I say yes, you say no, OR People are Strange

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2012

    Joy - the mammo really hurt on both sides today. I just wanted to avoid major surgery not keep them out of vanity or because I like them - I get freaked out for very minor surgery. My ILC did show up on mammo, so that was the only good thing. Having MRI's is SO much better.

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited April 2012

    Susie, I paid $400 for a MRI to make sure the BS knew just where the tumour was before surgery.  My 4cm tumour didn't even show on the CT!  So how are they supposed to know if we have mets?  I agree that a BMX is big surgery, but I couldn't get away with a lumpectomy.  I'm sorry for your pain.  It's not fair!

  • Momine
    Momine Member Posts: 7,859
    edited April 2012

    Covert, I have a really good and old friend, a lawyer no less and future member of parliament. He SWEARS by his faith healer and insisted that I must let him take me to see her. So I did. She can supposedly stave of metastasis and he credits her with curing his macular degeneration and DXing a friend's cancer correctly.

    It was an interesting experience, although I can't say that I will make a habit of it. 

  • Momine
    Momine Member Posts: 7,859
    edited April 2012

    Scoot, we agree. One of the things that bugs me is that when it is bark from the yew tree it is amazing natural medicine, but when the same substance is called Taxotere it is evil chemo from big pharma out ot kill us.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2012

    Joy - bargain - I pay $700 for MRI.

    Momine - when we were in Ireland last year, I saw Yew trees - I kissed them and thanked them :)

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2012

    Hairdresser was impressed with how well my hair has reacted to the treatment - just got a trim today - colour next week.

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited April 2012

    Ouch!!! Mine was in a clinic near RPAH Sydney in 2009.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2012

    My first one was $600 at the Wesley in 09. Last year it had gone up to 700. Today cost over 400 before medicare refund but their computers were slow, so I don't know how much I'll get back - they said they'll send me the receipts. I miss the safety net from the last 2 years, not that I want to go through rads again to reach it.

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited April 2012

    I fought the right mx with everything I had but reluctantly agreed it was best since I had six freakin' tumors that had gone undetected with mammo and ultrasound.  (MRI did the trick!)  Though I had no medical reason to do so, I had the left removed as well.  Good thing I did, too.  DCIS and LCIS throughout, plus ADH.  My breasts were just BAD.

    I need one of those t-shirts:  "Yes, they're fake.  The real ones tried to kill me!"

    Momine - great point!  But you see, evil big pharma has corrupted the natural substance and turned it into poison.  Wholly natural is not necessarily good for you either, though.  Cyanide (naturally occurring in peach pits, apple seeds, and other foods), snake and spider venom, poison ivy....the list of bad stuff goes on and on. That's why scientific research is so important - what's the dosage that cures the ill without killing the patient?  What delivery method best accomplishes that?  What modifications to the original are necessary?

    I read a series of books in which Mother Nature was sentient and weather systems her first line of defense against humans.  Looks like she has other methods of protecting herself, too! 

    Happy lucky good morning to all!

    Scoooooot

  • lassie11
    lassie11 Member Posts: 1,500
    edited April 2012

    Perhaps I am odd, but I find my check ups reassuring. Once a year I have a mammogram and once a year an MRI, spaced so that they are six months apart (kinda sorta). I see the oncologist twice a year and the surgeon once a year (got promoted from twice a year with him last time.)   This way if my body decides to have a third go with BC, it will not have long to get started before it gets stopped. Since this is Canada, I have no idea how much any of those things cost and just do what is medically indicated.

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited April 2012

    We still get our chests examined by the oncologist Lassie, but there's not much to it due to a lack of tissue.  In Australia most things are covered but not MRI's yet.  I'm not sure about those with private insurance.

    Scoot, I know just what you mean.  I sit on the fence more as I worry that there may be a genuine  useful treatment going untested and unused.  What if many are progressing when they could be saved?  So really it's the same concern that we both have.  If only the researchers could put all the alternatives to the test and settle it once and for all.That's why I'm glad they're testing some diets now.  Maybe Metformin will change things, I have my fingers crossed that it will really work on those cancer stem cells.

  • YramAL
    YramAL Member Posts: 1,651
    edited April 2012

    A BMX is not a 100% solution. My sister-in-law had a BMX for many of the same reasons stated above and her cancer still came back, in what little breast tissue she has left. She doesn't have mammograms-her new cancer was caught on an MRI.

    Mary 

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited April 2012
    I read that earlier Mary, very scary. Frown  They can never get 100% of tissue. I have a lipoma on my ribcage or that's what they say it is.  It seems there's no guarantees whatever path we choose so we just have to hope for the best and feel confident that our decision is right for us and our lifestyle.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Scoot

    same thing true for me.  Had the left one "loped" off by CHOICE - right one was the one with several tumors - had to FIGHT for it.  Dr ( a woman) kept saying health insurance might now cover, etc. I prevailed - and the pathology was not good on it.

    WHEW!  THANK DOG for that GUT instinct.  Now I'd like to get rid of these very small, by my choice implants, cuz even after 5 years, they just feel WEIRD, esp. when exercising - just weird. UCK!

    ETA: BREN - just went back and read the last few pages - so sorry about Tim's knee.  Was so teary about scuttlers, didn't read many other posts.  Hope he's doing well - 

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited April 2012

    Good Morning Everyone!

    It's another chilly day in SW Virginia.  Perfect weather for Athena!

    Sunflowers ... Tim is doing better, but his knee is still bothering him.  I guess it takes awhile for the swelling to go down.

    Scoot .. My cancer was found on mammogram.  I am so fortunate for that.  The first couple of years I had mammo's every six months, now I've graduated to once a year.

    Susie .. The only MRI I've ever had was on my neck.  I hated every minute of it. 

    Mary .. Keeping your SIL in my thoughts.  I know her appointment is later this month.

    Joy .. I was given a choice on my treatment ... mastectomy or lumpectomy and radiation.  I didn't question the fact that I was only given two choices until after the fact.

    Hope everyone has a real nice day,

    Bren

  • pip57
    pip57 Member Posts: 12,401
    edited April 2012

    Hi everyone.  Just popping in to catch up on my friends. Hugs to Scuttlers.  Bren, glad Tim is okay.  I am worried about Blue.  Is she just taking a breather?  

    I am almost at my 5 year anniversary.  Falls on the day of my deceased Dad's birthday.  I plan to celebrate...hope I don't jinx it! 

  • Momine
    Momine Member Posts: 7,859
    edited April 2012

    Scoot, yes, and there is also an issue of predictability, strength etc if you are dealing with "raw" natural medicine.

    As far as your BMX, I had exactly the same thing happen. Lobbied to have lefty removed along with the sick breast. Several docs thought it was overkill, since lefty was supposedly clean of cancer (according to mammo, ultrasound, MRI and CT-scan). However, like yours it had LCIS, DCIS and ADH. I have absolutely no regrets. 

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited April 2012

    That damned cancer is sneaky and the detection methods we have aren't very accurate.  Isn't that sad.  When I was going through twice-yearly mammos before my diagnosis, I had no idea that mammos could miss something.  Or 6 somethings, in my case.  They actually blamed ME after my diagnosis:  "Why is your tissue so dense!  It's hard to see anything in there!"  No complaints before that, though.  

    *headdesk* 

  • Momine
    Momine Member Posts: 7,859
    edited April 2012

    Yep, Scoot, that was one of the slightly shocking discoveries I made through this ordeal - how little they can actually see with all their fancy machines. I figure it is all a bit of a crap shoot. In an odd way I find it sort of liberating. No real sense in worrying about the outcome of a crap shoot.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2012

    I should have had BMX given I had bilateral bc, but my new surgeon respected my wishes. I don't think I could have coped after the 2 dx a year apart - seems like they missed the second one the year before. I wanted to let the Aromasin/Arimidex do it's job.

    Lassie - that's what I'm doing alternate screening every 6 months.

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited April 2012

    Hey, PiP!!!  I'm just popping in for the first time in a long time, too!  How fortuitous!

    (winking at Scootaloo: For-Too-itous! or however your horsie spells his name!)

    Huge congratulations to Covertanjou!

    And huge hugs to ((((((((((((((((((Scuttlers)))))))))))))))))).

    And to all!

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2012

    Hi Ann - we missed you.

    Still missing Blue - hugs

  • CherrylH
    CherrylH Member Posts: 1,077
    edited April 2012
    Susie, I understand from a learned source on another thread, that you folks down under live on meat only. You misled us with your lovely fish dinner storiesInnocent
  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2012

    I had to laugh when I read that - we actually eat a lot of lamb and chicken - we only eat beef once a week. My mother went to the US to visit my brother a year or so ago and she was complaining about the margarine being white and the cheese being orange - haven't seen that here. She also was critical of the vegetables available. Also, I have my lovely farmers markets I can go to. We have excellent access to organic foods too - even in our big supermarkets. My supermarket only stocks hormone free beef now, they also have free range chicken.

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited April 2012

    Meat is much cheaper to buy here in Australia than in the UK.  Or so our English visitors inform us as they gorge on our meat.  We certainly seem to love our meat barbecues. Our cattle and sheep roam across vast cattle stations, not on cramped feedlots.  I personally rarely eat meat.  I eat a lot of oily fish, and vegetarian foods at other times as I'm an ethical semi-vegetarian.  I might rarely eat meat when out to get the nutrients I may be missing, but I won't buy meat.  We're all individuals.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2012

    In a terrific mood - probably build up after yesterday's mammo. Just read the report - they are worried about a small area of calcification in the scar area and want to watch it, but think it's related to the scar tissue. MRI in 6 months, so that will show any nasty things up.

  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited April 2012

    Yay!  Good news, susie!

    Joy, I agree totally.  We're all individuals and need to respect each other's choices.  Until they start infringing on MY choices, that is!  :-)  

    Good morning, all! 

  • pip57
    pip57 Member Posts: 12,401
    edited April 2012

    Winking back at you Ann.  

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited April 2012

    Good Afternoon Everybody!

    It's a perfect day for Athena ... low humidity and about 65 degrees out.  Too chilly for me though.  I'm ready for it to warm up.

    Pip and Ann ... It's so good to see you. I think of you both often and remember all the fun we had together at NOTL.

    Susie .. I'm glad you got the all clear on your mammogram.

    Scoot .. Can't wait to hear more about your new adventures!  Maybe we'll need to trade in our scooters for horses and be a real posse.  I think chaps are so cute. 

    I hope everyone is having a great Friday.

    hugs,

    Bren

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2012

    I am worried now I read the report - I knew they were looking a one particular spot - guess we'll just have to wait and see.

    It's so nice to cuddle up under a blanket at night now - we have a nice light one that is SO warm.

    Poppy is now sleeping in her warm bed with a light blankie over her - she's in 7th heaven. Still gets on our bed in the early hours waiting for me to wake up and let her out.

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