Calling all TNs
Comments
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Hello ladies just popping in to say hey! This post has been so busy! I didn't read all , just skimmed over it. Welcome newbies, prayers for all of us. I hope everyone is enjoying the long weekend. I sure have, we have been in the pool all day and going fishing in the evenings. I am a little sunburned lol! Guess we are doing it again today!
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Good morning lovely ladies.
I love the Ellen show and yes Rosie and Sofia Grace...they are priceless. Have you seen the one yet with Russell Brand? Way too funny. Wouldn't that be nice to just scream and Ellen gets you new feet. Sounds very uncomfortable - hope they unpuff and stop hurting soon.
Happy memorial day to those in the States...and to all veterans.
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Ladies, you were all right. The responsible Dad part of him told her it was "go fix it yourself", but the hair pulling Dad part of him, evily meant it as Go F*#k Yourself.
Kelly - welcome to this wonderful group. I don't know what stage your illness is, but when I was first diagnosed and scanned they found 4 nodes in my lungs. When they re-scanned 6 months later, they hadn't changed one bit and they're now assuming they're just scar tissue. They're not going to re-scan them again, but my PCP said he will just to keep an eye on them. Hoping the same results for you.
Titan - thanks for the Heidi update.
Cocker, I did think of something for hubby. Does his boat say in year round, or come out for part of the year. I remember every spring my Dad would kill himself giving the interior of the boat a complete clean (washing, reoiling all the wood and polishing all the metal) then having to wash and wax the whole exterior? Maybe you could hire a service to do that for hubby when it's due to be done?
Also one tip Cocker, coffee is ok but it is actually a diuretic (may help with the puffy feet, but won't help hydrate you). I HATE to drink fluids (I'd make a great camel) but when I was on chemo, everyday when I got up I put a container with 96 ounces (12 - 8 ounce glassfuls) on the kitchen counter, and it had to be gone by the end of the day. (I used green tea that I brewed ginger in with). I swear the adequate hydration was one of the things that helped. Many who gave tips on here said it was extremely important to drink. -
I can hardly keep up with you guys!
Welcome Kelly! I hope your scans come back clean - waiting sucks!
Annie - I think camomile tea, is a diuretic. What king of cake are you making DH?
Kathryn - I have that child - I knew what dad meant! My son calls on the intercom, requesting food, from upstairs.
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Today I go pick up the 17 year old from the airport. Hope the rain let's up. We have a tropical storm coming up the coast. With the last week of rain, wind could take down a lot of trees.
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A father joins Facebook
His son posts - WTF my dad joined FB
Dad asks - what does WTF mean?
Son says - Welcome To Facebook -
obx...not the best time to visit the Carolina's is it....? hope your son had fun at the prom....I miss that time with my kids....crazy busy but fun....
I'm sitting here at home on Memorial Day because it is so dang hot out that I don't feel like golfing or anything...my son is still at school and my daughter is working today...blah....and all of our friends are having their families over....I'm bored! and don't seem to have any get up and go....oh well..maybe I will take a nap
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Hope you all are having a lovely Memorial Day! It's warm and sunny here. We were invited to a lake party, but I'm still recovering from surgery, plus it would just kill me not to be able to swim in the lake - surgeons say no swimming in anything for 4 weeks! This FC is really messing with my summer.
So my husband and the kids went to the party, and I'm staying home.
My mom is here which is good. We're going to go out to dinner, just the two of us. Gotta start collecting all your rads advice - that should be starting soon and do NOT want burns added to my summer fun!
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Karen, fast thinking on the son's part with the WTF definition. I still remember my Mom asking me in my teens what a hooker was. She'd heard it on a soap opera. The worst part was, I was blanking on the word "prostitute", so was stuttering and stammering around, "Umm, it's a woman who, umm, well, she umm, takes money from a guy for, umm..." At which point, my Mom exclaims, "A prostitute?!" That's the word I was trying to remember! We were both thoroughly embarrassed and Mom muttered that she was never watching that show again. Whew!
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OBXK - maybe we can fix his daughter up with your son! That FB kid will go far in this world.
Titan - I'm stripping and waxing an old linoleum floor. Wanna trade?
Minxie - sorry you can't play the lake but nice having dinner with Mom.
Riley - I copied this post I wrote in my journal a couple years ago. Seems our Mom's are related, lol
Sex Education 101 for Senior Citizens:
My Mom is a very frail, 84 y.o. peanut. While I did inherit half my sense of humor from her, she is basically a very proper woman.
I went down this weekend to make dinner for her and spend the evening with her. As I was standing at the counter cooking, she proceeded to tell me that she had taken a shower and done the dishes, and " I've shot my load for the day"
Luckily I didn't have a knife in my hand at the moment, so no injury occurred during the wave of laughter that followed that statement!
Once I was able to compose myself, I asked her if she knew what that meant? She said "no", but that my father had used the expression often, and she was pretty sure by my laughter that it must have some meaning she didn't understand.
Explaining the meaning of that expression to your 84 y.o. mother is priceless.
I will say.... Mom has retained her sense of humor. -
OBX...two words..."replace it" I've stripped linoleum before and will never do it again...
oh yes..Mom's..they are something aren't they...my mom called me tonight...she is quite a talker...she talked for 35 minutes while I just agreed with everything she said...my husband said all I have to do is say yes now and then....remember she goes to church every Sunday and kinda likes the casinos too..I don't mind at all..but she told me that she and my dad were driving home on Friday night and she was stopped by the police for not having her lights on...it was 8:45...the lights are supposed to come automatically but they didn't..anyway..I said at least you weren't drinking..and she told me that she had a strawberry daquiri at the casino...I know that is really nothing..but she has about one drink per year and it probably gets to her quicker..oh well..he just warned her and sent her on their way.....
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Ah, moms can be entertaining. Mine is notoriously literal and tends to forget things like, "Don't mention what I said about my brother's third wife TO my brother, for the love of Pete." I'd said I was going to quit trying to remember their names and just call her #3, as I was sick of getting close to his wives, only to have them never speak to me again after the marriage imploded. I was frustrated more than anything, but she faithfully parroted it to him. Argh! It was sticky for a little while, but we agreed not to discuss it again, and didn't, even when that marriage lasted less than 2 years.
When we visited France a few years ago, I got a little collection of flower seeds, which are verboten to bring back into the country. So I just didn't tell Mom, knowing that even if I told her to keep quiet about it, she'd forget and tell the TSA everything. Didn't really want us both detained and strip-searched, and definitely didn't want them to confiscate the seeds, which were from this lovely little plant:

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Hi Riley,
What a wonderful plant... did the seeds take - do you know what it is called. Its beautiful.
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Tazzy, ironically, after all the fuss, the seeds did not sprout, but I found that the flower is called Ipomoea lobata, aka Spanish Flag, Firecracker Vine, or Exotic Love Vine. I bought more seeds and am trying again this year. I also found out they're related to Cardinal Vine (Ipomoea multifida) and Moonflower (Ipomoea Alba), which I also love.
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Good Evening Ladies. I hope you are having a good day.
Riley - beautiful plant, lovely colors. Shame the seeds didn't take.
Talking about what mum's say, I remember when my daughter was small and we were in the supermarket. I was getting sanitary pads and she asked me if the packet was 'Brillo Pads' (a product you clean pots with). This was at the check out. Don't think I have ever been so red.
Titan - 'my get up and go, got up and went too'. If you are so bored you could have come and helped me type. They say in a book here that 1 hour of running PER WEEK, could add six years on your life. If I keep it up I may live until I'm 106.
Tazzy - I missed the the Ellen show with Russell Brand but I've gone awf him. How could he leave that beautiful girl with the lovely blue hair. She is just so gorgeous.
OBXK - my fella likes fruit cake so that is what he is getting but we won't give it to him until Saturday when we all go out to dinner as the little kids will be tired tomorrow night.
I do love that little bit on your post about Facebook. Very intelligent, quick thinking son.
Kathrynn - you could try blue after your red. I probably would fit in with the blue rinse brigade now (Oldies). I would certainly try different colours if I was younger though unless it was the color of OBXK's that is gorgeous.
Minxie - Glad you are recovering but sorry you are missing the pool fun. I too will be taking notes on rads as that is my next lot of interogation.
Well I finally went and brought an outfit for my old fellar. Pants, shirt, sweater, shoes and jacket but he doesn't really need any of them. I was just so stumped. I wish I had seen your post earlier Kathrynn about cleaning the boat, good idea.
Tomorrow I am off for some more of that jungle juice. Hope it goes ok but I've given up worrying doesn't get me anywhere.
Well ladies I am off to bed. Got to be at my best for chemo!! Have a great evening with no stress. Sending lots of hugs. Annie
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CS hope your fella has a wonderful birthday! Men are so difficult to buy for!
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Thanks Riley... not sure if I'll be able to get it here in Canada...but I'm going to look.
Annie.. Sophia Grace, when asked by Russell Brand, "What's happening in your mind right now, Sophia Grace? Express everything you've ever thought!" Her answer..... 'PINK'. I really like RB so in his defence he really did say what a wonderful person she is (Katy Perry) and he hopes nothing but good things for her. Good luck with the chemo. Mine is on Friday.
Dunno about you ladies...but since chemo I have gone from a salty savoury type of girl (girl??? who am I kidding - haha) to a sweet tooth.... so I am off to bake some banana nut muffins and choc chip cookies.
Hope everyone is doing OK today.
Have a wonderful day/afternoon/evening - hugs to all
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Hi ladies i confess to reading a bit here..
I am UK Triple Neg Spindell cell Metaplastic...wow that was a mouthful...and i just love your humour Cocker Spaniel...i'm the same age and treat my diagnosis with humour...as i have just pulled out of chemo..i had my second one a week ago after 2 week delay and a nice weeks stay on the Chemo ward...NOT! I will have the rotten breast off as soon as i recover enough from this blasted chemo...then whats ahead is anybodys guess!
I accidently took 3 overdoses not one...of 2 lots of laxatives...defo NOT recommended..and i'm still recovering...the mistakes that have been made on my treatments..is it my age i wonder?
Hi too all you other fighting ladies too! I am on another forum...along with the March chemo ladies and we will all meet up...later in the year...
My family live in New Zealand..
Dulcie xxx
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argh, just talked to rad onc today and they want to wait 4 WEEKS after surgery to start rads! I thought it would be only 2! There goes my summer, grr...
How long did you all have to wait between surgery and rads?
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Titan, the kitchen floor is planned for removal, but sadly the other rooms have to be done first. ( big heavy furniture has to be moved into the kitchen, and I don't want to damage a new floor) I was laughing about your Mom. At least mine It a tee-totaled and she doesn't drive.
Riley- beautiful flower. I have a friend that grows gorgeous Moonflowers.
Dulcie- welcome to the group.
Cocker - when you get old like us, you can start doing whatever you want, people just think you're getting senile. Seriously, the one thing I love about being old, is I just don't give a sh*t what anyone thinks about what I do ( as long as I'm not doing anything hurtful to anyone)
Minxie, I think I had to wait 4 weeks (actually 5 because of the holidays. You have to make sure your scar is healed, because the rads
will intefer with skin healing. *ducks head and runs for cover* Did anybody tell you that there's no swimming during rads? -
So I was at work yesterday and noticed a small red patch on the underside of my forearm. Within an hour the small quarter size patch turned into a patch the size of my palm and was hot. I knew what was happening as I had been warned by both the LE therapist and my Mo when the LE started in the hand and arm. When I got off work I headed to the ER and sure enough cellulitis. My entire forearm was engulfed by the time I got to the hospital. They gave me IV antibiotics and sent me home with a script for 10 days of doxicycline. Yuck...It really hurts. Doc said any longer and I would have had to stay for a few days in the hospital. Glad I trusted my instincts. This morning it is now going into my hand and upper arm. Hope those meds kick in soon. Bc--the gift that keeps on giving.
Maggie
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Mags, ugh! Sorry to hear you have celulitis. My grandfather (91) just spent a week in the hospital with it in his legs.
Welcome Dulcie, - Hope your feeling better after your accidental overdose! That certainly sounds very unpleasant.
CS - hope everything is going well with your Taxol, another one down!!!
I'm officially employed ladies!!! Very happy. Got the job I wanted. Actually it was the first interview I had gone on. Phone is just now ringing with another prospective employer wanting to set up a 2nd interview. Let Voicemail pick it up as I have to work on how to tell them I've accepted another position.
Well, off to food store, then exercise. Need to lose a few pounds so I can fit into new "business casual" attire I need to shop for over the weekend.
Hope everyone has a good day.
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Good afternoon all! My name is Michelle and I live in Dallas, TX. I was diagnosed in August of 2011 and have been trying to find any semblence of "normal" ever since. I am glad to see that there is a discussion board for those of us with this sub-type of BC and hope to get to know a lot of you sooner rather than later.
Blessings!
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Congrats Mccrimmon on the job - such great news and to get the job you want.... good news amongst all this crap sometimes.
Mags...hope the meds work soon and you are quickly on the mend. I did chuckle (in a warped way) about your comment - bc the gift that keeps on giving.
Welcome Michelle... do we ever ever find 'normal' after being diagnosed... different type of normal I guess. I am still waiting... but then I think that normal can be boring !
Hi Dulcie...blame the OD on chemo brain... I blame everything on chemo brain.
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I know I mentioned before that I was singing at a cancer benefit. It just dawned on me that I will be singing on my 2 year anniversary. June 3, 2010 was the day the docotor informed me I had cancer. I supplied the person in charge with a list of songs (thanks to those who gave a suggestion) and she picked Wind Beneath My Wings. I want to take this opportunity to thank all of you for all of your words of wisdom and prayers the past 2 years. I am looking forward to celebrating many more anniversaries.....
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Cocker_Spaniel, I didn't think anyone else liked fruitcake! My family gets so much grief for liking it, but we usually make a couple loafs per family around the holidays and have no problem finishing them off. Our recipe is lovely - almost all fruit and nuts with just enough cake to glue it all together. And no citron peel; it's bitter, I think. Just candied pineapple in different colors, maraschino cherries, chopped dates and pecans. The only liquid is a bit of orange juice. Mmm!
Tazzy, I had trouble tasting salt during chemo and it came back slowly afterwards. Made me nuts, because I like salt, but salt just tasted metallic. Someone here (BCO, not necessarily this thread) described that awful metallic taste as "like licking a flagpole sprayed with bug spray" and it made me laugh, so I've always remembered that description. I've never done that, but it sounds like it might be about right.
Welcome, Dulcie! Sorry about the chemo experience. Yuck! Hope you feel better soon so you can get moving forward again.
Ouch, Mags! Hope the meds kick in and you feel better soon.
Congrats, Heather! One job offer is nice, and having a choice between two is fantastic! Glad you got your first choice.
Welcome, Michelle! Glad to have you join our little group. As for "normal", I've come to the conclusion is that the old normal is gone, and there's this new normal now that I'm getting used to. But it's a difficult concept for people to understand who haven't been through it. They keep thinking that everything should just go back to the way it was before. When you tell them it's NEVER going to be just like it was before, they either don't understand or think you're being a drama queen. I tell them my new "normal" isn't necessarily bad, it's just... different.
Ellen, I'm sure you'll do a fantastic job. Will it be emotional for you to be singing on the anniversary of your diagnosis? (It's just me, but I hate the term 'cancerversary'.)
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Chemo does some weird things to our taste buds... I love that description though of licking the flag pole... not that I've ever done that either
As soon as I was of AC my taste buds returned to normal (I think). And the fruit I loved was red delicious apples... went right off bananas euk ! But the apples were the one thing that actually tasted like they should. Guygal... congrats on your 2 year anniversary on June 3. Good luck at the benefit.
Kathyrnn... talking of being old I have a fridge magnet which says "I thought it was great that as I got older I had more patience... turns out I just dont give a sh*t". One of Maxines.
Hope you are all having a good day - Cocker... hope you are doing ok after your treatment today. Beautiful day here today 26 degrees. I have just come in the from garden to have a breather.... sometimes feel like 102 and not 52 ! Oh! well.
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This board has been so busy...I don't know if I'll ever catch up on my reading.
Michelle - Welcome. I know what you mean about finding a semblance of normal. Not sure I've found it yet, but I'm still looking.
Mccrimmon - Congrats on your new job!!! I've been following your move and your job hunt with interest, because I'd like to make a change myself. Change is kind of scary for me, always has been, and seems to be even harder since BC....thanks for providing some inspiration!
Sending good wishes to everyone....
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Heather- Congratulations!! I am so happy for you! How long until your husband can get home?
Mags- So sorry about the cellulitis. I don't have lymphedema, but I developed it in my port catheter. 12 days of IV antibiotics and 10 of oral- what a pain in the a**!!
Annie- I just love you humor and great attitude!!
Welcome to all the new ladies. I am 17 months post final chemo (PFC) and I am beginning to feel somewhat normal again, although it is a new normal where I will always be scared silly of every little ache and pain. I feel like chemo has really aged me (46 now) so I have been getting used to being a bit creaky and slow to get up! Maybe if I has a little of Titan's energy to go out and run!!
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Wow so much going on.
Cngrats HEATHER on your job!!! Wonderful.
Sorry you new ladies have to join but this is a wonderful forum.
Ttian I really appreciate that you started this.
I have been really busy with my artwork and feel it is time for me to take a break from this board but I will be back.
You have seen me through so much and I sincerely appreciate all the support. Everytime I go on I think of Laura Jane and Susie and MJX and feel so sad. My good neighbor has just started hospice today, my cousin's husband has just died of a rare cancer and my cousin I played with every weekend of my childhood has brain cancer and it is all too much for me right now. I thank you all for everything and will return.
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Welcome to the newbies!
Heather - doing the happy dance for you! You must feel like you are really moving forward. So nice to have good news to celebrate.
Mags - Rats!
Annie - hope you get through this one without too much down time. As I have a "Thing" aversion, I'll pass on the fruitcake, I'd really love one big slab of a deep chocolate cake, with mocha icing
Riley - that flower is stunning! Have never seen one like it, thanks for sharing.
Inmate - sending you some good energy!!!
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Tomorrow I go get the orders for my bloodwork - the woman at my PCP office, 2 blocks away can never get a drop. So I drive to the next county where they have some talent behind that needle! Will also bring up my abdominal issues. I hope she just tells me I'm fat - and I never thought I'd say that.
Must run... 12 year old son, just made me an ice cream sundae! Maybe I am fat
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obx...enjoy that sundae...made with alot of love right..no calories there...
Mac...woo hoo on the new job..you go girl....
Haven't run much lately...too hot for me...and I'm not one to really put myself out there..I thought of going yesterday when it was 93 degrees out and my hubby asked me if I had a med alert bracelet to let him know to come and get me when I passed out...decided not to go after all...but tomorrow it is supposed to be cool so I'm anxious to hit the track....I always think of you all when I'm doing this...
Hope everyone has a se free, good week...and welcome to the new ladies...we will get you through this crap...
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