Vitamin D Takers?

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  • Califgirl12
    Califgirl12 Member Posts: 92
    edited May 2012

    Hi Ladies

    I wanted to drop by as I too was tested and found my D was at 27. I know prior to my DX I avoided the sun but did get some sun in my day to day activities. I wanted to mention something interesting about my MO. I know some of you mentioned your MO's did not even like to discuss a correlation between BC and D blood levels. My MO tested me right away at our first appointment. Interestingly enough, her very own elderly mother was recently just DX with breast cancer. She mentioned to me a couple of things her mother had experienced. Like a very large and troublesome hematoma, cellulitis, and trouble healing. When my Oncotype # came back, she was so happy that she did not have to give me chemo. I get the feeling that she is very deeply concerned. I think having it hit so close to home makes her really understand what it's like to be a patient.



    I am trying to get my numbers up with about 20 minutes in the sun when it's sunny and about 6000 iu's of D3 from Cost Co that my MO recommended. Hope it helps.

  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited May 2012

    My pharmacist saw my script for tamoxifen and, immediately, suggested that I begin taking - at least - 3,000iu of Vitamin D3 od.  He had read of the recent studies linking Vitamin D deficiency to increased breast cancer/recurrence risk. 

    My MO said, that while there is no solid data stating that Vitamin D deficiency actually causes breast cancer/recurrence, there is no definitive data stating that it doesn't either and, if I wanted to use it as a supplement, she had no objections.

  • wenweb
    wenweb Member Posts: 1,107
    edited May 2012

    Thanks ladies for the recommended amounts of Vit D intake that your Dr's advise.  I have started taking an extra 1000iu's on my own, and am planning to change PCP's.  Hopefully she will be open to retesting me and take an interest in my concern.  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    I was told by integrative medical doctor / pathologist to take 8,000 to 10,000 IUs a day.  I take a sublingual, spray by L.A. Naturals.  Cost about $15 a bottle for the 5000 per spray.  My first count was low low, the GP said take 2000 IUs a day but that was entirely too low to make a difference, esp w hypothyroid, and then I got cancer, think I was a sitting dduck, literally.

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited May 2012

    Thanks zuvart!

    CancerStinks, you are still recovering from radiation. I'm sure you will be out enjoying the sun and your gerber daisys and verbena. It sounds very bright and cheery. I am sooo looking forward to picking out flowers for my garden. I usually plant veggies, but I want to take care of flowers this year.

  • brawleymom
    brawleymom Member Posts: 4
    edited May 2012

    I wasn't tested until three years after DX. I take 1000U's a day.  Did not hear back after my last test, so I am assuming I am going up appropriately.

  • cp418
    cp418 Member Posts: 7,079
    edited May 2012

    I need to take 8,000 IUs daily to stay in the 60 range.  As soon as I cut back the dose then my blood level drops below 40.  I must not absorb Vitamin D well at lower dose. My initial level at dx was 29 and I've been tryng to increase over time. Plus I protect my skin with sunscreen as I am high risk for melanoma - - numerous moles removed in the past.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Once again, there is an "argument" and an attempt to create a BINARY CHOICE.

    SKIN MELANOMA is a treacherous DEADLY DISEASE.  Let's show some respect for those of us who are vulnerable, or who have lost loved ones to this DEADLY DISEASE.

    Yes, Patoo - in some parts of the country, 20 minutes of sun from 12-2 is a possible choice as a way to get our vitamin D levels up.  FOR SOME PEOPLE THIS IS NOT MEDICALLY POSSIBLE.

    Thank you for your consideration of women, people, who have had MELANOMAS.

    Not interested in arguments, so I won't be visiting this thread again.

  • candygurl
    candygurl Member Posts: 130
    edited May 2012

    SunflowersMA, this is no argument. We all just have different opinions based on our experiences and research.That's what makes this thread interesting and thought provoking.   

    Patoo, I believe women of color need to stay in the sun something like 5X longer than caucasians to get enough vitamin D.

  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited May 2012

    My dermatologist has told me to get - at least - 20 minutes of sun each day BEFORE putting on sunscreen to help boost my Vitamin D levels.  He says if I do it before- and/or after the peak hours of 10:00 am - 2:00 pm, there is less risk.  Interestingly, he, also, says that - given the new studies that suggest Vitamin D deficiency may be linked to increased risk of a number of cancers - including breast cancer - a lot of dermatologists are revisiting their NO SUN WITHOUT SUNSCREEN rule and trying to come up with a safe compromise for all their patients.

    Sunflowersma... for heaven's sake!  That was completely uncalled for!  The focus of this thread was discussing the various things we'd either read- or been told on how to remedy Vitamin D deficiency.  And the truth is, the fastest way to do that is to be out in the sun, but, as we all know, there are dangers to this and that it is not for everybody.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    SunflowersMA, the potential for argument was pages back and I thought it was resolved when many took the poster to task for suggesting that melanoma was not serious.   I don't think anyone has been arguing since then, at least I haven't read any of the posts that way.  Hope you don't think I was being argumentative as I really was just asking questions.  I actually asked the same question probably a year ago, maybe on another thread and again have not gotten an answer.  Maybe there isn't one but why can't I just sit under an umbrella with only my foot sticking out in the sun and absorb the Vitamin D that way.  Hey, don't laugh people, I'm serious.  Do you only have to absorb the Vit D through your face?  Perhaps so, but why? 

    zuvart, you're probably right.  Interestingly, my extended family has rented a house at a beach for a week almost  every summer for the last 20 years.  My brother and sisters (2) always baked in the sun but I don't like to burn so was always under the umbrella.  Yep, none of them got cancer, so perhaps all the Vitamin D they absorbed protected them.

    SunflowersMA, just went back and read your post and  not sure you will see this since you said you were not coming back but I somehow missed, or don't understand, what you mean by BINARY CHOICE?   I also choose not to get into arguments but occasionally will comment on something someone said but, again, that was pages ago.  In any case, hope I didn't offend somehow.

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited May 2012

    Hi patoo. It was my understanding that we should maximize our skin exposure to the sun, so it is not so much getting it on your face --- or your foot, lol --- but rather to try to absorb the sun.

    http://health.usnews.com/health-news/family-health/heart/articles/2008/06/23/time-in-the-sun-how-much-is-needed-for-vitamin-d 

    Unfortunately, I am not sure which time of day is best. Most sources say to avoid the hours of 10 am to 4 pm (USA). Dr. Mercola says the opposite. I tend to go with Mercola since he seems to be way ahead of the pack regarding health news. However, I am not certain enough to push my mother (who has potential melanoma problems) to catch some rays. I just don't know one way or the other. On the one hand she could be getting too much UVA and not enough UVB (which according to mercola is the one responsible for vitamin D synthesis).On the other hand, I might be getting too much UVB, an excess of which causes skin cancer.

    So I choose to get out in the sun for limited amounts of time . . . for now.

  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited May 2012
    patoo... binary choice means either one way or the other.  True/false, yes/no, correct/incorrect, right/wrong.  I'm not sure what Sunflowersma was suggesting with this comment, but I - like you - felt that the "argument" - if there even was one exactly - had been resolved nicely and everyone was moving on and tossing around more ideas.
  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited May 2012

    Sunflowers,

    I had a strange mole removed from my back this year, and it really freaked me out. I truly struggle with sun exposure, as I would like to be outside exercising and riding my bike, but now that I've had the strange mole (which was not melanoma, but was a dysplastic nevi), I am a bit worried. I apply sunscreen religiously, and then keep wondering how the heck I am supposed to get Vitamin D levels up when I have to wear sunscreen. It's sort of a Catch 22.

    I think those that have skin cancer issues should just avoid a lot of sunshine and take Vitamin D supplements.  I had a grandfather who lived in Southern California and had skin cancer, so I always reflect on that when I strip off my workout gear and see the tan lines. 

  • NNBBFL
    NNBBFL Member Posts: 89
    edited May 2012

    I am all for the natural Vitamin D and am fortunate enough to live in FL where the sun shines most of the time. I am very fair but have always been careful about sunscreen until my BC dx. Now I just stay in the sun for 15-20 minutes to get my daily dose. I was un-insured when first dx in November and had read much about the Budwig protocal which recommends natural sunshine (in much greater amounts) to help restore proper cell metabolism. I did also start the Budwig Diet and lost over 30 lb in the 2 mo. before I got medical insurance. Last mo I started on Arimidex but am continuing the Budwig diet even though it recommends no chemicals, medications or supplements. The story of Dr. Budwig in a nutshell is that she was a 5 time Nobel prize nominee who had breast cancer in the 1950s. Her expertise was the bio-chemistry cell metabolism. She developed a protocol that cured her own cancer (she died in her 90's in 2003). Her protocol raised much controversy from the "cancer industry" because it was too simple and inexpensive that it could put them out of business. That said, it would be almost impossible today to void your life completely from all chemicals since they are in everything but I believe in her concept and encourage anyone to read-up on her.

  • NNBBFL
    NNBBFL Member Posts: 89
    edited May 2012

    Oh, I forgot to mention that sunning without sunscreen is a risk I am willing to take at this point given the statistics.

  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited May 2012

    I've had a number of questionable moles removed from my back because my dermatologist thought that maybe-perhaps-possibly-given time, they might potentially "turn".  I've never been a sun worshipper and I wear an SPF 45+ whenever I'm going to spend several hours outdoors.  But, before I spray it on, I get my 10-20 minutes in first.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    Thanks SelenaWolf for your explanation.  I'd never heard that phrase before.

    Again, I thank all of you who are sharing here and seem to realize that we all have differing opinions, experiences and respect for one another.  It's just sharing and you never know when someone will say something that another can take to another level if they so please.  For instance, this is the second or third time I've run across someone talking about the Budwig diet and so I'm going to check into it and maybe just take what I like and leave the rest (only because I believe in meds - but that's me).

  • MsBliss
    MsBliss Member Posts: 536
    edited May 2012

    Oh baby. I say front-load that D3 until you have a serum level of at least 50. 32 is considered normal, but for anyone with a history of cancer, it is too low.



    It is only my opinion but any oncologist that doesn't recommend a vitamin D test and supplementation if levels are too low is not up to date on the data.



    I maintain a level of at least 65ng/ml. At least.....

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    One foot out from under the tree made me laugh, I tried this too, my leegs, my face only, my feet.  Can;t get the back or shoulders in sun.  I also tried  the suntan through the screen door but understand taht doesn't give the benefits needed either.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    suntan through the screen door - funny DianeEssa.  Did you end up with a tan looking like a screen pattern?  LOL

  • Leia
    Leia Member Posts: 265
    edited May 2012

    NNBBFL,

    Thanks for writing about Budwig. I have been on the FOCC for 3+ years, now, and feel GREAT. 

    I only went on the Budwig FOCC in January, 2009, when I had a BIRAD 5 cancer diagnosis. After a mammo. Again. BIRAD 5 is Certain cancer.  After my 2006 2cm IDC. Cut out, with a Lumpectomy. 

    Yet, the January 2009 biopsy result, NO CANCER.  

    The doctors, were confused. The mammo said I had cancer, the biopsy said I didn't. Obviously, the biopsy was wrong, I needed an MRI-guided biopsy.  

    I said, No thanks. And just went on the FOCC. Which is Flax Seed Oil and Cottage Cheese. Blended up. And what that does is give your body massive amounts of Omega 3's. That strengthen your immune system. Which in the end, is what your body needs to fight any invader. Cancer, the common cold, And then, I found out about D3.

    What a combo. Omega 3's and D3.

    Although, in my case, the FOCC changed my life. Literally. I just became, calmer. What used to upset me, didn't, anymore. It is hard to explain. 

    And then, I met the D3. Which today, is 85. And my September, 2011 whole body Thermogram, totally negative.  

    I will only get thermograms, going forward.

    I feel great! 

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited May 2012

    I read about the Budwig Diet and had decided to try it until I came back NED. However, I could use a heaping dose of calmer!!!!

  • njprn
    njprn Member Posts: 39
    edited May 2012

    As has been mentioned in other posts although no clear research has been done, it HAS been observed that many women diagnosed with BC(esp TNBC) have been low in Vit D. I saw a nutrtionist who explained that D3 is what you want and that is over the counter. She told me 7000 IU/ day. My primary had ordered 50,000 IU which is D2,weekly and the pharmacist agreed so even drs and pharmacists aren't up on what's best. The nutritionist said 15 min of sun on face /arms bewtween 10am and 2pm (up north, I live in NH)was equivilent to 3,000 units. She said after that no real Vit D benefit so put on the sunscreen. I've been telling all my friends to ask for a level check since it is not part of routine blood work and is linked with many health issues. Shoot for at least 65 or more with BC. Oral is an alternative to the sun.

  • candygurl
    candygurl Member Posts: 130
    edited June 2012

    BUMP for Himalaya

  • candygurl
    candygurl Member Posts: 130
    edited June 2012

    Researchers following more than 500 BC patients found that women deficient in vitamin D were 94% more likely to see their cancer spread. and 73% more likely to die from cancer.

    Reduce breast cancer risk with vitamin D

    www.youtube.com/watch?v=jhV-2IhsQns

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited June 2012

    A new study.

    Vitamin D deficiency `may be behind disparities in cancer survival rates`

    "Research into the basic science of vitamin D has demonstrated profound effects on cell proliferation, cell differentiation, angiogenic tumour factors and cell cohesion. Each of these factors plays a major role in the evolution and progression of cancers."

  • wenweb
    wenweb Member Posts: 1,107
    edited June 2012
    Very interesting.  Thanks JoyLiesWithin.
  • Heidihill
    Heidihill Member Posts: 5,476
    edited June 2012

    I haven't read through this thread but am one of those who try to get my D from the sun. I also have a lot of pigment so it's a bit of a challenge. (Thanks for the link, Joy!) I don't get my blood tested anymore but have learned that pale for me means deficient and dark is good. The trick is to alternate the parts of the body exposed because the darker the skin gets the less UVB is absorbed. I shift my Vitamin D production venue this way. This is not backed by any research, just my own take on the matter. One other thing to think about is that you need cholesterol to make D3, so if you are low in cholesterol or taking statins, supplementing with D2 will not help you as much as taking D3. I am wondering if I should use organic lard as a moisturizer. Maybe this will help my skin make more D. The other thing I'm going to try is to expose the milk I usually drink to UV first to fortify it with more D3.

    As to how long you need to be exposed, this varies by skin type, latitude, longitude (?), altitude, cloud cover, surrounding surface, and time of year. Google "vitamin D calculator" to find out about how much time you need. I try to keep it short because I don't want wrinkles from getting too much UVA.

  • CancerStinks
    CancerStinks Member Posts: 84
    edited June 2012

    Hi HeidiHill, I'm very fair-skinned and have had some basal cell cancers but I have also decided to get about 15 minutes of sun for my Vit D3 in addition to my doctor ordered 5000 iu tablet (non-soy) plus a multi that has 1000 Vit D3 in it. In about 6 weeks, my level increased from 23 to 34 so I was happy, but it still isn't what the doc wants me to be (at least 40) so we will check it again in about 6 months. I am too afraid not to get my blood tested because I have a strong feeling that my low level Vit D and my cancer are linked and I want to make sure I am in the right "zone".  Of course I'd prefer to save the copay for the blood work so I am wondering how you have learned that tan means higher levels for you.  A good friend of mine is Japanese and her levels are rock bottom, yet her skin is much darker than mine. I know this is an individual thing but any insights are appreciated.  Also: thanks for the hint about the Vit D3 calculator.  I hadn't thought to google that but will.  Thanks.

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