first so if you have questions about that ask away. I'll be finishing my last round on July 6th. Then off a few weeks, then surgery. Sending (hugs) to you and your little ones.
Ellendou-glad things are going ok for you with your first chemo!
I have to say that for feeling as bad as I did this morning, I managed to get a lot done today. Laundry, house cleaning, now if I could find something good for dinner.
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