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  • riley702
    riley702 Member Posts: 1,600
    edited May 2012

    Kelly, our responses to chemo really seems to be a total crapshoot, doesn't it? It's frustrating to not know how you and the tumor will react. 

    One of my oncologists said that often, how we tolerate chemo may be genetic; if you tolerate it fairly well, it's a lucky roll of the dice to make up for the crappy one that let us get cancer in the first place, maybe. He and I were discussing that it had taken a long time for my hair to fall out. It never really all fell out, I just got sick of looking at it thinning and finally whacked it off.

    I had told him that when my Dad had lung cancer, he'd tolerated chemo fairly well and his hair had only thinned. We worried at the time that it might mean that his chemo wasn't working, but this onc said there was NO correlation between side effects and efficacy. That some people sail through chemo with good results, while other dear souls have horrible side effects and then find out the chemo isn't working, anyway. It would totally suck to be in that last group. I muddled through fairly well (no long-term SEs that I know of, no neuropathy, etc., although I wasn't happy about temporarily losing all of my fingernails and toenails). I didn't have a complete response to the chemo, but it did knock the tumor down from 4.5 x 4 cm at the beginning of chemo to 1.1 cm by surgery. The tumor did leave behind what the surgeon called "architectural distortion", which made him recommend MX. He's kind of known for trying to save the breast whenever possible, and I wanted them both off. I thought I'd have to argue my case for MX, and then didn't. Laughing

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited May 2012
    A 72-year-old man goes for a physical. All of his tests come back normal so the doctor says, "Paddy, everything looks great. How are you doing mentally and emotionally? Are you at peace with God?" Paddy replies, "God and I are tight. He knows I have poor eyesight, so he's fixed it when I get up in the middle of the night to go to the bathroom, poof! the light goes on. When I'm done, poof! then the light goes off. "Wow, that's incredible," the doctor says.
    A little later in the day, the doctor calls Paddy's wife. "Mrs O'Reilly," he says, "Paddy is doing fine but I had to call you because I'm in awe of his relationship with God. Is it true that he gets up during the night and poof! The light goes on in the bathroom, and when he's done, poof! The light goes off?"
    "OH GOOD GRIEF!" Mrs O'Reilly exclaims, "He's peeing in the fridge again!"-
  • linali
    linali Member Posts: 194
    edited May 2012

    Hi caroline,

    They will give you anti sickness medication, both at the time of treatment and to take after. If it isnt working ring them in Limerick or if your mouth becomes sore. You may be given steroids and these will give you energy for about 3 days and when I got into the routine I learned to do any hectic stuff then . I baked all my xmas cakes at 5am 2 days after my chemo.

    The breast care nurses are great, mags , michelle and laura and you can ring them or speak to them in the day centre. The support centre in the ground of the hospital offers different therapies and help. Did you get your medical card and your travel to care grant?

    The women on these TNBC threads are incredible and give great support and laughter.

    I am attempting the flora womens marathon on monday and if I feel like giving up I will think of you and bernie ellen and keep on going.

    Sending you healing thoughts and ask ask ask 

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited May 2012

    Good Evening Ladies

    Dulcie/Kathrynn - may be as we are older we can laugh a bit more about BC and just think, ok you can just sod off, you've taken my boob/boobs but you aint having my humour.

    Tazzy -  I've been trying to find normal all my life love and I aint found it yet. 

    Wow what cold winters you have.  One of our locum doctors comes from Vancouver every year from November to March then he goes home for the summer. Wise man.

    Yep was up until the wee small hours just like you. There is only so much solitaire you can play at night and then its back to bed to dream about taxol.  

    OBXK - what's a 'thing' aversion. Is that something like my aversion to mushrooms and rhubarb.  Haven't been ablt to stomach rhubarb since a boy at my primary school (!!!) vomited it up one day in front of me and rhubard was in the vomit. Yucky little sod spoilt my day.

    Great idea about the warm socks and pants for rads. I will keep that in mind for mine.

    On the wheat bag if you post me your address I will send you one. They make your arm a bit pink with the warmth  but they can find a vein easily enough and the pink will go quickly.  They are also good for warming and putting on back backs, legs etc. 

    Ah the son, don't you just love young love providing it doesn't produce anything!!

    You are not fat, you might be gassy (you need a good fart) but not fat.  You are what you are and we all love you anyway.

    Why do you have to get croissants from France. America has everything in my book.

    That is a terrible thing to admit "you have had worse hangovers" than chemo. Shame on you. 


    Mags20487 - talking about the nether regions well when I go for treatment I always wonder if the loo is cleaned properly so I sit on the very edge of the seat on the edge of my knickers so I don't have to touch the seat much. Well when I went this time I forgot about not  having any pubs to direct the flow and I wet all the edges of my knickers.  Christ was it embarrassing walking back into the chemo room gingerly all wet.  All I could think of was disinfectant, disinfectant.   

    Titan - totally wrong you warm your arm or legs etc with the wheat bag not your dishes lol, lol, lol.

    Riley702 - I often wonder if my chemo is working as after a day or two of SE's I bounce back very quickly. I find I worry about it a lot. 

    Genetics.  I sent my blood sample and death certificates away almost three months ago.  All they did at todays visit was talk a whole lot of jumble about genes which totally went over my head and then said she had to make a decision on whether I was  tested.  I was gob smacked as she said yes she is going to test and send the sample to Australia and the results would take three months.  What a waste of time.  So we all went and had a lovely lunch.         

    Minxie - great news on clean margins and no positive nodes. Way to go.  You just need the good news to sink in then you will be happy.

    Kathyrnn - bloody cold shoving that icecream there!! what do I do with it after!

    BernieEllen - great joke.  Made my day.

    Victoria3N - I too shake in my boots for every little bit of treatment. They must think here comes 'oh neurotic one'.  Port placement is ok just a bit sore on the breast bone if you try to sleep on that side for a while but my port on my chest was not too sore.  Just ask them to place it away from your bra strap. You will be fine with chemo, ask the girls on here.

    Lovelyface - stay off google pleaseeeeeeeeeeeeeeee. Best bit of advice I was ever given.

    Well ladies on that note I will leave you until the next time. Have a good day/night. Keep well and happy. Annie 

  • kathyrnn
    kathyrnn Member Posts: 393
    edited May 2012

    Just a quick post, because I'm grabbing a day of joy!



    I had to take my friend to the airport in Providence, which just so happens is about the half-way point to Foxwoods Casino. My neighbor is doing guard duty on Mama and I'm on my way to go play poker for the day. Already had some luck, lol, got behind a tractor-trailer hauling ass down the highway (if you have a lead foot, you want to get behind a truck driver, the have a CB and know where the cops are). Having breakfast and will be at the tables soon.



    Cocker - you're absolutely right, they'll never get my sense of humor! And I forgot to tell you, don't eat the ice cream after, lol

  • christina1961
    christina1961 Member Posts: 736
    edited May 2012

    Just popping in to say good morning to all you great ladies!  Annie, you keep me laughing!  You too, Bernie!  That one is great! I think I'll tell my sister that joke.

    There is no way I can keep up with all the posts right now - this is a busy bunch!  I haven't had much time to be on here lately, but thinking of you all. 

  • Tazzy
    Tazzy Member Posts: 2,546
    edited May 2012

    I think this has to be the busiest board on this site... phew !

    Minxie - BC can make us all very numb and emotionless I think... especially when you hear so much its too much to take in. 

    OBXK - you are getting croissants from France... sounds very decadent - really ?!  What's wrong with American ones.

    Kathyrnn - Maxine is my role model - ha ha !!  You and Cocker crack me up... you are hilarious. thanks you for making us laugh - its what we all need.

    Bernie - thanks for the chuckle - lmao.

    Victoria.... Good luck with the port and the tests.... It's a horrible time eh?   My last 4 treatments were
    Taxotere (2 more to go) .  Agree with OBKX - Se's kicked in couple of days after - like you said thought had worse
    hangovers... good analogy.  And everytime I felt crap I thought to myself if its doing this to me... it must be kicking
    cancer's butt.

    StayShiny  - hope your last treatment went well.

    Riley - sorry you lost all your nails... did they not give you frozen gloves to wear?  I do (only for the hands though) and although my nails are weaker I still have them.   That would suck!

    Linali.... Good luck at the marathon.

    To anyone else and all of you - have a wonderful day and good luck at the casino Kathy.  

    Hugs and positive vibes to you all

  • Lovelyface
    Lovelyface Member Posts: 674
    edited May 2012

    Hi Wrenwood,  Thanks for your reply re: the Budwig diet.  I did buy an immersion blender and actually have been bonding the cottage cheese with FO from day one, with both the regular blender at first and the hand immersion blender.  I had read the diet thoroughly, actually I am very anal about such things when I am on to something.  At first even though I was using a regular blender, I was still bonding the two items exactly as instructed.  When they are bonded really well, one cannot see the yellow oil at all, it is a creamy white mixture to which I added manukka, brazil nuts and a little bit honey. The diet indicates, the ratio is one FO to two CC, so one to two.  But if it works for you to use 1 cup of CC, to only 1 tbl. FO, then maybe I could try that, although one cup to me will be a huge amount of CC to consume.  The diet also said to add 1 tbls. ground flax seeds (dark golden brown), to the mixture.  I tried different things, such as not using the ground flax, still had the pain, then I tried to reduce the FO to only 1 tsp., still had the stomach pain.  I think my pain has something to do with the sulphur in the CC. 

    I was so impressed with this diet the way it was producing positive effects at every level.  My thinning hair became thicker overnight, people told me I was losing weight, I felt a surge of energy, no more lethargy, and my skin is glowing.  I think I finally achieved hormonal balance.  But now, this damn stomach pain.  The pain does not go away with anything, such as drinking warm water all day, taking gas/anti-acids, eating, it just is there all the time.  The stomach is finally getting back to normal today.  After I consume the stuff, at first there is no pain, but it starts after about 4 hours, bloating, pain, some gas.......  I am thinking about eating something first in the morning and then consuming this at around 10.  But now I am so freaked out about the pain, I just cannot go through several days of pain once it goes back to normal this time.

    I will try to send a pm to painting.  This amazing scientist had something really going with this discovery. I think she was brilliant. Two simple foods can create so much cure, I believe in this diet.  Thanks again, and I am so glad this is working for you.  I just wish I could know the secret to the cause of the pain, is it the FO or the CC, and if it is the sulphur, then what could possibly calm it down.  Oh - one thing I forgot - I found out that maybe I could be allergic to the flax seeds.  Not sure how to get that checked.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited May 2012
    Jane was a first time contestant on the $65,000 quiz show. Lady luck had smiled in her favor, as Jane had a gained substantial lead over her opponents. She even managed to win the game but, unfortunately, time had run out before the show's host could ask her the big question.

    Jane agreed to return the following day. Jane was nervous as her husband drove them home. "I've just gotta win tomorrow. I wish I knew what the answers are! You know I'm not going to sleep at all tonight. I will probably look like garbage tomorrow. "Relax honey," her husband, Roger, reassured her, "It will all be OK."

    Ten minutes after they arrived home, Roger grabbed the car keys and started heading out the door. "Where are you going?" Jane asked. "I have a little errand to run. I should be back soon."

    After an agonizing 3 hour absence, Roger returned, sporting a very wide and wicked grin. "Honey, I managed to get tomorrow's question and answer!" "What is it?" she cried excitedly.

    "OK. The question is 'What are the three main parts of the male anatomy?' And the answer is 'The head, the heart, and the penis.' " The couple went to sleep with Jane, now feeling at ease, plummeting into a deep slumber.

    At 3:30 a.m., however, Jane was shaken awake by Roger, who was asking her the quiz show question. "The head, the heart, and the penis," Jane replied groggily before returning to sleep. And Roger asked her again in the morning, this time as Jane was brushing her teeth. Once again, Jane replied correctly.

    So it was that Jane was once again on the set of the quiz show. Even though she knew the question and answer, she could feel butterflies. The cameras began running and the host, after reminding the audience of the previous days' events, faced Jane and asked the big question.

    "Jane, for $65,000, what are the main parts of the male anatomy? You have 10 seconds."

    "Hmm, uhm, the head?" she said nervously. "Very good. " Six seconds." "Eh, uh, the heart?" "Very good! Four seconds." "I, uhh, ooooooohh, darn! My husband drilled it into me last night and I had it on the tip of my tongue this morning..."

    "That's close enough!" said the game show host, "CONGRATULATIONS!!"

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited May 2012
    My baby Calva at seven months (she's at the back)
  • Tazzy
    Tazzy Member Posts: 2,546
    edited May 2012

    Bernie... love the jokes - keep 'em coming Laughing

    Love the dogs even more.. they are beauts.     Both yours?   Is Calva a bull mastiff?

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited May 2012

    Good afternoon ladies,

    I'm having such issues typing lately.  Typed out this long long paragraph yesterday morning only to have it dissappear.  Thanks for all the congrats, very excited to start my new job.  Hubby is being a pain in my a**, can't believe he keeps going on and on about not moving up and he changed his mine.  WTF!!!  He drives me crazy.  I miss my dogs and was in such a great mood yesterday but he killed it. 

    Hope everyone is doing well.  Bernie, love the jokes and the pics. 

    He's my precious little pumpkins, I miss them and that darn bed.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited May 2012

    Hi Mccmrimmon,

    Is there a full/new moon coming up soon?  My DH was a complete jerk the other night.  I wasn't feeling too good when he got home from work... just tired of being tired and sick... you know what I'm talking about.... and his worldly wise sarcastic comment was..."Well you are in fine form tonight eh" and walked away.  All I can say is that he is lucky I didn't have a sharp object in my hand at the time.  Of course after he had retreated to his man cave for a beer he came back grovelling saying sorry and he'd had a crappy day at work.  I made the DH suffer til the next day - dont get away with it that easy Buster !!  ha ha.  Oh! and he had a crappy day... take mine !!  Grrr!!

    I do not have a dog (I did when I lived in the UK) but we have become the Grandparents of our neighbours dog Tucker.  I thought I was pretty computer savvy... guess not, I cant post a picture of him as you and Bernie have done.  Tried copying and pasting...no luck - what is your secret?

    Anyway, we dog sit Tucker if they go away and do not take him, and on my good days I walk him when they are working, and he comes over to visit when they let him out to run in the yard. 

    Dogs give unconditional love.

    When do you start your new job... so happy and excited for you.  Will you share what it is you do?

    Michele

  • lisadi1963
    lisadi1963 Member Posts: 24
    edited June 2012

    Hi everyone!

    I am having my lumpectomy 6/5. They are putting a wire in before surgery. Does anyone have any info on this procedure? Also what kind of bra should I get for after surgery? I've heard some say to get a sports bra.



    Thanks for any info!



    Lisa

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited June 2012

    Tazzy, I believe someone (you??) asked what I did before and I forgot to answer.  Nothing exciting, just bookkeeper work.  Dogs do give unconditional love and I miss mine terribly.  Hubby, has OCD issues and is really suffering down in Florida alone and I can truly understand that but he's being very negative and nasty with me and I'm just very frustrated with it.  Sorry to be such a downer everyone, sometimes I feel like if I talk to much about it, it gets old and then people think badly of him and he's really a great guy who thinks of me first in everything except when he gets in the "mood" he just gets very negative. 

    Anyway, start my new job on Monday, spent today sort of feeling sorry for myself, think I'll pick up some fifty shades of grey tonight and start fresh in the morning.  Going for my 2nd haircut since chemo!!

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited June 2012

    Hi Ladies

    Lisadi1963 - I'm afraid I can't help you with the wire and bra issues as I haven't had this type of procedure but I am some of our ladies on here will come along soon and help answer your questions.   Good lunch with your lumpectomy.  Will be thinking of you.

    Heather - I guess the men get down too in their own  way with them thinking about things and worrying about us. They are not so forthcoming as us girls and can't let it out like we can with a good cry or a good laugh.  I guess too your old fellar is missing you like hell and wants to be with you so much.  We won't think badly of him because he loves you and wants to be where you are right now and he's good to you and for you so hopefully it won't be too long before he can join you with those babies of yours. 

    BY the way what is a hair cut!! So long since I had one.     

    Good luck starting your job on Monday.  Nothing wrong with book keeping work.  Hope you enjoy it and make new friends. It's my turn to have a day off on Monday so I am looking forward to no typing on that day.  Nothing exciting there either with typing but a jobs a job. 

    Inmate - no sign of you and I am getting worried now.  Please come on when you can. 

    Have a good day ladies.  Thinking of you. Annie     

  • onvacation
    onvacation Member Posts: 1,344
    edited June 2012

    Lisa, I had that proceedure done, the wire is placed by ultrasound before the surgery to direct the surgeon.  I wore a sports bra for several weeks after wards.  I got some nice ones at target that were cheap and comfy!  Good luck!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    Blame it on the chemo brain.. ha ha ha!!   You say not an exciting job....my Dad said to me many many moons ago when I was just starting out at work... "Remember that there is no such thing as a mundane job, just a mundane attitude".   I remember those words when I feel disillusioned about my job.

    And its OK to be on a downer.   And I wouldn't judge what your DH is like at all... I bitch and whine about mine also... (sure at some point I will again and I'll likely share with you all) but I wouldn't want to be going through this with anyone else... he's my best bud and always will be...whatever I say.

    I have to read this 50 Shades.. hearing so much about it.  

    And your 2nd haircut since chemo ??   How long after chemo was the first?  

    Lisa - dont have any info with you... just want to say good luck.

  • Titan
    Titan Member Posts: 2,956
    edited June 2012

    Lisa..I had the wire...they inserted it at the cancer center..took about 5 minutes..no pain at all....after my lumpectomy I did wear a bra..even to bed for awhile..it just seem to hold things together than going with out...I think I wore a bra for about 2 weeks or so until I felt that turning over or laying on my side felt comfortable without things falling around..

    Bernie..good to see you and thanks for the jokes...love your sense of humor

    Tazzy..dh's can be idiots at time...they are under stress too...which we can understand..I guess..I think I put my dh through hell during my treatments...when I had my lx I told him that if I died during surgery that he could get married again but she had better not be a bitch...when I was going through chemo I whined about having to go and he would say ok..just quit..I didn't but I certainly made him jump through hoops for me..poor guy.....now that I'm "independent" again...I get annoyed with the hovering....ah well..it will all work out...I'm sure

    Kathryn..so you are a poker player...good luck...I admire you...it takes alot more skill and concentration than playing the slot machines...a good friend of mine plays poker..usually she is the only woman at the table..hope you won something...!

    We are going to the new casino in Cleveland in a week...going there first and then going to a concert.Crosby, Stills and Nash...I hear that they really look old but still sound good...I'm excited!

  • OBXK
    OBXK Member Posts: 791
    edited June 2012

    Lisa - when I awoke from my lumpectomy, they had put a soft,nylon, front loader on me. It even had the seams on the outside. While I was very large breasted and would have looked sloppy wearing it under something tight, it was supportive and had a nice soft edge - which is good if you have your sentinel node removed, under your arm. I hope everything goes well with your surgery.



    Annie - I almost pissed my pants reading that you had! I have somehow managed to wet my panties on a few occasions, I just put them in the trash and went commando! I think I get what you mean about the wheat bag. I use to put rice, in men's tube socks and sew shut. Microwave for two minutes - is it along those lines?



    Bernie - thanks for the cheer!



    ----

    At 6:15 the 12 year old comes in and says " mom, I forgot to tell you it's academics awards night at 6:30. Threw on a face and made it on time! He scored ribbons, certificates, plaques and a trophy!!! I am one proud mama. Last year, I had just finished and couldn't clap, because of my neuropathy. When recovery is slow, it's easy to forget, how far we've come.



    Hugs all around!

  • DorMac
    DorMac Member Posts: 155
    edited June 2012
    Ladies,
     
    Don't forget to check out LuvRVing (Michele's) blog about their trip to Paris. It sounds like they are having a really good time:  
     
    www.mch-breastcancer.blogspot.com 
     
    Doreen 
  • minxie
    minxie Member Posts: 484
    edited June 2012

    Lisa - having had the wire procedure twice now, I think I can describe it... they basically stick a very fine wire right into the heart of your tumor. This enables your surgeon to find it easily, and make sure he/she is getting clear margins around when cutting. For the procedure itself they will numb the area with lidocaine and then using ultrasound, guide the wire into the tumor. Some of the wire will stick out of your breast but they'll tape it down and it shouldn't be uncomfortable nor should you feel it at all. It'll be gone, along with evil lump, when you wake up from surgery. Bras - yeah they recommended sports bras, but for the first week they had me bound up in an ace bandage type thing.

    You all on the Budwig diet - I tried a few years back and immediately suffered baaad gastric distress.I may try again and take it more slowly this time. I think all the fat and oil is tough on some people.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    Titan... I know they are under stress also.  I look at my DH and can see the fear in his eyes.  I truly believe it is sometimes harder for the spouses and they (least mine does) wants to fix it and he cant.   Hey as long as we come out of it kissing and making up its all good.   Maybe just clears the air.   I have heard that before about the hovering when we are fixed.   Also loved your comment to yours about getting married again - bet he loved hearing that... ha ha !!

     And Annie so true about them not letting their feelings out.. we are so lucky that way.  How you feeling after your treatment the other day ? 

    OBXK... good ending to your post...  Taxotere is giving me tingles and numbness and can only imagine how bad yours must have been not to be able to clap - yikes.   But you are so right, its easy to forget how far we actually travel during this.  Thank you!

    On Dexa's at the mo.. so have been buzzing all day which I must say has been a nice change for feeling so bloody tired due to the low hemoglobins... so I decided to clean my house - you'd think I'd find something better to do...but normality reigned for today.

    Well ladies I am off for chemo #7 of 8 tomorrow...almost a chemo grad Smile

    Positive thoughts and hugs to you all !!

  • StayShiny
    StayShiny Member Posts: 141
    edited June 2012

    Tazzy, Good Luck tomorrow! Move those fingers or toes that are giving you tingles and numbness. My PT told me to rub on different textures to get the sensation back - carpet, clothing, couch, sand, rice. See what works for you. I find carpet for the toes and clothing for the fingers work for me. You need to stimulate the nerves that are being effected by the Taxatore. #4 is giving me more tummy troubles but I am taking the meds and trying different cold foods. Hot is not appealing right now.



    OBXK, I have an 11 yr old that sounds like yours. Everything forgotten until the last minute. Way to go on all the awards!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    Great advice StayShiny... I will try that...I have given up wearing slippers indoors and I will try different textures for the hands.    Tummy troubles are not good... I'm pleased to say I had none on any of my treatments.  good luck.

    Yeah sorry not to have congratulated you and your son OBXK - you must be so proud.

  • Wrenwood47
    Wrenwood47 Member Posts: 73
    edited June 2012

    Lovely Face....did you read what Minxie posted regarding her stomach problems with the Budwig Diet?

    She wrote:

    You all on the Budwig diet - I tried a few years back and immediately suffered baaad gastric distress.I may try again and take it more slowly this time. I think all the fat and oil is tough on some people.

    I think if I were you I would take a break from it...I don't put ground flax seed in mine anymore. I have oatmeal on alternate days and add the ground flax to that.

    I had a thought,  maybe you could contact the Budwig Institute via email and ask them if the oil and cottage cheese could be  the cause of your gastric distress and how can you fix it.

    I agree with you about hair, and skin and energy...I felt the changes happening after only 3 days.

    Take care and I do hope you can get this resolved.

  • riley702
    riley702 Member Posts: 1,600
    edited June 2012

    Bernie, keep 'em coming! Those cracked me up and I'm totally stealing them. Hmm, posting on Facebook might be quicker than e-mailing my friends.

    C_S, speaking of "aversions", I have a friend who worked as an EMT 20-25 yrs ago. One night a drunk came in having difficulty breathing, and as she was helping him sit up, he vomited right down the front of her, even into her bra (I would have promptly returned the "favor", myself). It was mostly Jack Daniels, and to this day, she gags at the mere sight of a bottle of Jack, even a picture in a magazine advertisement. Now THAT is a serious aversion.

    I shouldn't laugh about the (lack of) pubes remark, but that startled the hell out of me, too. Thankfully, I was at home when I suddenly started peeing sideways. THAT'S something they should warn you about during chemo!

    Tazzy, they didn't give me cold gloves or a cold cap for my hair or ice to chew during the infusion to reduce mouth sores, and I didn't know to ask about it. It would be interesting to know if they use those precautions now. They DID say that the Taxotere and Xeloda "might" cause discoloration of my nails and that there was a "tiny" chance of a nail or two coming off, but that it wouldn't be painful if it did. They were right about it not hurting, but it was a delayed reaction for me. My nails were starting to discolor and raise up a little by the end of those first 4 cycles, but it got worse through the next 4 rounds of A/C. The toenails didn't start coming off until AFTER I'd finished chemo. My fingernails are fine now, but the nails on both my big toes still don't look normal almost 2 years after finishing chemo. About a quarter of the nail is whitish-yellow and raised up a bit. My primary doc put me on several weeks of antifungals, but it didn't help. I think I'm stuck with them looking like this.

    As for posting pics, I upload them from my computer to Photobucket. That gives me a direct url link to that image. Then click on the icon above the reply box here that looks like a green tree. A pop-up will ask you to paste that direct link to your image and also asks you to name the image. Click insert.

  • Lovelyface
    Lovelyface Member Posts: 674
    edited June 2012

    Riley - Ha! ha! ha! I had also started peeing sideways - now I am wondering what was that all about?  I think you lose some of the hair and the dynamics changes down there. For all of you going through your treatments, my hats off to you brave ladies.

    Tazzy - Good job, you're almost there.  Before you know it, the 8th one will be there, and my lady, you are going to celebrate maybe not on the day of chemo, but as soon as you start feeling better.  Have you thought about how you are going to celebrate?

    I also had a wire put in, to guide the doctor.  Actually I had this procedure done on a nodule on the other side (the non-cancer) breast.  The nodule was not malignant, thank God.  The wire really was no big deal, not painful and yes, it was gone when I came to after surgery.

    Wrenwood, yes, I know for sure that my problem was caused by the budwig diet.  I just hope that eventually my tummy will go back to normal.  I used to sprinkle flax seed (the kind which was already ground from Trader Joe) in my cereal and that had caused no problems.  Maybe the flax was rancid and did not have any goodness in them, I am not sure.  But I might start doing that sort of thing again, rather than this oil thing.  I am now sitting in direct sun almost every day at work, lunch hour.  As the scientist explains that we need to eat food, which has been in the sun, such as fresh food, not dead food.  Also, we need to soak ourselves in the sun to give our cells the electron charge.  Good idea - I will write to Budwig and see what they say why I have so much gastric distress.  I have wasted so many days and nights just trying to heal myself back to normal.  My stomach is big right now, bloated, but the pain has somewhat lessened.

    I am waiting for my second thyroid biopsy.  In the meantime, I have developed a sort of sharp pain from the first biopsy area.  While the skin has healed, every once in a while, I feel a sharp tinge coming from there.  I am so very sick of these types of things happening to me, it is a roller coaster, non-stop.  Now what could this be?  An infection?  I called the bad doctor's office earlier today to cancel my next Monday appointment.  Well, after spelling my name over and over again with the answering service, I left a message to cancel my appointment.  Well, later someone from that office called and on my phone it stated the doctor's name. I am pretty sure it was the doc himself calling back.  I feel that he does not have too many staff and there is a bunch of docs who share the general office staff, therefore, he calls all his patients back himself, even if it is about canceling an appointment.  No wonder he is mean to his patients.  I did not answer the phone as I don't wish to be humiliated again.  He is the one who said to me "I don't appreciate getting 2 calls from you today".  He also said "you have 30 seconds" when giving me my biopsy results.

    Gosh, now I realize that I might have to see him anyway, due to the pain coming from the biopsy area.  the other option is to go to my primary care doc, get a referral, and then go to a new doc for a brand new appt. maybe a month or two away. So much time passes, when one is to change doctors.  How do you all do it?  there are just so many appointments, it is an almost full time job, isn't it?

    Annie - Hi there, thanks for making us laugh, love your humor.

    McCrimmon - my daughter in law is also starting a new job next Monday.  I know it is stressful but days pass by so quickly and before you know it, the job will become a normal part of your life.  Love your dogs, so precious.

    Bernie - your dogs are beautiful.

    Minxie - thanks for the info. on Budwig, it helps to know how others react to things.

    All you other ladies - I read each and every post throughout the day.  Wish I could talk to each one of you individually.  I tend to forget and as you all know we cannot go back to a prior post while typing on this screen - cut and paste does not work on my sort of outdated computer.

    Good night everyone.  it is hot here in Concord, California tonight.  It is almost midnight and I am still up. 

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited June 2012

    Morning everyone.

    Calva is a Dogue de Bordeaux (french mastiff), she currently weighs around 90lbs and when fully grown she will be 120 - 130lbs.

    My chap at the front Is Gunnar (tuetonic - means Bold Warrior).  He is 2.  The gentlest dog I have ever owned.  He is a cross pitbull/rotweiller. 

    The little chap is Ben (rescue dog).  He's a cross jack russell/beagle.  He rules the house.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited June 2012

    Good Evening Ladies

    Tazzy - Yep I get a bit tetchy with my old fellar at times but he really is my rock and I love the ground he walks on.   I think its human nature when you are together all the time. I think its when couples cant get over it or cannot talk to each other that things get out of hand.

    Good luck with your chemo tomorrow.  Nearly there.  Just love your dogs.  They certainly like your settee.

    Bernie - you have beautiful dogs too.  Just lovely.   

    Titan - I too told my old fellar before my op that he could get married again if I died on the op table.  He goes to bowls every Wednesday night and there is one bitch of a woman whom I really do not like. She is one of those in your face flirty type with all the men.  She's had three husbands so far and they have all died one way or another and left all their money to her (that won't happen with my old fellar he aint got none) but she is always around the men.  So I told him if he ever hooks up with her I will come back and haunt them both.  Can't stand women like that.

    Kathrynn - good luck with the gambling.  Do you play for high stakes.  Do you ever win much.

    Karen - oh isn't Carson wonderful getting all those prizes.  No wonder you were proud.  Bless him.  Was well worth chucking on the lippy to be there to clap. 

    Riley - Yuk to the Jack Daniels episode but I must admit when I hear the ladies talking on here about the Budwig diet it makes me want to heave with the thought of all that oil and cottage cheese. I just could not stomach it. 

    Lovelyface - I think I would go to my primary care doctor and get a new referral.  You don't deserve to be insulted again.  I certainly would not go back to him. 

    I also get sharp pains where my boob was removed.  Not often just a few times a week but they are sharp and my oncologist said it was where the nerve endings are healing. So I take her word for it.   Hope thats what your is.

    Well ladies we have a holiday here in NZ on Monday (so there Titan!) Its for Queen's Birthday weekend.  So all you ladies working, well just enjoy your day as I will mine. 

    Have a good day with no problems at all. Big hugs. Annie        

                         

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