Too early for April 2012 mastectomy?

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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited May 2012

    Markat , I am wondering about the muscle relaxers too . I keep getting percocet no valium here . but the damm percocet is gross .. I puke everytime . puking last night , I wanted to die so I took tylenol again this morning . I dont see anything good about TE's I am so aggrivated with them . I hate them yes I hate them , I hope everyone has a good day . :) Soft Hugs ... I wish I could wave a magical wand and we all would be better 

  • aussie12
    aussie12 Member Posts: 462
    edited May 2012

    Hi all

    I started Tamofixen on Sat and have hot flashes all ready.

    Luckily don't need chemo or rads, I am thinking of all of you that have to go through with more treatment. Best wishes to all.

  • valerie0118
    valerie0118 Member Posts: 126
    edited May 2012

    My hubby jokes about my night sweats......He say's I'm one hot mama!  I love when he turns a negative into a positive and it feels so good to laugh.

    I read Kelly Corrigan's memoir last night (the Middle Place) about her breast cancer adventure when she was a young mother.  She started to have anxiety attacks after a while and her counselor told her a unique way to manage the attacks.....I've had a few anxiety issues lately (lol, wonder why!) and I loved her imagery.  "When fear triggers your imagination and your imagination takes over, try to see it through.  Keep making the movie, keep writing the scenes, until you see yourself surviving.  Stay in the dream, let your body fly over the cliff, and then find a way to save yourself.  Give that salvation as much color and detail as you give the fear."  I've been using imagery a lot lately and this made so much sense to me.  I thought it would be hard for me to read this book but it actually comforted me.  She survived a 7 cm IDC that looked like an "explosion" in the images and it was 2004.  It was a quick read and very insightful. 

  • Dianarose
    Dianarose Member Posts: 2,407
    edited May 2012

    Lisamarie- My ps gave me valium. I have been taking Xanax though. It works the same and helps me sleep as well. Hang in there with the TE's. I have a regular bra on today for the first time and have great cleavage too. You can not tell at all. They aren't the most comfortable things when I sleep, but really don't notice them much in the day time anymore. Have you started the patch again? let me know when you do and we will do it together. I need a buddy to help me with it. I would love your help.

    Valerie- thanks for sharing that as I too have been having some panic attacks, especially in the shower. I am going to get a see through curtain to see if that helps.

  • valerie0118
    valerie0118 Member Posts: 126
    edited May 2012

    Dianarose,  Isn't it funny that being in a shower triggers such emotions!  If I'm gonna cry.....it's in the shower!  I guess it is the feeling of being alone and naked that triggers the feeling.  I can look at myself in a mirror and have no issues but get in the shower and boom.....crying jag! 

  • Dianarose
    Dianarose Member Posts: 2,407
    edited May 2012

    valerie- I think it is because we think too much when we are in the shower plus we are enclosed. I am a panicky person without all this crap. I do better if I take my shower while someone else is home. I know it all sounds stupid, but it is what it is.

  • 2FriedEggs
    2FriedEggs Member Posts: 640
    edited May 2012

    re the shower; Since sneaking to watch Psycho as a child and seeing the shower horror scene, I have always had anxiety in the shower- God forbid the power ever goes out while I'm in there.

    Valerie your hubby sounds alot like mine as far as joking and making the best of a negative.  Mine was helping me with my drains for a while and he would  say "honey let's go strip" (meaning let's go strip the drains) I thought it was really sad how stripping took on such a whole new meaning but funny at the same time.

  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited May 2012

    The Shower , oh boy i hate it .. i really dont even want to touch them , but i do for a minute to wash them , i hate getting dried off and dressed too, its so ugly to me ...Ho hum all the joys of this BC hope evryone has a nice day .

  • keonghi
    keonghi Member Posts: 111
    edited May 2012

    markat - I've been on a muscle relaxer, flexeril (cyclobenzaprine), 3Xday since surgery (5 weeks post op).  It doesn't do anything to my head but seems to help the tightness and it's non addictive like pain pills. Although valium is considered a muscle relaxer, it seems too strong for me and makes me a little loopy (can become addictive also). 

  • markat
    markat Member Posts: 909
    edited May 2012

    Keonghi that's what I was wondering about. The Valium doesn't work as a muscle relaxer for me because my onc prescribed ativan when I started chemo back in Dec. I'm 2 weeks out and still need pain medication. I feel like a big baby but it still hurts. It just seems like a muscle relaxer would work better. During surgery they filled me to 600cc so I'm not sure how much more I can take.

  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited May 2012

    wow 600cc , I only have 40cc in each and i am a flipping mess ..I cant imagine ..pain meds making me throw up i hate it so much 

  • vballmom
    vballmom Member Posts: 426
    edited May 2012
    Hubby was working on a photo set and asked if I wanted to step in.  For once, I feel like it was ok to be me. I didn't worry about my hair or make-up or is my smile just right. It's me. You can see the tired. You can see the pain in my eyes, the smudged make-up, and the nose a bit red. That's who I am right now and I'm okay with that.
  • keonghi
    keonghi Member Posts: 111
    edited May 2012

    vballmom - you ARE beautiful!  That picture says a lot about how we all feel.  Very touching.

  • markat
    markat Member Posts: 909
    edited May 2012

    Lisamarie I had a lot of skin. Thanks to the 2 girls that are 15 months apart that I nursed lol. My BS was kind of mad that the PS filled them that much and thought they'd have to take some out to get my pain under control.



    Vball you look beautiful. Not to be crazy nosey but I wonder why you aren't doing TCH like most HER2+ women. Herceptin is hard on the heart and so is the A chemo.

  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited May 2012

    oh gee ..lol on babies .. cool .. i would also think pain would be worse .. feel better 

    Vball you are very beautiful and what u wrote touched my heart so much  xoxoxo feel better  

  • vballmom
    vballmom Member Posts: 426
    edited May 2012

    Markat, I asked my oncologist the same question.  He feels that the AC/TH has truly been tested better than TCH and that the studies aren't large enough to overrule the standard yet.  I thought about going for a second opinion and have done a bunch of research online and keep coming up with the same stuff.  AC/TH has better success by a few percentage points but is negated by the heart issues.  If I want TCH, I can go that route but it isn't a great feeling overriding a MO.

     Thanks for the compliments, ladies...

  • markat
    markat Member Posts: 909
    edited May 2012

    Vball I totally understand not wanting to override the MO. I'm sure they will do a MUGA scan to make sure everything is going ok. I had neoadjuvant TCH and could feel my tumor just disappearing. I wish the best through chemo.

  • valerie0118
    valerie0118 Member Posts: 126
    edited May 2012

    Vball, What a beautiful picture! 

    Today I'm off to get the radiation catheter placed.  My pathology report from Friday's trimming was AOK!  No pathology to report.  So now we are moving forward with radiation.  I get this placed this morning, get imaging done tomorrow, and then radiation M-F 2X daily.  Moving forward and doing something feels so good.

    I've gotta get busy at work now.  I'm taking the rest of the afternoon off because 3-8.5H days have done me in this week.  I was really tired last night.  Slept hard until the alarm went off and still feel like I could have slept another few hours.  

    Hope everyone has a great day!

    Valerie

  • longislandmom
    longislandmom Member Posts: 248
    edited May 2012

    Beautiful picture VBall mom!

  • longislandmom
    longislandmom Member Posts: 248
    edited May 2012

    Beautiful picture VBall mom!  i wish i could see bigger versions of the pictures on this site! 

  • Dianarose
    Dianarose Member Posts: 2,407
    edited May 2012

    Markat and vballmom-My mo wanted me to do AC/T and I did a lot of research and when he called the other day I told him I wanted to do CMF and he backed me up. He said the difference was 1-2% and much lower risk of heart problems. I just felt I didn't want to go through all of this to end up with another issue. I am comfortable with my decision. Sometimes the old ways are best, well at least I am ok with it. It is your body and you have to do what is right for you. I think my MO is just happy I have agreed to treatment period. This is round 2 with bc so I am a little more causious in just doing what is suggested and researching myself. I listened to an MO the 1st round who never discussed the LCIS I had and said the lumpectomy and rads would cure me. She called about 6 weeks ago and said we should now discuss the LCIS. Too late lady. She's been fired.

  • markat
    markat Member Posts: 909
    edited May 2012

    Just checking in and wondering how everyone is doing? Usually no news is good news. I'm doing ok pain is a little better.

  • Mardibra
    Mardibra Member Posts: 1,111
    edited May 2012

    I keep getting fluid build up under my scar...hurts like hell to wear my foob! I need to go back to the BS tomorrow. Great otherwise.



    Markat - glad to hear your pain is a bit better.

  • longislandmom
    longislandmom Member Posts: 248
    edited May 2012

    How is everyone's range of motion doing?  mine still stinks :(   one month out from surgery and i'm very discouraged about it.

  • bellamarie
    bellamarie Member Posts: 62
    edited May 2012

    i am only two weeks out and have a pretty good range of motion althought it still hurts

  • Mardibra
    Mardibra Member Posts: 1,111
    edited May 2012

    Pretty good but not great. Seems to have gotten better since I returned to work. I have an office job but I do move around a lot. Rads seems to have set me back a bit. I feel very tight.

  • ppeople
    ppeople Member Posts: 207
    edited May 2012

    Hi All!

    I guess no news is good news, we are all moving on to what ever is next I suppose.

    I went back to work Tues. Tired, but the good news is that my absence reminded me of how much I love what I do!

    Had pretty significant pain yesterday, near my sternum.  Don't know what caused it, except that I lifted light weights the day before.  I am going to a PT next week as my ROM sucks also, and I am afraid to really stretch on my own, altho PS said no restrictions.

    Still very swollen, need to go for lymph drainage massage tomorrow as per PS.

    In some ways the MX seems so long ago (one month last Wed) and such a non issue any more, do you all feel that way too?

    Found some great Playtex bras, stretchy and soft, called Playtex simply sized,  full support.  They come in cool colors and S, M or L size.  The L fits me great (was 40 C)  Because they just stretch, like a more defined sports bra, and have no cups, they fit my weird boob shape (think body builder, not breast) very well.  

  • rtnyc
    rtnyc Member Posts: 155
    edited May 2012

    my arms still have pins and needles but not as bad as it was. I still cannot lift my right arm all the way; left a little more but not totally back and when I extend my arms up or out it hurts in the upper arm. Arm pits still numb and hurts to touch, shaving is a bitch.  And I have some skin which is slow to heal, PS says it's "lagging" OK it's not healing as fast as it should so I still have bandages on as it bleeds which she says is a good thing cuase it's healing and te blood means that there is oxgen there to heal. Whatever, not like I have choices.  I just feel especially at night time that I want to jump out of my skin. Do you konw what I mean.  It is keeping me up at night too.  Just got a heavier dose of xanax, took it last night was up 3 times, maybe tonight will be better. It's been a month and I'm still not feeling great....how is everyone else doing?

  • keonghi
    keonghi Member Posts: 111
    edited May 2012

    My ROM is almost back to normal and I'm feeling pretty good. Unfortunately though, I go back for surgery on June 4th for an ALND on my right side. Radiation to my right chest follows that. So, the hits just keep coming. Glad to hear from you all and hope everyone gets back to "normal" soon.

  • markat
    markat Member Posts: 909
    edited May 2012

    Keonghi so sorry you have to go through more.



    My ROM was really good but now I'm starting to feel tighter. The numbness probably wore off. My arms and hand were going numb so the PS suggested frozen bags in my underarms and it worked. I have insomnia and take short naps when I can.

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