May 2012 radiation

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  • Infobabe
    Infobabe Member Posts: 1,083
    edited June 2012

    mckenna

    I hope you keep coming back here.  

    I have been watching your story from the beginning because I thought I would be getting rads too.   I am not, but I am still interested.    You have given me guidance though you probably don't know it.  

    The aftermath is important too. 

  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    Since I'm the caboose on this Rads train, I totally get it if people don't want to stick around until then.  I'm so happy for all of those that are done!  Lately I've been feeling slightly more anxious when getting zapped.  No idea why.  Hopefully it will go away.

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited June 2012

    neeners...some of us have been done rads for months but we still want to support you and the others while they go thru the same thing. It will soon be over and we hope you still check in here once in a while!

    Try not to be anxious ( I know how dumb that sounds LOL) cause many of us had very little SEs, if any.

    The unknown is always scary.

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited June 2012

    I *clinked* you last night mckenna, both for starting the thread and for finishing your treatment Smile

    I, for one, plan on sticking around until we ALL graduate.   Since we continue to cook for a while after our last zap we can share recovery tips until we all move over to the "rads recovery" thread en masse!

    I hope everyone is doing well, I am wasting my time trying to figure out if I have a grade 2a or 2b skin reaction (does it matter - no, but I am curious and apparently unwilling to wait the 2 hours before I see my RO today).  My angry rash is growing, is not giving me any relief (for a while it was worse at night and better in the AM ... not anymore).

    It is 6:56 AM and already 82F ... I have to go for my run before the sun gets too hot for my even-more-sun-sensitive skin.

    On a non-radiation note, we are heading to Salt Lake City this weekend for a wedding.  They are having a 5K run in the morning and then the wedding at night.  Should be fun, I wish I could race, I will be lucky if I can stay awake for the wedding Smile (oh, and the bride is mormon, so there won't be any alcohol -- but that is ok, we are an industrious couple and if we need a drink I am sure we will be able to find one -- of course, we should wait until after the 5K). 

  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    are you kidding, i need an excuse to keep toasting people :)  of course i/we will stick around, somebody has to put those smilie faces up! anyway the caboose is the most fun part of the train.

    i think the more i had redness/tenderness/peeling/rashy, etc, the more i was anxious.  when you weren't seeing or feeling any se's it was easier to hang in there. 

    where is sbelizabeth???  hope she is doing ok. 

  • Goodie
    Goodie Member Posts: 244
    edited June 2012

    Neeners - Hopefully the next few weeks will fly by for you!  I sometimes feel anxious right before the machine starts.  I am also getting tighter where they zap.  Ugh.  I guess I need to stretch out more during the day.

    OMG - tech called me on the way to treatment this am (7 a.m.) and told me the machine was down and to call back in 45 minutes.  I was already on the way so I just kept going since it takes me 40 minutes to get there.  Luckily the machine was up and running within 20 minutes and I only started a tiny bit late.  I didn't want to miss a day and have it tacked on the end!  She was like we'll fit you in later in the day.  Wrong suggestion.  Anyway, today was the lady after me last day of treatment and I wanted to give her something and thank her for keeping me company these past few weeks.  So, I did get to see her and we got to talk a bit more since there was that tiny delay.

    Since there was a delay I got to see the first patient (her name is Lisa too) and it was her last treatment too and she got to ring the bell.  I almost cried.  I really can't wait until I get that last treatment and can take these markings off me and get my TEs refilled!  I need to make that appointment too.

  • etherize
    etherize Member Posts: 423
    edited June 2012

    BL, I hope your skin rash heals up soon!  Could the heat (the general outdoor heat) be making it worse?  Could it be prickly heat on top of radiation burns?

    Goodie, I'm so glad you got your treatment and didn't have to have it tacked on at the end! 

    I agree this is one of the nicest threads on the site.  Thanks to mckenna and everybody else! 

  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    bl, we must have posted at the same time.  i did not even know there were grades of rash, now i need to go google it :)

    have fun at the wedding and 5K.  is the wedding party running in the 5 K????

  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    the girls in my office just sent me a dozen ch. covered strawberries for an end of rads treat.  they look so good i am going to have one for a 3 o'clock snack.

    i could not find any photos of 2a vs 2b rad rash, i am betting mine is at least a 2b :)

  • Lagata1276
    Lagata1276 Member Posts: 85
    edited June 2012

    Had to jump on the May thread and congratulate Mckenna and Etherize! How wonderful to be finished with rads. Now, back to June...

  • mckenna
    mckenna Member Posts: 413
    edited June 2012
  • Jan24
    Jan24 Member Posts: 64
    edited June 2012

    This is a great thread, I'm still here for Neeners and all. I received a call from my neighbor friend she was diagnosed with the dreaded cancer yesterday. As I mentioned I am road tripping back to MN. Wish I was there for her in person. She is seeing my surgeon on Tuesday. Doesn't it just make you wonder what the @$!# is going on?

  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    McKenna - oh NO.  Blisters :(:(  Yikes.  So sorry about that.  

    Jan - so sorry for your neighbor.  Man it really DOES make me wonder what the f is going on.  Horrible.

    Thanks to all of you lovely ladies for hanging in there with me!  The caboose appreciates it.  TOOT TOOT! 

  • jittersmom
    jittersmom Member Posts: 165
    edited June 2012

    Neeners815...hang in there. the end is in sight!

    I am toasting everyone tonight... right now I am at the peeling stage its wierd because where i got the boost isn't that bad it the rest of my boob that peeling!

  • Jan24
    Jan24 Member Posts: 64
    edited June 2012

    That is strange. I haven't peeled yet but boost area is certainly more red.

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited June 2012

    Oh nooooo blisters mckenna?? ouch.  

    Thanks for the toast jitters Smile 

    So, my rash is worse.  Last week the "sub" RO said I could use over the counter hydrocortizone ... it did not work, so I have been using some prescription stuff I have ... well, that helps with the itch, but it burns like crazy and it has not stopped the rash from spreading.  When I showed "my" RO today, she said not to use the prescription stuff, the area is too large and it means I am absorbing too much cortizone ... she wants to see me again at the end of the week, to see if it is getting any worse and until then she gave me some Radx cream that has lidocaine in it (that numbs my skin).  I am willing to give anything a try.  I did not tell you guys, but my daily "regime" has been off because of this rash ... all my lotions failed me -- although lefty liked them a lot ;-).

    I also discussed "follow-up" today, and I guess I will be trading off seeing my RO and BS for the first 2 years (every 6 months) and then yearly after that ... I am still not sure what the mammogram schedule will be, but I told my RO I would be really happy with yearly, and I think she agreed.  Nice to have that out of the way ;-). I still have a follow-up MRI because of some silly thing that they saw in March -- that was not serious enough to biopsy, but they wanted to check again.  I am sure it is nothing and I am looking forward to no more MRI's either!!

    Sorry to hear about your neighbor, Jan ... she is lucky you are around to help her navigate things ... send her on over here too, we know how to give good hugs (and cheers).

    Happy evening ladies. 

  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    jan, sorry about your neighbor.  it is strange that so many people seem to be diagnosed lately.

    bl, sorry about the rash, i need to ask about the cream with lidocaine. 3 more to go, you are almost to the finish line!!!

     i am in a lot of pain today.  bringing tears to my eyes pain, i have not really cried about pain during this whole thing but if i had to say on a pain scale i would be a 6+ i called the ro nurse this am to see if there is anything else i can do.  i seriously would have not been able to go to rads today if i was still in the midst of radiation, i think i would have just quit.  i feel like such a baby. 

    i will be seeing MO, RO and BS at some sort of interval like every 4 months but i have an mri and mammo alternating every 6 months.  i hated that damn mri and the mri guided biopsy but it is the only thing that found my cancer so i feel safer with it.  next time i think i am going to ask for a valum or something to take before the mri. 

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited June 2012

    mckenna, I am so sorry about the pain.  I was so uncomfortable last night that I did not think there was any way I could sleep.  It is a little better today, but not much.  Crying did come to my mind too.  I am worried about the wedding this weekend, my skin is so bad I just can't imagine what I am going to do (or wear for that matter) if it is as bad as last night.  The lidocaine, unfortunately, seems to make it worse.

    3 more after today, I really feel like playing hooky.  If I thought it would feel better if I didn't go, I wouldn't go, but I think the damage is done now, and it will take a while to get better - so I might as well see it through to the (bitter) end.  

    I took a valium before my mri, it made it much better -- I also take one before all my biopsies too, it just "takes the edge off" enough to make it 'bearable'.

    Happy Hump Day ladies!  Carry on!! 

  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    I am so sorry to you ladies in pain.  Man, it sounds awful :(  When I read your messages about the pain I try to hide the screen from righty so she doesn't get any ideas. ;)  Kidding - I know my time is coming, unfortunately.  I definitely have a different color now.  Today I am 40% through.  For some reason, every time I tell the techs the % I'm done, they aren't that thrilled.  Haha.

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited June 2012

    ha ha Neeners -- you can't always protect the girls from the truth Smile

  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    They can't handle the truth :(;)

  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    neeners, thanks for the laugh.  i think you should keep the girls in the dark as long as you can :) 40% done is great!!!  what yous your hump day?

    are any of you going to have reconstruction after lumpectomy?  i am not sure if i posted this here or not, but i totally thought i would never go for reconstruction.  but now i think i want it.  i would have the good boob decreased to the size of the bad boob and have both of them lifted.  i was thinking of doing it for my 40th birthday in 2014 Kiss

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited June 2012

    ha ha ha ha ... awesome!!

    I think that would be an aweome 40th birthday present mckenna!  good for you!  will insurance cover any of it? I don't think I want any more attention shown to mine, all this attention has not done anything for their attitude Kiss 

  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    bl, i had to call my ins. co about another issue so i asked about what would be covered and it is surger to the unaffected breast to provide symetry is coverd :)  i figure i got cancer for my 38th birtday, i am getting some good boobs for my 40th!

  • Goodie
    Goodie Member Posts: 244
    edited June 2012

    mckenna you are funny.  good boobs for your 40th. 

    RO and nurse are happy with they way my chest looks.  I just have some redness above my breast plate and neckline thus far.  I'm sorry you ladies are dealing with pain.  Is it everywhere or certain areas?  Makes me want to go put on some more of my lotion.  Do you think the lotions help or it's going to happen anyway?  Ugh.

    Neeners - you make me laugh too.  My techs didn't react when I said I was 25% done or 50%.  Whatever.  I brought them brownies too and they never mentioned them at all and they are the most amazing brownies if I do say so myself.  Whatever.  My infusion nurses loved all the food I brough them.  Maybe I'll bring them chocolate chip cookies when I make them! ha 

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited June 2012

    ok you guys, maybe I am just silly (ok, I know I am), but we need to publish this stuff:

     "RO and nurse are happy with they way my chest looks"  - we all are Goodie, we all are Wink

    In all seriousness, I think that the lotions might help in the beginning, but some people are going to have problems at the end, and some aren't ... hard to tell who is who.   In the big scheme of things, mine is not serious, just very uncomfortable.  I was so depressed about it last night I was thinking that I was going to have to cancel my plans for the wedding this weekend, but I think that was just me being overly dramatic.  I am sure that this too shall pass, and maybe if I am busy enough I won't think about it (ha). 

  • FLislander
    FLislander Member Posts: 243
    edited June 2012

    Hi congrats to all that have crossed the finish line!

    I have 6 to go and have 3 burnt spots, I used miaderm like they said and aquapor at night. The burn spots are above my collarbone and below my armpit. I was not putting lotion in those areas thinking they were not in the field for the first weeks until it was too late.

  • Dizzy215
    Dizzy215 Member Posts: 74
    edited June 2012

    Had the last of my whole breast rads today...yippee!!  It was great to finally take that sticker off my cleavage - looks so weird not to have anything there after so long!  7 boosts start tomorrow. I'm worried about the position they are going to put me in - lying on my left side with my right arm above my head - and me with a right rotator cuff problem, ouch.  They tell me each session will be super quick, so thats a blessing.  

    BL and Mckenna, sorry to hear about rashes & pain.  I agree the 1% cortizone doesn't work. It hasn't ameliorated my itching or the spots. On the whole, my skin has fared well so far and the techs said it was holding up just great but I think the boost area is going to take the brunt of it :(.  I may have to go braless for a while and go back to the baker boob treatment to stop any chafing.

    I've decided I'm going to make my team a fruit basket, just like Edible Arrangements, but at a fraction of the cost Wink.         

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited June 2012

    Congratulations Dizzy!!!KissSmile  

    I ordered some of the personalized m&ms, but I want to do something healthy too. I am not patient, organized, or artistic enough to do anything like my own Edible Arrangments - you rock! 

  • Dizzy215
    Dizzy215 Member Posts: 74
    edited June 2012

    Thanks BL, we'll see how the arrangement works out....if I fail miserably there's an EA store that's on my way to the hospital, so I can always stop in on my way there!!!! 

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