May 2012 radiation

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  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited June 2012

    awww s&b -- hugs to you, and I am so glad that you got the empathic tech yesterday, of all days.

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  • Goodie
    Goodie Member Posts: 244
    edited June 2012

    Jan - love the m&ms

    BL - great funny boob story!

    sbelizabeth - hugs to you too!  It gets tiring putting on the "good" front for people so they feel okay and how "strong" we are.  They have no idea and their comments really hurt.  I'm glad you had a nice tech to comfort you today!  :)   

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  • Jan24
    Jan24 Member Posts: 64
    edited June 2012

    BL - love the story, mine was hot too Cool post a pic of the key ring when you have time  selizabeth I hear you. I'm glad you guys were able to see the M&M photo, it took me forever to post it and my career was in technology....duh

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  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    Jan - cool M&M's!  I'm giggling about it taking you forever - sounds like me and I'm pretty techy, too, but sometimes I just get stumped.

    SE - It gets old, no doubt.  I feel like a white board when I go for rads - written on every freakin' day and really barely spoken to.  

    Today she came and got me and everything wasn't even set up.   She then told me she doesn't get in until 8 (which is when my appointment is).  I'd like to just change my time to 8:10 then or something. I don't like sitting around waiting - very impatient.  I'm almost to the top of the hill - Monday I'll be 50% through.  Today my scar is really pretty red, and it was definitely pink around the nipple. 

    I'm so tired of talking about my boob, but I can't seem to stop. 

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  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited June 2012

    "I'm so tired of talking about my boob, but I can't seem to stop."  ha ha ha, completely!

    here is our keychain an the beautiful card that it came in: 

    https://plus.google.com/photos/104820689596309836751/albums/5756629326459792289?authkey=CKTPv4SPlLzGrgE 

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  • Spokanellie
    Spokanellie Member Posts: 46
    edited June 2012

    Thanks for uploading the photos of our keychain and card, BL. Does anyone else see a boob with a large black nipple on the keychain, or is it just me? I swear, the mountain scene on the ceiling of my treatment room has a boob, but only when the tech forgets to turn on the ceiling light. I think I have an illness. Just sayin'.

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  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2012

    Hey, Spokanellie, how's the femara treating you?  Any SE's to speak of?

    The guacamole today was a hit with the rad techs.  I just bought a new apple-green Kitchenaid mixer, so maybe it'll be snickerdoodles next week. 

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  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    Spoke - I have a shadow of my own boob on the ceiling when they're lining everything up correctly.  At least I always thought it was my own boob... but I can't move to find out!  LOL.

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  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited June 2012

    Spoke!  ha ha ha ... I had not seen the boob, but now I do!

    The only time I see boobs in my treatment room is when they take my x-rays.  They use some backlighting and a shadow of my boob (not its former self, but current) shows up on the backdrop - it always drives me crazy because they NEVER line my nipple up exactly to the midline - never.  

    SB -- WOW ... you are awesome!  I have been making smoothies (for me) using our candy-apple red mixer -- and I was complaining about how hard it is to mix the frozen fruit.  My husband says, "you need to get a professional one if you want to juice, that one is for frozen drinks". 

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  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2012

    Anyone read "There's No Place Like Hope" by Vickie Girard?  She talks about sneaking inspirational stickers onto the CT scanner donut where patients could see them.  Anyway, I stopped by WalMart and bought stickers this morning, and will figure out a way to stick "ON FIRE!" and "YOU ROCK!" to the manhole cover today. 

    C'mon, girls, we're in this together.  They can't send all of us to radiation jail.

    I also bought temporary tattoos and am now sporting a red dragon on my very, very bare forehead.  Right there at the corner of the newly-sprouting hairline.  Today, I am a bad girl.

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  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2012

    "FIRED UP!"  Yup.  That's going on there too.

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  • pattycal5
    pattycal5 Member Posts: 2
    edited June 2012

    Thanks for the welcome ladies!  I love reading all of your posts, it makes the whole thing seem less lonely.  I'm sure my family is tired of hearing me talk about my boob, haha!  I'm trying to upload a picture on my profile, but it won't let me, or I'm doing something wrong, any tips on that?

    Dizzy, we have very similar dates in this process, I'm having 7 boosters out of the 33 treatments as well.  Thanks for adding me to the list McKennaSmile  I agree with those that mentioned that you pay and the fatigue increases when you overdue it, I'm much better after taking some days off from work...a good reason to stop cleaning the house! 

     Have a good day...the hot temps have finally passed. 

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  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    sb, that is too funny, i have to know how you are going to do that with cameras on you.  i love it!!!!!

    i love the tatoos too.  when i worked on a peds onc unit years ago.  i used to paint kids heads all the time, they loved it!

    i love that you all are seeing boobs everywhere!!!

    haven't seen anniem around here lately but today is her last day of rads so congrats!!!!  SIX of you graduate next week!!!!  so happy foreveryone.

    enjoy your two days off.  today is officially the most days without rads i have had since starting mid may.  however by looking at my skin you would never know it. :(  i only have enough surgery pads to last until wed. so if by monday i am not showing much improvement i am going to ask to be seen on tuesday.  walking that bridge and taking the elevator to LL is the last thing i want to do but there is no way i could have a bra cutting into this rash/blister area. 

    .

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  • Jan24
    Jan24 Member Posts: 64
    edited June 2012
    SB - i love your spirit !  mckenna - If you are wondering who the stranger is (named Mark) that likes your facebook photo it's me Lynne.  When I went to Facebook to view your photo I was logged in as Mark and of course I didn't want to unlike because I love the shirts.
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  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    it isn't my photo it is from the fb page of the lady who made them. but thanks, they are cute.

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  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    sb you made me laugh out loud! I'm wondering how you're going to do it, too.

    I have some weird slightly tingly on the side of my face.  I have no idea what it is, but I've had it on and off.   I think I'm just being paranoid and noticing everything at this point in time, but I'll ask the doctor on Tuesday.

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  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited June 2012

    I am at the airport -- and might not be back until later this weekend -- but I couldn't help but post to SB -- don't worry, we will visit you at rads jail, maybe I will try to bake you some cookies (with a file inside) or we will break you out!!   I actually spent my treatement trying to figure out how I would paint the ceiling to make it more "comfortable" and "cheerful" -- or at least comforting.  

    mckenna - awesome shirts!

    I am sporting a beautiful,  "skin colored",  breathable bandage ...  I did have to change my dresses for the wedding, the I originally wanted to wear just showed too much "chest" and would not work -- it is ok, the other is nice too (although I wore it at the last Salt Lake City wedding we attended -- luckily, they are a different set of friends and there is no overlap ;-)).

    Have a great weekend ladies. Stay cool!! 

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  • Goodie
    Goodie Member Posts: 244
    edited June 2012

    BL - have an awesome time at the wedding.  I hope you aren't in too much pain or discomfort.  Our rads ceiling has pink cherry blossom branches and a clear blue sky.  I asked tech if they change it for summer soon but they don't.  It's always spring on their ceiling.

    mckenna - love the shirts!  I hope you start to get some relief too!

    SB - I wish we could watch you on a sneak cam!  Can't wait to hear about it!  Yes, we'll visit you in rads jail.

    Neeners - is your face in the way of your rads?  I have to turn my head so my chin doesn't get in the way.

    I see reflections and shadows of my "boob" too during treatment and xrays.  Kind of funny. 

    It will be nice to have two days off.  I took another 2 hour nap today.  I'm just exhausted today.  I guess I did too much organizing of my summer clothes yesterday and then DH and I went out for dinner.   I'm so glad I have you all to keep me company and help me relax.  :) 

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  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2012

    https://pinkribbonandwheels.wordpress.com/

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  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    BL - thinking of you and that wedding and hoping that you have a fantastic time!

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  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    Sb that was beautiful.

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  • julz4
    julz4 Member Posts: 2,490
    edited June 2012

    Sb, I'm a CNA I work in a nursing rehab home for about 10 years....it's gonna be emotionally hard to go back to work July 1. My job is very rewarding, but now will be more challenging on so many levels in the face of my future as I look in some of my residents eyes!

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  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2012

    Thanks, mckenna, the blog has been such a wonderful outlet for feelings, frustrations, blessings, and gratitude.  

    Julz4, I think I know where you're coming from.  Right after my initial nasty diagnosis, when I was so depressed and scared, I would look at elderly couples and think, "how sad...now we're never going to get there."  I don't still feel that way, though.

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  • Jan24
    Jan24 Member Posts: 64
    edited June 2012

    SB I love your blog, brought tears to my eyes.

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  • julz4
    julz4 Member Posts: 2,490
    edited June 2012

    Sb part of it is I am sharing a path they have walked. I work mostly with elderly. In the many elderly ladies that had BC that I have come across MOST have had a MX. Because that's how they were treated many years ago. So I will take comfort in that thought... But I am not delusional because I've cared for second timers & also held a few hands of those taking there last breath. I pray my 4 sons & DH never have to see me that way!

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  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    Neenes cover the girls before you read this :) I have more blisters. Now the are all around the nipple and one is infected. I put a bunch of antibiotics cream on a small pad and covered the nipple and will call ro tomorrow morning. Lucky me I get to drive 3 hours round trip to take the kiddo to boyscout camp. There are pain pills in my future this evening :) I'm done this is supposed to be the easy part :(

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  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2012

    mckenna, sorry about the blisters and pain!  My tip is to stay away from Neosporin, sometimes people are allergic to the ingredients and it might make things worse.  Polysporin is a better choice.  

    Safe travels today, and a comfortable evening later... 

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  • Goodie
    Goodie Member Posts: 244
    edited June 2012

    SB - I love your blog!  Thanks for sharing with us.

    mckenna - I am so sorry you have more blisters and the pain.  LOL though to Neeners to cover her girls!  Ugh, Really I too thought you should be in the easy part now that you are done!  Wow, be careful driving! 

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  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2012

    Aaaugh!!!  

    Sitting here at the kitchen table, reading the newspaper, and something's feeling zingy on my chest.  Itch, itch...scratch, scratch...OW!  

    My husby has a look.  My chest is SUDDENLY covered with blisters and I've just scratched two of them open.  Yesterday I just looked red and glowing, and the blisters popped up overnight.   Rats.  So much for feeling smug about how well my skin is doing.

    Goodie, thanks for reading.  My daughter-in-law set me up with the blog when I was first diagnosed, and it's been a great source of emotional release.   

    Have a great Sunday, everyone.  I'm off to cut my nails... 

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  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    Sb ugggg. It is weird how one day you think your skin is doing well and the next blisters :(. Kiddies is at camp first time away for a week don't know who is more nervous?



    Infected spot seems better than this morning :)



    Hope everyone had a nice weekend and cant wait to mark off all the graduates this week.

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